Tag: humor

My special purpose

On Thursday I entered the dialysis clinic with my bag containing a blanket, books, my laptop, headphones and half of the trepidation I had felt on my first visit. I was greeted by an entirely different Nursing Staff, which gave me the opportunity to drop my “oil change” joke đź’€. It was fairly well received. I’m going to ask for a tire rotation next time to test the waters.

I already know the routine. I weighed in and sat down while 2 nurses, 2 potentially new sounding boards for my repertoire of Dad jokes, went through an impressive routine of programming the machine and unwrapping needles and fastening clamps and god knows what else. It really is something to watch, it must have taken a hell of a lot of training. When they were done and I was hooked up, they went on to other patients and I settled in for 3 boring hours.

I wasn’t in the mood for TV and not ready to read so I looked around the room. There are 12 stations in the room and every chair was full. I recognized most of the patients in the room from my first visit. The staff was all new to me. In particular I noticed a thin, older woman with a buzz cut making the rounds of the patients. I figured her to be the Nurse Manager. She was making her way towards me. After spending a few minutes with the gentleman next to me she came over and introduced herself as Kim, the clinic’s Social Worker. She knew who I was, had researched my case and apparently was looking forward to meeting me. Part of me wishes I could say the same. I respect social workers and what they do, but their goal is to get me talking about myself and my condition and how it has affected me and everything else that I don’t want to talk about. I deal well by not talking about “it”. Social workers chew away at my armor.

Kim sat down next to me and asked me a few questions about my overall reaction to the dialysis process, was I feeling better? Did I have any issues or complaints? Standard stuff. I immediately found her east to talk to. I had been anticipating an interview and instead found myself in a conversation. I certainly had time so I decided to drop my guard a bit and see where it goes.

The questions flowed easily from her and although it was standard fare; how long have I been sick; my marital status and my living situation. I answered all of them honestly and in some detail. She was taken back by my story, especially at the saga of my marriage collapsing. She kept asking, in different ways, if there was a chance at reconciliation and I continued to say no. She was surprised at my acceptance of the situation but dropped the subject. She then asked me if I was working, would I be able to or plan to in the future. I explained my situation with SSDI and that seemed to satisfy her. She then asked me what I used to do for work.

I found myself telling her all about my most recent position at the finance company and of all of the things I loved about it. I don’t know how long I spoke of it but when I was done and looked at her she looked captivated.
“If you could see the look in your eyes as you talk about that job” she said.
I had actually teared up as I had told her my tale.
“It meant a lot to me, Kim. You will never hear me utter a word of hubris, but when it came to that job I was damn good at it. I miss it.”
“I can tell.”

The conversation eventually wound down and she moved on to another patient. The emotional reaction to talking of my career lingered on. I explored it deeper and had an epiphany of sorts. Of all of the things I hate about my current situation is that I am no longer needed by people in my life. My family no longer seeks or expects support from me. I no longer go to work each day and try, in some small way. to make a difference in someone’s life. See, I had no throttle control before this happened. I was “all in” on life with family and career. I was active as possible as a parent and a husband, Teaching, mentoring and loving my kids while giving what remained of my ass to my job was what I lived for. I was a doer, a guy that made shit happen. A guy people came to. I was a great father, husband, friend and co-worker. I rode bikes and walked miles in the name of charity. I donated money I didn’t have and didn’t care.

Now I have none of it. Maybe the pace proved too much for my body.

I have beaten to death my family life on this blog and it is well documented that I love my family with all of my earthly strength. But I haven’t discussed work often and it was a big part of who I was. Men have often been accused of strongly tying their self-worth to their profession. I was guilty of this. I vowed never to be the guy who called in sick and no one noticed. My job, to quote Steve Martin in ” The Jerk”, I had found my special purpose.

The days when people came to me for advice; when calls were transferred to me because no one else knew enough or how to talk to an irate customer; having the owner boast that you are the “best in the business”; being given a seemingly impossible situation and finding a way to fix it. I have such fond memories of talking to people where the conversation started as a confrontation and ended with a “thank you.” It wasn’t that I was particularly skilled at everything, I just knew how to talk to people and I really, genuinely cared about them. I was proud to go home many days of the week with the knowledge that I actually may have helped someone through a tough day. I don’t have that anymore.

I have tried to be as useful as possible since the collapse. I volunteer at the food bank, I help some of the older people in town with basic chores. I don’t charge them, they don’t have the money. I am kind to my fellow man and I put out zero negative energy into the universe. I hope to become healthy enough to volunteer at a camp for the families of terminally ill children next summer. I am being the best person I can be.

But I don’t feel needed. I can’t believe how much I miss that feeling.

My week thus far…

Friday I received a call from my new Nephrologist. He had spoken to my Transplant team and it was decided that dialysis was needed immediately, despite the fact that the fistula I had recently had installed was not mature yet. He had made arrangements for me to report to a local hospital on Monday morning at 10 to have a temporary “port” installed. It was also scheduled that I would have my first dialysis treatment the next day. They clearly weren’t playing around.

I spent the weekend in a bit of a funk. Despite knowing that dialysis was inevitable, I still dreaded it. Despite all accounts that it would make me feel better, I had this horrible picture in my head of what it would be like. I was also dreading the surgery.

I reported at 9:45 to registration and was immediately led by the charming and matronly Alicia to the surgical prep area. I dutifully removed my clothes and signed all of the paperwork that I commonly refer to as the “I will not sue your ass if you fuck me up on the table” forms. Alicia was great, very comforting as she explained the process to me. It sounded rather unpleasant but hell, I would be knocked out, right?
“So, who is driving you home?” Alicia asked me.
“Ummmm….I am.”
“Oh dear.” Alicia replied.
“Oh dear, what?” I asked incredulously.
“If you drive yourself home after anesthesia you will be driving under the influence of a narcotic. Your surgery will have to be done with a local only.”
“When I talked to Doc on Friday he gave me the choice of driving myself or getting a ride. Not to be a bother I didn’t ask my mother. The info you just gave me would have been helpful.”
“Sorry, hun.”

I was wheeled into the Surgical room. I was injected with a local and a numbing agent. A tent was put over my face and I was told to lean my head as far to the left as possible. I was then told to relax. Yeah, right. My surgeon then, with the assistance of a radiologist, snaked a tube through my neck, into a major vein stemming from my heart and then pulled it back out my chest. A tube was then attached to my chest. It’s there until my fistula is ready. I felt everything. I can only describe it as having a giant fish hook inserted into my neck and pulled through my chest. My head was screaming, my neck was killing me and the entry point at my neck was excruciating.

Then I was told that it was all over.

“Good job.” I said to the surgeon.
“I should say the same to you.” She replied. “I’ve never done this surgery without full anasthesia. You did great. I’d want to be knocked out until Christmas to do what you just did.”
“Thanks. But remember that there is a fine difference between brave and stupid.”

I was sent home with no painkillers but Tylenol. I was up all night in excruciating pain.

The next morning I arrived at Dialysis. When I pulled into the parking lot part of me wanted to put it in reverse and explore other options. Then I went in anyways.

A sign at the door said ring bell for assistance. As soon as I did a tiny nurse wrapped in scrubs and a mask opened the door and greeted me by name. She was expecting me. To break the ice I said “Hi, I’m here for my oil and filter change.” My tiny nurse laughed.

I went inside. My first reaction was that everyone looked so sick. Yes, I know that I am sick but I really don’t look it. That’s no accident. The patients in this room were fragile, thin, asleep. Not one person was anywhere close to my age. The gentleman next to me looked just like my father…a month before he died.

All in all, it wasn’t too bad. I have painted a terrible picture of dialysis when in fact I did feel a little better when I left. In a 2 1/2 hour session I lost 3 lbs of fluid. That’s a good thing. I’m easily carrying 20 lbs of fluid that is doing nothing but putting a strain on my heart. The only thing I don’t like is I’ve never sat in a chair for 4 hours before. By Saturday I will be up to 4 hour sessions. But I’ll manage. I had a TV, headphones. a blanket and a fucking great book written by a fellow blogger that I am almost done with.

I can do this.

Now if I can only get used to this turkey baster sticking out of my shirt and the constant bleeding at the surgical site I will be just fine.

Everyone has been treating me like I’m going somewhere. Allow me to take this opportunity to tell you that I’m not. I still have a lot of shit to do.

it’s here

Yesterday I had “the big” appointment. A meeting with the entire transplant team.

It was a huge moment if you consider that at one time I wasn’t guaranteed to be approved for transplant because of the tendency of my disease to come back and infect a new kidney. To be fair, I wasn’t in love with the idea of having another transplant and wasting the most selfless gift a person could give in a mere 5 years. I would rather die on dialysis. My youngest son became furious at me when I told him that, he said he would donate a kidney to me if it only lasted a year. That kind of love is hard to find.

The meeting was a group session to start, there were 6 patients in all, most accompanied by supportive family. I was the only one in the room on the second go-round. My doctor, a brilliant man renowned in transplantation gave a 90 minute lecture on all of the details of dialysis, patient mortality rates for dialysis vs. transplantation, and this particular hospital’s (and his own) reputation and statistics vs the rest of the country. They were very encouraging, Despite the fact that I slept through most of it. The night before I slept for a whopping 1 hour. Insomnia, a lovely side effect of end-stage renal disease, has been kicking my ass.

After the group session we broke off into individual rooms where we were all to meet one-on-one with financial coordinators (they handle insurance and offer financial assistance), social workers, the transplant surgeon himself (they only have one), a pharmacist, the transplant coordinator and then the Dr. that oversees it all.

The pharmacist, once aware that I was on round 2 had little to offer. The social worker tried to pick my brain about my relationship with my mother. I shut her down immediately when she asked me about how my illness has affected my life.
“You mean besides getting divorced, losing my house, my job and access to my family it’s been a piece of cake.”
She was not amused and within minutes she was also convinced that I had a “whatever happens happens” attitude and that I am dealing just fine. Good luck selling me therapy. Next!

I then met with my coordinator who arranges all of the testing I have to go through to make sure I’m healthy enough to undergo a transplant, as well as work with potential donors. She was young, cute and funny so I went easy on her. The transplant surgeon was informative and brief and when he left I had only to meet with my brilliant Doctor and I could then go home. I was exhausted and feeling lousy.

I waited for about 15 minutes for him and when he walked in, he took one look at me and said “you need dialysis. Yesterday.” He asked what the holdup has been with my Nephrologist and I told him that my fistula, a surgically installed dialysis port, has not matured yet. He told me that he was initiating “plan B.” He called my Nephrologist and made arrangements for me to have a temporary port.

Monday, they will insert a catheter through my neck and into my heart. I will start dialysis Tuesday at noon.

Here we go. Wheeeeeeee!

Sunshine Blogger award

I was nominated by All about life for the Sunshine blogger award.

And the award goes to…….those who are creative, positive, and inspiring, while spreading sunshine to the blogging community and, apparently, that includes me! While not much for awards (I really don’t feel worthy), out of respect for her nominating me and with a desire to draw attention to her blog I want to answer the questions posed in the nomination. Lisa pens a really wonderful blog, written in a very down-to-earth manner and it just reeks of positivity.  She engages her readers and offers sincere, useful feedback. Oh yeah, she’s funny. Check that out here. I personally am thrilled to have found her blog.

  1. What’s the thing that you like most about yourself?
    I would like to think that if nothing else, I am genuine. I can’t and won’t pretend I’m something I’m not. Some people are like playing cards. From the front they look solid, turn them to the side and there’s just nothing there.
  2. Do you have any little oddities?
    I have a lot of little oddities. Let’s see if I can come up with a non-embarrassing one. I have a nervous tick, when I tell a joke that I am uncertain about (due to appropriateness or for fear of offending a snowflake) I slap my leg at the punchline. My son makes fun of me all of the time for it.
  3. A million dollars or a 1000 hours of bliss? Which would you prefer?
    I would take the million dollars and then create some bliss. I would do as many meaningful gestures as possible with the money. Anything from buying new cars for my kids to helping a military family or a family with a terminally ill child. Something that would better someone’s life.
  4. Which animal do you most identify with?
    The dog. I have the potential to love unconditionally. I am loyal. I may have teeth and am capable of doing harm but at the end of the day if you rub my head just right I will be truly happy. 
  5. Do you believe in fate or think we create our own destinies?
    I’ve always struggled with the notion that our destinies are pre-determined. That it’s all a master plan that we have to wait and see how it plays out. So I guess I believe that we, to the best of our abilities create our own destinies. In the end it is a combination of our willingness to take risks, our drive to succeed, the ability to make good decisions and our ability to get up after we get our asses kicked.
  6. Which of your blog posts are you most proud of (feel free to add link)
    I tend to avoid the word “proud”. But I would have to say that I am happy with my few attempts at fiction and poetry but I am most rewarded by the response I have gotten from those posts that I really put my bare ass out there and shared my life. Many who read me find my “brutal honesty” (not my words but a reader’s) refreshing. It helped me also by putting it out there, it is liberating.
  7. It’s your last day on Earth – what will you do?
    I’ve been chronically ill for a long time. I am probably the worst I have ever been as I type this. I tend to treat each day as if it is my last in that I make sure that all of the people in my life know how I feel about them; that I free myself from anger and bitterness; not waste my time with negative people and thoughts; and I make it a point to enjoy every sunset, gust of breeze, conversation, and opportunity to laugh knowing that if I were not to wake tomorrow I left nothing on the table.
  8. What’s your favorite quote and why?
    Pine
    I don’t care how much shit you have, how many instagram followers you have, how much you make or how big your house is. Do you have character? That is how you will be remembered.
  9. If you had to give up one forever would it be reading or writing?
    I’d eat a bullet before I would give up either. Books are an eternal wellspring of knowledge, fantasy and learning. A life without these is no life. Writing is my only therapy, I like to think I do it well and I would also like to think that I have helped or inspired someone by my writing.
  10. What’s your happiest memory?
    I have so many. All of them involved when my kids were young. Footie pajamas, silly movies, shoulder rides, bedtime stories and belly laughs. Wishing they would never grow up. 
  11. Who are you?
    I am Bill. I will never put fruit in my beer. I like what I like and I don’t ask you to change for me, just accept me for what I am. Opinionated as hell but accepting to a fault.  I am a philanthropist with no money, I still want to save the world. I am a guy with no job, no money living with his mother that still believes that life is good and will only get better.

I am not going to nominate anyone. If you feel encouraged to play along, I would love to hear your answers to the same (great) questions.

Hot summer days

Those hot summer days
Basking in the sun’s rays
Outside, even when skies were grey
The knock on the door
Can Billy come out to play?
Cops and robbers in the yard
Shins and elbows always scarred
Streetlamp curfews
Wasted days were few
Wax bottles and candy cigarettes
Eight-track tapes and cassettes
Hot afternoons in the pool
Mirror shades, try to look cool
Leaf piles to dive in
Saturday night drive in
Sleepovers at camp
Motocross bikes, jumping that ramp
Swimming and fishing
shooting stars and wishing
Talking to my first cutie
Worried about cooties
Bad music and One hit wonders
School dances and social blunders
First day of school sneakers
Hi-Fi and Big speakers
The crack of the bat
My first baseball hat
First day of tryouts
Don’t make a flyout
Ground ball heading to first
Damn, I missed it. I’m the worst

Those days were the best
I just didn’t know it
Let me go back
This time I won’t blow it
I don’t want to play adult
Tell Zoltar to stop winking
I wanted to be Big
What was I thinking?
I miss my old house
I miss my first dog
I miss not worrying
About every damn thing
I miss feeling good
rugged and strong
I’ve lost my joy
My days seem so long
My longevity is fleeting
I’ve taken a beating
I’m tired of this, my downward phase
I want to go back to those hot summer days

Fighting the good fight

My mother is a wonderful person. Of course I think so. But a lot of others do as well. Today, someone hurt her feelings and I decided to do something about it.

My mom and dad retired to this house in NH upon my father’s retirement in 2000. My mother, to combat the rampant boredom of the winter months began substitute teaching in the local schools. She has always enjoyed teaching, was able to work it out that she would work with kids no older than 5th grade, and she became a local legend. The kids loved her. She still does it, at age 73 and the kids still love her. She doesn’t do it for the money, she loves the kids. Many become very attached to her, it’s very heartwarming. It’s equally depressing when you see what some of these kids have for a home life.

In 2001, the first of a long line of enamored children latched onto my mother’s leg. Her heart would soon follow. Kris was a a bright girl from an awful family. Both parents were postal workers in town, so money wasn’t the issue. The issue was a drunk, misogynistic father and a absentee mother. They held down the jobs, but they weren’t there for the parenting. Kris’s two older sisters had set the standard of being fat, useless and working in outlet stores and Kris was doomed to the same fate without intervention. Enter my mother.

My mother took her under her wing and made sure that this girl got through school. She tutored her after school and at home. She reviewed all of her work, kept her attitude in check and promised to do everything she could to get through high school. Kris ended up graduating at the top of her class. Mom was at the graduation cheering louder than anyone.

Kris didn’t know about going to college, Mom helped her do all of the applications. 2 years ago she graduated college with a job offer with Fidelity Investments. My mom was a huge part of her success and they are now special friends. It’s a great story, even though she annoys the shit out of me.

She calls all the time. She prattles on like a dipshit junior high-schooler. She is incredibly opinionated on everything. And despite being a 200 lb virgin with baked bean teeth, and engaged to the first guy who ever kissed her, she is also a relationship expert. In particular, on my mom’s relationships. Recently she made it clear that she didn’t like my mother’s boyfriend. Then it came out that she doesn’t want my mother to date at all because she believes that we only get one true love in our life so stop trying for another. Mom politely dismissed this observation. When she tried to get me to come to her side, I told her I thought she was wrong and waaaaay off.

Her wedding is to take place in October. My mom received her invite several months ago. In the “plus one” section she wrote in her boyfriend’s name. Tonight Kris called her on the way home from work and told her that she didn’t want my mother bringing him to the wedding. My mother was shaken by this, I watched her as she was talking on the phone. Kris asked her if she would be upset and my mother said, “Well, I wouldn’t be happy. For starters, who am I going to dance with?” They talked for a few more minutes and then they hung up. Mom filled me in on the details I couldn’t hear. I asked her if she was ok with it, she said she wasn’t.

I told her I’d take care of it. I told her I was going to send her a FB messenger message. I promised Mom that it was coming from me and that I would assume any responsibility for damages if a shitstorm ensued. Here is what I wrote:
Kris:
I want to start by saying that I respect you. You’ve done some great things in your life and I consider you a good person. 
Which is why I must take issue with your request that Dave not be at your wedding. My mother has been by your side since you were a child, almost a second mother to you. She has never asked anything of you. Knowing this. why is she not allowed to bring the plus one of her choice to your wedding? 
I cannot imagine what benefit you find in making the person who treats you like her own daughter unhappy.
I have no influence over you and I don’t generally overstep my boundaries but I’m going to strongly request that you change your mind on this matter.

I let mom proofread it. She shook her head, said “wow” and walked away. I sent it. For three hours I did not get a response.

Mom walked in at about 11PM and asked if I had heard back. I told her that I hadn’t. She told me that Kris’s mother had just texted her that they would love to have Dave be a guest at the wedding.

Mom high-fived me and left the room. She seems happy.

Me? I feel like the right outcome was reached.

The Fortress of Solitude

Many years ago my Manager, in what may have been the most unprofessional incident by a manager towards me in my career, attacked me about my Facebook content. Our company did not use FB, he himself did not have it but his son was on it one day and my boss asked him to pull up mine. The following Monday he went up one side of me and down the other because I belonged to some Conservative (no I am not a Nazi) sites and I posted some political stuff. He thought that it was inappropriate and tried to link it to my professional life, which was an unfair and inaccurate assessment. We argued heavily, he was way out of line. When I got home that night, I took a moment to peruse some of my FB activity. While I still didn’t agree that I had a toxic presence online, I realized that it certainly wasn’t a positive one. I chimed in on questionable posts, I made a lot of bad jokes, I argued with a few hard-headed idiots that were better left non-engaged. I could do better. I decided at that moment that my online presence from that point on would be positive or nonexistent. No more negativity.

This principle applies to my blog as well. From the beginning, I have posted some very personal and graphic details about my life but I never did it in a negative, whiny, or complaining manner. I will tell anyone anything about me but the LAST thing I want is for someone to feel bad for me. Therefore, my posts are never done to elicit sympathy and when they read like a Sylvia Plath poem then it is time to re-evaluate my mindset.

That’s why I have been away for over 2 weeks. I have been way South of a positive place.

Here is a matter-of-fact breakdown of what has been going on.

Superman has been hiding out in his fortress of solitude. It is an unfortunate pattern I follows when life gets too much. I close myself off from the world. It’s not hiding, it’s preparing for the next step.

I have been sick for the better part of July. Not necessarily “praying to the Porcelain Goddess” sick but as far as Renal disease symptoms are concerned I hit the fucking jackpot. Massive muscle cramping, nausea, fatigue and brain fog. I spent the better part of 2 weeks on the sofa, napping intermittently during the day, restless and sleepless at night. I lacked the energy to set even one meaningful goal per day. To make matters worse, I had scheduled surgery on the 17th to install a new fistula (a vascular port on my arm) in preparation for my upcoming dialysis. They also surgically closed off my old, failed fistula. It was day surgery but very painful. So painful that I couldn’t type for about ten days.

I had the house to myself for the week immediately following my surgery and I can only describe it as a sofa-bound blur. I had visits from my oldest son and his best friend and my oldest daughter over the course of the week and I was so happy to see them but too sick to show it. I could barely get off the sofa to say goodbye when they left. It saddened me that I was unable to maintain my usual cheerful. albeit false demeanor. Of course nothing saddened me more than the scared look my kids had on their faces. They tried to conceal it, but they were shocked at my sudden deterioration. I had now had enough, I was sick and tired of being sick and tired. I called my Nephrologist and asked to be evaluated.

Friday I got the call. I am in need of dialysis. Immediately. This week will be a week of information gathering and planning. I am not looking forward to it. I’m anxious and a bit nervous. But it is my future and it is time that I face it.

On the positive side, maybe I’ll feel better.

See, I ended on a positive. I don’t even know how I did that.

 

My favorite place

FB memories, the well-intentioned feature that shows you posts from years ago “on this day”, has been my Lex Luthor of late. They have been a source of great anxiety and annoyance as they remind me of the dreaded “used-to’s“. All of the memories that pop up are of better, healthier days. Days that I miss so badly.  Today, one popped up that I wrote in 2015 about my beloved hobby of Mountain Biking.

Post-Transplant in 2011, I needed a means to get my body healthy and I chose biking. Initially, I bought a street bike. I was a newbie so I rode mostly alone. Once I was able to ride 20 miles or more I began to ride with organized groups. I became strong enough to ride 55 miles in one day, while never the fastest, I took great pride in just being part of it. It was my recovery. But it created a new problem, immunosuppressant medications increase your odds of skin cancer and after 2 years of riding, I had 3 Squamous Cell Carcinoma’s removed from my face. I was told to stay out of the sun.

So I explored Mountain Biking. I bought a bike, researched trails and hit the woods. I was immediately hooked. It was challenging, the rough terrain and obstacles required skill and technique, yet I was compelled to rise to the challenge. The atmosphere was amazing, miles into the woods you weren’t observing nature, you were immersed in it. I began to take my camera to photograph the Deer, Bears and even Fisher Cats that I would encounter (from a safe distance of course). I would head out early in the AM in the hopes of seeing my favorite sights, crashing through a clearing to see a pond, the mist coming off it in the early morning heat; the owls that would buzz me as it headed to its tree to sleep the day off after a busy night of hunting; and of course the wonderful sight of nothing but me and trees. It was my Nirvana. And I was out of direct sunlight so no skin cancer.

Through FB I found a group to ride with and I made an instant group of wonderful friends. Riding with them made me happier than I had been in years. They weren’t just riding buddies, they were real friends. By 2015, I was a regular part of the group. Crazy Bill they called me. I took risks, I fell a lot, but I gave it hell and went home every day feeling accomplished and euphoric. Then I got sick in the spring of 2016 and I suppose you know the rest.

Why am I telling you this? Because despite how much today’s FB “Reminder” saddened me, I was reminded of my Buddy Tom of Tom Being Tom Fame had written a post about his favorite place and challenged his readers to write of theirs. So I turned a negative into a positive because I’m sick of being down.

Here is the FB post from 2015 that started all of this if you would care to read it:
This past fall I made a decision that I was only about 80% sure of. My new activity for the last few years is biking. It was my chosen rehab tool after my surgery to get into some semblance of shape. I got 2 bikes, a street, and a mountain bike. I upgraded once on both but I couldn’t decide which one I liked better. But last fall I traded in both bikes on a new, nicer full suspension Mtn bike. I picked one and went with it. Well, I am now 100% sure that I made the right decision. Many of my family and friends have questioned both the commitment and the hazards I have put upon myself and to be fair I have hurt myself badly a couple of times. People have questioned the wisdom of a person my age with my medical history taking such risks. They don’t understand it, and a lot of the risks I can avoid but I want to push myself, to experience adrenaline and accomplishment and I don’t give a shit about pain..it goes away a lot faster than regret over doing nothing. I love the trails, the woods, mother nature and the comradery of the new friends I have made. But it is even more than that now. Mtn biking has become a metaphor for my life. Let me explain.
When we first start the ride it is easy, you are fresh like when you wake in the morning. But you know the hills and the obstacles are coming, you either prepare for them or let them blindside you. 
When the trails are smooth and flowing it is the equivalent of your life going smoothly. Enjoy it but be in the right gear when you round that corner and see the hill.
The hill is adversity and the obstacles; exposed roots, jagged rocks, and logs are the people telling you that you can’t do it. 
When you make the decision to try that hill, to power over that rock, to push yourself you have made the decision to at least try to prove them wrong. And make it or not, at least you tried. 
Then you come to a downhill. But it’s not a smooth path it’s a steep, rocky and rooty obstacle that can send you over the handlebars if you are not careful. This is the downward spiral that we can fall into. We can plummet and crash, we can stand there and look at it, or you can carefully navigate it to safely reach the bottom with as little damage as possible. 
And if you are able to climb the next hill, stand upon it and look down at all of the obstacles that didn’t stop you. And if you do it once, you can do it again. And sometimes it is the climb that you never made, until today.
Nothing pleases me more than getting up a hill that I never thought I could; to make it through a rock garden that sent me flying a week before; to race through an opening to find the parking lot waiting for you. Knowing that the end of the ride is like the end of the day. I got through this one and I am not afraid of the next one.

I wish I still had that attitude…but at least I took a shot at retrieving it today.

 

legal troubles

Today marks a sad day in my marital history.

My wife and I had been arguing something awful and it was getting pretty tough to keep it together. We had already stopped sleeping in the same room, sleeping in the same house was even getting difficult.

One morning when I was in the shower after a particularly awful argument. I was trying to wash it off me but there wasn’t water hot enough. Suddenly my wife crashed through the curtain with a kitchen knife and made a swipe at my John Thomas. I managed to subdue her but she came close. I called the police.

They came, it was a big mess. Everyone calmed down. The police asked if I wanted to press charges. I asked them what charges applied.

“Right now”, the officer said, “We’re only looking at a Misda-weiner.”

Sorry, I had to.

The Garden Party…cont’d

If you would like to catch up you can find the first installment here.

When I sat down in the makeshift circle of lawn chairs at the BBQ the first person I recognized was Mark’s sister Susan. I saw her with her dog Brady (who I knew from FB) and we exchanged pleasantries. I haven’t seen her in over 30 years. I used to have the hot patooties for her. She looked great. Next, I saw Mark’s mother and father. They are really nice people. They needed a refresher on who I was, I haven’t seen them in forever. I watched a million football games at their house but I’m not sure they knew about it. After some small talk, Scott and I settled in to catch up over a cold beer.

We talked about the kids for a while. He knows about the divorce and the rest of my “situation” but wanted to know what they were up to. I was proud to tell him how great they are. His kids are college-age and doing great. Knowing he and Dana I wasn’t surprised. Then the conversation turned to my health. Scott is like me in one respect, he would rather ask than not and come across as not caring. I told him the truth, that there is very little good news. He absorbed it and we left it at that. He knows I would rather give him better news if I could.

At one point, Susan leaned in and asked what was up with my kidneys, she said she saw something on FB. I gave her the lowdown, carefully phrasing my words to not elicit a sympathetic response. This was the part I was dreading, although I did appreciate her asking.

At one point, Mark’s father, who is a little hard of hearing, started down the line asking all of us what we’ve been up to. I was 6th in line so I agonizingly waited for my turn. Sure enough, my turn came and I decided to be funny. He asked “What have you been up to Bill?”
“Well, Mr. Riley, I’m officially a burden to society.” Everyone laughed, he asked me to elaborate. Before I could Mark saved the day and said “Bill has been fighting some health issues, Dad. He lives up here now.” I sighed with relief, it sounded so much better than, Well, I’m on the verge of Dialysis, I’m out of work and broke, I live with my mother and I’m not supporting my family. Did I mention that I have one nut and haven’t been laid in about 8 years? Either way, it was over with. The conversation shifted away and I shrunk back into relative obscurity.

Scott, Mark and I talked for a while. I was starting to relax a bit. We talked politics, current events, rehashed some fun times at the market, talked about cars and of course our families. I made a few off-color but witty (not my words) cracks that gave them a good laugh. At one point, Scott remarked that it was refreshing that some things don’t change. He meant me of course, I was well-known in the day to do anything for a laugh. I appreciated the comment despite the feeling that nothing about me, with the exception of my warped humor, was the same.

At 7:30, I decided that it was time to leave. I was starting to get tired and my mind was racing. I was getting into one of those thinking zones that never ends well. I get quiet, morose and I am generally not good company. I made it a point to give Scott and Dana a proper goodbye, sought out the people that I knew and made sure I said goodbye to them as well. I ended by finding Mark and his wife to thank them. By the time I got to my truck my mind was in full-blown thinking mode and it wasn’t happy thoughts. I was bombarded by some harsh realizations that I came to that day and they needed to be processed. I  was about to, in the words of Jim Carrey in Liar Liar “kick my own ass.”

I drove home without the radio on, all I had was the hum of my tires on the winding back roads to keep me company. I was in a mood. I tried to summarize what I was feeling, to break it down into manageable parts. In short, what’s my fucking problem?
That would prove to be a question not easily answered. I had a lot of problems.

My first problem was that I was overwhelmed by the stark contrast in situations between Mark, Scott and myself. Disclaimer…I am NOT speaking out of jealousy. I am VERY happy for them. They made good choices and decisions and worked hard and they deserve everything they have. Mark is a brilliant mechanic and owns his own business. He works 6 sometimes 7 days a week. His amazing house is a monument to his work ethic. Scott works for a major investment company and has for 22 years. His wife has a great job as well and he is at a place now where he can pay for his kids college without loans, have a real nice car and look for a summer home. Not that is was ever equal when we were younger, they were doing well then also, but the disparity now in our places in life is staggering.

It would be easy to blame it on illness; my disease did take me out of the working world. But it’s so much more than that. Even when I was working, despite the size of the checks I was pulling in I never managed to save anything. I often joked that my wife could spend money like a drunk sailor with a fist full of Viagra, and in reality I can point to several financial decisions that she took the lead on that felt wrong to me but I kept quiet in the interest of “happy wife, happy life” but it’s not all on her. We simply didn’t plan for the future and we made some poor decisions. To put a Seinfeldian spin on it, yadda yadda yadda we were foreclosed upon and were forced to declare bankruptcy. I never bounced back from that. A proud moment indeed.

OK, so they’re doing great and I have approximately enough money in my checking account to drive to the end of my driveway. Yes, that’s a problem. But as I continued to navigate the back roads of Maine, radio off and mind working overtime I realized that my checkered financial history was the least of what was bothering me.

The real problem was clear, I was disgusted that I had become such a stranger to a group of people that were once my world. Where did the time go?

To be continued…