Just jot it Jan # 24–Zoomie

Your prompt for JusJoJan 2019, January 24th is brought to you by Bee! Click here to find her last post and say hi while you’re there! Bee’s word for our prompt today is “zoomie.” Interpret it any way you’d like, and use it anywhere in your post or make it the theme of your post. Have fun!

I’ve been away from the blogging world for a few days. That old “life” thing is getting in the way. But I took on this challenge to ensure that I write something every day so I’m going to make up each day that I missed.

Right now I find myself in the dead of winter. It’s cold, very cold. Everything is frozen. There is not a lot to do where I live and on top of everything, despite my beloved Patriots being in the Super Bowl I am dreading the month of February. It will be a long, snowy, cold and football-less month.

But…this is a big But (I love big buts…sorry had to), I look forward to Spring. With chronic illness being a daily obstacle and a recent near-death experience in my rear-view mirror I have begun to set manageable future goals to give me something to, well not trying to be morbid here, something to live for.

One thing I plan on doing is riding my new Motorcycle. I bought it in the fall to have something to look forward to in the Spring. The anticipation of riding it has carried me thus far through the winter. It gives me hope of enjoyment, of freedom, of reveling in nature’s wonders with the wind in my face and bugs in my teeth.

I am going to attack life when Spring hit with such a vigor that it won’t be just fast…it will be damn zoomie.

Why me? Why NOT me?

“Listen carefully, Billy”, my Grandfather said. He looked me straight in the eye.
I cried because I had no shoes. Then I met a man who had no feet.”
“What does that mean Grandpa?”
“It means, Billy, that you should never complain because there is always someone who has it worse than you. Be happy with what you have.”

I was a young boy when he said that to me. I don’t remember what I was complaining about but after that exchange I learned that men, men like my Grandfather, don’t complain.

Have I complained since then? Of course, it happens. But my brain immediately flashes back to that quote. And shuts me down. It has served me well, in fact it was one of my greatest life lessons and shaped who I am today.

People often told me during the height of my Illness that my positive attitude, and crippling denial, inspired them. I wasn’t waking up with the intention of inspiring others, I was just listening to my Grandpa. I was keeping my kids from worrying about me. I didn’t want to burden anyone.

People tell me now that my jokes and overall positive attitude about my current situation helps them. How else am I supposed to be? Should I complain? It’s not my style. It’s not becoming of a man. And nobody wants to hear it.

Why?

Because someone always has it worse. I know it. I’ve seen it.
I have friends who have lost children at the toddler stage to cancer.
I’ve been to Children’s hospital in Boston and read books to children who would never leave that hospital.
There are families everywhere dealing with dead children, wounded Veterans, mental illness, MIA’s and POW’s, gun violence, terminal illness, no Health Insurance, pending bankruptcies, the list just goes on and on.
They all have it worse than I do.
Most of them wish they, or those that they lost, were only on dialysis.

I’m strapped to a dialysis machine 3 days a week. So what? I’m alive. It may kill me, and then again, I may get a donor. It could be always be worse. One thing I have learned in my 53 years of walking this green earth is that I’m not special, I’m just a cog in a great big wheel. I never say Why me?
Why not me?

I have always said that where I am is where I am suppose to be. That applied wherever I was. Why isn’t it feasible that I am right where I am supposed to be doing what I am supposed to do at this moment?

I was given a brutal reminder of this tonight when I got a call from my friend Steve. I met Steve when I lived in an apartment complex as my family tried to bounce back from the foreclosure. We were instant friends. We hung out often and had a lot in common, in particular crumbling marriages and the love of our children. When he got divorced and moved, we stayed in touch.

Steve became very ill after he moved. His diabetes, once under control, had destroyed his liver. He needed a transplant. When I had mine, he was the first friend to visit. He had questions of course, but he was there as a friend.

Flash forward a few years. Steve was deteriorating. It was affecting his job as a Teacher. He was missing work and couldn’t find a balance in his meds, the side effects were destroying him. Soon after, a group of Teachers that praised him to his face went on to stab him in the back. He was forced to defend his ability to enlighten young minds to a committee of people who wanted him gone. After suing the Teacher’s Union he claimed a meager, insulting settlement and he walked away with his dignity in his pocket. No accolades or thanks for his 20 years of service or retirement party.

Steve lost most of his friends. Or they lost him. He is now pending disability. He just sold his car because he can’t make payments. His ex-wife is taking him to court over child-support he can’t pay. She knows he’s trying without income but wants to punish him. He can barely talk, an hour after he takes his meds he loses control of his voice. He is on a list for a cadaver transplant, it’s his only hope. Unlike a kidney, a Liver cannot be given by the living.

Tonight, I asked if he would drive up and spend a couple of days with me. He can’t because he has to be nearby in case there is a fatal car accident that will produce a proper tissue match. Plus, he has court tomorrow because his ex-wife is not done ripping his testicles from his scrotum.

Steve would love to be me. Right now, I love being me. I have friends and family who support me. My wife acted with dignity and compassion in our divorce. My children love me and will never be a pawn in a big game. I won’t die if I don’t get an organ donation in the next few months.

I worry about Steve right now, he has been a good and loyal friend. I am not worried about me right now at all.
Why?
As sick as he is, he was the one to call me to see how I was doing. How about that?

Were you to ever utter the words “what else can go wrong?” the universe very well may take it as a challenge.

Happier New Year

I am really looking forward to seeing 2017 limp out the door Sunday night at midnight. I hope that it was a wonderful year for anyone that sees this, but for me, it is one to be forgotten. I won’t dwell on the bad stuff if you are a reader of this blog, you already know what I have been dealing with. I am encouraged that, after self-evaluation, I am still able to look to the future as an opportunity for better things and new opportunities.

My son last night told me he is glad that I am optimistic after this last year. I explained to him that I had, in fact, lost it for a while but now have it back. I explained a boxing analogy to him.  A good fighter can take a good shot to the chin, shake it off and come back swinging. For years I was able to do that. This year, this fighter took a devastating series of blows that I couldn’t shake off. I fell to the mat and was down for the count. But I’m back now and I want a rematch. As I tear a page from my daily planner, underneath is a fresh day.

One thing I am very happy about in 2017 is this blog. I have always dabbled in writing but never had the time to commit to a blog. Now, for better or for worse, I have nothing but time. I have committed to working on this blog every day. It has done wonders in helping me to exorcise my demons, to express myself, and to unburden myself of the excessive emotional weight of the events of my life. And I am so happy to have readers.

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I have almost 40 followers. A paltry amount to many but a big deal to me. As an aspiring writer with a story to tell, you give me the motivation to continue to write, to explore my boundaries, to share my story and in the process, free my soul.

I follow so many of you, I enjoy your posts and admirable writing styles. You give me feedback, hope, and encouragement and you have become a part of my life.

I hope all of you have a wonderful New Years Eve and a fantastic 2018 full of pushing forward towards your dreams.

My car has a big windshield and a small rear-view mirror because what is behind me is not nearly as important as what is ahead.