blog – Page 62 – The Tao of Bill

the Genie in the bottle

You know the story. You’re walking on the beach, you stumble on something in the sand, you look down and you see what appears to be a vase. You unearth it and instinctively know to rub it. Suddenly a wisp of smoke escapes from the uncertainly secured cap. You drop it and POOF, before you stands a Genie.

He offers you 3 wishes. There is a time limit and once a wish is made it can’t be reversed. What do you wish for?

I often toss silly situations like this around in my mind. The what-if is a harmless exercise to entertain different scenarios. Middle-aged guys often joke about harmless stuff like “if I wasn’t married I could probably shag that hot waitress at the Tilted Kilt”. In reality, unless she has “Daddy issues” and you were lucky enough to be wearing his favorite cologne he would likely be rebuffed with great prejudice. The what-if is also dangerous if you are like me and spend a lot of time dwelling on the past. The 3 wishes scenario is a fun one based purely on its implausibility. Considering that it’s already implausible, why don’t I make it more interesting by doing a then and now?

First of all, do I take care of myself first or do I think of others? 20 year old me would jump at the prospect of free wishes and would immediately think of himself and ask for a large sum of money. After all, isn’t life all about money? Cars, electronics, a big house and nice clothes make the man. Even 30 year old me would have bought into that to some degree and 40 years old me would sure want the house if nothing else.

The current me would also think of me first. I have to. Before I can help others I need to secure my own mask. But the current me is not all about money. It took losing everything that I have to take away the allure of the glimmering pile of gold. 25 years of keeping up with the Jones’, and living check to check in jobs that paid well but robbed me of my soul has taught me the concept of enough. I did enough to give the children the childhood they deserved and held on as long as I could. A bankruptcy, a foreclosure and most of my kidney function later I am embracing enough. Maintaining wealth is too much work. I want a house with lots of wood and animals lying on the many sofas with sunlight streaming in. I want a nice truck that will tow a boat and a couple of snowmobiles. Enough in the bank to not worry about money anymore, but not enough to consume me.

Once offered the second wish, the former me would request Time. Time to work, time to drink after, time to party and not need sleep. A 36 hour day. He had places to go, people to meet and booze to drink. If it was possible to wish to never need sleep, he would have wished for that.

The current me would also ask for time. Not to party, not to drink, not to work. I’ve done that. I want lost time. The time that I spent working late for ungrateful assholes that dangled the carrot of career advancement in front of my nose. The time that I spent stuck in traffic on the way home. The time that I spent on my ass with swollen legs, cramping, and fatigue, drinking beer and watching television. Instead I want all that time back in the form of bedtime stories, tossing the football in the yard, Saturday morning Soccer games, family dinners that I never made it home for. Time spent patiently listening to the rambling stories of an excited child glad to see his/her father. Time to recognize the signs that my wife was struggling and that I was losing her. If possible I want to go back in time, but that’s truly a fantasy.

Now comes the third wish. I know the younger me still had a heart for those around him. He would broadly wish for world peace. He was a good, if not misguided soul. He tried to hide it for many years but for those few that he showed his true self to, he cared.

The current me would also make a wish for the betterment of others. As my third wish I would ask for the validation of Karma, that there be a bus dedicated to it and that I get to be the driver. I would love to personally ensure that all of the good people that put such positive energy into the universe receive it back tenfold. That the kind, the generous, the selfless and the humble are rewarded. And as for the killers, the liars, the cheaters and the greedy…well that’s why the Karma bus has reverse. I need to know, if only for one day that there is some justice in the world.

It’s a nice fantasy, but I know that no matter how many times I walk on the beach barefoot there is 100% chance that I will step on a stingray or HIV infected needle before I do a bottle.

Still, it’a cool to think about.

Warmer weather

I was on Facebook earlier today and I noticed that my sister had changed her profile pic to a shot taken at the beach in August. As I sat in my kitchen freezing I found the idea of the hot sun, a cold beer in hand and my “official bikini inspector” t shirt very comforting.

Then, true to my character I immediately went to a dark place. A bad beach experience.

One day I was at the beach with a friend. We were walking along, checking out the girls, tossing the frisbee. I noticed that all of the girls were checking him out but I was getting nothing. I was perplexed.

When we got back to the boardwalk I asked him about it. He told me to put a potato in my bathing trunks. I went to the snack bar, pulled the kid aside and slipped him 10 bucks for a whole potato. I surveyed my surroundings, discretely dropped the potato in and began to walk the beach again.

I attracted attention indeed. I got laughed off the beach. Frustrated, I found my buddy and told him what was going on. He laughed for a minute and then said,

“Dude, the potato goes in the front”.

Now he tells me…

Hell, what do I know?

I’m a reasonably intelligent person. Even as a kid I knew enough to crawl into the van to make sure there was candy before I agreed to the search for a missing puppy. I followed Bugs Bunny’s sage advice and looked down the barrel of a shotgun to make sure it wasn’t loaded. After all, the worst that could happen is I might get a blackened face right? Smart, that’s me. So, can someone tell me why I have to endure someone lecturing me about my entire family and then telling me I’m wrong when I disagree with her?

Superman is flustered today. While normally able to handle all adversaries with superhuman strength and resolve, he has been vanquished by the largest chunk of Kryptonite to fall to earth…the mother-in-law.

Yesterday she called me from work, supposedly barricaded in a closet for privacy, to discuss my wife and the situation we are in. If you have been following along you may know that my wife and I are pending divorce, living very far apart and our kids are all over the place. My wife is living with her best friend and she has our two youngest with her. It is a bad situation, the living conditions are not good and I worry about the kids living with such a messed-up family. All because my chronic illness finally took me out of the game and the money ran out and our beautiful family was torn apart. Regardless of how many people tell me it’s not my fault, I still bear tremendous responsibility for this and I feel awful about it.

She is the type of person that only asks you a question if she knows (or thinks she does) the answer already. From the beginning of my marriage, she and I have not spoken often because every conversation dissolves into discussing, and her bashing, her own daughter to me. I won’t have it. I may have my issues with my wife but I won’t disrespect her like that. Perhaps their relationship is toxic but I won’t be part of it. My expectations of the call were about the same until she tearfully told me how concerned she is for the mental well-being of her daughter. We had that in common, I have been terribly concerned for her as well, she is clearly depressed and I am helpless to do anything about it. The mother-in-law says she wants to help but doesn’t know if it is the right thing to do.

There is nothing that I can say here. I’m as useless in this situation as can possibly be. I have nothing to offer financially, which is killing me but I can’t suggest that she does. It’s her money, not mine. As she waffled back and forth between helping financially by renting her an apartment and then pulling it back because of “the precedent that it would set” I just sat there as her “Charlie Brown’s teacher” voice prattled on in my ear. All I could think of was the disapproving look on her face when wifey introduced us. It’s embossed on my brain. She was right, I wasn’t good enough for her daughter and now she was going to save the day when it was supposed to be my job. I finally told her that I think she should do what she thinks is right, that I will help as I can and I really can’t tell her what to do. That’s when the rest of “what was on her mind” came out.

She wanted to talk about my children. She is, justifiably, worried about my youngest daughter. I am as well. She lives with my wife, in that fucked-up house with my youngest son as well. She is not doing great by some standards. She does not have a room of her own, she does not have a job because she can’t get a ride to one, and she spends a lot of time alone. We all hate it. But she likes her school, has made a lot of new friends and she is making the most of it. The mother-in-law thinks she is depressed. I disagreed with her, and I was told that I was wrong. I was starting to get annoyed and very territorial. I know my children well because I make it my business to. I changed the subject. She then started on my other three.

My oldest two have lived with her since the move, or as I call it “the collapse”. They both were in college locally and it was nice of her to put them up. Now, my oldest daughter has graduated, gotten a good job and has spread her wings a bit. She has a room at Grandma’s but she spends most nights at her boyfriend’s house. She’s almost 22, I’m fine with it. Yet here I am getting lectured about how irresponsible and rude she is and how unacceptable it is to live with her boyfriend. I was again outraged. My daughter was a 4.0 student, worked full time and saved all of her money. She now has a great job, a full bank account and a nice guy in her life and you’re calling her rude and irresponsible?

Then she starts on my oldest son who just told her that he is moving into an apartment with his friends off campus. I don’t like it, I think it’s too expensive and I asked him not to do it. But he’s almost 21, has a good job and he wants to do it. But here I am being told how irresponsible he is, how he is an unfocused and lazy student. The blood pressure was rising again! My son has a 3.5 GPA, has worked every weekend since he was 16, has plenty of money in the bank and she should be glad he’s moving because she always complains about how late he comes in! He is a great kid and she was really pissing me off now. But the call wouldn’t be complete without tearing up my youngest son, who she never even sees.

She started to tell me how many “issues” my youngest son has. How he jumps from thing to thing, has a poor attention span and is a terrible student. I really had enough at this point. I told her that he is fine, in fact, he is just like me at that age. But she was insistent on continuing. Finally, amazed that I had lasted this long, I told her to stop talking and listen.

“Do you honestly think that you know my wife, your daughter, as well as I do? For 29 years I have been with her through everything while you two have done nothing but argue the entire time. Do you honestly think you know my children, my pride, my legacy, my only real accomplishment in life as well as I do? I tolerated this conversation because we’re both concerned about your daughter. Help her, don’t help her it’s up to you. But now I know why you and I don’t talk often. You like to be lemon juice on a paper cut.”

“Well, I’m sorry you feel that way,” she said. “I don’t feel better at all after having this conversation”.

“If it helps, I feel worse than I did. If that’s even possible”. We said our goodbyes and she went back to work.

She left a message for me last night apologizing. I’m afraid to call her back for fear of how much of my remaining dignity it will cost me.

More cracks than I thought

I posted a few days ago about my Mom’s boyfriend and how, as his familiarity increases with our home he has begun to show a “further side” of his personality. Some folksy racist comments, inserting himself into situations that don’t concern him and trying to influence decisions my mother makes. It is bugging me a bit, but as I stated before it is her life and if she’s happy then so am I. I’m also a guest in her house right now and I know my place and will not exceed my boundaries, provided they jive with my sensibilities. That is a big ol’ gelatinous statement because my “sensibilities” constantly evolve.

A little history will provide some more context.

My father died of Parkinson’s in 2013. He battled the insidious disease for 8 years. As the disease systematically reduced the once unbreakable, honest and strong man to a mere shell of existence my mother was forced to care for him almost unassisted despite the fact that he was a veteran and a Teamster. Caring for him took a terrible toll on her, the stress of seeing her only love fade before her eyes and the physical toll of tending to his every need was miserable for her. His death was a relief for everyone, I imagine even for my father. I was living in MA and was 100 miles away so I was of little help but when he passed I spent as much time up here as I could to keep her company.

Six months passed and Mom called and said: “we need to talk”. She had a boyfriend. A local guy, a retired MA transplant who worked part-time in the schools named Frank. I had mixed emotions. Part of me screamed “too soooooon!” but the other, more reasonable side of me liked the fact that she wasn’t alone. I would meet Frank soon after and I liked him. My family not so much. My wife, the pinnacle of virtue apparently, got all judgy about how fast it all happened. My children were unhappy because they hadn’t seen their grandmother at all as she cared for my dad and now she was busy with someone else and they were again on the back burner. I found myself playing the middle, a role I hate.

Frank was a clinger, a Velcro boyfriend. He had come from a miserable marriage, he was crazy about my mother and he never left her side. I pulled mom aside and told her my concerns, she was aware but not worried about it. It became a problem for me when I brought the family up one night and come bedtime, instead of getting in his truck he began to put his pajamas on and headed towards the bedroom. The same bed my mother shared with my father. I wasn’t cool with that at all. My kids were here, they wanted time with her and he couldn’t give her one night without humping her leg? And she couldn’t ask him to leave? I did it for her.

“Hey Frank, if it’s all the same to you…you know I like you right? If it’s all the same to you when we’re at breakfast tomorrow I’d rather not see you come out of this room scratching your balls. Would you mind going home tonight?” Mom was not happy but she knew I just had a conversation she couldn’t. Frank was pissed. But he skulked out and I told Mom that she needed to reign in his clinginess. How did they think that it was ok for the grandkids, who just lost their grandfather, to see that?

Eventually, Frank and I came to an understanding and we ended up liking each other a lot, although Mom said he was intimidated by me. I’m glad I liked him because he proposed in July of 16. They were now living together and their old-fashioned values left them feeling uncomfortable with “living in sin.” They were married in January of this year.

He died 3 months later. What started out as a cold turned out to be lung cancer. He lasted 10 days from diagnosis to the morgue. My mother was crushed. But bounced right back.

She gave it 6 months, and around the time that I moved in she began to get the itch. She wanted to date again. After several failed online experiences, she met Dave. Dave is the guy I recently posted about. He is almost but not quite as clingy as Frank.

The other day I asked my mother how things were going with him. I had my opinions but I only offered them when asked for. We talked for a bit about the aforementioned stuff. I recommended that she be the one to be in charge of the relationship. She needed to remind him that she just lost a 2^nd husband and that the situation needs to be how she wants it. I assured her that he would be fine with whatever she does. I then mentioned to her some of the things I discussed in my previous post. Most of which she agreed with. Then she said, “there is one more thing, he needs to stop grabbing me. You know…sexually”. The top of my head almost blew off! I was furious. I needed to know: how bad, how often, what did you do about it and what happens now?!?!

“Like what”, she said, “I told him I didn’t like it. That in my entire life I’ve never been groped”.

“Umm Hmmm…and what, pray tell was his response to that?”

“He said that I should be flattered.” He sounds like Fred fucking Flintstone.

“Maybe I shouldn’t have told you”.

“You’d better do something or I will,” I told her.

I’m glad she told me. I am now planning my move. Something will be said. This is my Mother! What is he, a teenager? Is she hot? I’m not backing off of this.

I’m fine with her dating. It’s not even up to me. I wish she played the field a bit instead of falling in with these “nesters” but it’s not my call. I tolerate the fact that he may be plowing my mother in my father’s bed but he had better respect her and she had better insist on it. Retired state trooper or not, I’ll put him out the door without the benefit of opening it first.

A 70-year old man groping a woman like a teenager. You can’t make this shit up.

You don’t look sick…part 3

Revealing to my wife and family that I needed a kidney transplant was a turning point. My children were confused and upset. I told them everything would be fine. My wife painted a much more grim picture. I was furious with her for being so negative, at one point during an unfortunate argument she blurted out “it’s ok kids side with him he’s going to die and you’ll be stuck with me”. It was a brutal comment and hard to bounce back from. I explained to the kids that the best case scenario was a transplant, the worst would be dialysis. Not ideal, but still alive. I kept to myself the attitude that dialysis is the WORST option, giving me zero quality of life. It was a stressful time, only being compounded by the weight of mind-boggling debt and pending foreclosure. Which is historically great for blood pressure.

The backlash on me was partially deserved. By minimizing my condition I did help myself cope, but I alienated my support network. By avoiding being doted on and being treated differently, and most importantly having my family worry about me, I forced them to come to grips with something in a short amount of time, that I have had most of my adult life to deal with…that I may lead a short life. But at that point, I still couldn’t tell people how I was feeling.

At work I couldn’t escape the attention, it was a big story. In late 2009 I was hospitalized for a serious infection that was renal-related. My manager came to visit me on a Saturday with a stack of magazines for me. He said, “looks like you’re going to need a donor soon, huh?” I nodded in agreement. “What if I told you that we might have one? Deb approached me yesterday and wants to be tested”.

I was of course thrilled. She would prove to be a match and, well you can guess the rest. The company made a story out of it. The local CBS affiliate station came to do an in-office interview with Deb and I. For weeks, complete strangers would approach me and say “Hey I saw you on the News! How are you feeling?” People who knew me at the auction and other areas of my life would say “Hey, I saw you on the news. I never knew. You don’t look sick”. Heavy sigh…there was no escaping it now.

After the transplant, it was the new normal. I am blessed to have so many people care about me. The outpouring of support was amazing from friends, family, social media and company connections. My company threw a huge fundraiser for me, everyone knew my story. It truly renewed my faith in people. But post-transplant I was riding a wave, I felt great and I wanted to put 15 plus years of feeling like shit warmed over behind me. I worked out, I hiked, I bought a bike and then a mountain bike. I found a group on Facebook of local mountain bikers and I showed up. I made a bunch of great friends. One day, after a particularly grueling ride I peeled my sweat-soaked shirt off to change into a dry one and there was my enormous scar for all to see. One guy inquired about it and I gave him the brief breakdown. “Hey, I saw you on the news. That’s quite a story. You look great man!” Now that’s what I was going for.

Now let me refocus for a moment. This series is not about being happy or glad or grateful if people ask you how you are. It is about being known by your illness. When your illness defines you. When people think of how much it sucks to be sick…they think of you.

So when I constantly reference the times when people say “You don’t look sick” or ask “How are you feeling” it puts a very particular set of reactions into place. So far in this series, I am describing the birth of Superman as a coping mechanism. As opposed to the earlier-in-life Superman that tried to save the day and fix everything. He was born because I simply couldn’t afford to look sick and I could never actually tell anyone how I actually felt.

My family relied on me. I needed to be the Dad and husband I promised to be. I needed to be strong. So I covered it up, in a way I denied my illness. For them and for myself. When I was really sick, I had to say no to a 10-year old and a 9-year old who asked their Dad to play football in the front yard with them. I couldn’t do it. I couldn’t get off of the sofa. The look on their faces haunted me. After that, I forced myself to do it or I found a way to avoid it. They didn’t need to know so I didn’t tell them.

With my employer and co-workers I couldn’t answer the “How are you feeling?” question without committing career suicide. It may be against the law to discriminate in the workplace against a person with illness but it doesn’t offer much advancement. I had a huge job that other people wanted and a salary that I needed to maintain. So if my Manager said “How are you today?” there was no reason to give it a logical progression to “How are you feeling?”

I lied, I denied. I feel great thank you. I don’t look sick because that’s the point. It’s a whole lot safer than answering like,

“Well thank you for asking. This morning I barely made it to work on time because I was up all night with spasms that no doctor can diagnose. I threw up in the shower this morning and I am wearing a pair of shoes 2 sizes larger than normal because my feet are so swollen I can’t get the others on my feet. I am really fatigued right now for no reason and I am hardly in the mood for your fucking bullshit but here I am…AREN’T YOU GLAD YOU ASKED?”

to be continued

You don’t look sick…part 2

“How are you feeling?”

I ended the first installment by recalling my brief bout with Testicular Cancer in the late 90’s. It was a formative moment. During my recovery, albeit a short one, I did some serious soul-searching and eventually re-evaluated my entire life.

I decided to explore the job market outside of my little comfort zone. I envisioned all of the upcoming moments with the children that I would miss due to my schedule. The restaurant life was indeed getting old, my back and legs were my livelihood and the benefits were abysmal. When I was forced to take a weeks vacation to recover from Cancer surgery it became painfully obvious that I needed a job using my mind and my degree that also had decent benefits. While rehabbing, I applied for and eventually achieved the job that would be the stepping stone to the best job of my life.

I also realized that this was my second real brush with my mortality. If you have been following my story, you know that I have kidney disease. I have never mentioned my motorcycle accident.

Just ten years before I was hit by a drunk driver. I was hit on the left side and pushed off of the road. I went off the bike, over the bars into a guardrail. I broke 3 ribs and fractured 4 vertebrae. My only memory of the incident was gasping frantically for breath and blacking out. My next memory was waking in the hospital. I had gone into shock. I spent 3 weeks in the hospital, followed by wearing a back brace for 6 months, and I was unemployed. This is the event that led me to the restaurant. Now 9 years in, I was “Billy one-nut”, still dealing with back issues from crashing my bike, and beginning to experience regular symptoms of my burgeoning kidney disease. It wasn’t debilitating at this point, but it was becoming a part of my daily mindset and not just an “episode” here and there. It would also be the beginning of the “how are you feeling”? phase that we with chronic illness deal with.

First, and I think that I speak for most of us with chronic illness, let me say that I honestly appreciate someone inquiring as to my well-being. It beats the living hell out of the popular greeting of “’Sup?” any day. It shows consideration and familiarity. Speaking only for myself, when people routinely greet me with a “how are you feeling”, it’s official. I’m the sick kid. By my logic, which is admittedly questionable at best, my illness has defined me. I was not going to let that happen. I kept at it at the gym, I (politely) dodged questions about my health, walked upright even when hurting and eventually it went away.

It worked for me. My stubborn, bullheaded nature allowed me to fool my kids, appease my wife and keep my job. The family knew but didn’t dwell on it because I didn’t give them a reason to. My boss didn’t know until it was revealed in 2008 that I would definitely need a transplant.

IGA Nephropathy is a rare kidney disease, and like me it is an unpredictable smartass. It lays dormant for years on end, giving you the illusion that it’s not a big deal and then it pops up, robs you of a huge amount of function and says “remember me”? My esteemed team of physicians had done nothing up to this point other than manage symptoms, for IGA is so unpredictable they really didn’t know what would happen. In 2008, when it was confirmed that I would definitely need a transplant I had to tell my family and my employer.

My wife’s reaction was priceless. True to her personality, the “how does this affect me” gene reared its ugly head and she accused me of deceiving her. I have forgiven her since but I will never forget her response.

“If I knew you were that sick I never would have married you.” Normally a stalwart person, that one stung me. She apologized but it was too late. Her rationale was that I was going to die and leave her a widow with 4 heartbroken children. I reminded her that I had warned her when we began dating that I had an uncertain future health-wise.

My employer was very supportive. In fact, they embraced it. They would prove to be one of the only bright spots of the entire ordeal. The downside…everyone knew what was going on, I was now the sick guy. The day had come where every greeting was the default, dreaded

“How are you feeling?”. Here we go

To be continued…

crack in the foundation

My mother’s new boyfriend has become a weekly house guest. Because he lives almost 80 miles away his routine is to show up on Friday and leave Monday morning. He originally stayed in the guest room but now he’s in her bed. My father’s bed. Heavy sigh. Let it go.

I like him. He’s a big, polite 70-year-old Vietnam Veteran and retired State Trooper. He’s nice to my mother and he and I get along well. Even if we didn’t it doesn’t matter I’m not shagging him my mother is.

Predictably, as his familiarity and comfort level increase, he is showing some additional sides of his personality. A few telling comments containing “folksy racism”, unwelcome input (my favorite), and indications that he thinks he is a bigger part of this household than he really is. My mother is noticing it, is ok with things for now, but I am comfortable that she will handle it if she decides it is a problem. As for me, I am always waiting for the other shoe to drop.

This morning he made a mean comment about our dog to me. Big mistake. I even said “you’re in the wrong house then big guy”. “You’ll go before he will”. He asked if I was serious.

“Hell yea I am. We love dogs in this house.”

I can’t help but wonder what Mom’s reaction would have been had she heard that? I have a feeling that this is only a matter of time.

“you don’t look sick”…part 1

I went to my local hospital yesterday morning for some bloodwork. I have a “standing order” for the same tests monthly to monitor my kidney function, or as I call it the “how much have I lost this month” tests. The laboratory waiting room was small and crowded, I swear the room was built as an afterthought. I checked in, surveyed the room, saw a lot of sniffling people and the germaphobe in me chose to stand in the doorway until called.

When called, I trudged through the sea of inconsiderately outstretched legs, carefully dodging the onslaught of germs that I sensed were targeting me as if I had disrupted a wasp’s nest. After my blood was drawn I was led to the door and the Nurse said, for all the waiting room to hear, “ok now head over to Oncology they’re expecting you”. All eyes were on me. As I again navigated the sea of people standing between the door and my exodus an elderly gentleman softly said to his wife,

“he doesn’t look sick”.

I thought about responding but decided against it. Maybe it was the word “Oncology” that threw him, he didn’t know that my iron infusion was administered in the Oncology lab. After I checked in to the Oncology clinic, I sat down and reflected on a similar incident many years ago.

I was treated for Cancer in 1998 at age 31. At that time, I was the proud, doting father of an 18-month-old little girl and my wife was pregnant with my son. I was working full time at the restaurant at night, my days consisted of playing with my daughter and hitting the gym during her morning nap. I was in great shape, the best of my life. I was training for power at the gym, moving a lot of weight for at least 90 minutes a day. One day I was training legs and I attempted a press of 1300 pounds. It was a lot of weight, the kind that requires a guy on each side of the machine to bail you out if your knees pop off and stick to the ceiling. I completed 3 reps, rolled off of the machine and immediately threw up all over the floor. The pain in my core was excruciating. I called my doctor immediately. After I was examined, my doctor asked what my plans for the afternoon were. I told him I was going to work. “Call in sick,” he said and suggested that I call my wife next. I knew it, Cancer.

That nagging pain in my groin was actually a golf-ball sized tumor. It was my favorite, “Lefty”. “Lefty” had to go, regardless of whether it was benign or malignant. My blood work had already indicated that it was malignant. I was asked if I wanted a prosthetic Lefty, I declined. I was married after all, who is going to see? As an aside, I would like to borrow Mr. Peabody’s time machine right about now.

The surgery was scheduled for 10 agonizing days later. To know that you have something inside that is silently trying to kill you and having to wait 10 days to have it removed is torture. I was incredibly aware of it, as if the creature in Alien was planning its moment to pop out of me and wreak havoc. In the meantime, I went to work and acted like everything was just fine. I told one person what was going on, my boss, because I needed to schedule the time off for surgery. He told some people and sure enough, it got out. People started treating me differently. As the kitchen clown, I was a lightning rod for jokes and abuse. My days were always full of banter, it made the day pass. We were all like that. Now, everyone was being so fucking NICE to me I couldn’t take it. I was now the sick guy. People get like that when they hear the “Big C”. There’s nothing they can do and they don’t know what to say. I let them do their thing and I did mine, I deflected it and moved on.

The surgery was successful. And timely. The words “Just in time” were used in conversation. Now in a specimen jar, Lefty was indeed malignant. I would not need chemo, only a long steady regimen of Radiation therapy to my abdominal region.

The Radiation therapy would prove to be a breeze for me. My Oncologist was noticeably shocked at how well I handled it. He would tell me of how patients had to stop treatment due to fatigue and nausea. I was going to the gym and then work after a mere week after my surgery.

Work would prove to be difficult, but not for the reasons you would expect. My strength wasn’t there but I was able to do my job. If they let me. My co-workers, who normally abused me were offering to help me lift things, giving me easier assignments, asking me if I wanted to leave earlier. The worst thing of all is they were being so nice still. No abuse of any kind. I couldn’t take it so one very hot August night I decided to put end this nice stuff.

We were all sweating, it was 95 outside and we were inside a kitchen with 8 ovens, 4 fryolators and 12 saute stations going full tilt. I was sweaty and miserable and I knew I had to pick my moment. I walked into the back kitchen area during a lull and they were all there. I dropped my apron to the floor dramatically and said, “Jesus, I’m sweating my BALL off here!” They erupted in laughter, the tension instantly disappeared. My buddy Joe looks at me and says “so it’s on?”

“Yes, it’s on. Stop tip toeing around me I hate it!”

The abuse was rampant and apparently retroactive. “Billy one-nut” was born. And I loved it, things were back to normal, finally.

One day soon after, as I was leaving the radiation center, I hugged my dear nurses’ goodbye and walked through the waiting room. As I passed an elderly couple, the husband leaned in to the wife and said: “he doesn’t look sick.” I stopped, turned to him and said’ “that’s the idea”.

To be continued…

no soup for you

It’s hard to be in a good mood today. This is one of those days that my “invisible illness” is pretty goddamn out there for the world to see. My transplanted kidney is going through another “nephrotic” episode. Loosely translated, it leaks. The end result is my legs are swollen. So badly that you can see it through my pants (insert your own bad innuendo here). It makes even walking difficult. But I’ll Foghorn my way through it.

My doctor told me that I don’t need to limit my fluids, that only 1% of my kidney function is dedicated to processing exceed fluid. I have to limit it anyways, at least until this passes. Instead of drinking a gallon of water I may as well just strap it to my leg.

Time to watch my diet even closer. Really limit my sodium intake and be selective. Bland, boring foods until further notice. Bottom line, if it’s scrumptious then I can’t eat it.

https://lindaghill.com/2018/01/30/jusjojan-daily-prompt-january-30th-2018/

thank you

I read you. You read me. It’s a beautiful thing