The ride of, or for, my life…

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frus·tra·tion

frəˈstrāSH(ə)n/

noun

  1. the feeling of being upset or annoyed, especially because of inability to change or achieve something.

“I sometimes feel like screaming with frustration”

synonyms: exasperation, annoyance, anger, vexation, irritation

Yes, that is one definition. Here is another.

When you think you are all set with something for a while and you then find out you are not.

MY Synonyms: annoyed, pissed off, here we go again

Almost six years ago I had a kidney transplant. Truly a landmark moment in my life. A future of dialysis and a poor quality of life magically transformed into a bright future with at least 15 years of good health through one amazing gift from one amazing person. It was up to me to take care of the new kidney. To diligently take my medications, eat healthily and listen to my doctor. In addition, my donor was a friend and I further owed it to her to take care of her gift.

I looked forward to 15 years (or more) of good health and I was committed to taking care of it. I hit the gym, I started mountain biking, I ate right and watched my weight. Imagine my disappointment when 4 years later I had a rejection episode. My body will always try to reject the new organ so I take a lot of meds to suppress my immune system. Yet I ended up in the hospital with a severe loss of kidney function. Over the next 3 months, extensive testing will reveal that the original disease that destroyed my original kidneys had returned. The kicker was the Transplant team didn’t feel it necessary to tell me about this possibility. I was pissed. My prognosis was, while uncertain when, my new kidney would eventually fail to the point that I will be back where I was pre-transplant. That was not a good place.

Kidney disease has a wide array of unpredictable and unpleasant symptoms. Besides feeling “washed out” it is not uncommon to develop intolerances to everyday foods that generally would be considered healthy. Cramping, seizures, even cardiac events are possible when in failure if not monitored. As I progressed towards transplant before I developed anemia. I was cold all of the time. I required injections and a multitude of pills that would block this and one that would boost the other. Back and forth to the pharmacy and specialists. It was a roller coaster I was hoping not to ride for a long while.

This July I was told to expect the ride to begin soon.

I got my lab results back today. I’m anemic. Yay.Time to strap in because it’s going to be a long ride.

wheeeeeeeeeeeeeeeeeee!

Day 5 of the 30-day challenge…letter to a celebrity I admire

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To the Celebrity I admire:

Webster’s lesser definition of the word celebrity defines it as “the state of being well-known.” One can be well-known for a lot of reasons, there is Charles Manson as well as Casey Anthony celebrity. But being known is what really matters, and all of the power that comes with it.

What power you ask? A celebrity like Lamar Odom can get a kidney transplant immediately after destroying his body with drugs and prostitutes. But he’s well known so let’s bump his transplant up over Joe the electrician who has been waiting for a new lease on life for 6 years. Fuck him, he’s not famous.

You’re not like that. You’re one of the good ones.

  • You wait your turn in line, you don’t cut in front of others because your time is more important than everyone else’s.
  • You don’t yell at Cops and Firefighters and Maitre D’s etc. “do you know who I am!” when you can’t park in a fire lane or your table isn’t ready.
  • You don’t spout your politics because you know that Hollywood is a bubble and has no clue what the people who pay exorbitant prices for their products do to earn that money. You know what the average guy stands for and wouldn’t insult your audience.
  • You don’t lecture us on our “carbon footprint” from your private jet. You recognize the hypocrisy in that.
  • You have a gate around your property so you know better than to talk about open borders. 
  • You walk the streets among us because you are one of us. You don’t need a security detail.
  • You would gladly walk away from fame because it’s not that important to you, being a good person is.
  • You know that just because you sing, dance, act, rap, paint, shop, act like a desperate housewive or try to win at Big Brother…it doesn’t make you an expert on everything.
  • You manage to stay grounded even though everyone knows your name.

I would write that name on this letter but to my knowledge, I have no idea who you are. You don’t exist.

I fucking hate celebrities. I can safely say this without repercussion because hey, I’m not famous.

With distaste and disdain,

The Regular Schmuck