Category: health

Anniversary

I received a notification today that this is my 11th anniversary of WP. Wow. That’s the longest I’ve ever stuck with anything.

To be fair, it wasn’t until 2017 that I became a frequent participant. I had always struggled to find a theme, something that I could build on. Well, my entire life collapsing in a span of 6 months in 2017 certainly filled that need. I told my story.

I told a story of failed health, of being at the bottom, lying on my back looking the only place I was able. Up. Because, short of a six foot burial plot, I had sunk that far. When I began blogging, I had little to occupy my time so telling my story became my new pastime. The blog served a purpose. I achieved badly needed catharsis. I dedicated myself to transparency and brutal honesty and then forced myself to read it and face whatever revealed itself to me.

Then I got well. My story was told. I took a break from blogging. I figured that I had nothing to tell. What I failed to recognize was that I was starting a new life. I’m not the sick guy anymore. I have more to my identity, and more importantly, I have an obligation to deal with the myriad character flaws that my journey of discovery and reconciliation revealed to me. My story is not until I write the last chapter.

I think I’ll continue the streak and get a few more years out of this. Basically the same approach I take with my life.

Change is in the air

I love Autumn. Please don’t tell “Summer Me”, I don’t want any hurt feelings. Summer is my favorite season because I love long days, the feeling of the Sun beating down on me, and all of the activities that we cram into a very short season. I romanticize the glory of Summer all winter long because I certifiably hate winter. It’s not so much the cold, but instead the short days and grey skies. SAD (Seasonal Affective Disorder) is a real thing. But after Summer and before the dreaded Winter is Fall. And I love it, despite what comes after it.

About mid-August each year I begin looking forward to Fall weather. The cooler air is a nice break (my asthma welcomes it), a whole new set of outdoor activities awaits, the bugs are gone, and, at least in New England, the scenery is magnificent. Bring on the Fairs, cider, pumpkins, and sweatshirt weather.

This fall will be special for me for 2 reasons.
First, I can coast a bit after a very busy, not-very-fun Summer. I dedicated this summer to working. I really dove into promoting my side hustle of cleaning cars and also worked a part-time job. I had a very successful summer. For a person with my health history, I really pushed myself. I did well with it, I am much healthier as a result. I am also much better off financially.
Additionally, and most exciting, there are some significant changes in the coming weeks. Due to my revived health and improved finances, I am finally moving out of Mom’s house.

Moving away from Mom is bittersweet. We get along great and she is sad to see me go, but it’s time. Whether it is valid or not, I cannot get past the notion that a grown-ass man shouldn’t be living with Mom. There are those that disagree but I can’t get past it. I need to feel like I’m on my own to a degree. Moving in with my good friend and podcast partner Steve will benefit me. We’re very close friends and it should be productive as well as fun.
Mom will be fine. I’m only doing this because she spends half of her time in Florida now. She doesn’t need me as much and I hate being alone when she’s gone. Also, I’m only 2 hours away.

I’m on the precipice of getting my life back. Seeing my friends and family more often (I have no friends where I am, it’s a much older community). Also, my beloved Masonic circle is based where I am moving and after almost a year away from it, I am eager to dive back in.

Here’s to change. The changing of the seasons and the changes in my life. After years of setbacks and lateral moves, I am finally moving forward.

comparisons

In reviewing my last post I hit upon something that I would like to elaborate on.
“Compared to most people my age, (can I say this with certainty?) I am way beneath the expectations of my years financially and emotionally.”

Says who?

I always do that. I always compare myself to other people. It’s a natural result of my people-watching. Actually, what I do is more than just people-watching. I study people, not with the trained, methodical eye of a sociologist, but instead with a preoccupation and fascination with people and their behavior. I don’t just observe, I speculate and project, insinuate, and envision what makes people tick. I missed my calling in life not pursuing the social sciences in college.

My people-watching evolved from a passing fancy into a pastime. When I was at my lowest it was merely voyeurism. At my lowest, I felt so worthless that almost every subject of my silent study appeared to me as superior to me. Going out was painful. Happy families, couples, and groups of friends enjoying each other’s company just exacerbated my loneliness and isolation. Indulging in Social media was a form of torment. Even when factoring in that most Social media presence is exaggerated or an outright bullshit version of one’s life, I still envied those who were doing better than me. Which, for the sake of this entry was fucking everyone.

Then I asked myself, what am I envious of? Wealth? Career success? Happiness? No, I don’t begrudge others having it. But when I see things that are symbolic of my own benchmark of where and what I think I should be at this point in my life, and I’m not there, I immediately focus immediately on every fuck-up to my name that has put me where I am today. And it triggers endless self-flagellation and pointless obsession over things I cannot change.

Fortunately, I have obtained a grip on it. I have grown to be very self-aware and accountable. Self-awareness has enabled me to take a hard look and assess where I need work. Accountability has taught me to own the hard truths that I have come to.

Here’s one. Yes, illness took a lot from me. But it isn’t the only reason I am where I am. I am a product of my choices. I married the wrong woman, so the happiness of a happy marriage has eluded me. I may not ever get (the way it’s going now) the chance at relationship happiness ever again.

It is not my place to want what others have. It is my place, and responsibility to reconcile what I have and make peace with my station in life.

Forward progress

Things always work out for me. Inexplicably at times. This is not to say that I am in a particularly wonderful place right now. Compared to most people my age, (can I say this with certainty?) I am way beneath the expectations of my years financially and emotionally. I am playing a frenetic game of catch-up in both arenas. My success is questionable.
But I am moving forward.

I’m always moving forward. It is what makes me who I am. When they finally bury me, friends and family will universally declare that I never gave up. This is not braggadocious, it is fact. See, everyone loves to call people fighters, survivors, etc. It is well-intentioned enough, but it doesn’t require toughness to merely stay alive. Survival is the mere act of not dying. It is strength of spirit that determines whether you are a quitter or not. To me, quitting is accepting your station in life and not trying to move forward and overcome it. Strength of spirit allows you to say no to victimhood. To avoid asking “why me?” and start asking “Why not me?”. Strength of spirit allows you to pick yourself up and try again. Strength of spirit is all that I have.
Well, to be fair I have also been blessed with incredible luck.

It’s odd. Most people wouldn’t consider my litany of health problems, which have been the source of most of my problems, lucky. But the evidence is in. I was lucky enough to get two kidney transplants. The odds of finding a compatible second donor were staggeringly not in my favor. But it happened. Less important but significant, I fell into a situation that resulted in my dream job. Sure, illness took it away from me but I still lived it. And that’s better than not having it. And despite a miserable marriage, I lucked out with 4 amazing human beings for children.

As a person who believes that life is not what happens, but how you react to it, the lucky part is that I learned gratitude, perspective, humility, faith and self-awareness. I have learned to recognize lessons in adversity ( and in my own stupidity). In addition, I have learned that no matter how bad things get, one day I will wake up and realize that they somehow got better.

I don’t know when it happened, but in the last couple of weeks I have been lucky enough to recognize how good my life really is.

The relationships, the money, all of the things that I find myself worrying about…that stuff will all work out. I always land on my feet.

purpose

I need to find something gratifying to do with my life.

Despite some recent emotional ups and downs I must concede that my life is going fairly well right now. My health is excellent, which is paramount to all else. My numbers are perfect, my Doctors are nothing less than thrilled with the performance of the new kidney.
I have been working hard all summer. This is satisfying on more than one level; I am pleased that my body had risen to the task of long days and physical exertion. 3 years ago I was nowhere near able to do what I have been doing this year. I really feel great.
Additionally, I have really built up my savings. While I am nowhere near financially secure, I was destitute not terribly long ago.
Because of my financial improvement, I am about to get a very large monkey off of my back. I am moving out of mom’s house. This is bittersweet because I really like it here. It is a nice place. I’m surrounded by beautiful country, the people are nice, and my mother and I really get along well. Still, I have yet to embrace the notion of a man my age living with his mother. It’s something I can’t get past.

I am moving in with a friend next month. He’s a good friend. He welcomed me into his home when it all fell apart in 2016. I had to move when I got real sick but he has welcomed me to return. He is being very fair with the rent as a favor to me. He is looking forward to the company as well. We are doing a podcast together as well as tossing around some other ventures and getting in the same room should yield some positive results. The biggest bonus, the driving force behind my wanting to move is that I will be closer to my children, friends and my Masonic community.

Yes, all is going well. I have put the desire for a companion on the back burner for now and it feels like the right decision. I have only one thing left to feel semi-complete. I need to find something that is gratifying to the soul. When I promised the Universe that I would give back as often and as generously as I could in exchange for the gift of another chance I meant it. When I was working with addiction clients I was living up to it. Unfortunately, I had to stop that. Now I need to find something else. Either as a part-time position or as a volunteer.

I am only happy when I feel I am living a life of purpose.

Walls

The beard is back. If for no other reason, it’s the closest thing I have to a force field. I’m back to playing social defense. People, especially the fairer sex, have done some possibly irreparable damage to me lately, and the only thing I can think of, besides making a Tee shirt that reads Not interested in meeting new people that may hurt me, the beard will provide that extra layer of protection.
I’m uglying myself up.

How sad is it that I’m finding ways to shield myself? How did a person with such a good heart and intentions, who genuinely likes people, who talks (talked?) to strangers, and who loves to laugh, become so jaded? To be clear, I am still all those things listed above, but I now view them as liabilities and aspects of my personality that I would rather keep from the world.
It’s a sad state of affairs.

I hate that it has come to this but here I am. I can’t be the person I want to be for fear of spiraling down the rabbithole of anxiety and disappointment, and the ensuing self-flagellation when someone lets me down or hurts me is simply exhausting.

I’m putting up walls. This way is easier.

Instead of seeking the companionship that I can likely do without, I want to focus more on the bigger picture. My energy needs to be channeled into finding my purpose and riding it into what I can only hope will be a fulfilled life. There is something I should be doing and I need to find it. I know that the Universe saved me, more than once, for a reason.

Chasing people that don’t get me or aren’t worthy of me is just getting in the way.

2 years

2 years ago, on a quiet Sunday afternoon I got “the call”. I’ve received important calls in my life but this was the biggest. The Kidney that I needed so badly, the one that I had resigned myself to accepting that I would probably never get, was waiting for me.

The timing couldn’t have been better. I was not doing well at all. Dialysis had been really beating me down. For the first 2 years of treatment, I was breezing through treatments with ease. Until the one day that I wasn’t. My blood levels became constantly unbalanced and the side effects were bizarre. Treatments became unbearable and for the first time in my life, I was experiencing despair, even intrusive suicidal thoughts.

I raced home to pack a bag. I drove on the edge of my seat for 2 hours to the hospital where I was received in a hallway lined with applauding medical staff. It was a surreal moment, to say the least.

I emerged from surgery as if I was a new man. The first day with a new kidney is a remarkable experience. The brain fog, fatigue, malaise that characterizes Renal disease is just gone and replaced by a clarity of mind and renewed sense of hope. It’s beyond medical or physiological, it’s almost spiritual. I wasn’t beaten down any longer. I was in pain, excruciating at times, but it was glorious.

I’ve been given the gift of new beginnings twice. First, a coworker selflessly donated to me in 2011. I hate that her gift didn’t last longer but I am still indebted beyond measure to her. My second donor I never met. She saved my life by filling out an organ donor card. Bless her anonymous soul.

I am truly blessed. Or just the luckiest man alive, if you subscribe to such a thing as luck. Regardless, it is concerning that sometimes I lose track of that.

I need to stop doing that. My story is awesome and I need to not only tell it but to live it. The mere fact that I am still standing after all of the shit that I have been through is nothing less than remarkable. While I’m not prepared to step in front of a train, I’m seemingly bulletproof. I need to embrace that more. I can start by no longer allowing small things get in the way of a fulfilled life.

I know I have a purpose. I also know that experiences tend to find me. If I continue to wallow on what is directly in front of me I am distracted from what’s on the horizon. There I will find the next great happening in my life.

I’m always telling people to look up and around, not just straight ahead. Maybe I should follow my own advice. No more wallowing in petty shit and no more time wasted with people who don’t deserve me.

Fortunately, I have these yearly reminders of the fragility of mortality to ground me and set me back on the right track.