the other shoe

If you have been following me recently you will know that I have been doing some part-time work for a friend. It has been an overall good experience for me. In addition to having a little bit of money to play with it has also given my ego, in particular, that section that controls not feeling like a useless piece of shit, a boost. I would like to say that it has been an awesome experience but there a few downsides. For starters, it is 2 1/2 to 3 hours away depending on traffic. It is not without expense, it is at least a tank of gas plus food for 2 days which cuts into the overall “worthwhile” of it. It also requires that I stay with my friend who works there also for up to 2 nights a week. He and his wife are the ones who offered it in the first place, making this even possible and claim they enjoy the company but I feel like a burden. That’s the way I’m wired. I’m not paranoid, but I know that when I watch football and the players are in a huddle…yeah they’re talking about me.
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I also haven’t gotten too excited because let’s face it, I’m always waiting for the other shoe to drop. I fully expected a wrinkle and it came the week before last.

As I was leaving on Thursday I checked in with my friend and boss to let him know that I was leaving for the week. He turned to me and asked me to close his office door. Here we go, I thought, the other shoe.

“You’re getting expensive,” he said. “I want to help you out but I really don’t have it in the budget right now”. He looked upset, I knew that he was genuinely conflicted. I never actually considered this to be any more than a “we’ll see how long it lasts” scenario I played it cool. But inside I was a little miffed. I wanted to explain what I’ve been working on, the contribution I’ve made and the slew of compliments his CFO has given me. But I stopped myself.  Instead, I told him that I would only be available on Monday the following (last) week. I politely told him that if he doesn’t need me, just tell me and I’ll be ok. We left it that we would talk about it Monday. I managed to successfully leave his office without reverting to the old me.

The old me would have been reactionary, upset, filled with a sense of dread and lament wrong decisions made…both real and imaginary. That was when I was a slave to a -paycheck, in fear of harming my family, forced to “suck-it-up” for the benefit of others. I’m not that guy anymore because I don’t have that situation anymore. The new me doesn’t need the job, I just like the job. By choice or otherwise, I am now in a position where I can choose what I do for money and if it doesn’t work out I will find something. The bar is set pretty low but I it is oddly liberating.

I am also blazing a new trail in that I am using my knowledge of reading people. I know that Ben is happy with what I’ve been doing and he likes having me around. I know him enough to know that he can get creative if he wants in how he compensates me.

It also occurred to me that my work has and will speak for itself. I know, not think, that I have found a niche and have worked on an area of his business, with some solid success, that he didn’t even know he needed. He knows it now. So last Monday morning, early, I called him and told him that I wouldn’t be in. 6 hours of driving for 1 day was just silly. He understood. I sat back this week to see what would develop.

As of Friday morning, I had received 3 emails from the CFO and 2 texts from Ben asking me when I was available to come in this coming week. I simply responded Why, do you need me?

It seems he does.

Job and pride both intact, I think I like how the new me handled this one.

 

 

Spring is coming

 

February is my least favorite month of the year. Despite the days getting a bit longer, it tends to be a cold, grey and boring month. Football is over, and I am a fair-weather Basketball and Hockey fan at best. Fortunately, it’s a short month.

We joke in New England that the first snow falls it is a Glorious occasion when all is white and pure, each flake unique and beautiful. By February the very mention of snow has you hurling F-bombs at the TV. That’s where I’m at right now. I’m just sick of winter.

It snowed again last night. The weather forecast last night called for an inch or two so when I woke up to see about 6 inches of powdery aggravation I wasn’t pleased. I would have “geared myself up” for the shoveling, spreading of rock salt and cleaning off cars. Wanting to get it over with, I skipped my morning coffee and went right to it. It was light snow so I made quick work of it. Stopping to gather my breath, I felt warmth in the air. I looked around and I noticed that melting had already started. I took off my hat and gloves and just stood on the deck, staring at the landscape around me. I could feel it, it’s almost over. Spring will be here soon.

Spring is my favorite season. I thrive on warmth and sunlight. I barely tolerate winter, I accept it as a necessary evil if I am to live in this region but the short days and lack of sunlight take a terrible toll. On the first warm day of Spring, I will be found outside face skyward, soaking in the rays like a desert flower after a terrible drought.
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It is New Years Day for Mother Nature, a new beginning as grass turns green, leaves bud on trees, the little critters poke their heads out of hiding, and the Red Sox are in Fort Myers, Florida gearing up for another long season of glorious Baseball.

I can’t think of Spring without thinking of Baseball, and I can’t think of Baseball without thinking fondly of my Dad. When I was a kid, my father was still working his way up the seniority list at his job and he would be laid off almost every Spring. Dad was a Heating Oil Delivery driver and the warm weather meant slow business. I was thrilled to have him around, he worked almost around the clock during the winter. I never saw him. Spring became an association for me. Warm weather, school vacation, Dad is home and we’re gonna watch the Sox.
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Dad and I didn’t have a whole lot in common, but we loved Baseball. He taught me to play and we loved to talk about it. One of my favorite memories was watching games on our 3 season porch on a 19-inch black and white Emerson TV with “rabbit ears” antennae. Dad and I would make sure all of the yard work was done in time to sit down for the game. I would listen to him attentively as he explained the strategy of baseball, his most and least favorite players and why he rated them so. It was the only time he wasn’t bustling about and trying to keep busy. When a game was on he was in his seat, beer in hand and relaxed. Until the Bullpen blew a lead, which happened often, at which time he was not so relaxed. Those were hard times economically, but they were special to me.

Today I saw a glimmer of my favorite season. I see on my Calendar that there are 10 days left of my least favorite month. While March can often suck weather-wise, it can also be a good month. And it is one month closer to Spring. Even though I still have 6-foot snowbanks all around my house, I can almost smell the fresh-cut grass, hear the crack of the bat, the children excitedly cheering each other on. And I can still see Dad, Tanned and sweaty, in his faded Boston Red Sox Hat and wife-beater T-shirt calling me, telling me to “hurry up” before I miss the first pitch.

What I wouldn’t do to hear that just one more time.
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You don’t look sick…part 3

Revealing to my wife and family that I needed a kidney transplant was a turning point. My children were confused and upset. I told them everything would be fine. My wife painted a much more grim picture. I was furious with her for being so negative, at one point during an unfortunate argument she blurted out “it’s ok kids side with him he’s going to die and you’ll be stuck with me”. It was a brutal comment and hard to bounce back from. I explained to the kids that the best case scenario was a transplant, the worst would be dialysis. Not ideal, but still alive. I kept to myself the attitude that dialysis is the WORST option, giving me zero quality of life. It was a stressful time, only being compounded by the weight of mind-boggling debt and pending foreclosure. Which is historically great for blood pressure.

The backlash on me was partially deserved. By minimizing my condition I did help myself cope, but I alienated my support network. By avoiding being doted on and being treated differently, and most importantly having my family worry about me, I forced them to come to grips with something in a short amount of time, that I have had most of my adult life to deal with…that I may lead a short life. But at that point, I still couldn’t tell people how I was feeling.

At work I couldn’t escape the attention, it was a big story. In late 2009 I was hospitalized for a serious infection that was renal-related. My manager came to visit me on a Saturday with a stack of magazines for me. He said, “looks like you’re going to need a donor soon, huh?” I nodded in agreement. “What if I told you that we might have one? Deb approached me yesterday and wants to be tested”.

I was of course thrilled. She would prove to be a match and, well you can guess the rest. The company made a story out of it. The local CBS affiliate station came to do an in-office interview with Deb and I. For weeks, complete strangers would approach me and say “Hey I saw you on the News! How are you feeling?” People who knew me at the auction and other areas of my life would say “Hey, I saw you on the news. I never knew. You don’t look sick”. Heavy sigh…there was no escaping it now.

After the transplant, it was the new normal. I am blessed to have so many people care about me. The outpouring of support was amazing from friends, family, social media and company connections. My company threw a huge fundraiser for me, everyone knew my story. It truly renewed my faith in people. But post-transplant I was riding a wave, I felt great and I wanted to put 15 plus years of feeling like shit warmed over behind me. I worked out, I hiked, I bought a bike and then a mountain bike. I found a group on Facebook of local mountain bikers and I showed up. I made a bunch of great friends. One day, after a particularly grueling ride I peeled my sweat-soaked shirt off to change into a dry one and there was my enormous scar for all to see. One guy inquired about it and I gave him the brief breakdown. “Hey, I saw you on the news. That’s quite a story. You look great man!” Now that’s what I was going for.

Now let me refocus for a moment. This series is not about being happy or glad or grateful if people ask you how you are. It is about being known by your illness. When your illness defines you. When people think of how much it sucks to be sick…they think of you.

So when I constantly reference the times when people say “You don’t look sick” or ask “How are you feeling” it puts a very particular set of reactions into place. So far in this series, I am describing the birth of Superman as a coping mechanism. As opposed to the earlier-in-life Superman that tried to save the day and fix everything. He was born because I simply couldn’t afford to look sick and I could never actually tell anyone how I actually felt.

My family relied on me. I needed to be the Dad and husband I promised to be. I needed to be strong. So I covered it up, in a way I denied my illness. For them and for myself. When I was really sick, I had to say no to a 10-year old and a 9-year old who asked their Dad to play football in the front yard with them. I couldn’t do it. I couldn’t get off of the sofa. The look on their faces haunted me. After that, I forced myself to do it or I found a way to avoid it. They didn’t need to know so I didn’t tell them.

With my employer and co-workers I couldn’t answer the “How are you feeling?” question without committing career suicide. It may be against the law to discriminate in the workplace against a person with illness but it doesn’t offer much advancement. I had a huge job that other people wanted and a salary that I needed to maintain. So if my Manager said “How are you today?” there was no reason to give it a logical progression to “How are you feeling?”

I lied, I denied. I feel great thank you. I don’t look sick because that’s the point. It’s a whole lot safer than answering like,

“Well thank you for asking. This morning I barely made it to work on time because I was up all night with spasms that no doctor can diagnose. I threw up in the shower this morning and I am wearing a pair of shoes 2 sizes larger than normal because my feet are so swollen I can’t get the others on my feet. I am really fatigued right now for no reason and I am hardly in the mood for your fucking bullshit but here I am…AREN’T YOU GLAD YOU ASKED?”

to be continued

 

Friday Knight at Grandpa’s

Oh my God, it’s like my father is here in this kitchen!” my mother half-laughed and half-yelled as she searched around to see what other mischiefs I had caused while she was out.

I’m a big kid, I love to mess with her OCD. When she goes out I move things around in her kitchen. Sometimes it’s subtle, like moving her snowman candles an inch or so. She notices it. Other times I will switch her containers around. If they were in ascending order shortest to tallest, left to right, I would reverse it. I do a little every day just to keep things interesting. Mom has come to expect something when she walks in. I outdid myself today, I messed with everything. Cookie jar turned around to face the wall. K cups, once color-coded by row on a rack with no empty spaces now rearranged hodge-podge with a pyramid of them on top and many empty slots. The Coffee-maker swapped with the food processor. My best work to date. And the reference to her father was not lost on me, it’s not the first time she’s said it. I act like him, I quote him frequently. I talk about him all the time. I am my Grandfather in so many ways.

My father and grandfather were dual role models in my life. I was very fortunate to have two honest, hard-working family-oriented men in my life. I idolized them both. But I had very different relationships with them. As could be expected, my father had to be the teacher, the establisher of rules and disciplinarian when required. My grandfather got to be the good guy. He always supported what my father told me and never went against him, but he put his own folksy and humorous spin on it. He made everything better. And funny.

I had a tough childhood in many ways. I was a bit mixed up, I lived too much in my own head. But one wonderful childhood memory is the Friday night sleepover at the Grandparents. My mom and dad had a nice social life and it was common to drop me off at the Grandparents house in lieu of a babysitter. I loved it. From as early as I can remember I would walk up the old brick steps. shopping bag of clothes and blanket in tow, where I would be greeted by my doting grandmother at the door. Behind her would be my grandfather smiling wickedly. His eyes, barely noticeable beneath his trademark bushy eyebrows suggesting we were in for some fun. The night would consist of TV and popcorn, playing with their little rat poodle, watching them playfully bicker, root beer floats in the summer and hot chocolate in the winter and going to bed just a little later than I did at home. The fun that my grandfather had in store would come the next morning at breakfast. He would put on a show, and he never disappointed.

Fun, as defined by my grandfather, was causing trouble. My mother had told me stories of the breakfast table when she was growing up. When I was there, my grandmother was the target and I was the eager audience. The game was to drive her crazy, the winning moment was when she yelled at him. It would start as soon as we got up. I woke up early for the show. Grandma would be making breakfast and grandpa and I would be in the small living room, a mere 2 rooms away. She would call him to breakfast and he would ignore her. He would make eye contact with me as if to say “be quiet and watch this.” Grandma would call again and he would yell “Whaaaaat?” Exasperated, my poor grandmother would come down the hall and literally yell “breakfast is ready!” He would calmly say something like “oh, why didn’t you say so.” That was only the beginning. Once seated, the real fun began. She would put eggs in front of him and if they were scrambled he would complain that he wanted over easy. If there was cream on the table he would reach to the refrigerator, sneakily put it away and then ask her where the cream was. He would stack cups on the table to see how high they would go, occasionally knocking something over. All the while he was doing this, smiling wickedly at me, he was watching her carefully to see just how far he could push her. Eventually, she would yell at him to “knock the crap off” and he would be so visibly proud of himself. Amazingly, antics like that happened for years and she never figured out that he was doing it on purpose.

After the shenanigans of breakfast, I would dutifully follow him downstairs. He had a big sink with a mirror and he would shave with a straight razor. After he brushed his face with shaving cream he would catch me admiring him in the mirror and he would wink at me, make a crazy face and pretend he was about to slash his throat with the razor. It didn’t traumatize me, I loved it. I would recap all of his antics, and my poor grandmother’s suffering, to my mother when she picked me up Saturday afternoon. We would compare notes, she would tell me of similar breakfasts, lunches and dinners just like them.

My love for my grandparents would always be strong. They were supportive of me and I made as much time as I could to see them. My grandmother was a strong, willful and sweet woman but she was a tough, off the Mayflower Yankee and was often humorless. She would die at 104 of old age. Her only medical condition was Scottish Alzheimer’s. A condition where you forget everything except who you don’t like. My Grandfather would only see 92. Pneumonia would release some long dormant asbestos he inhaled in the Navy in WWII and take him from us.

He lived a good life. He was a hard-working kid who married his high school sweetheart. Enlisted in the Navy Seabees and fought in the Pacific. He returned home to build a house and start a family with the bride that waited for his return. He would help his wife through 2 miscarriages, the untimely death of his 4-year-old son Charles in the very kitchen that so many happy memories occurred. He carried his family through my mother being in a coma and nearly dying of spinal meningitis when she was 9. Through all of this he smiled, deflected life’s bullets, cracked wise with lines such as “don’t take any wooden nickels”, “see you in the funny papers”, and the classic “I see the light at the end of the tunnel, it’s a goddamn train.”

He’s always with me. My bed is a family heirloom, he was born in it. I carry his pocket watch. I have all of his watches on my nightstand, I also have all of the letters that he sent to my grandmother during WWII. Letters describing his daily life as a sailor, written nearly every day. If not, there was an apology and an explanation. In these letters he tells my grandmother what kind of life he wants to lead with her when, not if, he made it home. He affectionately called her “kid” and he would do so until his final goodbye. They were married 65 years. He was her Knight. http://lindaghill.com/2018/01/28/jusjojan-daily-prompt-january-28th-2018/  Honest, strong, committed to keeping her safe. He would cross the world and slay dragons for her

His humor, his loyalty, his simple approach to life are things that I aspire to have always. I am happy that I still quote him, pull pranks, push people to the edge and do things like openly complain that the brownie pan is defective because it only generated 4 corner pieces. I made that joke last night as I stole the last corner, my mother slapped my wrist and said, “you’re just like your grandfather.” Yup, I’ll take it.

 

 

 

 

 

 

 

 

 

dipping a toe in the water

I have been working a bit lately. I missed it. Not being able to work was so challenging on many levels to me. I need to be productive, to feel accomplished at the end of the day. I recently realized, while sitting on the sidelines, that my identity and sense of worth has always been deeply connected to my vocation. Not working was like a partial lobotomy.

It is a good gig for me. It is only a couple of days per week, I pick the days, and it gives me some spending money without affecting my SSDI claim.

After several months up here, with no real routines to adhere to and a lot of time on my derriere it has been surprisingly tiring to perform fairly menial duties. The cramping and spasms that have hindered me throughout my illness have been severe and I am forced to smile through excruciating pain in front of my new co-workers and caused several sleepless, painful nights.

The bigger challenge I face is knowing and minding my place, which is hard for me.

I work for a very nice man that I have known for almost 20 years. Ben now owns 2 finance companies and a lot of real estate, but I knew him when he was just a used car dealer. I walked into his dealership as an auction rep, we briefly talked and he told me he was all set for auctions. As I turned to leave, I noticed a jar on his desk requesting donations for a little girl with Cancer. It was his 3-year old daughter Sophie. I donated a hundred bucks, wished him well and left.

I would get a call later that day. Ben said, “your donation didn’t have anything to do with this, but come by next week and we’ll talk.” We would become associates and friends for many years, culminating in my working for him and a partner in 2016. We never talked about the death of Sophie at 4, of the fundraisers we coordinated to raise money for her, and of his divorce soon after. When his partner laid me off in 2017, he told me to keep my phone on. He called.

I am doing some pretty menial stuff because that’s what he needs. His finance company is growing, his staff is overwhelmed and a lot of people are doing multiple roles. I have already found about 4 different departments to assist. The problem is that these people don’t know who I am or what my background is. If Ben didn’t tell them neither am I. So I was initially viewed skeptically, then looked at funny when I say or do something that reveals my extensive background in this field. So when I mention my challenge in finding and minding my place, I have to constantly check myself and just do what I am asked to do. Which is really difficult for me.

The office is buzzing. They are talking about me. Ben is already asking if I can work more. My prediction https://wordpress.com/read/feeds/24840312/posts/1746149506 is that I will be offered a full-time position soon. Which will be a real dilemma, because I will have to drop my SSDI claim. That is akin to playing Russian Roulette with my future.

I will explain more in my next post…

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

the power of music

 

I did some work for a guy the last couple of days. It was a nice opportunity to dabble in my old profession, make a few bucks in the process. It put some wind under my sails to do it again. The only drawback is that I had a 3-hour drive ahead of me. It’s not too bad, I can do that drive non-stop if I have my faithful companion Spotify with me.

I strapped on my seatbelt, made sure the lid on my coffee was on tight and opened the app. I was about to select one of my new Playlists (I have been a Spotify junkie this past year with all of the driving) when I saw an option for “Your favorites for 2017”. Wtf, I put it on shuffle and promised myself that I would listen without skips. How would I know that my drive would end up not as a tedious straight line between 2 points, but instead an emotional, unflinching, and cathartic journey of my last year in song.

The music took me away. I went down to the River with Bruce only to find that it was the River of Dreams by Billy Joel. I waded in looking for answers, found none and on the way out Stevie Nicks warned me that taking my love down would cause a Landslide.

I gathered my strength to climb the embankment and took a breath, which was painful, I have been thinking about my wife and the pending divorce, feeling bad about it, and Rascal Flatts didn’t hold back from reminding me of What hurts the most. Dave Mason softened the blow a bit by pointing out that, at the end of the day, We just disagree.

Hoping for a break the next song delivered with a jam session as the Allman Brothers took me Southbound, I jammed on the dash like John Candy in Planes, Trains and Automobiles doing the Messaround by Ray Charles. I got to thinking about how much the world misses John Candy.

mess around

On the theme of days gone by, Al Stewart brought me back in time to the Year of the Cat. A simpler time indeed. Tom Petty would then tell me all about his American Girl, and then make it impossible to drive the speed limit when he offered up You wreck me. The wailing guitar and the pounding drums urged me to go faster, faster you son of a bitch! But alas the car in front of me didn’t see the urgency or hear the song.

After I slowed down a little, the Indigo Girls brought me a little Closer to Fine but I was in a funk.  I again thought of the failed marriage and the Eagles were there to remind me that, at the end of the day, I gave her the Best of my love.

Nearing the end of my journey, I found myself teary eyed, reaching towards the heavens, while trying to drive of course, hands to God as Mondo Cozmo powerfully, with vocals and harmonies that filled my car and and the world around it, implored God to Shine his light down upon us. An emotional wreck, I pawed at my eyes and Journey had the nerve to ask me Who’s crying now? It’s me, alright? You got me.

Fortunately, Michael Franti, my barefoot Brazilian Messiah, took it to a metaphysical level and asked all of the right questions, said all the right things as he explained why It’s good to be alive today (my blog URL btw).

Then I pulled in my driveway. My physical journey over for the day, my emotional one only beginning. This playlist was my year in review. It nailed it.

I’ve had love and I’ve lost it.

I’ve sung and danced, and I’ve drummed with delight and cried my ass off on the same steering wheel.

I know what I need to do just not how to do it.

I’ve been to the River and found nothing but dirty water.

I’ve reached to the sky and found heaven right in front of me.

And I’ve gotten behind the wheel, gotten the urge to go somewhere and God help the bastard in front of me if they don’t let me pass them.

It is good to be alive today.

 

 

My favorite addiction

jjj-2018

 

 

I wake up craving you

I want you tall

I like you hot

I want to take you orally

black is awesome

your Brazilian is my favorite

you warm me

wake me

I tremble without you

strangers meet over you

I get a headache without you

I can’t get enough of you

but if I try

I can’t sleep

You are coffee and I fucking love you

https://lindaghill.com/2017/12/27/what-is-just-jot-it-january-2018-rules/

 

Thank you

Tonight I reached 500 likes on my blog, yesterday I broke the 50 followers mark.

When I started this blog I needed an outlet to exorcise my demons, cope with my situation, learn about myself and see if my story would be interesting.

Writing has always been an interest of mine, having someone read what I write a goal. I am so thankful for those of you that discovered my little corner of the internet.

To some, 50 followers and 500 likes is a drop in a bucket. To me, it means everything.

Thank you

A New Year’s Toast

A Toast

to the parents struggling to care for their family. May they provide sustenance and love for the children

to the first responder running towards danger when others run from it. May you always stay safe

to the soldier thousands of miles from those that love them. May your mission be righteous and your body unscathed

to the health care workers who give more to others more than they give to themselves. May their selflessness be recognized and appreciated

to the bullied child. May your struggles be recognized before it’s too late

to the bully. May you see the error of your ways

to the ill. May you experience recovery

to the grieving. May you experience closure and peace

to the hungry. May your plate always be full

to our leaders. May they do what is right, not what is profitable or electable

to the disenfranchised, the angry and the frustrated. May you find an outlet and peace in your heart

to the practitioners of hate and division. May you become part of the solution, not part of the problem

to those that chose the path of honesty and integrity. May you never second-guess that choice

to those who are glued to screens. May you look away and see the beauty all around you

to those fighting a hard battle. May the people you meet treat you with kindness and respect.

Here’s to a better you. A better us. A better world. It’s up to us to make it a good year.

Here’s to you.

 

Happier New Year

I am really looking forward to seeing 2017 limp out the door Sunday night at midnight. I hope that it was a wonderful year for anyone that sees this, but for me, it is one to be forgotten. I won’t dwell on the bad stuff if you are a reader of this blog, you already know what I have been dealing with. I am encouraged that, after self-evaluation, I am still able to look to the future as an opportunity for better things and new opportunities.

My son last night told me he is glad that I am optimistic after this last year. I explained to him that I had, in fact, lost it for a while but now have it back. I explained a boxing analogy to him.  A good fighter can take a good shot to the chin, shake it off and come back swinging. For years I was able to do that. This year, this fighter took a devastating series of blows that I couldn’t shake off. I fell to the mat and was down for the count. But I’m back now and I want a rematch. As I tear a page from my daily planner, underneath is a fresh day.

One thing I am very happy about in 2017 is this blog. I have always dabbled in writing but never had the time to commit to a blog. Now, for better or for worse, I have nothing but time. I have committed to working on this blog every day. It has done wonders in helping me to exorcise my demons, to express myself, and to unburden myself of the excessive emotional weight of the events of my life. And I am so happy to have readers.

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I have almost 40 followers. A paltry amount to many but a big deal to me. As an aspiring writer with a story to tell, you give me the motivation to continue to write, to explore my boundaries, to share my story and in the process, free my soul.

I follow so many of you, I enjoy your posts and admirable writing styles. You give me feedback, hope, and encouragement and you have become a part of my life.

I hope all of you have a wonderful New Years Eve and a fantastic 2018 full of pushing forward towards your dreams.

My car has a big windshield and a small rear-view mirror because what is behind me is not nearly as important as what is ahead.