Category: remembrance

Bedside manner and the birth of a blog

Here’s the scene. A renowned oncologist has a stage 4 Melanoma patient as a guest at one of his lectures. She stands before the class. A veritable sea of solemn faces sits behind the life-sucking glow of the laptops before them. The Dr. wants the students to ask his patient the hard questions. In the hopes of improving their future “bedside manner.”
The questions commence. The students are unenthusiastic. They speak in clinical terms. Their faces offer no glimpse of empathy, sympathy, or understanding. They view her with the same enthusiasm as a cadaver. After the third emotionless, flat question the patient turns on them. She challenges their affect. She challenges their humanity. She implores them to see a person, not a patient. In response to her impassioned words, a student flatly asked her how she’s feeling. She then goes off on them as the Dr. watches on in silent agreement.
“How am I feeling?” How are we feeling?” “We’re dying, that’s how we feel!”
“And another thing”, she implored. “When you talk to us try to stop looking so fucking terrified!”
End scene.

The Big C. My kind of show.
Due to my medical history, I cannot help but be very aware of death. I’m not obsessed morbidly. I don’t plan to go anytime soon. Nor, and most important, am I afraid of it. It’s quite simple, actually. I spent so much time sick that it was always there in front of me. So I got to know it.
There are positive takeaways from being mindful of death. It changes how you live, for starters. Facing your own mortality opens the door between “someday I will die” and “when I die”. Suddenly, it becomes a part of your thought process. I think about it from every angle, and I’ve made peace with almost all scenarios. I live with a legacy mindset, always conscious of how I will be remembered. I’m at peace with all of it.
With the exception of a Cancer diagnosis.

That is the appeal of The Big C. It is a brave, unflinching, and honest look at life while facing death. It has it all. Bucket lists, difficult conversations, clinical trials, and experimental medications. Emotions range wildly as we watch Cathy Jamison, played by the always delightful Laura Linney, endure the highs of small victories and the crushing depths of disappointments and setbacks. At the center of it all, she is simply trying to live a normal life, with some mortality-related improvements. I believe it beautifully portrays a loving family dealing with loss. They are slightly dysfunctional and are coping with losing a mother and wife. The true beauty is that the show gives equal treatment to the concerns of both the survivors and the patient.
For the sake of this post, I want to shift focus to the medical aspect. In particular, the challenges of maintaining patient dignity in treatment. That is why I led the story as I did.

I’m very familiar with the patient/Doctor dynamic. In particular, I am very in tune with tone-deaf doctors and Nurses. My experiences have been mostly positive. However, many patients feel like a number or a statistic. They don’t feel like people because Bedside manner isn’t stressed as it once was. How do I know? I was told this by one of my own Doctors.

While hospitalized in 2016 for excessive water retention due to a failed transplant, I was approached by my Nephrologist. He said,
“Bill, you’re going to be here for a few days. If you have the energy, would you do a favor for me?”
“Sure, I’ve got nothing else to do.”
He went on to explain that he had a team of students. By his assessment, they had poor bedside manner. He made quotation fingers as he said “Bedside manner”, so I pressed. He explained that they were very bright and gifted clinically. Still, he was very concerned about their lack of empathy when dealing with patients. I admired that he cared about this, but I was not surprised. After all, he was very good with me.
I asked him what he wanted from me. He explained that he wanted me to tell them my story. Which he knew all about, of course. He said I should not volunteer everything. He wanted me to let them “pull it out of me” due to my natural tendency to overshare. In return, he would give me a certificate for helping out. I was glad to do it.
2 hours later, my hospital bed was surrounded by Medical students. I made it hard on them. I made them pull out of me the things not on their chart. The challenges of being sick for years on end. The financial, marital, parental, and occupational challenges of Chronic illness. I told them as only I could. One of them was in tears at the end, and others were visibly shaken.
My Doctor would later tell me that I was the perfect choice for such a lesson.

Soon after, I was visited by friends. They immediately noticed the new Certificate of Appreciation on my table and asked about it. I shared the story. One of them said, “Brother, you need to start documenting this shit. Write a book, man.” I mentioned that I used to have a blog, maybe it was time to start a new one? The name of it hit me instantly.
Superman can’t find a phone booth. The meaning was simple. I had fight left in me, but I was too weak to find the strength to change into my bullet-proof costume.

This is the same blog, just renamed because eventually I did indeed find my Phone Booth.

People over patients. Bedside manner is everything.


Winter Nostalgia: Childhood Memories and Change

Stopping by Woods on a Snowy Evening

By Robert Frost

Whose woods these are I think I know.   

His house is in the village though;   

He will not see me stopping here   

To watch his woods fill up with snow.   

My little horse must think it queer   

To stop without a farmhouse near   

Between the woods and frozen lake   

The darkest evening of the year.   

He gives his harness bells a shake   

To ask if there is some mistake.   

The only other sound’s the sweep   

Of easy wind and downy flake.   

The woods are lovely, dark and deep,   

But I have promises to keep,   

And miles to go before I sleep,   

And miles to go before I sleep.

Snow drifts as far as the eye can see. Entire windblown fields are smooth, perfectly white and devoid of any tracks, human or otherwise. The wind beats the side of my apartment building and the smell of wood stoves fills the air. The rumble of plows interrupts the serenity. Soon, the landscape, as fresh as off the pages of a Robert Frost poem, will change. It will be tarnished brown by the taint of people again. We’re getting a “real” winter in New England. By “real”, I mean this is how every winter used to be when I was a kid.

For whatever reason, Winters aren’t what they used to be. Yes, I know this sounds like the musings of an old man, one who starts with, “Back in my day”. But I’m only 60, and there is no question that winters are not what they were. With rare exception, Winters for the last 20 or so years in New England have been hit or miss. Snowfall levels, despite some large storms each year, have consistently fallen. Despite some periods of extreme cold, average temperatures have risen consistently. Here in NH, snow amounts vary. They increase the farther North you go. However, even the Granite State doesn’t get what it used to. Massachusetts can go entire winters without any significant snowfall.

I hate snow now. I’m old, and I get cold easily. Shoveling kills my back. I hate driving in it. It just makes me want to go to Florida with the snowbirds. The years have changed my love of winter. As a kid, I loved it.

The first thing I think of when I think of snow as a kid was the Snow Day. They were a treat. In the late 60’s and early 70’s, canceling school was not what it is today. Today, the mere threat of a storm will close schools. Then, the school system did everything they could not to. Snow coming? Maybe we’ll let them out early. Snowed overnight? Better put the chains on the tires and wear your boots. My school was on a hill. If the Bus feasibly climbed that hill, then school was on.
One of the most nerve-wracking experiences then was waking up to snow. We waited patiently for the local TV channel or the radio station to call off school. Even when surrounding towns closed, often my town didn’t. Sometimes I would get up and wait with my Mother for the announcement. Other times, I would listen to the radio with fingers crossed. More often than not, I would end up going to school in the snow. Trudging up the hill to school was a nightmare. I would fall constantly in the really bad stuff. The insult was added to injury. The kids on the bus mocked me as the bus struggled up the steep hill to school.
I was bullied, did I mention that?

The days when school was called? That was the best feeling ever. I would go back to bed for a while. Alternatively, I would get up and watch some daytime TV on one of the 5 available channels. Then, I would load up on sugary cereal. If the snow had stopped already, I would shovel our driveway. Our driveway was very wide and long. Looking back, it was a hell of a big job. My young body could take it, but I would be sore after. But I had no time for pain. There was money to be made.

I had several neighbors that were loyal to me. One thing you don’t see after a snow storm today is kids with shovels over their shoulders. They used to knock on doors. When I was a kid, I had competition for my driveways. So, I had to be prompt. I also had to demand loyalty from my customers. These were the same people whose lawns I mowed in the summer and whose leaves I raked in the fall. I took good care of my neighbors. I was actually quite enterprising in those days. I would revel in making $ 6, maybe $ 10, a driveway!
The shoveling would sometimes take all day. But if I was done early, there was sledding and tobogganing to do. My hometown had several great hills within walking distance. My friends and I would try to hit them all. Looking back, what I wouldn’t do for the energy that I once had! Going downhill at breakneck speed is thrilling. Walking back up that hill several times took quite a toll on us. Despite being tired, we kept going. Fitness was stressed back then, we didn’t sit in front of screens all day. We were outside doing things. We only stopped for candy cigarettes, PB&Js, and hot chocolate in the winter. In the summer, we drank water from the hose.
Many kids today won’t understand being outside all of the time. Our parents knew that by being outside, we would not only be active, but bonds were created. Good habits were formed. An appreciation of Nature was obtained. As a child, I fondly remember the ethereal silence of the woods after a fresh snowfall. It was only interrupted by a falling branch or the movement of wildlife. I remember those rare moments when I felt warm despite the harsh cold. I felt incredibly at peace with the space around me. The sweat under my jacket was warm and comforting. The world was at peace. The blanket of snow had somehow muted the ugliness of the world. It was just for a moment.

I sometimes experience that same peace when I shovel. I find myself looking around. I am keenly aware of how uncomfortable the weather has made my old body. Yet, I marvel at the tranquility of a major snowfall and find peace in it. I wish that I loved winter as I used to. My youthful enthusiasm has been replaced by cynicism. I forget about the beauty and dread the cleanup. I fret over upcoming heating bills instead of appreciating one of New England’s most beautiful seasons.

I think of going to Florida, where it’s everything I hate: hot, flat, and full of bugs. I don’t think I can ever leave New England, the land of the true 4 seasons. Instead of running from winter, maybe it’s time to embrace it. I’m confronting everything else in my life right now, maybe I can challenge my hatred of winter. After all, isn’t the dark of winter metaphorical to the approach of death? By challenging the cold, and in particular my disdain for it, maybe I’m challenging my aging mindset.

Cynicism and Faith: A Journey of Belief

I was recently asked if I believed in Miracles. 20 years ago, I would have answered this question with a flat, fast NO. Now, after several incidents that defy logical explanation, it’s a firm and steadfast maybe.

A miracle is a powerful thing that defies the physical world and all of the laws of probability. There’s a reason that it requires a panel of very stodgy and high-ranking Catholics to classify anything as a miracle. In that light nothing I’ve witnessed in my life fits the mold.

Perhaps it’s the religious implication of the word. Miracles are largely attributed to a Divine entity. I believe in a higher power, but in the most undefined of ways. I struggle with the notion of an interactive deity. Instead, I chalk belief in such things as miracles up to the human need to explain the unexplainable.

I’m a cynic. I question everything.

I was always uncomfortable owning that. Being a cynic is often mistaken for being challenging or disagreeable. It may be aligned with my trust issues. My favorite saying is, “Trust but verify.” My distrust of people is surely related to my need for proof in matters of belief. Despite having Faith, Hope, and Charity on my right forearm, faith is very elusive to me. The tattoo merely represents hope. With Faith being the struggle that it is, Deity is a constant challenge. Consequently, miracles don’t exist in my world.

Did I mention that I am a fair cynic? I admit to being a quasi-believer at best. I also don’t presume that everything needs an answer. I’ve already admitted my belief. I think that religion is man’s way of explaining what his mind cannot grasp. Prayer plays a particular role in this. I’m not of the same school. I am okay with not knowing the answers to the great mysteries in life. I will continue to question the very meaning of life until my last breath. I will be okay if I never truly understand. I am insignificant, a grain of sand on an eternal beach. I am perfectly content with the possibility that I am not expected to know. Maybe I am supposed to trust the process, as everyone is so fond of saying these days.

As an aside, I constantly question the larger questions in life. I do this not to dismiss the notion of a God, but to come to peace with it. I want, more than anything, to believe. I’m just not there. In the spirit of an inquisitive being, I seek to be wrong. Almost everyone else will retreat to be right in their own minds.

If anyone should believe in miracles, it is me. I have come out on the other side of tragedy and death more than a few times. I have been in a coma, had sepsis, severe accidents, and chronic disease. More than once, I entered a hospital that most thought I wouldn’t leave without a toe tag. I’m still here. Maybe it’s a miracle. But I don’t think I’m important enough, in the grand scheme of things, to warrant one. My life is good and well-intentioned. But the ripples of my actions don’t cross even a duck pond. Instead, I look at my continued presence as the result of good Karma. Everything is energy, after all, and I know I put out good energy into the world. My reward was getting to stick around a little longer.

Living Life Beyond Complaints: A Stoic Perspective

Marcus Aurelius Antoninus, Roman Emperor and Stoic, wrote the above quote over 1800 years ago. Who knew that “Suck it up, buttercup” was a thing so long ago? Are we to surmise that the great Toga-clad Roman society was no more free from complainers than we are today? I suppose this oversimplification fails to do the quote justice. It’s not about complaining, it’s about strength. Marcus Aurelius, as a Stoic Philosopher, believed that the quality of life is determined by how well you face adversity. In short, not everything requires action or a response.

Still, it is refreshing that, as early as 180 A,D complaining was a thing. It tells me it’s not a lovely side effect of a population growing less resilient.

I’m particularly familiar with this quote because I live it. To be clear, I am not special, nor do I want a cookie for having a challenging life. I don’t know anyone whose life isn’t. We all have problems, and it’s not a contest. One may view another’s issues as insignificant compared to one’s own. Still, that does not change the fact that everyone’s problems matter a lot to them. People need to understand this. Some choose to talk about it. Others keep it to themselves, comfortable in the age-old notion that nobody really cares. Or out of not wanting to burden others. And then others, well, they complain.
Not me.

As a person who has consistently dealt with setback after setback, I don’t talk much about my challenges. I was reluctantly “the sick guy” for a long time. Whenever I encountered anyone I knew, there was an inevitable, “How are you feeling?” coming. Please don’t take this as unappreciative. Good words are not guaranteed from everyone. Take them when you can. I simply struggled with the fact that my illness was the most definable aspect of my persona.
The most positive trait I can offer is that I am not a complainer.
I would rather be known as the opposite of a complainer.
Content. Stoic. Strong. Positive. Optimistic.

Have you ever heard someone refer to another as a survivor? “Oh, he/she’s been through so much. What a survivor. I can’t stand that. We are one of 2 things. We are alive, or we are not. Being present enough to be called a survivor means that you are alive. Logic thereby dictates that you have survived. My attitude is that while above the dirt, go out and live while you can.
Life is to be endured.

The mistake we make is to expect life to be fair or happy. The Declaration of Independence offers us the right to pursue happiness, but there is no guarantee of it. Yet many think that happiness itself is guaranteed, and any other outcome is thereby a disappointment. My attitude is that life is a series of obstacles, challenges, disappointments, and pivotal moments. Mixed in with everything entailed in surviving, we have moments of happiness. Brief periods of joy. Those are to be looked forward to because they justify the struggle. Strong people find something to be happy about. Others complain. They fail to recognize that the very breath they use to complain is something for which they should be grateful.

The choice is simple. Endure in silence, or find something in your particular situation to be grateful for. I’m facing another health challenge after only 4 years of relatively good health (my second longest streak). I’m sure that I could find many things to complain about. But I never will. Not only do people not care, but they also don’t like it. They appreciate someone who makes the best out of their situation.

I have a great life. To focus on what I can’t control is just the wrong way to live. Instead, concentrate on what I have in front of me and what lies ahead. Your stone will someday display a date of birth and a date of expiration. The dash, well, that’s everything in between. Live for that.

The veneer of civilization


“Then you see kids, good kids from good families. Back home, these kids would help little old ladies across the street. They would also go to Bible study. Yet, they do these horrible things. They’re in the country for a little bit, and it’s like the veneer of civilization peels right off of them.”

The quote above is from a Vietnam Veteran. He was interviewed for the 10-part documentary The Vietnam War by Ken Burns. He was talking about “acts of war”. In particular, the acts of savagery committed by some American soldiers while serving in Vietnam.

At an average of 90 minutes per episode, completing the series was challenging. But I did, and I have a lot of takeaways. There are hours of battle footage, commentary, and interviews. All the players are involved, including politicians and soldiers from South and North Vietnam, and the enemy. It covers all of the geopolitics involved in Cold War Southeast Asia. Per usual, Burns provides an honest, balanced and unflinching look at one of the darkest chapters in recent history.

The veterans interviewed did the unusual. They talked openly about their experience. They ranged from the reluctant draftee to the hardened veteran. There was also the wide-eyed, eager recruit seeking the honor and glory his father achieved. Finally, there was the everyday guy from Anytown, USA, who felt the call of Patriotism. They all went to the same place, but all came back very different. It wasn’t like the last war, their Dad’s war. And glory was not in the cards.

A lot of men did and saw things that would haunt them. When villages were razed, livestock slaughtered, suspected enemies gunned down, and food supplies destroyed, part of following orders, a lot of soldiers found their moral compass in danger. Some made “deals with the devil” to rationalize their acts. One soldier said, “I will never kill another human, but there’s no limit to how many Vietcong I will waste.” If they are no longer people, then it becomes easier. They are the enemy; they do not matter.

Then some stretched the thin red line even further. Rapes, mass killings of civilians, and excess brutality sometimes occurred. As it says above, it was as if the veneer of civilization had worn off of them.”

At home, the war had changed people as well. The escalating campaign was enormously controversial. Young people broke ranks with their parents’ beliefs. Students took to the streets and challenged authority figures. Peaceful protest morphed into violence as frustration with a growing conflict grew. Pictures of bombing campaigns and burned children were finding their way into American living rooms, and people were outraged. Some activists decided that violence was justified, and riots and bombings occurred. It culminated when the National Guard opened fire on a crowd at Kent State and killed four. One veteran lamented, “It has gotten so bad we are killing our own at home”. Even after the Saigon airlift of ’73, this country was divided and forever damaged.

When the soldiers returned, there was no ticker tape parade. The hostility towards the war had been directed towards those who had been charged with fighting it. The brave men and women who fought the unpopular war returned from planes and boats. They were unjustly called “baby killers” and were spit upon. These people are still owed the Welcome Home they deserved. But as I have said. Everyone and everything had changed.

What are the rules of civilization? Are they inherent? Are we born to act rationally and be decent to each other? Is it the job of parents to instill the concept of society in us? Is the veneer of civilization so thin that it can be easily worn down? Can we easily descend into barbarism and savagery?

You may not know what it was like to see the political climate of the late 60’s and early 70’s. It isn’t too late. You can still see it. Just turn on your TV. Because it’s still happening, only the target of the outrage is different. Riots, Nazi flags, death threats, mass shootings, shouting, fighting, people just being ugly to each other. So I have to ask; if the veneer of civilization is but a thin covering, what’s underneath?

The Quiet Strength of Resilience in Tough Times

Resilience isn’t dramatic.
It’s choosing life repeatedly,
even when joy feels borrowed,
And tomorrow feels unsure.
Anonymous

I saw this the other day while doom scrolling FB reels. There are a lot of gems of wisdom, tailored to your particular crisis on social media. In my case, the FB algorithm stepped it up to Yoda mode. Who am I to fight it?
I watch those reels because no matter the topic at hand. I never fail to glean some wisdom or useful nuggets that inspire me. By inspire me, I mean it gives me some general validation. It affirms the troubled traits bothering me at that moment.
This week’s troubling trait is Resilience. I’ve been thinking about it constantly.

If you have been reading, you know that I have been faced with yet another health challenge. Upon initial diagnosis, I was very concerned. The surgery is extensive and is followed by a long recovery. I wasn’t sure that I was up for it. While it goes against every fiber of my being, I thought my good run may be over. Consistent with the theme of “going against every fiber of my being”, I also did something I rarely do. I shared my dilemma with my close friends. I rarely share my struggles. I grew up figuring out shit all on my own. Upon hearing the news of my upcoming surgery, my friends were amazing, as to be expected. They were supportive in offering help in any way, and many shoulders were offered to lean on. I appreciated such offers.
The true takeaway was how many people commented on my past resilience, encouraging me to take inspiration from that. Then it occurred to me that that is what I am known for. I’m the guy known for never giving up and rewriting the narrative. Where was that guy?

Why wasn’t my initial reaction what it was when I’ve faced a health challenge before? I had to meditate on that for a few days. I had more questions than answers. That is why the above quote grabbed me so.
Here’s what I came up with. The choice to fight isn’t always out of vim and vigor or enthusiastic tenacity. Sometimes it is merely a choice. Not dramatic but instead pragmatic. The choice is, of course, living or ending it. A choice I have contemplated so very often of late.

I am not suicidal. I am merely dancing with the notion of being done. “Done” is a common topic of thought for many people in my situation. What situation is that?
Older. Plagued by physical maladies. Not financially secure. Finding myself not needed as I once was, and unwilling to insert myself into situations in order to change it. Having maximized my usefulness and in need of a purpose. Life has become a chore, and hope for it changing fades with each passing year. The ensuing tragedy of feeling this way is that suicide becomes less about being incapable of dealing with life. And instead, it becomes more about how willing you are to continue dealing.

Resilience isn’t dramatic. No, it’s a character trait. One that fades over time.
It’s choosing life repeatedly. Yes, because the alternative is less desirable. Not to mention the damage it does to those you leave behind.
Even when joy feels borrowed. There are moments when the only happy moments in my life are vicarious.
And tomorrow feels unsure. What makes me choose life is the hope that my future will be brighter, despite all indications to the contrary.

So I will fight this in my usual manner. I will reclaim my tenacity and beat this latest challenge. Not because I have a particular desire to achieve another victory over a medical foe. I want to stick around for a while to see what happens. I’ve been to enough parties to know that if you leave too soon, you will miss the good stuff. That will have to be a good enough reason to fight this battle. Being an enthusiastic participant in my own life is something I need to get back to as it is. I miss that guy.
That guy has been conspicuously absent for too long.

How do I overcome this stretch of existing and get back to my love of living?

200 miles

To survive is to be alive, long after the reason to live has died.
Author unknown

I was thinking recently about Hugh Glass. In 1823, Hugh Glass survived a Grizzly Bear attack. Then he crawled over 200 miles before he finally reached help in South Dakota. It took him weeks. He was the inspiration for the movie The Revenant. Upon reading it, I asked myself if I was capable of such a feat. The answer required little contemplation. No.
I was troubled by what I came up with.

The story of Hugh Glass caused me to explore something I think about frequently, the Will to Live. Late at night, when the demons come, my thoughts turn dark. I debate some horrible shit when I go down the Rabbit hole. When I was sick and on Dialysis, I did my best work. I thought about suicide most seriously. While in this state, I had no regard for anything at all. My life, except for the support of my family and friends, had little to no meaning. The only thing that kept me from doing it was the thought of what it would do to my family. I had ceased to live a purposeful life. I was merely existing. Surviving through my greatest trait. Stubbornness.
I was “surviving to be alive, long after the reason to live had died.”

The above phrase is attributed to the concept developed by German philosopher Arthur Schoppenhaur, supported and furthered by Viktor Frankl. It reflects the concept of an irrational, blind, incessant impulse without knowledge that drives instinctive behaviors. It further suggests that even when life feels meaningless, the act of surviving itself is a form of survival.
Viktor Frankl brilliantly explored this concept through the context of Holocaust survivors in Nazi Germany in Man’s search for Meaning. He observed that survivors often find hope and purpose in their experiences, which can lead to personal growth and resilience.

It’s a powerful thing to ponder. Sadly, I know many people who ponder it as well. I hear them say such things as, “I have no future”, or
“What’s the point?”
“There’s nothing left for me here”,
“I just don’t want to do it anymore.”
Wait, that last one was mine.
It pains me to remember. At the height of my illness, in the darkest of the dark nights, my mind journeyed to hidden places. I can still recall the state I was in. Awash in despair, devoid of interest in the future, desperate for sleep. In those moments, relief was all I could think about. Curled in the fetal position, cocooned in a blanket, I often found myself muttering to noone in particular, “I just don’t want to do it anymore.”
More than once, I said it while sitting on the edge of my bed, .38 Special balanced on my right thigh.
Those were dark days indeed.

My situation has improved since then. I received the gift of an organ transplant 4 years ago. I have made great strides in reclaiming my health, recovering my finances, and rebuilding my life. I have wonderful relationships with family and friends. I am an active Mason, and it is hugely important to me and an integral part of my life. I have a fulfilling social life. I say YES to almost every opportunity now. Having stared down my own mortality, I live like there is no tomorrow. I have a great life.
Still, incredulously, I sometimes go down the Rabbit Hole. I have learned a lot about myself recently, and I am aware that I suffer from depression. It’s not constant or consistent. I just have my moments.
Despite all of the good in my life, my dark half renders me helpless when the darkness comes. I take the negatives in my life and give them more status than they deserve. I find myself emphasizing the significant but manageable negatives in my life to the point of crisis. I then find myself overwhelmed, distraught, and looking for a way out. Which is, of course, just ending it already.
The terror is palpable. As is the frustration when I come out of it. Fortunately.

Here it is. I don’t want to die. I like my life. I may even love it; it depends largely on the day. I am living a purposeful life. The negatives of my life are manageable. Sure, I wish I were better off financially. But good things always happen to me, so why worry about it? I really do desire to have a female companion on this journey. But who knows if I’ll meet her tomorrow? And amazingly, I am doing fine without one. I have a lot to be grateful for, and I am living a blessed life.

So, back to the above quote, and the man who crawled 200 miles to survive, and the question of whether I was capable of such a feat.
I have changed my answer to a firm, resolute MAYBE. What I do know with certainty is that I would never just lie down and die. I would try. My mental health would determine how hard I tried. It would, consequently, decide how many miles I would be able to crawl. If it happens to me on a day when I feel good about myself. A day when I am at peace with who I am. Or a day that I am not consumed by self-deprecating and self-sabotaging behaviors. A day in which I feel in harmony with my resilience. A day when I knowingly wield the sword of inner strength that allowed me overcome two life-threatening diseases. This strength has also helped me face many transformational obstacles.
On those days, 201.
When the darkness comes? I would have leaned against the nearest tree. I would have sighed with relief. I welcomed the inevitable with one last “I can’t do it anymore.”

My mission in life going ahead must be to vanquish the “me” that would give up that easily. But that’s the thing about the darkness. It comes whether I want it to or not. The key for me is to always focus on the purposeful aspects of my life. I want to stay on track with my hope to die a good man. I aim to be a man who left the world a little better than he found it. At the very least, I hope not to make it worse off. I have to learn to consistently look at the good in my life.

Then, and only then, will I end the dichotomy of Living with Meaning vs. merely existing.

Christmas Reflections: A Journey Through Disillusionment

Christmas is a very different experience at this point in my life. In so very many ways.

For the sake of a concise opening, I will state up front that I very much dislike holidays. And I am not entirely sure why. I do know that I haven’t for quite some time.

It is Christmas, of course, given the timing of this post, that I dislike the most. I think I always have. To establish context, I’ve disliked it for many years. The reasons have changed as I’ve evolved as a man, husband, father, and now aging cynic. At the base of it, I reject the fundamental reason for the Holiday. I have never, despite fleeting moments of attempted conformity, totally believed in the Christ story. I think it is a nice idea. Part of me wants desperately to believe in it. Yet, it largely eludes me. I remain a deeply spiritual yet skeptical man.
Lack of belief aside, I played along. As I said, it’s a very nice idea, and it gives a lot of people comfort. So I played along with my family as a child and young man. I went to Church with them, I partook in the pageants, and I even went Caroling. The pageantry appealed to me to a degree. At my core, I know I enjoyed it when people were nice to each other. It was pleasant for a few weeks each year. That, of course, would fade. I learned at a very young age that Christmas, and the accompanying benevolence, was largely bullshit. A very select few celebrated the actual reason for the season, everyone else practiced rampant consumerism and excess. The charity ended when the trees hit the sidewald on January 2nd.

The consumerism in my house was noteworthy. My parents, who practiced relative financial responsibility most of the year, went full consumer on Christmas. For my dad, showing my Mother how much he loved her was a challenge. He did this by bestowing an obscene amount of gifts on her. Which of course, she would try to reciprocate, and it evolved into a big contest. I was well taken care of as well. But I wasn’t very materialistic, and my experience was watching the obscene gift exchange play out before me. I can’t find a word to describe how it made me feel, but ‘uncomfortable’ and ‘misguided’ come to mind.

When I had my own family, I began to enjoy Christmas a little. The Christmas Eve party was something to look forward to. The enticing aromas of appetizers and the exotic and abundant cocktails were delightful. Sharing all that with family and friends made it even more special. Even when I knew we had an all-nighter ahead, putting together the big toys was necessary. This was after the nearly impossible task of getting excited little ones to sleep. I hated it then, but what I wouldn’t give now to be awoken at 4:30 AM (or earlier) by excited tykes checking out the bounties of Santa Claus. We would sometimes succeed in getting them back to bed. However, it was more likely that I would make my coffee. I would then watch as three months of planning went into action. Shopping and wrapping quickly transitioned into torn paper and opened gifts before our tired eyes. It was frustrating then, but the joy on their faces remains one of my favorite memories as a father. The gifts were an easy and fun way to express our love. The joy on their faces justified all the work and stress. A labor of love with a tremendous yield indeed.
I miss those days, brief and fleeting as they were, so very much.

As the kids grew older, Christmas lost its luster. Not only to the parents. The kids no longer believed in the myth of a bearded Man with Reindeer-powered sleighs. They learned that it’s just the parents doing the best they can. And we did. Christmas was always a day that we tried to make a special family day, to mixed results. But my wife and I tried our best. Even as we went our different ways after financial hardship fell upon us. We made the most of it.

Now, we are at a special time for Christmas. The kids are all grown and have their own places. My role, and my ex’s, has evolved from caretaker to guest. Our children now invite us to their homes and wait on us. I want to clarify something. It is now their pleasure to tend to us. It is not their obligation or duty. It is such a nice transition. Additionally, there is a baby in our Christmas celebration once again, with one on the way. This year, Christmas Eve felt special once again. My little granddaughter just stole the show. Reminding me that the joy of the Holiday lies in the joy of the Children.

The hardest transition, for my ex not me, is letting the kids have Christmas day to themselves. I think my ex struggles with this one. I think she, much like me, carries a lot of guilt and resentment of how things were for our family. Consequently, she (in my opinion) tries a bit too hard. But she has accepted that they have their own lives now, with in-laws of their own to visit with. As for me, I enjoy having Christmas day to myself.

This Christmas Eve, as I said, was very pleasurable. The food was amazing, the company better, and the memories forever. Our family is thriving in so many ways. The only problem is that I wasn’t feeling well. I have been fighting a losing battle with a cold and I couldn’t wait to go home and rest. When I was invited to my youngest Son’s house the next day, I made it a game-day decision to attend.
Regrettably, I did not attend. As expected, I felt miserable yesterday and stayed home. I know I missed a good time, and I wish I had been able to go. Had I gone, I wouldn’t have been given the time and environment to stew on how much, save for the family time, I dislike the Christmas holiday. I spent the entire day alone. I never showered, dressed, or left the house. I wallowed in how the Holiday is still lost on me.
I don’t feel the religious “tug” of the day.
I think most of the sentiment is horseshit and will end as soon as the page of the calendar turns.
I resent the gross consumerism and excess of the season.
Most, not all, of the charitable attitudes will disappear with the holiday.
I have no one to be joyful with.

There it is. Nothing exacerbates my dislike of the holidays more than my absence of a special someone in my life. It permeates my life during all seasons, but it is so very conspicuous during the Holidays. So many people around me are downright giddy about sharing wonderful moments with their loved ones. While I am happy for them, it depresses me terribly. I struggle with wanting a special someone in my life year-round. This time of year the weight is almost unbearable.


No help for me, thanks

“The child who wasn’t comforted still lives inside the adult who doesn’t ask for help.”
Author Unknown

Why is my go-to emotional reaction to inquiries about my upbringing initially negative? If asked, I don’t answer in the negative; I have adopted a Go with your second reflex policy of late. My second reflex/answer would be to say, “I don’t remember needing anything.” The real answer would probably be, “Pretty messed up.” As I read this, that’s unfair. My parents did everything they could to give me a happy childhood. What was messed up was me.
That’s a tough one to share. It seems foolish to write about this. Still, I have been thinking a lot about Childhood Trauma lately. After all, I exhibit multiple traits of a person suffering from Childhood Trauma.
The problem is that I don’t remember experiencing Trauma as a child. Yet I exhibit the following:
Avoidance of relationships: I avoid or bail out of relationships to avoid getting hurt. I do want a relationship. However, I am very battle-scarred. I will run from a person if I so much as think they will hurt me.
People-Pleasing. I am so guilty of this. I engage in behaviors that make other people happy to avoid the emotional pain of not being appreciated.
Perfectionism: I set super-high standards for myself. I rarely meet them and then denigrate myself as a failure.
Constant comparison to others: Comparing yourself to others will almost always lead or contribute low self-esteem. I am never so low that I can’t find someone doing so much better to make me go lower.

5 out of 5, that’s problematic. And begs further exploration. A far-fetched option is that something traumatic occurred that I’ve suppressed way, way down, and it’s starting to surface. That’s unlikely. I have vivid memories of my childhood. While there are many events that still haunt me, they fall more into the category of learning experiences, not Trauma. Yes, they were difficult to process and probably left some scars, but they were necessary. My generation, unlike today’s, learned lessons the hard way. Saying the wrong thing to the wrong person often resulted in a punch in the face. Getting rejected at a School Dance stung a lot. Betrayal by the hand of a friend comes to mind as well. And can I ever forget the disappointed look on my Dad’s face when I acted beneath his standards?
Again, learning experiences. Rites of passage, perhaps. So why did I jump at the above quote, inspiring a blog entry?
The term “Doesn’t ask for help.”

I don’t ask for help, even among my friends. Today, I met with some dear friends, Masons, for our weekly coffee. Between 4 and 6 of us turn out to talk. The rules are no rules. Talk about anything, but if you need to unburden yourself of something, your problems become our problems. We unburden without fear of reprisal or lack of confidentiality, and we listen unconditionally. It is our own little therapy group.
It is an honor for someone to feel comfortable enough to share their innermost conflicts with you. To seek your counsel is a higher honor. I am proud to tell you that many Brothers have sought out my listening/counsel over the years. It is a true blessing among Masons. But I am never the one to unburden myself. I just don’t do that, except in very rare occasions.
I have to ask myself why.
The answer isn’t elusive. I really didn’t have anyone to talk to about my multiple problems growing up.

I learned at a young age to handle everything internally. It began out of a fear of asking a stupid question of my parents. I have always had an unreasonable fear of asking the wrong questions. It may be out of fear of appearing dumb, perhaps I feared mockery. Maybe I felt that I should know it already. I was a very mixed-up child. If I had asked those questions, it is very possible that I would be in a different place today. If this segment reeks of uncertainty, there is a very good reason. Uncertainty is THE word to describe my entire childhood. I have always, including now, been uncertain about myself.
The worries about seeming dumb, ill-informed, or just plain wrong are still there. Not always but enough. I still battle uncertainty about my intellect, competency, reputation, character, and even who the Hell I am. This is partially due to my not asking for help.

As I said, I remember having a happy Childhood. By that, I mean that even though we were not wealthy by any standard, I don’t remember wanting for anything. I never went hungry. I went to camp. I had friends. I played sports. I had an amazing Dog (my best friend) from my earliest memory. My Mom and Dad really tried.
Dad worked a lot, but until he climbed the seniority ladder in his Union, he was laid off most summers. He would work part-time jobs, and our house was always under construction. He was there, but sometimes only in body. It may have only been my impression, but I found my Dad hard to talk to about personal things. I feared him judging me to be weak of character. Toxic masculinity was a thing then. Asking for help almost always resulted in him questioning why I couldn’t “figure it out” myself. As he aged, he became more accessible. As I’m going through right now, he was reviewing his choices in hopes of having achieved a fulfilled life.

My Mom was a very different story. She worked full-time but was home at a reasonable hour each day. She was, and is, a friend as well as a mother. But, and this is a big one, she was very hands-off. As parents who had difficult parents often do, she overcompensated for her own Mother’s overbearing, suffocating parenting style. Consequently, she went the other way and left me to do my thing. I regret going down this road, but I have to point out that she didn’t see the signs. I did everything but scream for help at one point. She didn’t see it.

It got worse when my parents adopted an 8-year-old. I was 13 and well into an adolescent crisis. Puberty, as well as dealing with being bullied among other embarrassments, had me in a spiral. During this critical time, a young girl with a lot of problems was introduced into our family. She had a horrific past and needed much extra attention. This was not what I needed at that moment. My options were to vie for attention or keep to myself. My parents were lost in the transition of adoption. My new sibling required so, so much. My parents just didn’t have much time or attention left for me. So I kept everything to myself, tried to figure things out on my own, and not ask for help.

It is slowly becoming clear to me that the era in discussion may have been traumatic. During my most formative years, when I needed guidance the most, it was just me. I developed what would become a lifelong habit. Not wanting to bother anyone. This is my toxic trait. There is a long line of brothers who would gladly be there for me if I asked. I’m not going to take them up on it because it’s just not who I am. I am the guy who needs more help than anyone can give. But I will never ask for it. I’ll just deal with it in my own way.

All because I wasn’t comforted as a child. Yet I blame nobody but myself. Mom, Dad, it’s not your fault.

I wish I read these sentences earlier in life

  • You won’t always get closure; learn to move on without it.
  • Discipline will take you places motivation never could.
  • Not everyone you lose is a loss; some exits are a blessing.
  • If it costs you your peace, it’s too expensive.
  • You become unstoppable the moment you stop seeking approval.
  • Your future needs you more than your past ever will.

I would like to credit for this intro, but I saw it on a FB Meme. Sometimes you hit gold just reading the musings of others. Sometimes it’s all garbage. But if you try hard enough you can find something thought-provoking if you open yourself to the opportunity.

You won’t always get closure; learn to move on without it. This one, Ugh. I wish I had a dollar for every minute I sat stewing about a conversation, an argument, or a break-up. Closure is essential for the overthinker. It is critical for the anxiety sufferer. If an overthinker says he loves you, then believe them. They’ve thought of every reason not to. Adversely, if you dump an anxiety-ridden over-thinker without a reason, they will invent every possible reason. These reasons may be logical or completely unfounded. Still, they persist. When the simple goddamn truth would have been enough. Hurt, anger, betrayal, they can all be overcome. Lack of answers sends me spiraling. I have had a string of recent break-ups/unexplained endings that devastated me. As I am known to do, I blamed myself for everything. I constantly asked myself what I did/said and replayed countless scenarios on a loop. When a simple “I don’t like you because you _______ would have been fine. As I said, anger subsides. Not getting closure may be easy for some. Not for me. It is enough of a reason to stop dating altogether. It hits me hard.
I really need to stop insisting on closure.

Discipline will take you places motivation never could. It is timely that I came across this today, as I have recently committed to being more disciplined. I am not motivated. I want to be, I try to be but I’m not. Because I don’t practice good habits. I don’t create schedules for myself. I don’t manage my time well. I promised to work on being more disciplined. By creating good habits, I will find motivation to achieve my goals. I haven’t made major changes yet to my routine, but I am making solid baby steps. I feel very driven, dare I say motivated, to achieve this. I’m confident that I will. But the above sentence is as true as can be.

Not everyone you lose is a loss; some exits are a blessing. This one doesn’t need much elaboration. It’s perfect as it is. It does tie in with the first sentence nicely, though. I spent much time commiserating about the lack of closure. Now, I realize those who failed to provide closure are welcome departures from my life. I am a caring, considerate person. I have no place in my life for someone who treats me poorly.

If it costs you your peace, it’s too expensive. My peace is everything to me. Even now, at this advanced stage of my life, I am not at peace. But I am working at it as hard as I am able every day. To be at peace is my life’s goal. When I see the word expensive, I realize it pertains to the cost of peace. I know the cost can be monetary as well as emotional. Example: I love my motorcycle. Riding it is one of the only sources of true joy I have. But it’s very expensive. The payment is causing me distress. It’s bordering on costing me some of that peace. Another example, my efforts in Freemasonry provide me with peace. Over-scheduling myself in those efforts is stressing me out. The more commitments I make, the more I worry about fulfilling them.

You become unstoppable the moment you stop seeking approval. I have always cared way too much about what other people think of me. It stems from me always seeking the approval and validation of a father with whom I had a complicated relationship. I am confident in what I bring to the table. I am able and qualified. Yet, I am terribly concerned about what people think of me. There is a caveat. I’m not so concerned about being liked. I want to be respected and considered a man of good character.
I have made great strides in this area of late. I have become more confident, and surprisingly, a lot more bold and assertive. I am close to being comfortable enough with myself that I may be able to rise above my inner “People-pleaser”. Once I can do that, I will not need, nor desire, the affirmation of others.

Your future needs you more than your past ever will. I wholeheartedly agree with this sentiment. It’s particularly poignant to a person who spends as much time ruminating over past deeds or misdeeds as I. I may never move completely past this, but I am committed to doing my best. Dwelling on the past wastes a massive amount of time. It also poses a massive threat to my mental health. I have plenty of goals. I will never accomplish them if I continue to focus on what cannot be changed. This one may be the most important of all.