the 2 fat Firefighters

3 AM on a Monday. I awoke to the most intense cold I’d ever experienced. I was shaking violently, uncontrollably. My teeth were chattering so badly I feared I would break a tooth. I was on the couch where I had fallen asleep watching the game. I frantically grabbed for my blanket. Covering myself, I begged aloud for it to stop. It was no relief. I somehow mustered the strength to get up and trudge up the stairs, hoping my bed would provide some relief.
I was beyond cold, I was scared.
I crawled into bed and wrapped myself in the blankets, everything had to be covered down to the last toe. The trembling continued for what seemed an eternity. I had never experienced anything like it. Finally, it stopped.

Cold. So cold. The thought of a finger or a toe escaping my cocoon absolutely terrified me. I knew this wasn’t normal, something was terribly wrong with me. I needed to yell out to my mother downstairs; I needed to reach for my phone to dial 911. I needed to do something. But I didn’t. It was just too overwhelming and so very, very cold.
You may die, a voice in my head persisted.
“I don’t care”, I fired back.

___________________________________________________________________________________________

“Bill, you need to wake up! You’re going to b e late for dialysis!” my mother said in an elevated, scared voice. I faintly recall her doing this several times. I vaguely remember sitting up once in bed, when my blanket fell off I grabbed it and fell back into bed. The next thing I remember was 2 heavy Firefighters carrying me downstairs.

The next thing I would remember was waking up in the ICU. Struggling to focus through the bright lights, I saw several nurses bustling about the room and my mother and ex-wife in the back, chins on hands.
“Where are the 2 fat Firemen?” I croaked.
My Mother joyfully exclaimed to my wife “Yup, he’s fine.”

In the 6 days I spent in ICU and the 5 spent on the Cardiac floor I had plenty of time to gather the pieces. I was haunted by the grim faces of my family, by the cautious explanations of the medical team. I had a feeling that I had been to the 9th gate of Hell and no-one was telling me how bad it really was. I knew that I had lost 2 full days and I wanted answers. Fortunately, my ex-wife stepped up to the plate.

I had gotten an infection in the dialysis port in my chest.
I had gone on 2 ambulance rides. One to the local, useless hospital that was unequipped to treat me. They iced me down to control my 104.9 degree fever and shipped me 60 miles to a better hospital. I don’t remember one second of those rides.
I had been sedated with a breathing tube and catheter as antibiotics were pumped through me.
The port in my chest had been surgically removed and I had been given dialysis through a temporary access in my groin. You would think I would remember that.
At one point I tried to rip my breathing tube out of my throat. It took a team of very strong nurses to restrain and sedate me. I did this in front of my entire family.
My wife was preparing to tell my children that I was gone. My DNR had been discussed. It was that close.
I had Sepsis, at a 104.9 fever a man my age has a high risk of brain damage. When I asked where the 2 fat Firefighters were, I had proved that I was indeed fine.
Last, and perhaps most significant, and I say this without drama…I almost died.

In my 11 day stay, I was haunted by the unknowns. When my ex filled me in on all of the unpleasant details I had more questions than answers. Sure, the doctors told me the essentials, but I’m thankful for family for telling me the truth and for their support.

____________________________________________________________________________________________
Once I was alert I began my recovery. It’s what I do. The doctor’s were astounded at how fast I bounced back. I don’t know what the expected recovery time is, but I beat it in street shoes. After 8 days in bed, I was told that I would be working with Physical Therapy to see if I needed to go to a Rehabilitation center.

The next morning I was asked to get out of bed and try to walk. It was amazing the amount of strength it took just to sit up. I was in a complete state of Atrophy. With the assistance of 2 therapists, I attempted to walk the hallway. I was weak, dizzy, unable to support my own weight. I made it 6 steps before needing a wheelchair. It is astounding how much strength I lost by being bed-ridden.
I was told that my going home was contingent upon my physical strength and ability to walk out of there.
By the end of the day I was able to walk the hallway 6 times unassisted. The PT Therapists were floored. I was sent home 2 days later.

I have been home for a week. Recovery is slow. I’m weak and still haunted by how close I came to a dirt nap and by the unknowns. I have no memory of almost 3 days and it bothers me deeply. However, nothing bothers me more than being visited by my Mom’s best friend, who was at the hospital with my Mom when I was admitted. Her first words to me were,
“I have to tell you, I never thought I’d see you again.”

Yeah, that’s not something you hear often. Nor do you want to.

 

 

Little things

Sometimes it takes the littlest things in life to make your day. All it takes is the right attitude, a pleasant look on your face and the awareness to look for inspiration in every aspect of your life as you walk the world doing your thing.

Today, it was a friendly cashier at the market. I had a problem with my card and she happily and patiently fixed it for me.

As a bonus, as I was walking out of the store I smiled at a lovely woman as we crossed paths. It flashed through my mind that she was way out of my league. But as we passed we made extended eye contact and she gave me a smile that will tickle my loins for the rest of the day.

Look around you people, the good stuff is out there.

Peace and love to all

where were you on that fateful day?

17 years ago to the day
I can’t see the world
quite the same way
disgusted by how far
some will go
to destroy those
they don’t even know
it escapes me
it really does
the hatred and venom
their twisted cause
For some the anger has faded
not me
I’m eternally jaded
where were you?
on that fateful morn
when buildings fell
and hearts were torn
I still look to the sky
I stop and ask myself why
airplanes staying in the air
are no longer a given
our only crime?
our way of living
lives changed forever
innocence was lost
the widows and orphans
such a tremendous cost
if broken spirits were the goal
the bastards failed
Old Glory’s still on her pole
It brought out the best in us
the tables were turned
we rose to the occasion
as the buildings burned
First Responder’s responded
with soldiers and regular Joe
reacted with a fierce resolve
that we had yet to show
for a short, glorious time
we were all brothers
put aside our differences
respected each other
came together as one
hatred can only conquer
if you choose to let it
hang your head today
and always remember
The weight of your heart
on this day in September
mourn for the lost
the brave and the strong
celebrate those that fight for us
all the year long
on this anniversary
of an event so heinous
may faith, hope and charity
always sustain us

you don’t know

when you were young

your favorite line

was “Dad, you don’t know”

what you don’t know

there was a night

not long ago

I sat on the edge
of my bed
of the universe

one in the chamber

cursed glass of whiskey
liquid false courage

in the other hand

disgusted with yesterday

bored with today

uninterested in tomorrow

desperately seeking

a reason

to carry on

I’d lost my joy

the will to seek it

where once was strength

a cavernous

anguished

aching gash

where was the zeal?

missing the real

existing
but not living

tears of pain roll

down my unshaven cheek

one, just one

fucking reason I seek

to not end it all

the safety off

just drunk enough

sick enough

to call Bullshit

on this timed-out
worn-out
overplayed phase
I call my life

then I think of you

my precious child

your first steps
sun in your hair

your infinite

infectious smile

golden and pure soul

my heart yearns

stomach turns
my mind scolds me

at the thought
of hurting you

if I was to shed

this mortal shell

in the throes
of my selfish pain

I would crush you

my dear child

I had forgotten 

in a selfless moment

your love

ceaseless adoration

and your words

that I am

your favorite

person

in the world

 

I couldn’t pull it
the beckoning trigger

for I had vowed to myself 

in a lighter hour

I would never

cause you

a life of pain

in the name

of ending mine

The End of Faith? — Tom Being Tom

Faith. Many of us have struggled with it our entire lives. Many of us will never truly reconcile the notion of a higher power. Unfortunately, we also fall terribly short in being able to discuss our differences on this complex and polarizing subject.

And then Tom of Tom Being Tom wrote this. Which I will now share for your reading pleasure. Do you follow Tom? If not I only have one question…why wouldn’t you?

I don’t believe in gods. Those of you who know me know that well, and those of you with even a passing sense of who I am probably understand that, too. 38 more words

via The End of Faith? — Tom Being Tom

Song lyric Sunday

Some of you may know this song by heart, some may have never heard it. It is one of those songs that proves the adage that the music you listen to in your formative years will always be sentimental to you, if not remain your favorite music. The latter has proven true for me, and in times when I lack clarity or need a reminder of what drives the blood in my veins I play those songs.

Bob Seger’s Like a Rock is the title track of his ’86 album that cemented my love of Seger’s gritty, honest, relateable songs. This song, before it became a Chevy commercial at least, was a staple in my daily playlist.

Now, as I find myself weakened and looking for strength I love this song more than ever. It reminds me of the days when I was young, strong and carefree. Of the days when I walked with my shoulders back and my chest out. When I swung an axe in the crux of a cold October afternoon in just a T shirt, my brow sweaty and my muscles tight, plowing through the woodpile my dad and I had just created. My friends were all playing football but I committed myself to the task at hand. Like a rock.

I miss that feeling, I want it back. I hope to get it back. When I hear this song I am reminded of better days and given hope that they will return.

Give it a listen will ya?

Stood there boldly
Sweatin’ in the sun
Felt like a million
Felt like number one
The height of summer
I’d never felt that strong
Like a rock

I was eighteen
Didn’t have a care
Working for peanuts
Not a dime to spare
But I was lean and
Solid everywhere
Like a rock

My hands were steady
My eyes were clear and bright
My walk had purpose
My steps were quick and light
And I held firmly
To what I felt was right
Like a rock

Like a rock, I was strong as I could be
Like a rock, nothin’ ever got to me
Like a rock, I was something to see
Like a rock

And I stood arrow straight
Unencumbered by the weight
Of all these hustlers and their schemes
I stood proud, I stood tall
High above it all
I still believed in my dreams

Twenty years now
Where’d they go?
Twenty years
I don’t know
I sit and I wonder sometimes
Where they’ve gone

And sometimes late at night
When I’m bathed in the firelight
The moon comes callin’ a ghostly white
And I recall
I recall

Like a rock, chargin’ from the gate
Like a rock, carryin’ the weight
Like a rock

Like a rock, the sun upon my skin
Like a rock, hard against the wind
Like a rock, I see myself again
Like a rock

Do you remember?

Do you remember
the racing heart
the angst
the fear
of making
a move
that can never
be undone?
To Hell
with everyone
they don’t
understand
what we had
and could be
Part of me
stood at the brink
of no return

I charged on
I shocked you
rocked you
knocked you
off your feet
I rolled the dice
put it all
on Red
that you
were the one
The stakes high
the timing nigh
I made my move

You later would say
it was the day
you had waited
with breath baited
it was then
that I knew
That I would
never
be good enough
for you
If it matters

I remember

My special purpose

On Thursday I entered the dialysis clinic with my bag containing a blanket, books, my laptop, headphones and half of the trepidation I had felt on my first visit. I was greeted by an entirely different Nursing Staff, which gave me the opportunity to drop my “oil change” joke 💀. It was fairly well received. I’m going to ask for a tire rotation next time to test the waters.

I already know the routine. I weighed in and sat down while 2 nurses, 2 potentially new sounding boards for my repertoire of Dad jokes, went through an impressive routine of programming the machine and unwrapping needles and fastening clamps and god knows what else. It really is something to watch, it must have taken a hell of a lot of training. When they were done and I was hooked up, they went on to other patients and I settled in for 3 boring hours.

I wasn’t in the mood for TV and not ready to read so I looked around the room. There are 12 stations in the room and every chair was full. I recognized most of the patients in the room from my first visit. The staff was all new to me. In particular I noticed a thin, older woman with a buzz cut making the rounds of the patients. I figured her to be the Nurse Manager. She was making her way towards me. After spending a few minutes with the gentleman next to me she came over and introduced herself as Kim, the clinic’s Social Worker. She knew who I was, had researched my case and apparently was looking forward to meeting me. Part of me wishes I could say the same. I respect social workers and what they do, but their goal is to get me talking about myself and my condition and how it has affected me and everything else that I don’t want to talk about. I deal well by not talking about “it”. Social workers chew away at my armor.

Kim sat down next to me and asked me a few questions about my overall reaction to the dialysis process, was I feeling better? Did I have any issues or complaints? Standard stuff. I immediately found her east to talk to. I had been anticipating an interview and instead found myself in a conversation. I certainly had time so I decided to drop my guard a bit and see where it goes.

The questions flowed easily from her and although it was standard fare; how long have I been sick; my marital status and my living situation. I answered all of them honestly and in some detail. She was taken back by my story, especially at the saga of my marriage collapsing. She kept asking, in different ways, if there was a chance at reconciliation and I continued to say no. She was surprised at my acceptance of the situation but dropped the subject. She then asked me if I was working, would I be able to or plan to in the future. I explained my situation with SSDI and that seemed to satisfy her. She then asked me what I used to do for work.

I found myself telling her all about my most recent position at the finance company and of all of the things I loved about it. I don’t know how long I spoke of it but when I was done and looked at her she looked captivated.
“If you could see the look in your eyes as you talk about that job” she said.
I had actually teared up as I had told her my tale.
“It meant a lot to me, Kim. You will never hear me utter a word of hubris, but when it came to that job I was damn good at it. I miss it.”
“I can tell.”

The conversation eventually wound down and she moved on to another patient. The emotional reaction to talking of my career lingered on. I explored it deeper and had an epiphany of sorts. Of all of the things I hate about my current situation is that I am no longer needed by people in my life. My family no longer seeks or expects support from me. I no longer go to work each day and try, in some small way. to make a difference in someone’s life. See, I had no throttle control before this happened. I was “all in” on life with family and career. I was active as possible as a parent and a husband, Teaching, mentoring and loving my kids while giving what remained of my ass to my job was what I lived for. I was a doer, a guy that made shit happen. A guy people came to. I was a great father, husband, friend and co-worker. I rode bikes and walked miles in the name of charity. I donated money I didn’t have and didn’t care.

Now I have none of it. Maybe the pace proved too much for my body.

I have beaten to death my family life on this blog and it is well documented that I love my family with all of my earthly strength. But I haven’t discussed work often and it was a big part of who I was. Men have often been accused of strongly tying their self-worth to their profession. I was guilty of this. I vowed never to be the guy who called in sick and no one noticed. My job, to quote Steve Martin in ” The Jerk”, I had found my special purpose.

The days when people came to me for advice; when calls were transferred to me because no one else knew enough or how to talk to an irate customer; having the owner boast that you are the “best in the business”; being given a seemingly impossible situation and finding a way to fix it. I have such fond memories of talking to people where the conversation started as a confrontation and ended with a “thank you.” It wasn’t that I was particularly skilled at everything, I just knew how to talk to people and I really, genuinely cared about them. I was proud to go home many days of the week with the knowledge that I actually may have helped someone through a tough day. I don’t have that anymore.

I have tried to be as useful as possible since the collapse. I volunteer at the food bank, I help some of the older people in town with basic chores. I don’t charge them, they don’t have the money. I am kind to my fellow man and I put out zero negative energy into the universe. I hope to become healthy enough to volunteer at a camp for the families of terminally ill children next summer. I am being the best person I can be.

But I don’t feel needed. I can’t believe how much I miss that feeling.

My week thus far…

Friday I received a call from my new Nephrologist. He had spoken to my Transplant team and it was decided that dialysis was needed immediately, despite the fact that the fistula I had recently had installed was not mature yet. He had made arrangements for me to report to a local hospital on Monday morning at 10 to have a temporary “port” installed. It was also scheduled that I would have my first dialysis treatment the next day. They clearly weren’t playing around.

I spent the weekend in a bit of a funk. Despite knowing that dialysis was inevitable, I still dreaded it. Despite all accounts that it would make me feel better, I had this horrible picture in my head of what it would be like. I was also dreading the surgery.

I reported at 9:45 to registration and was immediately led by the charming and matronly Alicia to the surgical prep area. I dutifully removed my clothes and signed all of the paperwork that I commonly refer to as the “I will not sue your ass if you fuck me up on the table” forms. Alicia was great, very comforting as she explained the process to me. It sounded rather unpleasant but hell, I would be knocked out, right?
“So, who is driving you home?” Alicia asked me.
“Ummmm….I am.”
“Oh dear.” Alicia replied.
“Oh dear, what?” I asked incredulously.
“If you drive yourself home after anesthesia you will be driving under the influence of a narcotic. Your surgery will have to be done with a local only.”
“When I talked to Doc on Friday he gave me the choice of driving myself or getting a ride. Not to be a bother I didn’t ask my mother. The info you just gave me would have been helpful.”
“Sorry, hun.”

I was wheeled into the Surgical room. I was injected with a local and a numbing agent. A tent was put over my face and I was told to lean my head as far to the left as possible. I was then told to relax. Yeah, right. My surgeon then, with the assistance of a radiologist, snaked a tube through my neck, into a major vein stemming from my heart and then pulled it back out my chest. A tube was then attached to my chest. It’s there until my fistula is ready. I felt everything. I can only describe it as having a giant fish hook inserted into my neck and pulled through my chest. My head was screaming, my neck was killing me and the entry point at my neck was excruciating.

Then I was told that it was all over.

“Good job.” I said to the surgeon.
“I should say the same to you.” She replied. “I’ve never done this surgery without full anasthesia. You did great. I’d want to be knocked out until Christmas to do what you just did.”
“Thanks. But remember that there is a fine difference between brave and stupid.”

I was sent home with no painkillers but Tylenol. I was up all night in excruciating pain.

The next morning I arrived at Dialysis. When I pulled into the parking lot part of me wanted to put it in reverse and explore other options. Then I went in anyways.

A sign at the door said ring bell for assistance. As soon as I did a tiny nurse wrapped in scrubs and a mask opened the door and greeted me by name. She was expecting me. To break the ice I said “Hi, I’m here for my oil and filter change.” My tiny nurse laughed.

I went inside. My first reaction was that everyone looked so sick. Yes, I know that I am sick but I really don’t look it. That’s no accident. The patients in this room were fragile, thin, asleep. Not one person was anywhere close to my age. The gentleman next to me looked just like my father…a month before he died.

All in all, it wasn’t too bad. I have painted a terrible picture of dialysis when in fact I did feel a little better when I left. In a 2 1/2 hour session I lost 3 lbs of fluid. That’s a good thing. I’m easily carrying 20 lbs of fluid that is doing nothing but putting a strain on my heart. The only thing I don’t like is I’ve never sat in a chair for 4 hours before. By Saturday I will be up to 4 hour sessions. But I’ll manage. I had a TV, headphones. a blanket and a fucking great book written by a fellow blogger that I am almost done with.

I can do this.

Now if I can only get used to this turkey baster sticking out of my shirt and the constant bleeding at the surgical site I will be just fine.

Everyone has been treating me like I’m going somewhere. Allow me to take this opportunity to tell you that I’m not. I still have a lot of shit to do.