Coping

I have been feeling pretty good lately. Oh shit did I just jinx myself?
I’ve been consistently active lately. That’s why I’ve been feeling ok.

My definition of good, when I say I’m feeling good, probably differs from yours. There are days that I get out of bed and my legs tell me what kind of day I’m going to have. If my legs feel like I have bags of cement tied to them it means that I’m not off to a good start but all hope is not lost. It is those days that I expend all the mental energy that I can muster to make it through whatever I need to do. Errands, etc. If I have nothing that I need to do, I sigh in relief. I used to beat myself up over the do nothing days but I’ve given myself a break. I have limitations and sometimes I can’t come out to play.

A day when my legs feel good are the days that I almost, I can’t stress the almost enough here, feel normal. I hate that word don’t you? It means that I have some spoons in the drawer and that I have a limited amount of time to do something that requires me to go out in the world and be among people. The drawer could run out of spoons at any time and I needed to be near a bench when the spoons were gone. There will be days when I go strong. On those days I overdo it without exception. There is nothing to be gained in overdoing it because the next day I will certainly suffer. Cramps, fatigue and a general largess will leave me sofa-bound for sure. But I will smile a bit knowing that I did something that day.

One of the hardest things I’ve ever had to admit to myself is that I am sick. Sick isn’t always visible. That’s because we don’t want you to see. We want to look normal. We smile through pain and push on when our bodies beg us to stop. I always thought I was special. I thought that I could fake my way through feeling the effects of Chronic Kidney Disease. I couldn’t. I later thought that I could endure dialysis without experiencing the effects that others do. I couldn’t. So I was forced to admit, in addition to being sick, that I am in fact deteriorating. Deteriorating to the point that I fear it is not long before I’m unable to do the things that make me happy and keep me sane.
This has been haunting me.

So many people have told me to be strong, that I have so much to live for. This I once tragically forgot momentarily and almost made the mistake of all mistakes. But it is now at the forefront of my brain, the knowledge that to end my life would cause a lot of pain for some people. I don’t have that in me. The thoughts of seeing 4 weddings, welcoming grand babies into the family, listening to music, and doing every possible activity that puts a smile on my face do indeed give me something to live for. But…my brain constantly screams at me that the most important thing to me needs to be quality of life.

It’s not selfish despite the obvious implications. Milestones in life are awesome, but the pain is still there while you’re waiting for them to happen. I’m wiped out, my hands are cramping, I stopped feeling sensation in my feet about 3 hours ago (Did I mention that I now have Neuropathy?),my legs are swollen from the knee down and my dialysis port on my left forearm is throbbing. It’s unlikely that I will sleep tonight and when 3 AM rolls around it will be me and the pain and exhaustion. Trust me, at that hour in that condition the last fucking thing you are thinking about is giving away brides and bouncing a baby on your knee. It is the witching hour and the dark thoughts fight for dominance.
I wish nights like that on nobody, not my worst sworn enemy.

All that aside, with the exception of the occasional bouts of insomnia, I’ve been out in the world and accomplishing things. I’ve been running a successful little side business cleaning cars. It kicks the crap out of me almost every time but it’s good money.
I bought a brand new Harley Road King. It is the bike I’ve always wanted. When I ride I have a smile from ear to ear on my face.
We may be getting a place in Florida. I have the opportunity to stay down there all winter should I want to. That has been giving me hope to carry on.
I have a fairly active love life right now. 3 women who are actually interested in me. Problem is that I still want the married one and I’m willing to wait and see what happens. She certainly gives me a reason to look on the bright side.

It’s been a hard road back from my fall from grace. But there have been some lessons learned and coping mechanisms formed. For now at least I’m on a good road.

But the pain is still there…

How many?

Just how many comebacks are allotted to one person before God says
you know what? It’s someone else’s turn.”

I have had so many comebacks that I struggle with the notion of worthiness. A traumatic head injury when I was a child. A near-fatal motorcycle accident as a teenager. Cancer at 31. End stage renal disease that started when I was 17. 2 Staph infections, 2 transplants. I came back from all of them stronger than ever. Other than Scottish heritage, I have no other explanation for my apparent indestructability. Due to the overwhelming good fortune I have experienced I carry around a lot of emotional baggage. Between my periodic bouts with anxiety, the spectre of depression during what I call the “dialysis days” that still haunt me (probably because it was so uncharacteristic of me), the anger over losing my first transplant after only 5 years and the myriad of other shit sandwiches I’ve been forced to eat in the name of my health, I now carry the weight of gratitude. And if I don’t continuously act on that gratitude then you can add guilt to the plethora of heavy emotions I carry.

I know that may sound odd, to portray a wonderful emotion like gratitude as if it were a negative. It certainly isn’t a bad thing at all, I am simply saying that it is as heavy as any other emotion. If one is truly grateful, that gratitude should be present in everything he does going forward. I can’t speak for anyone but myself but as a truly grateful person I feel compelled to incorporate it into everything that I do.

I hope it’s not just a phase. I hope that this feeling of deep gratitude and desire to be worthy of the gifts that I have been granted never fades. I think that after all of these years I have found my calling. I will leave the pursuit of wealth and power to the rest of the world, I will keep it small and local as I share the wisdom that only a life of setbacks and comebacks can provide.

It’s the very least that the Comeback Kid can do.

Depends on how you look at it

I have been in the clutches of a identity crisis since my stay in the Boobie Hatch (it was only 2 nights but it sucked enough for a week) and it has really taken a toll on me. My breakdown was very uncharacteristic, I’m not a person who has ever seriously considered taking my own life. I’ve always thought it selfish with the emotional burden being passed on to those who loved them.
Then one day it was all I could think of. The hurt that I was going to drop on the people that care about me never crossed my mind. That is one of the hardest things I have had to reconcile.

As any father can attest, A man always wants to be a part of his kids’ lives. I work hard at this, to be in any capacity they will let me. I held off on getting divorced until the kids were older for fear of having access to them cut back. I didn’t want to miss anything. That has never changed. So how did I forget that?

Let’s talk about my oldest. Bright, strong, willful and hard-working. I have an amazing relationship with her now. I didn’t always. There was a time when she was much younger, around 8, that we fought terribly. I began to worry that she and I may never get along. I feared the fighting (she was very combative) would forever taint our relationship. Then I had a horrible nightmare in which I found myself looking through a glass enclosure watching my daughter. She was a toddler, not 8 as in real life. I was pounding on the glass and she couldn’t hear me. The takeaway was that she was in some sort of jail and I couldn’t talk to her. I woke up in tears. It was that time that I committed to fix my relationship with her and be the adult. It worked. This amazing girl is smart, strong, has a great job, just bought a house and has a great boyfriend. I look forward to her wedding.
Yet I was temporarily willing to miss it.

My oldest boy. Glued to my hip from the day he was born. There was a time when he couldn’t sleep unless he was lying on my chest. For 6 months of colic, I was the only thing to soothe him. I lost a ton of sleep but we formed a powerful bond. Any father would cherish the way a child looks at them as if they are the world, I am no exception. He is now a kind, charming young man with a great girlfriend, a bunch of friends and a good job. He is going places.
To think that I would want to hurt such a fine young man.

My youngest boy. Just 21. He was a struggle to get along with for a long time. Always a happy kid with lots of friends, he and I clashed all the time and I still don’t know why. But I worked hard at our relationship and I ate a lot of shitburgers in the interest of getting along. But we weren’t close for a long time. Then it turned around in his early teens. I always had great concern about his future. He wasn’t like his two older siblings in so many ways. As it turns, he is already as successful if not more so than them. Despite being very smart, he chose not to go to college. I had no problem with that. He now works for a great company that values him and offers him a future. He makes good money. He lives with his amazing girlfriend who I know he is going to marry. He is smart, somewhat charming and worldly beyond his years.
To think that with one bullet I was willing to forgo the opportunity to see the great things he will accomplish.

My youngest. She is no less unique than her siblings. Just 19, she is taking a different course with her life. Smart, sassy, fiercely independent with a huge heart, we share a powerful and unshakeable bond. She loves to talk about me to anyone who will listen about how I’m her best friend. She’s on a different course than her siblings. She wasn’t able to get a job at 15 as her siblings did. The reasons are too many to discuss, but she was needed at home. She started school. but the virtual model forced on her by COVID didn’t work for her so she dropped out temporarily. She is working full time now. She’ll go back I know it. If she doesn’t, that’s ok also. What’s important to me is that she never loses her shine, to me she lights up the room when she enters it and when she leaves it is as if the sun went behind the clouds. Close doesn’t begin to cover our relationship.
If I was to harm myself she would be devastated.

My mom knows what almost happened. She knows the whole story. She couldn’t believe that I was in such a dark place with all of the wonderful people in my life to support me. My mom and I are close and the relationship is only strained by one thing, my health. I tend to downplay my illness with her because I don’t want our relationship to be one of caretaker and patient. Mom iwas designated by God a caretaker, willing or not. She cared for her father, her mother and then my father as they dealt with assorted illnesses. She gave up her career and many years of her life to be a caretaker. I refuse to let her slip into that role with me. I want her to enjoy her life.
I can’t imagine what it would do to her if I harmed myself. I’m all she has left.

These thoughts have haunted me but the lesson has been learned. There are others to think about when making such drastic decisions, and there is a lot to be said for remembering what it is you’re looking forward to. Weddings, Grandchildren, communions, baseball and soccer games, the list goes on to infinity. Or maybe just living long enough to share the wisdom I’ve acquired over my turbulent life.

As I further contemplate this it occurred to me that when you add up the simple pleasures in life that we often take for granted it forms another powerful argument to face the day.
Music, what can possibly soothe your soul like your favorite song(s)? The song that brings you to that mental happy place.
Your favorite food that not only tastes amazing but has the dual function of comfort food.
The love of a pet, or patting a random dog.
Again, the list can go on for infinity.

So many good things in life. It is so easy to forget them when you are overthinking the bad things. I need to live by this.

catching up

I have been away for a long time. I don’t think anyone really noticed, my readership was at a all time low despite regular postings. It was about the time that I started telling my story. Admittedly, it wasn’t riveting stuff and I should have storyboarded it first. I’m still writing it but I haven’t been posting it. As they say, eventually you realize that nobody gives a shit.
But it’s ok. It goes both ways. I’ve been too busy to read my faithful followers and I can do better. And I will.

I have had a crippling case of writer’s block, despite being extremely busy. My health has been spotty, I feel pretty weak and lack motivation most days. But I have tried to stay active as possible and I have managed to maintain my detailing side business.

Masonry has largely consumed my time. I was elected Master of my Lodge last year and I was put in office at a critical time, we had been given one year to make adjustments and improvements or they would close us. I’m happy to report that we saved it in a big way and we roared back to full functionality by September.

The rest of my time, when not detailing cars and recovering from dialysis, has been spent on my new Harley. I broke down and bought a 2021 Road King. It is just a beautiful piece of workmanship and my smile is evident as I ride down the road. It is a reminder of what is good in life.

Of course, the main reason I’ve been away is I’ve been wallowing in reflection and searching for answers after my near suicide attempt a few months ago. The event was bad enough, the soul-searching that followed was worse. I have been questioning every damn thing about my life after it, it rattled me to the core.

All of these things will probably become their own blogs, for now I’m just trying to condition myself to blog again.

I hope all of you are doing great and killing it at life

the brink

hit me again life
I fucking dare you
you son of a bitch

I stand before you with bloody mouth
broken teeth
eyes badly battered
but still open
you did your worst
but it wasn’t enough
you may think you broke me
is that all you got?

how could you?
how could I let you?
you gave me all the reasons
to live
to love
and you then denied me the strength
to reach out and embrace them
pain and emptiness
occupied my heart
and consumed my thoughts

on my back
looking nowhere but up
no sky in sight
just institutional white
on the ceiling of my room
no sharp objects allowed
I thought I knew what the bottom looked like
I was wrong

the moment won’t leave my head
rest area
loaded .38 in hand
pointed at my chest
don’t make a mess
end it clean
it will stop the pain
for me anyways
but not for the forgotten ones
that love me
how could I forget them?

lesson’s learned
memories burned
my attitude forever altered
if I can’t think of a reason
to keep going
I can think of a thousand
of why not to quit just yet
life is beautiful
when you know where to look