What lies beneath

As the dreary month of February grinds on I take comfort in knowing that the worst part of the New England winter will soon be over.

While I can’t wait for Spring, I pause to marvel at the subtle beauty of winter. I look out my window at the endless sea of white and it occurs to me that in what initially looks like a barren landscape life is still a bustling ecosystem.

Beneath the ice covering the duck pond, fish teem. In the barren branches of trees the industrial squirrel forages for survival. Tracks in the snow of tiny and large creatures alike prove that the forest is still alive despite the deafening silence and grey skies.

Finally, I think of what lies beneath the snow. The grass waiting to grow. The plants eager to bloom. And of course the location of the iPhone 7 that fell out of my pocket In December as I was shoveling.

Come on Spring

You don’t look sick…conclusion

This series began as a discussion of what it was like, speaking for myself only, to deal with an increasingly visible illness. It has evolved into me telling my story. I have detailed my struggle to not let my illness define me, to avoid the default greeting of “how are you feeling”? Not because I have a problem with people caring enough to ask, but because I don’t want people’s first thought when they see me is, he’s “the sick guy”.

So, to catch up, I managed to avoid the above problem for the most part through “putting on a good face”. While people knew I had something going on, they didn’t see it on me and it basically went away. My wife called it Denial, and I have to admit it may have looked like it, but in actuality, I just didn’t want to think about it. There was a positive to it, there were people that had known me for a while and were not aware of my health issues that were inspired by my attitude. What they didn’t understand is that I am just a hard-headed guy who has never seen the point of feeling bad for myself. Stay busy, stay productive and hope the sun rises tomorrow. My doctor, post-transplant, would tell me that my denial was the best thing that I ever did. I entered the surgery much fitter and stronger than the typical patient. My wife never forgave the doctor for validating the behavior she detested.

Post-transplant I almost put an end to the “how are you feeling” era. I was up walking 2 days after my surgery, not the week that was recommended. I was back at work in 33 days, not the 90 days recommended. I dropped weight and I had color in my face for the first time. I didn’t look sick. For five years I kept it up. People knew that I was feeling good.

One night in 2016 I was serving a dinner at a Masonic function. I prepared a meal for 85 people all by myself. I was in my element, the kitchen. Moving and grooving, flipping pans and slinging some grub was fun for me. While serving the main course I suddenly grew fatigued and my hands cramped into a claw, making any dexterity impossible. I needed help to finish the dinner, people grew concerned. People who didn’t know me pre-transplant, they never saw the sick me. They wanted to know what was the matter. I knew. It was back.

In 2016 I would lose 48% of function in my new kidney. I would experience symptoms that were highly visible. My cramps happened to the point that I couldn’t hide them, my legs were swollen to the point that I could barely walk. I would contract a lung infection in July that would end up hospitalizing me for the entire month. I was out of work and out of options. I applied for disability. It was finally official, I was the sick guy.

By now, the fight was gone. I had hit bottom. That’s when I began this blog. To reap the cathartic, therapeutic benefits of putting my thoughts to paper. I embraced my illness, stopped trying to hide it and find a way to share a bed with it. Now, it is all about accepting that I have a condition that needs to be controlled, embraced and placed front and center. My reward for finally doing this is I have achieved so much peace of mind. Once you are at the very bottom you have nowhere to look but up.

20 years old…” how are you feeling?”. Good
30 years old…” how are you feeling?”.  Ok, why do you ask?
40 years old…” how are you feeling?”. I can’t tell you, so I’ll say great
45 years old…” how are you feeling?”. I would love to tell you, but I can’t afford to. I’m ok
52 years old…” how are you feeling””. I’m alive, thanks for asking.

There’s no escaping it anymore. Some days I feel great, other days I have an episode of crippling cramps in front of 5 old ladies while volunteering at the food pantry. Most people I know are aware that I am pursuing a disability claim.  I do my best not to look sick otherwise.

The other day I posted a picture on FB of the mountains of snow we have up here for my MA friends. The first person who responded didn’t ask about the snow, instead, she typed…wait for it…

“How are you feeling?”

I replied, “Fine, thanks for asking”.

the Genie in the bottle

You know the story. You’re walking on the beach, you stumble on something in the sand, you look down and you see what appears to be a vase. You unearth it and instinctively know to rub it. Suddenly a wisp of smoke escapes from the uncertainly secured cap. You drop it and POOF, before you stands a Genie.

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He offers you 3 wishes. There is a time limit and once a wish is made it can’t be reversed. What do you wish for?

I often toss silly situations like this around in my mind. The what-if is a harmless exercise to entertain different scenarios. Middle-aged guys often joke about harmless stuff like “if I wasn’t married I could probably shag that hot waitress at the Tilted Kilt”. In reality, unless she has “Daddy issues” and you were lucky enough to be wearing his favorite cologne he would likely be rebuffed with great prejudice. The what-if is also dangerous if you are like me and spend a lot of time dwelling on the past. The 3 wishes scenario is a fun one based purely on its implausibility. Considering that it’s already implausible, why don’t I make it more interesting by doing a then and now?

First of all, do I take care of myself first or do I think of others? 20 year old me would jump at the prospect of free wishes and would immediately think of himself and ask for a large sum of money. After all, isn’t life all about money? Cars, electronics, a big house and nice clothes make the man. Even 30 year old me would have bought into that to some degree and 40 years old me would sure want the house if nothing else.

The current me would also think of me first. I have to. Before I can help others I need to secure my own mask. But the current me is not all about money. It took losing everything that I have to take away the allure of the glimmering pile of gold. 25 years of keeping up with the Jones’, and living check to check in jobs that paid well but robbed me of my soul has taught me the concept of enough. I did enough to give the children the childhood they deserved and held on as long as I could. A bankruptcy, a foreclosure and most of my kidney function later I am embracing enough. Maintaining wealth is too much work. I want a  house with lots of wood and animals lying on the many sofas with sunlight streaming in. I want a nice truck that will tow a boat and a couple of snowmobiles. Enough in the bank to not worry about money anymore, but not enough to consume me.

Once offered the second wish, the former me would request Time. Time to work, time to drink after, time to party and not need sleep. A 36 hour day. He had places to go, people to meet and booze to drink. If it was possible to wish to never need sleep, he would have wished for that.

The current me would also ask for time. Not to party, not to drink, not to work. I’ve done that. I want lost time. The time that I spent working late for ungrateful assholes that dangled the carrot of career advancement in front of my nose. The time that I spent stuck in traffic on the way home. The time that I spent on my ass with swollen legs, cramping, and fatigue, drinking beer and watching television. Instead I want all that time back in the form of bedtime stories, tossing the football in the yard, Saturday morning Soccer games, family dinners that I never made it home for. Time spent patiently listening to the rambling stories of an excited child glad to see his/her father. Time to recognize the signs that my wife was struggling and that I was losing her. If possible I want to go back in time, but that’s truly a fantasy.

Now comes the third wish. I know the younger me still had a heart for those around him. He would broadly wish for world peace. He was a good, if not misguided soul. He tried to hide it for many years but for those few that he showed his true self to, he cared.

The current me would also make a wish for the betterment of others. As my third wish I would ask for the validation of Karma, that there be a bus dedicated to it and that I get to be the driver. I would love to personally ensure that all of the good people that put such positive energy into the universe receive it back tenfold. That the kind, the generous, the selfless and the humble are rewarded. And as for the killers, the liars, the cheaters and the greedy…well that’s why the Karma bus has reverse. I need to know, if only for one day that there is some justice in the world.
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It’s a nice fantasy, but I know that no matter how many times I walk on the beach barefoot there is 100% chance that I will step on a stingray or HIV infected needle before I do a bottle.

Still, it’a cool to think about.

 

 

 

 

 

 

 

 

 

Warmer weather

 

I was on Facebook earlier today and I noticed that my sister had changed her profile pic to a shot taken at the beach in August. As I sat in my kitchen freezing I found the idea of the hot sun, a cold  beer in hand and my “official bikini inspector” t shirt very comforting.

Then, true to my character I immediately went to a dark place. A bad beach experience.

One day I was at the beach with a friend. We were walking along, checking out the girls, tossing the frisbee. I noticed that all of the girls were checking him out but I was getting nothing. I was perplexed.

When we got back to the boardwalk I asked him about it. He told me to put a potato in my bathing trunks. I went to the snack bar, pulled the kid aside and slipped him 10 bucks for a whole potato. I surveyed my surroundings, discretely dropped the potato in  and began to walk the beach again.

I attracted attention indeed. I got laughed off the beach. Frustrated, I found my buddy and told him what was going on. He laughed for a minute and then said,

“Dude, the potato goes in the front”.

Now he tells me…

Hell, what do I know?

I’m a reasonably intelligent person. Even as a kid I knew enough to crawl into the van to make sure there was candy before I agreed to the search for a missing puppy. I followed Bugs Bunny’s sage advice and looked down the barrel of a shotgun to make sure it wasn’t loaded. After all, the worst that could happen is I might get a blackened face right? Smart, that’s me. So, can someone tell me why I have to endure someone lecturing me about my entire family and then telling me I’m wrong when I disagree with her?

Superman is flustered today. While normally able to handle all adversaries with superhuman strength and resolve, he has been vanquished by the largest chunk of Kryptonite to fall to earth…the mother-in-law.

Yesterday she called me from work, supposedly barricaded in a closet for privacy, to discuss my wife and the situation we are in. If you have been following along you may know that my wife and I are pending divorce, living very far apart and our kids are all over the place. My wife is living with her best friend and she has our two youngest with her. It is a bad situation, the living conditions are not good and I worry about the kids living with such a messed-up family. All because my chronic illness finally took me out of the game and the money ran out and our beautiful family was torn apart. Regardless of how many people tell me it’s not my fault, I still bear tremendous responsibility for this and I feel awful about it.

She is the type of person that only asks you a question if she knows (or thinks she does) the answer already. From the beginning of my marriage, she and I have not spoken often because every conversation dissolves into discussing, and her bashing, her own daughter to me. I won’t have it. I may have my issues with my wife but I won’t disrespect her like that. Perhaps their relationship is toxic but I won’t be part of it. My expectations of the call were about the same until she tearfully told me how concerned she is for the mental well-being of her daughter. We had that in common, I have been terribly concerned for her as well, she is clearly depressed and I am helpless to do anything about it. The mother-in-law says she wants to help but doesn’t know if it is the right thing to do.

There is nothing that I can say here. I’m as useless in this situation as can possibly be. I have nothing to offer financially, which is killing me but I can’t suggest that she does. It’s her money, not mine. As she waffled back and forth between helping financially by renting her an apartment and then pulling it back because of “the precedent that it would set” I just sat there as her “Charlie Brown’s teacher” voice prattled on in my ear. All I could think of was the disapproving look on her face when wifey introduced us. It’s embossed on my brain. She was right, I wasn’t good enough for her daughter and now she was going to save the day when it was supposed to be my job. I finally told her that I think she should do what she thinks is right, that I will help as I can and I really can’t tell her what to do. That’s when the rest of “what was on her mind” came out.

She wanted to talk about my children. She is, justifiably, worried about my youngest daughter. I am as well. She lives with my wife, in that fucked-up house with my youngest son as well. She is not doing great by some standards. She does not have a room of her own, she does not have a job because she can’t get a ride to one, and she spends a lot of time alone. We all hate it. But she likes her school, has made a lot of new friends and she is making the most of it. The mother-in-law thinks she is depressed. I disagreed with her, and I was told that I was wrong. I was starting to get annoyed and very territorial. I know my children well because I make it my business to. I changed the subject. She then started on my other three.

My oldest two have lived with her since the move, or as I call it “the collapse”. They both were in college locally and it was nice of her to put them up. Now, my oldest daughter has graduated, gotten a good job and has spread her wings a bit. She has a room at Grandma’s but she spends most nights at her boyfriend’s house. She’s almost 22, I’m fine with it. Yet here I am getting lectured about how irresponsible and rude she is and how unacceptable it is to live with her boyfriend. I was again outraged. My daughter was a 4.0 student, worked full time and saved all of her money. She now has a great job, a full bank account and a nice guy in her life and you’re calling her rude and irresponsible?

Then she starts on my oldest son who just told her that he is moving into an apartment with his friends off campus. I don’t like it, I think it’s too expensive and I asked him not to do it. But he’s almost 21, has a good job and he wants to do it. But here I am being told how irresponsible he is, how he is an unfocused and lazy student. The blood pressure was rising again! My son has a 3.5 GPA, has worked every weekend since he was 16, has plenty of money in the bank and she should be glad he’s moving because she always complains about how late he comes in! He is a great kid and she was really pissing me off now. But the call wouldn’t be complete without tearing up my youngest son, who she never even sees.

She started to tell me how many “issues” my youngest son has. How he jumps from thing to thing, has a poor attention span and is a terrible student. I really had enough at this point. I told her that he is fine, in fact, he is just like me at that age. But she was insistent on continuing. Finally, amazed that I had lasted this long, I told her to stop talking and listen.

“Do you honestly think that you know my wife, your daughter, as well as I do? For 29 years I have been with her through everything while you two have done nothing but argue the entire time. Do you honestly think you know my children, my pride, my legacy, my only real accomplishment in life as well as I do? I tolerated this conversation because we’re both concerned about your daughter. Help her, don’t help her it’s up to you. But now I know why you and I don’t talk often. You like to be lemon juice on a paper cut.”

“Well, I’m sorry you feel that way,” she said. “I don’t feel better at all after having this conversation”.

“If it helps, I feel worse than I did. If that’s even possible”. We said our goodbyes and she went back to work.

She left a message for me last night apologizing. I’m afraid to call her back for fear of how much of my remaining dignity it will cost me.

More cracks than I thought

I posted a few days ago about my Mom’s boyfriend and how, as his familiarity increases with our home he has begun to show a “further side” of his personality. Some folksy racist comments, inserting himself into situations that don’t concern him and trying to influence decisions my mother makes. It is bugging me a bit, but as I stated before it is her life and if she’s happy then so am I. I’m also a guest in her house right now and I know my place and will not exceed my boundaries, provided they jive with my sensibilities. That is a big ol’ gelatinous statement because my “sensibilities” constantly evolve.

A little history will provide some more context.

My father died of Parkinson’s in 2013. He battled the insidious disease for 8 years. As the disease systematically reduced the once unbreakable, honest and strong man to a mere shell of existence my mother was forced to care for him almost unassisted despite the fact that he was a veteran and a Teamster. Caring for him took a terrible toll on her, the stress of seeing her only love fade before her eyes and the physical toll of tending to his every need was miserable for her. His death was a relief for everyone, I imagine even for my father. I was living in MA and was 100 miles away so I was of little help but when he passed I spent as much time up here as I could to keep her company.

Six months passed and Mom called and said: “we need to talk”. She had a boyfriend. A local guy, a retired MA transplant who worked part-time in the schools named Frank. I had mixed emotions. Part of me screamed “too soooooon!” but the other, more reasonable side of me liked the fact that she wasn’t alone. I would meet Frank soon after and I liked him. My family not so much. My wife, the pinnacle of virtue apparently, got all judgy about how fast it all happened. My children were unhappy because they hadn’t seen their grandmother at all as she cared for my dad and now she was busy with someone else and they were again on the back burner. I found myself playing the middle, a role I hate.

Frank was a clinger, a Velcro boyfriend. He had come from a miserable marriage, he was crazy about my mother and he never left her side. I pulled mom aside and told her my concerns, she was aware but not worried about it. It became a problem for me when I brought the family up one night and come bedtime, instead of getting in his truck he began to put his pajamas on and headed towards the bedroom. The same bed my mother shared with my father. I wasn’t cool with that at all. My kids were here, they wanted time with her and he couldn’t give her one night without humping her leg? And she couldn’t ask him to leave?  I did it for her.

“Hey Frank, if it’s all the same to you…you know I like you right? If it’s all the same to you when we’re at breakfast tomorrow I’d rather not see you come out of this room scratching your balls. Would you mind going home tonight?” Mom was not happy but she knew I just had a conversation she couldn’t. Frank was pissed. But he skulked out and I told Mom that she needed to reign in his clinginess. How did they think that it was ok for the grandkids, who just lost their grandfather, to see that?

Eventually, Frank and I came to an understanding and we ended up liking each other a lot, although Mom said he was intimidated by me. I’m glad I liked him because he proposed in July of 16. They were now living together and their old-fashioned values left them feeling uncomfortable with “living in sin.” They were married in January of this year.

He died 3 months later. What started out as a cold turned out to be lung cancer. He lasted 10 days from diagnosis to the morgue. My mother was crushed. But bounced right back.

She gave it 6 months, and around the time that I moved in she began to get the itch. She wanted to date again. After several failed online experiences, she met Dave. Dave is the guy I recently posted about. He is almost but not quite as clingy as Frank.

The other day I asked my mother how things were going with him. I had my opinions but I only offered them when asked for. We talked for a bit about the aforementioned stuff. I recommended that she be the one to be in charge of the relationship. She needed to remind him that she just lost a 2nd husband and that the situation needs to be how she wants it. I assured her that he would be fine with whatever she does. I then mentioned to her some of the things I discussed in my previous post. Most of which she agreed with. Then she said, “there is one more thing, he needs to stop grabbing me. You know…sexually”. The top of my head almost blew off! I was furious. I needed to know: how bad, how often, what did you do about it and what happens now?!?!

“Like what”, she said, “I told him I didn’t like it. That in my entire life I’ve never been groped”.

“Umm Hmmm…and what, pray tell was his response to that?”

“He said that I should be flattered.” He sounds like Fred fucking Flintstone.

“Maybe I shouldn’t have told you”.

“You’d better do something or I will,” I told her.

I’m glad she told me. I am now planning my move. Something will be said. This is my Mother! What is he, a teenager? Is she hot? I’m not backing off of this.

I’m fine with her dating. It’s not even up to me. I wish she played the field a bit instead of falling in with these “nesters” but it’s not my call. I tolerate the fact that he may be plowing my mother in my father’s bed but he had better respect her and she had better insist on it. Retired state trooper or not, I’ll put him out the door without the benefit of opening it first.

A 70-year old man groping a woman like a teenager. You can’t make this shit up.

 

You don’t look sick…part 3

Revealing to my wife and family that I needed a kidney transplant was a turning point. My children were confused and upset. I told them everything would be fine. My wife painted a much more grim picture. I was furious with her for being so negative, at one point during an unfortunate argument she blurted out “it’s ok kids side with him he’s going to die and you’ll be stuck with me”. It was a brutal comment and hard to bounce back from. I explained to the kids that the best case scenario was a transplant, the worst would be dialysis. Not ideal, but still alive. I kept to myself the attitude that dialysis is the WORST option, giving me zero quality of life. It was a stressful time, only being compounded by the weight of mind-boggling debt and pending foreclosure. Which is historically great for blood pressure.

The backlash on me was partially deserved. By minimizing my condition I did help myself cope, but I alienated my support network. By avoiding being doted on and being treated differently, and most importantly having my family worry about me, I forced them to come to grips with something in a short amount of time, that I have had most of my adult life to deal with…that I may lead a short life. But at that point, I still couldn’t tell people how I was feeling.

At work I couldn’t escape the attention, it was a big story. In late 2009 I was hospitalized for a serious infection that was renal-related. My manager came to visit me on a Saturday with a stack of magazines for me. He said, “looks like you’re going to need a donor soon, huh?” I nodded in agreement. “What if I told you that we might have one? Deb approached me yesterday and wants to be tested”.

I was of course thrilled. She would prove to be a match and, well you can guess the rest. The company made a story out of it. The local CBS affiliate station came to do an in-office interview with Deb and I. For weeks, complete strangers would approach me and say “Hey I saw you on the News! How are you feeling?” People who knew me at the auction and other areas of my life would say “Hey, I saw you on the news. I never knew. You don’t look sick”. Heavy sigh…there was no escaping it now.

After the transplant, it was the new normal. I am blessed to have so many people care about me. The outpouring of support was amazing from friends, family, social media and company connections. My company threw a huge fundraiser for me, everyone knew my story. It truly renewed my faith in people. But post-transplant I was riding a wave, I felt great and I wanted to put 15 plus years of feeling like shit warmed over behind me. I worked out, I hiked, I bought a bike and then a mountain bike. I found a group on Facebook of local mountain bikers and I showed up. I made a bunch of great friends. One day, after a particularly grueling ride I peeled my sweat-soaked shirt off to change into a dry one and there was my enormous scar for all to see. One guy inquired about it and I gave him the brief breakdown. “Hey, I saw you on the news. That’s quite a story. You look great man!” Now that’s what I was going for.

Now let me refocus for a moment. This series is not about being happy or glad or grateful if people ask you how you are. It is about being known by your illness. When your illness defines you. When people think of how much it sucks to be sick…they think of you.

So when I constantly reference the times when people say “You don’t look sick” or ask “How are you feeling” it puts a very particular set of reactions into place. So far in this series, I am describing the birth of Superman as a coping mechanism. As opposed to the earlier-in-life Superman that tried to save the day and fix everything. He was born because I simply couldn’t afford to look sick and I could never actually tell anyone how I actually felt.

My family relied on me. I needed to be the Dad and husband I promised to be. I needed to be strong. So I covered it up, in a way I denied my illness. For them and for myself. When I was really sick, I had to say no to a 10-year old and a 9-year old who asked their Dad to play football in the front yard with them. I couldn’t do it. I couldn’t get off of the sofa. The look on their faces haunted me. After that, I forced myself to do it or I found a way to avoid it. They didn’t need to know so I didn’t tell them.

With my employer and co-workers I couldn’t answer the “How are you feeling?” question without committing career suicide. It may be against the law to discriminate in the workplace against a person with illness but it doesn’t offer much advancement. I had a huge job that other people wanted and a salary that I needed to maintain. So if my Manager said “How are you today?” there was no reason to give it a logical progression to “How are you feeling?”

I lied, I denied. I feel great thank you. I don’t look sick because that’s the point. It’s a whole lot safer than answering like,

“Well thank you for asking. This morning I barely made it to work on time because I was up all night with spasms that no doctor can diagnose. I threw up in the shower this morning and I am wearing a pair of shoes 2 sizes larger than normal because my feet are so swollen I can’t get the others on my feet. I am really fatigued right now for no reason and I am hardly in the mood for your fucking bullshit but here I am…AREN’T YOU GLAD YOU ASKED?”

to be continued

 

lofty standards

I am a quirky guy, that’s as nice as I can put it. I have certain expectations out of life. In addition to the sun rising each day, I expect electronics to work. I expect passwords to be accepted 2 times in a row. And I expect people to have an acceptable level of intellect and courtesy. I have lofty standards in some categories, others I have come to accept that we’re now grading on a curve.

The areas that I have learned to look the other way in are how people dress in public, personal hygiene, manners, tolerance, acceptance, lack of respect for personal space, attention spans, lack of respect for elders and an abhorrent lack of knowledge in civics and history.

The areas that I continue to have lofty standards in are respectful discourse, eye contact, professionalism in the workplace and doing your job well. As a manager of large staffs in several fields, I know when a person is good at their job. When I encounter someone, ranging from a clerk at a 7-11, a food server to a bank teller, if they have an attitude problem I am severely tempted to tell them to just quit already and make room for someone who gives a fuck. See, that’s my minimum requirement in life…give a fuck.

As a former sales professional, I am highly critical of those in sales. Particularly automotive sales. I did it and was damn good at it. Thorough, courteous and knowledgeable, I knew how to take care of my customer. Consequently I expect the same type of experience every 5 years or so when I buy a car.

This week my Mom got the itch to get a new SUV. She has had hers 5 years and she never keeps one longer than 5 years. A local dealership sent a notice about a recall, she reviewed it and asked me if I would go with her when she dropped hers off, in case she saw something she likes.

We saw a very nice one in a funky blue exterior, black gut and loaded. We asked for a salesperson to show it to us. Quite the opposite of the usual experience of being hounded when you first walk in, they had to find someone to help us. We were introduced to a nice guy, about my age. As he attempted to start the car he found it to be dead. Considering that is was 11 degrees with 30 mph winds it wasn’t alarming. He escorted us inside, jumped it and joined us inside as it warmed up. In conversation, as we made small talk as the car warmed up, I tossed it out there that I have been in “the biz” for over 2 decades. This serves to put a guy on notice that there will be no shenanigans today. He was pickin’ up what I was throwin’ down.

We went out to the now warm car and he asked us to get in. My mom got in the driver seat and he began to attempt to wow her with the center console. The one that wasn’t working. He was a little flustered but we got past it. The Nav screen, audio display and bluetooth set up was down but I assured my mother that I knew what it looked like and it’s very impressive. The salesperson was grateful for my save, and we drove it. Long story short, she loved it.

We went inside and asked to see some numbers. As he made small talk and drew up a proposal I played with my phone. He may have thought I was on Facebook but I was going to be his worst nightmare. I was running market reports on her trade and regional cost analyses on the new vehicle to see what others are paying. I knew there was 12% markup in domestics and quietly showed my mother what I came up with. Surprisingly they only came up 1000 more total than I wanted to pay. We got what I wanted. Easy, great deal, nice people and a good experience overall. We agreed to pick it up Monday night.

Last night was as cold as Friday was. But the car was ready, had a new battery, clean and warm. With a still-broken center console screen. Oooops. SMH. My mother was annoyed, the salesperson was flustered. He screwed up and he knew it. I asked what they were going to do and he asked if we could bring it in the next day (today). I told my mom that I would drop her off at work, bring it for her and wait for the work to be completed.

I did this as planned, waited 3 hours for them to tell me that it needed a part that they didn’t have that needed to be ordered. I told the salesperson that my mother wasn’t happy. He didn’t say anything. Here’s where I got annoyed. I said, “Really, that’s your answer? Do I have to spell it out for you?” He didn’t know what I meant. “What are you going to do for her because we’re going to be getting a little survey soon asking how you did. Do you feel me?” Crickets.

Finally, I spelled it out for him. I want you to do something for her! By the time I was done we had a promise of the first service free, a loaner when I drop it off on Friday, a full recon and a full tank of gas. Of course I had to spell it out for him with crayons and colored construction paper.

It’s difficult holding people to your own standards. It’s even ok to not be that adept at catching the sarcasm. It’s another altogether to not recognize that someone needs something and you need to give it. As a consumer I deserve it and as a person I expect it. Unfortunately, common sense is a plant that doesn’t grow in everyone’s garden.

Since when is knowing your shit a liability?

You don’t look sick…part 2

“How are you feeling?”

I ended the first installment by recalling my brief bout with Testicular Cancer in the late 90’s. It was a formative moment. During my recovery, albeit a short one, I did some serious soul-searching and eventually re-evaluated my entire life.

I decided to explore the job market outside of my little comfort zone. I envisioned all of the upcoming moments with the children that I would miss due to my schedule. The restaurant life was indeed getting old, my back and legs were my livelihood and the benefits were abysmal. When I was forced to take a weeks vacation to recover from Cancer surgery it became painfully obvious that I needed a job using my mind and my degree that also had decent benefits. While rehabbing, I applied for and eventually achieved the job that would be the stepping stone to the best job of my life.

I also realized that this was my second real brush with my mortality. If you have been following my story, you know that I have kidney disease. I have never mentioned my motorcycle accident.

Just ten years before I was hit by a drunk driver. I was hit on the left side and pushed off of the road. I went off the bike, over the bars into a guardrail. I broke 3 ribs and fractured 4 vertebrae. My only memory of the incident was gasping frantically for breath and blacking out. My next memory was waking in the hospital. I had gone into shock. I spent 3 weeks in the hospital, followed by wearing a back brace for 6 months, and I was unemployed. This is the event that led me to the restaurant. Now 9 years in, I was “Billy one-nut”, still dealing with back issues from crashing my bike, and beginning to experience regular symptoms of my burgeoning kidney disease. It wasn’t debilitating at this point, but it was becoming a part of my daily mindset and not just an “episode” here and there. It would also be the beginning of the “how are you feeling”? phase that we with chronic illness deal with.

First, and I think that I speak for most of us with chronic illness, let me say that I honestly appreciate someone inquiring as to my well-being. It beats the living hell out of the popular greeting of “’Sup?” any day. It shows consideration and familiarity. Speaking only for myself, when people routinely greet me with a “how are you feeling”, it’s official. I’m the sick kid. By my logic, which is admittedly questionable at best, my illness has defined me. I was not going to let that happen. I kept at it at the gym, I (politely) dodged questions about my health, walked upright even when hurting and eventually it went away.
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It worked for me. My stubborn, bullheaded nature allowed me to fool my kids, appease my wife and keep my job. The family knew but didn’t dwell on it because I didn’t give them a reason to. My boss didn’t know until it was revealed in 2008 that I would definitely need a transplant.

IGA Nephropathy is a rare kidney disease, and like me it is an unpredictable smartass. It lays dormant for years on end, giving you the illusion that it’s not a big deal and then it pops up, robs you of a huge amount of function and says “remember me”? My esteemed team of physicians had done nothing up to this point other than manage symptoms, for IGA is so unpredictable they really didn’t know what would happen. In 2008, when it was confirmed that I would definitely need a transplant I had to tell my family and my employer.

My wife’s reaction was priceless. True to her personality, the “how does this affect me” gene reared its ugly head and she accused me of deceiving her. I have forgiven her since but I will never forget her response.

“If I knew you were that sick I never would have married you.” Normally a stalwart person, that one stung me. She apologized but it was too late. Her rationale was that I was going to die and leave her a widow with 4 heartbroken children. I reminded her that I had warned her when we began dating that I had an uncertain future health-wise.

My employer was very supportive. In fact, they embraced it. They would prove to be one of the only bright spots of the entire ordeal. The downside…everyone knew what was going on, I was now the sick guy. The day had come where every greeting was the default, dreaded

“How are you feeling?”. Here we go

 

To be continued…