Well, today is 30 days since my surgery. The 30 day mark is big with transplants. It is usually known at this point how well the organ is working and if it is not adjustments are made and if it is working well then they give you a little more freedom. I have been going to the hospital twice a week (2 hours each way) and have been required to monitor every drop of fluid going in and out. It isn’t difficult, just tedious. Because I’m doing so well, I am down to once a week effective immediately and today I can stop monitoring my fluid. It really is going as well as can be possibly expected. I feel good about things.
I’ve been giving a lot of thought as to the direction of my blog now. With notable exceptions I have dedicated most of my posts to illness and the obstacles associated with. I think I’ve told my story about illness, now it is time to write about the joys of being healthy. Yes, even at 30 days out I already feel healthy. My head is clear, I have energy to work out, I’m recovering some muscle and putting on a couple of pounds (I need to, dialysis robbed me of all the muscle I had) and I’m remarkable impatient to start doing the rehab work in biking, hiking, lifting and hitting the heavy bag. I’m probably already pushing it but I can’t help it. Shit to do and places to go.
This whole thing has been a blur. Despite being of clear head I still haven’t completely grasped the magnitude of my good fortune and sheer luck (or divine intervention?) and the series of cosmic alignments that allowed it to happen. The realization that I am done with dialysis is the big one. The timing of this was nothing less than amazing, I was really suffering through dialysis and it was making my life miserable. I feel like I have a whole new level of freedom. I am giddy at the thought of riding Sturgis and the Americade next year. Free to ride, free to travel and no need to find a clinic nearby. The extension cord aspect of my life is over, at least for now. The fantasy of Kerouac’ing my way across these United States is now more reality than ever. I can take the RV and just go. This is not just a pipe dream, it is something I am going to do someday. And I’m going to take my time. Dreams have now become reality.
So I was thinking about new directions for the blog. I have always wanted to write about my work history. I feel that my experiences may help someone. I also want to write about marriage and family, raising children and of course divorce. In the process of forgiving both my wife and myself and letting go of a lot of anger I feel that my experiences as a husband and father may also help or at least be of interest to someone. I don’t think I have had a great life, I certainly wouldn’t call myself successful, but I have had some interesting experiences and I have lived some funny stories. The sky really is the limit.
I look forward to sharing the other side of me, the healthy and again optimistic me. Brace yourselves, none of you have ever dealt with me when I felt good. Parental guidance suggested. You’ve been warned.