delays, delays

I haven’t been able to write lately. I wasn’t feeling it. I have been reading the works of the great bloggers that I follow but that’s it. I’m in pain. This is notable because I have a notorious tolerance for pain and I’m still suffering here.

Last weekend I had my youngest son for the long weekend. It was great having him. We were fortunate enough to have a couple of unseasonably warm days so we were outside a lot. Target practice with the pellet guns and yard work. He wanted to learn how to split wood so I indulged him. He’s one of those kids who is immediately good at everything he tries and it wasn’t long before he was splitting logs with the ax with precision and strength. I let him chop while I stacked. But I made the mistake of standing too close and as he struck one log I watched helplessly, as if it was slo-mo like on TV, as a half log shot left and hit me on the left shin. I yelled out initially then curbed my reaction so that he wouldn’t feel bad, it wasn’t intentional. But it hurt like a sumbitch, and it still does.

Fast forward to Tuesday and I can barely walk. The pain is the kind that radiates through the entire body. In addition, I noticed that my fistula, a surgically created port for dialysis, is swollen, red and sore to the touch. I have had it for 8 years, it has never been used because I was fortunate enough to get a transplant without being on dialysis. It has never been swollen, red or sore. I knew I had a problem. So I called my transplant team.

Anything other than a cold or flu goes through my transplant team due to my history. When I explained to them what was going on they referred me to PCP. I questioned them on that, isn’t the fistula a pretty major thing? But they were insistent so I made an immediate appt for the next day. Yesterday I drove 2 hours to meet a Dr. whose first reaction was “why didn’t your transplant team feel that this was worthy of their time?” Facepalm moment. She immediately left the room and called them. I was confused by her urgency. My confusion was eradicated when she came back in. She had told them that I have cellulitis, a potentially deadly bacterial infection, in my fistula. She then told me that they now want to see me. Facepalm again.

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I wish that people would just listen to me. I am in tune, I know what is going on with my body. Now I am going to have extra appointments and more driving. Which I can’t do because I’m ordered to have the leg and arm elevated until the antibiotics kick in. I take cellulitis seriously, it almost killed me in 2006. White light, tunnel, the works. A random bed check is the only reason I’m alive today. I’m not going to lie, beyond annoyed at unnecessary delays I’m a little concerned.

2 thoughts on “delays, delays”

  1. Things like this are the perfect example of why doctors need a better bedside manner. The whole medical community has become a commodity, not like the old days when you had the same doctor from the time you were born, the your kids saw them etc. While there are drawbacks to “old school” as well (since it doesnt allow a doctor to become a real specialsit) I do miss the days when my doctor “knew” me

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