Month: August 2019

the reminders are everywhere

Last night I came home exhausted. Sometimes dialysis leaves me a crampy, washed out mess. Yesterday was one of those days. My sofa was calling my name. But it was not to be. Mom needed help.

We have contractors coming Saturday morning to rip the roof off of our garage and they needed us to get all of the junk in the upstairs of the garage moved to the back. It’s a project I’ve been planning but I was putting it off until the fall because in August the attic of the garage is blistering hot. I wasn’t about to make mom do it alone so I sucked it up and headed up.

It was hot. Africa hot. After a few minutes I was dripping. Ten sweaty, swamp-ass minutes later I was down to two unmarked cardboard boxes. I went over to them, dragged them from the overhang and opened them. They contained Dad’s miniature truck collection.

Dad drove a truck for 35 years. Retail home oil delivery. Over the road Gasoline hauling. He could legally drive anything with wheels. He loved trucks. By extension I did also. By the time I was 12 I could name any truck by name, model and approximate year by the headlights alone (still can). It wasn’t enough that he spent 60-65 hours a week driving, he also had to have his den covered with replicas of 18 wheelers with Wal-Mart, Harley Davidson, etc. markings. Dump trucks, concrete mixers, you name it he had it. Until he passed and my mom put them in storage. I had forgotten about them.

Many years ago Dad gave me some model trucks as presents. I brought them to work with me but they never had a proper place so they sat in the corner of my office in their boxes. When he passed in 2013 I broke down and bought a large bookcase for my office. I dedicated 2 large shelves to mementos of him. The trucks, a collectible baseball that he bought for me, a portrait of him and a license plate from 1929 that I found in my Grandfather’s garage. It was on his first car.

When people came in my office they were naturally drawn to my homemade shrine. It afforded me the opportunity to talk about my dad. Of course, its primary purpose was to inspire me when I was down. He taught me to work hard. To act with integrity. To always do what I say and do it well. To be a man that takes pride in what he does.

They look like just trucks. But they represent so much more to me. Hard work, dedication and pride. He may have been only a truck driver but he was the only one in his family to pull himself out of abject poverty and make something out of himself. And he did it by learning a skill, dedicating his life to it and raising his family through his efforts.

I will spend the day Sunday finding a place to display them again. I miss him more than words can ever express, but there is never a moment when I see a truck, real or model, that I don’t think of him.

the waiting room

If the sun is out I take the motorcycle to Dialysis. If I have to be there then I’m going to arrive and depart with a smile on my face.

Most days I spring out of my chair, exit to the waiting area, grab my helmet and go. Sometimes there are people in the waiting room, waiting to pick up a patient. I know most of them and who they are waiting for. For the last 2 weeks there has been a new face, a woman, 70ish with a kind face, that I deduced was waiting for the new patient Bob. Bob is a 70ish ‘Nam vet who just started treatments. I’d never spoken to him but he looks like a nice guy, with a new unpleasant development in his life.

Today, as I exited the clinic and grabbed my helmet she spoke to me.
“Can I tell you that you’re amazing?”
“Amazing? Hardly. But thank for you for saying that. And while we’re on the subject, why exactly am I amazing?” I replied.
“You bounce out of here, helmet in hand and ride a motorcycle out of here. After Dialysis. I don’t know how you do it.”
“I have to”, I replied. “It’s the only way I can make it tolerable.” I sat down across from her.
“I see Bob wears a lot of Harley stuff, is he still able to ride?”
“No.” I had touched a nerve. “He can’t support the weight of the bike anymore because of…”she motioned towards the clinic door, “this”.
“I get it.” I replied. “This is tough”.
“Not on you. If it is you don’t act it.”
I explained to her that it is quite to the contrary. That I have a tough time with it sometimes but I put on a strong face and do my best to make the most of when I feel good. She politely nodded as I talked, looking down at the floor.
I asked her how Bob was handling it. She told me he is feeling pretty lousy but getting used to it. I found that to be a good time to tell her that I was the clinic’s Patient Advocate and offered to talk anytime she or Bob may want.

At that moment Bob came through the door. His wife immediately said “This is Bill. He’s the one with the Bike. “
“Hey, Bill. Nice to meet you.” Bob wearily sat down in the chair. “Nice bike.”
“Thanks”, I replied.
“Bob”, his wife spoke up. “Bill is the Patient Advocate for the clinic.”
He looked at me and said “What do you do?”
“I’m here if you need advice, recommendations about the dialysis process or just here to talk if you need it.”
“Talk about what?”
“About Dialysis. About the emotions you will feel and the aches and pains you will experience. We all go through it.”
His facial expression showed total resistance. Then, before my eyes it changed. “Maybe I’ll take you up on it sometime.”

We walked out. He checked out my bike. I was careful not to ask him about riding. He then surprised me. “I’m thinking of getting a trike. I don’t have to worry about supporting the weight.. I can still ride that way.”
“That sounds awesome, Bob. The more you keep doing what you love, the less sick you feel.” I winked at his wife. She smiled.

I watched as they got into their car. She drove. As they pulled out she mouthed the words “Thank you” to me.

I’m not sure I did anything remarkable, I just shared the best kept non-secret I have. Illness only wins when you allow it to. Keep living your life.

the flight of purpose

I sat on the deck this afternoon, enjoying the earthy smells of the woods following a rainstorm. The clouds were moving, chased away by the warming sun. I lit a cigar.

Then, interrupting my distracted gaze it appeared. It was a Monarch Butterfly, magnificent in its carefree romp around my yard. It zigged and it zagged, dipped and climbed but it always looked so easy. Dare I say carefree?

It seems to fly without a care, but I don’t think so. It has already endured so much, survived such a remarkable transition. It is not carefree. It is accomplished, full of purpose.

To live every moment of its short life.

Does its life span feel as long as mine? What if…he knows that he will die soon and is working against the clock to see and do as much as possible?

I can relate. Been there.

I am also looking at a short life. I crave fulfillment and fear lack of accomplishment. I have also been through a difficult transition and emerged a new me. I can’t sit still for very long because I am reminded that moments are few and not guaranteed and I get off the sofa.

The Monarch saw me waving to it, beckoning it to rest on my arm. He chose to keep flying and exploring. He had places to go. Resting on my arm would be a sofa in its own right.

Per usual, inspiration can be found in the smallest of things.

the lucky hat

“Did you get that at Fenway?”
Startled from my apparent trance I turned to the kind-faced gentleman behind me in line at the market and recognized that he was referring to my hat. My favorite hat, the Red Sox Scali Cap. “Yes I did, actually” I replied.

“Bet that set you back a few bucks” he said

“Yea, but it was worth it. It’s my good will hat. Besides, it hides my chrome dome” and for effect I took it off and gestured self-deprecatingly at my bald head. He laughed and I then realized it was time to pay the clearly annoyed cashier who obviously had much better places to be today. I paid and walked out.

As I walked to my car I reflected on how NH life was growing on me but I’m still taken off of my game when someone just initiates friendly conversation. While I am a big fan of it I come from an area where people will generally read a candy bar wrapper to avoid eye contact. Enjoying that brief exchange with a friendly stranger, I opened my car to put my groceries in.

“What did you mean by Good Will hat? I thought you said you bought it at Fenway?” My friend from line was parked next to me. He thought I bought it at a GoodWill store.

I told him the Chili’s story.

Many years ago I was at Chili’s restaurant knocking back a few with my buddy Chuck. I liked the bar a lot and I really liked the bartender. Jane was a slightly heavy, forty-ish woman who was a refreshing change from the usual younger, vapid bartenders that flashed cleavage for tips but had little personality. Don’t get me wrong, I love tits but I’m old fashioned and like to have a bartender I can talk to also. I was wearing my hat. Jane was obsessed with my hat. She also had asked me if I had bought it at Fenway. She kept telling me how good I looked in it and I kept telling her to stop hustling for tips. She laughed. Then she told me how much her brother would love a hat like mine.

Over the course of several more beers Jane told Chuck and I of her brother in VT. He was dying of stage 4 prostate cancer. She wanted to get him something to cheer him up. She got a little emotional as she talked of him. The subject was changed.

When I paid my bill, I put the money inside my hat and left it on the bar. When she came over I slid the hat across the bar and told her to give it to her brother. She teared up and I tore out of there. No drama for me that night. Chuck slapped me on the back and told me what a nice gesture that was. Not to be immodest, but I do stuff like that pretty often. If I see a chance to make someone smile, unless I’m really attached to something I will usually give it away,

The next day I saw my buddy Steve on the street. He asked me where my hat was. Unbelievable. I told him the story and he also thought it was great.

2 weeks later I heard a knock on my door and when I opened it there stood Steve with a new hat. “For you” he said. “I was at the game last night, saw this and had to get it for you. You paid it forward and now I am too. Besides, you need to cover that bald head.”

When I finished telling my supermarket friend the story he was full of smiles. ” All of that from one hat, huh?”

“Yup, and every time I wear it I am reminded to spread some good will. Small gestures my friend”.

As we parted ways I jokingly remarked ” do you want it?” He laughed and got in his car.

Small gestures can mean the world to someone.

A reluctant conversation with God

Hey God. It’s me, Mac.

I’m in your house now, one of many I suppose, sitting in the back taking a hard look at my life. I rarely look for you in a building, instead I often search for you outside these walls, in nature. As I walk this earth I am on high alert for signs of you and in the process the purpose of that which I observe.

Now, I sit elbows on knees, asking for help finding my own purpose. This is a new thing for me, praying. If you are indeed all-knowing then you know this already. I was a bit late to the party.

I reluctantly accepted your existence because, like most mere mortals, I refused to believe that the beauty which surrounds me is a mere accident or cosmic anomaly. I decided that I was not atheist because they are certain that there is nothing, while I do not possess the audacity to be sure of such a thing. Logic dictates that if you rule out nothing then there has to be something. I therefore came around to believe that there has to be a higher, driving force in the universe. But I still can’t quantify or define you.

Are you the mighty, smiting God from the Old Testament? Are you the forgiving, benevolent Grandfather type with a flowing white beard and a staff in your hand? Are you to be found in the beauty of the setting sun, the awe-inspiring power of the crashing wave, the melodic chirp of the bird or the wondrous, innocent smile of a child?

I don’t know if you are a God that cares about who wins a football game, or grants requests for promotions and lottery jackpots. That’s what I think a lot of people ask you for. I also don’t know why you allow babies to get Cancer, bad people to live long lives, good people to suffer and assholes to thrive. But I suppose that’s the essence of faith. The faithful have to believe that there is an answer to every question and a reason for everything.

One thing I know about faith is that if understood properly, it reminds you of your place in the scheme of things. The mightiest of men are no match for the raw power of the tide. Should he survive he will recognize his smallness. He may resent it, I myself embrace it. I value my smallness.

Which brings me to the point. If it was your will, a pre-ordained event, or simply a plan to prematurely remove me from a life of chasing status, personal wealth and achievement and render me the most humble me I’ve ever been, then would you enlighten me as to what I am to do next? I’ve learned so much in the last 2 years. I’ve learned the value of humility, kindness and charity in the face of crushing circumstances. I’ve been to the very bottom and clawed my way out time and time again but my victory laps (with a modicum of humility of course) were short-lived as I am hit with yet another setback. I’m a fighter and I always found motivation to push on.

Until lately. I’m not feeling the fight. I’m taking knockout punches and choosing to stay on the mat until the count of 9. I’m looking for a reason to push on and simultaneously looking for reasons to give up. If you agree that my earthly journey has been wholesome and moral, that I am doing your work then would you please give me a sign? A sign that I am indeed on the right path, that I may be infused with the light to carry out what I think is my true calling. To be an inspiration to others. Not as a bigshot, but as someone who says or does the things that helps others with their own earthly journey. Shine your light through me and illuminate my future journey.

Please.

Well God, Yahweh, Mother Nature, Supreme Architect, Big Guy, whatever you go by, I’m not sure how to wrap this up other than to say thanks for listening. Please remember that I rarely ask you for anything, if I do it’s never for me. I’m in need here and my eyes and ears are open for your answer. Take care and if it’s not too much, tell my Dad that I miss him more than anything.

Mac

Touching the moon

“Closer”, the father said to the boy.
The boy dutifully moved to his father’s instruction. “Better?”
“Yes, now stand on your toes and reach as high as you can.”
Again, the boy obeyed his father. “Am I touching it?”
“Yes, son. You are.”
There was a audible click as the camera snapped the photo of his index finger touching the full moon that he and his family had been admiring at the end of a wonderful family day on the beach.

For a short, magical time the boy actually believed that he had touched the moon. After all, there was a picture in the family album of it. But eventually he realized that it was only an illusion.

Many years have passed. Now an adult, he sat on the wall of the beach at low tide and looked longingly at the sky. It was his favorite spot, it made him think of his father who was long since deceased. He dwelt on the notion of happiness, in particular the distinct lack of it in his life. This spot represented the best time of his life. He stopped short at actually saying happiest, he had always believed that he had never achieved “happy” in its truest form.

Especially lately. The young, spirited and curious young boy that had grown into a bright, artistic if not aimless young man had married a woman that he thought he loved, but their life together was tumultuous and ended badly. He emerged from the marriage broken and disillusioned man. What his marriage hadn’t robbed him of was consumed by his illness. But he had one trick up his sleeve, his only one, his ability to put on a “happy”(there’s that word again) face and along with his already perfected “optimistic” face and his proven “I’m fine” face, his gallery of feigned emotions served him well for a very long time.

Until now. Although he could never recall being happy, he knew what it was and knew he didn’t have it. He had come close to it several times as he enjoyed the wonderment of his young children. Other than that, he felt that he was a stranger witnessing his life through a looking glass. Close enough to be there but just out of reach. It would have been bad enough to feel like a stranger in his own world, but it had metastasized. He was now a truly joyless creature.

He reflected on his new existence, courtesy of the recent events of his life bestowed upon him by his now life-consuming chronic illness. He wondered when the social extrovert he was notorious as became more comfortable being alone. When did his body become so weak that it immediately dismissed his (still) sharp mind’s desire to do things? When did he become the guy who stopped making plans because he knew he would probably cancel at the last minute? He wondered why he goes to bed early to rest up for nothing, to then get up early to get ready to go nowhere? When did he stop hoping that the next day would bring better things, a miracle of sorts to end the nearly endless cycle of clinic sessions and Medical appointments? Short of stopping to pat the head of a stranger’s dog, he rarely even smiled anymore.

He was sick and tired of being sick and tired. Tired of being strong for everyone and draining his precious remaining energy in the process. Most of all, he was exhausted from making a fake smile and telling those that loved him that he was ok and that things would get better. Only one person was being strong for him. And she was so far away. As far away as the moon.

He hadn’t noticed that the sun had set. He had brooded throughout the very sunset that he went to witness. In the sun’s place stood a magnificent full moon. A moon so bright that it boldly stole the sky for its own glory.

He recognized a metaphor in his musings and the beautiful coincidence of a full moon just like the one his beloved father had photographed of him at this very spot when he was a boy. The moon was just like happiness. He could see it, feel it, admire its beauty. He could even reach with outstretched hands and appear to touch it. But in reality, the cruel harsh mistress that she was, both were in fact light years away and the appearance of touching either was just an illusion.