Category: survival

Bedside manner and the birth of a blog

Here’s the scene. A renowned oncologist has a stage 4 Melanoma patient as a guest at one of his lectures. She stands before the class. A veritable sea of solemn faces sits behind the life-sucking glow of the laptops before them. The Dr. wants the students to ask his patient the hard questions. In the hopes of improving their future “bedside manner.”
The questions commence. The students are unenthusiastic. They speak in clinical terms. Their faces offer no glimpse of empathy, sympathy, or understanding. They view her with the same enthusiasm as a cadaver. After the third emotionless, flat question the patient turns on them. She challenges their affect. She challenges their humanity. She implores them to see a person, not a patient. In response to her impassioned words, a student flatly asked her how she’s feeling. She then goes off on them as the Dr. watches on in silent agreement.
“How am I feeling?” How are we feeling?” “We’re dying, that’s how we feel!”
“And another thing”, she implored. “When you talk to us try to stop looking so fucking terrified!”
End scene.

The Big C. My kind of show.
Due to my medical history, I cannot help but be very aware of death. I’m not obsessed morbidly. I don’t plan to go anytime soon. Nor, and most important, am I afraid of it. It’s quite simple, actually. I spent so much time sick that it was always there in front of me. So I got to know it.
There are positive takeaways from being mindful of death. It changes how you live, for starters. Facing your own mortality opens the door between “someday I will die” and “when I die”. Suddenly, it becomes a part of your thought process. I think about it from every angle, and I’ve made peace with almost all scenarios. I live with a legacy mindset, always conscious of how I will be remembered. I’m at peace with all of it.
With the exception of a Cancer diagnosis.

That is the appeal of The Big C. It is a brave, unflinching, and honest look at life while facing death. It has it all. Bucket lists, difficult conversations, clinical trials, and experimental medications. Emotions range wildly as we watch Cathy Jamison, played by the always delightful Laura Linney, endure the highs of small victories and the crushing depths of disappointments and setbacks. At the center of it all, she is simply trying to live a normal life, with some mortality-related improvements. I believe it beautifully portrays a loving family dealing with loss. They are slightly dysfunctional and are coping with losing a mother and wife. The true beauty is that the show gives equal treatment to the concerns of both the survivors and the patient.
For the sake of this post, I want to shift focus to the medical aspect. In particular, the challenges of maintaining patient dignity in treatment. That is why I led the story as I did.

I’m very familiar with the patient/Doctor dynamic. In particular, I am very in tune with tone-deaf doctors and Nurses. My experiences have been mostly positive. However, many patients feel like a number or a statistic. They don’t feel like people because Bedside manner isn’t stressed as it once was. How do I know? I was told this by one of my own Doctors.

While hospitalized in 2016 for excessive water retention due to a failed transplant, I was approached by my Nephrologist. He said,
“Bill, you’re going to be here for a few days. If you have the energy, would you do a favor for me?”
“Sure, I’ve got nothing else to do.”
He went on to explain that he had a team of students. By his assessment, they had poor bedside manner. He made quotation fingers as he said “Bedside manner”, so I pressed. He explained that they were very bright and gifted clinically. Still, he was very concerned about their lack of empathy when dealing with patients. I admired that he cared about this, but I was not surprised. After all, he was very good with me.
I asked him what he wanted from me. He explained that he wanted me to tell them my story. Which he knew all about, of course. He said I should not volunteer everything. He wanted me to let them “pull it out of me” due to my natural tendency to overshare. In return, he would give me a certificate for helping out. I was glad to do it.
2 hours later, my hospital bed was surrounded by Medical students. I made it hard on them. I made them pull out of me the things not on their chart. The challenges of being sick for years on end. The financial, marital, parental, and occupational challenges of Chronic illness. I told them as only I could. One of them was in tears at the end, and others were visibly shaken.
My Doctor would later tell me that I was the perfect choice for such a lesson.

Soon after, I was visited by friends. They immediately noticed the new Certificate of Appreciation on my table and asked about it. I shared the story. One of them said, “Brother, you need to start documenting this shit. Write a book, man.” I mentioned that I used to have a blog, maybe it was time to start a new one? The name of it hit me instantly.
Superman can’t find a phone booth. The meaning was simple. I had fight left in me, but I was too weak to find the strength to change into my bullet-proof costume.

This is the same blog, just renamed because eventually I did indeed find my Phone Booth.

People over patients. Bedside manner is everything.


Cynicism and Faith: A Journey of Belief

I was recently asked if I believed in Miracles. 20 years ago, I would have answered this question with a flat, fast NO. Now, after several incidents that defy logical explanation, it’s a firm and steadfast maybe.

A miracle is a powerful thing that defies the physical world and all of the laws of probability. There’s a reason that it requires a panel of very stodgy and high-ranking Catholics to classify anything as a miracle. In that light nothing I’ve witnessed in my life fits the mold.

Perhaps it’s the religious implication of the word. Miracles are largely attributed to a Divine entity. I believe in a higher power, but in the most undefined of ways. I struggle with the notion of an interactive deity. Instead, I chalk belief in such things as miracles up to the human need to explain the unexplainable.

I’m a cynic. I question everything.

I was always uncomfortable owning that. Being a cynic is often mistaken for being challenging or disagreeable. It may be aligned with my trust issues. My favorite saying is, “Trust but verify.” My distrust of people is surely related to my need for proof in matters of belief. Despite having Faith, Hope, and Charity on my right forearm, faith is very elusive to me. The tattoo merely represents hope. With Faith being the struggle that it is, Deity is a constant challenge. Consequently, miracles don’t exist in my world.

Did I mention that I am a fair cynic? I admit to being a quasi-believer at best. I also don’t presume that everything needs an answer. I’ve already admitted my belief. I think that religion is man’s way of explaining what his mind cannot grasp. Prayer plays a particular role in this. I’m not of the same school. I am okay with not knowing the answers to the great mysteries in life. I will continue to question the very meaning of life until my last breath. I will be okay if I never truly understand. I am insignificant, a grain of sand on an eternal beach. I am perfectly content with the possibility that I am not expected to know. Maybe I am supposed to trust the process, as everyone is so fond of saying these days.

As an aside, I constantly question the larger questions in life. I do this not to dismiss the notion of a God, but to come to peace with it. I want, more than anything, to believe. I’m just not there. In the spirit of an inquisitive being, I seek to be wrong. Almost everyone else will retreat to be right in their own minds.

If anyone should believe in miracles, it is me. I have come out on the other side of tragedy and death more than a few times. I have been in a coma, had sepsis, severe accidents, and chronic disease. More than once, I entered a hospital that most thought I wouldn’t leave without a toe tag. I’m still here. Maybe it’s a miracle. But I don’t think I’m important enough, in the grand scheme of things, to warrant one. My life is good and well-intentioned. But the ripples of my actions don’t cross even a duck pond. Instead, I look at my continued presence as the result of good Karma. Everything is energy, after all, and I know I put out good energy into the world. My reward was getting to stick around a little longer.

Living Life Beyond Complaints: A Stoic Perspective

Marcus Aurelius Antoninus, Roman Emperor and Stoic, wrote the above quote over 1800 years ago. Who knew that “Suck it up, buttercup” was a thing so long ago? Are we to surmise that the great Toga-clad Roman society was no more free from complainers than we are today? I suppose this oversimplification fails to do the quote justice. It’s not about complaining, it’s about strength. Marcus Aurelius, as a Stoic Philosopher, believed that the quality of life is determined by how well you face adversity. In short, not everything requires action or a response.

Still, it is refreshing that, as early as 180 A,D complaining was a thing. It tells me it’s not a lovely side effect of a population growing less resilient.

I’m particularly familiar with this quote because I live it. To be clear, I am not special, nor do I want a cookie for having a challenging life. I don’t know anyone whose life isn’t. We all have problems, and it’s not a contest. One may view another’s issues as insignificant compared to one’s own. Still, that does not change the fact that everyone’s problems matter a lot to them. People need to understand this. Some choose to talk about it. Others keep it to themselves, comfortable in the age-old notion that nobody really cares. Or out of not wanting to burden others. And then others, well, they complain.
Not me.

As a person who has consistently dealt with setback after setback, I don’t talk much about my challenges. I was reluctantly “the sick guy” for a long time. Whenever I encountered anyone I knew, there was an inevitable, “How are you feeling?” coming. Please don’t take this as unappreciative. Good words are not guaranteed from everyone. Take them when you can. I simply struggled with the fact that my illness was the most definable aspect of my persona.
The most positive trait I can offer is that I am not a complainer.
I would rather be known as the opposite of a complainer.
Content. Stoic. Strong. Positive. Optimistic.

Have you ever heard someone refer to another as a survivor? “Oh, he/she’s been through so much. What a survivor. I can’t stand that. We are one of 2 things. We are alive, or we are not. Being present enough to be called a survivor means that you are alive. Logic thereby dictates that you have survived. My attitude is that while above the dirt, go out and live while you can.
Life is to be endured.

The mistake we make is to expect life to be fair or happy. The Declaration of Independence offers us the right to pursue happiness, but there is no guarantee of it. Yet many think that happiness itself is guaranteed, and any other outcome is thereby a disappointment. My attitude is that life is a series of obstacles, challenges, disappointments, and pivotal moments. Mixed in with everything entailed in surviving, we have moments of happiness. Brief periods of joy. Those are to be looked forward to because they justify the struggle. Strong people find something to be happy about. Others complain. They fail to recognize that the very breath they use to complain is something for which they should be grateful.

The choice is simple. Endure in silence, or find something in your particular situation to be grateful for. I’m facing another health challenge after only 4 years of relatively good health (my second longest streak). I’m sure that I could find many things to complain about. But I never will. Not only do people not care, but they also don’t like it. They appreciate someone who makes the best out of their situation.

I have a great life. To focus on what I can’t control is just the wrong way to live. Instead, concentrate on what I have in front of me and what lies ahead. Your stone will someday display a date of birth and a date of expiration. The dash, well, that’s everything in between. Live for that.

The veneer of civilization


“Then you see kids, good kids from good families. Back home, these kids would help little old ladies across the street. They would also go to Bible study. Yet, they do these horrible things. They’re in the country for a little bit, and it’s like the veneer of civilization peels right off of them.”

The quote above is from a Vietnam Veteran. He was interviewed for the 10-part documentary The Vietnam War by Ken Burns. He was talking about “acts of war”. In particular, the acts of savagery committed by some American soldiers while serving in Vietnam.

At an average of 90 minutes per episode, completing the series was challenging. But I did, and I have a lot of takeaways. There are hours of battle footage, commentary, and interviews. All the players are involved, including politicians and soldiers from South and North Vietnam, and the enemy. It covers all of the geopolitics involved in Cold War Southeast Asia. Per usual, Burns provides an honest, balanced and unflinching look at one of the darkest chapters in recent history.

The veterans interviewed did the unusual. They talked openly about their experience. They ranged from the reluctant draftee to the hardened veteran. There was also the wide-eyed, eager recruit seeking the honor and glory his father achieved. Finally, there was the everyday guy from Anytown, USA, who felt the call of Patriotism. They all went to the same place, but all came back very different. It wasn’t like the last war, their Dad’s war. And glory was not in the cards.

A lot of men did and saw things that would haunt them. When villages were razed, livestock slaughtered, suspected enemies gunned down, and food supplies destroyed, part of following orders, a lot of soldiers found their moral compass in danger. Some made “deals with the devil” to rationalize their acts. One soldier said, “I will never kill another human, but there’s no limit to how many Vietcong I will waste.” If they are no longer people, then it becomes easier. They are the enemy; they do not matter.

Then some stretched the thin red line even further. Rapes, mass killings of civilians, and excess brutality sometimes occurred. As it says above, it was as if the veneer of civilization had worn off of them.”

At home, the war had changed people as well. The escalating campaign was enormously controversial. Young people broke ranks with their parents’ beliefs. Students took to the streets and challenged authority figures. Peaceful protest morphed into violence as frustration with a growing conflict grew. Pictures of bombing campaigns and burned children were finding their way into American living rooms, and people were outraged. Some activists decided that violence was justified, and riots and bombings occurred. It culminated when the National Guard opened fire on a crowd at Kent State and killed four. One veteran lamented, “It has gotten so bad we are killing our own at home”. Even after the Saigon airlift of ’73, this country was divided and forever damaged.

When the soldiers returned, there was no ticker tape parade. The hostility towards the war had been directed towards those who had been charged with fighting it. The brave men and women who fought the unpopular war returned from planes and boats. They were unjustly called “baby killers” and were spit upon. These people are still owed the Welcome Home they deserved. But as I have said. Everyone and everything had changed.

What are the rules of civilization? Are they inherent? Are we born to act rationally and be decent to each other? Is it the job of parents to instill the concept of society in us? Is the veneer of civilization so thin that it can be easily worn down? Can we easily descend into barbarism and savagery?

You may not know what it was like to see the political climate of the late 60’s and early 70’s. It isn’t too late. You can still see it. Just turn on your TV. Because it’s still happening, only the target of the outrage is different. Riots, Nazi flags, death threats, mass shootings, shouting, fighting, people just being ugly to each other. So I have to ask; if the veneer of civilization is but a thin covering, what’s underneath?

Embracing the ‘Enough’ Mindset for Happiness

It’s a tired bit from movies and sitcoms.
A character, when faced with losing a friend to marriage, or moving, or some other life-changing event, says something to try to make them change their mind.
“But what about our plans to hike the Appalachian Trail?”
“Who will I travel Europe with?”
“We were going to make that movie.”
The response would be, to great audience applause, “Dude, we have literally never done any of those things.”

I always get a chuckle out of those gags because there is some truth to them. We do often envision ourselves doing something different, something exciting, something completely out of our comfort zone. Some are goals. Others are pure fantasy. Some are doable if one can overcome the logistic or emotional challenges that hold us back. Logistical challenges such as having a job, or being married with children could make hiking the Appalachian Trail a challenge. Emotional challenges, such as fear of flying, make traveling in Europe unlikely. Then there is the fear of change, a likely crippling yet common emotional challenge.

I have indulged in such yearnings myself. However, I failed to capitalize on the opportunities provided by youth. When I was young and free and unencumbered, I could go and do anything, anywhere. Elements of my life always forced me to push those yearnings to the back burner. I worked and made money, but I didn’t save any. I lived on what I made. Before I knew it, I was living to work and not working to live. Unfortunately, that never changed. Still, I had things that I wanted to do someday.

“Someday” is a wonderful notion. It is the carrot at the end of the stick. The mechanical rabbit at the dog track. It is the want of future “stuff” and “experiences.” This occurs when we have all of our shit together, are financially secure, and are emotionally and physically able. We consider the “want-to’s” that call to us through open windows as we toil through the “have-to’s” of life. As we age, or sink further into the harsh requirements of survival, they seem farther from our reach. Many, through planning, good decisions, or good fortune, reach that point. They successfully raise their kids and manage their careers and finances. Eventually, they buy the boat, RV, or Beach House. Some travel to Europe or spend the winter in Florida. I applaud them. They recognized, worked towards, and then achieved their someday.

That’s not me. At my current station in life, a continuously meager existence appears to be my new reality. Any “somedays” I have will be modest for sure. As an accountable person, I can reconcile that. The more mature version of me knows that we are a product of our decisions. My decisions have led me to where I am. I need not look elsewhere for blame; it is of my own doing.

Fortunately, I am a simple man who has never aspired to or envied wealth. You can ask anyone who knows me. They will tell you I wouldn’t be much different if I had a billion dollars. I am all about enough. I hope to have enough to eat every day. Enough money in my bank account so I don’t ever worry about money. To have enough friends surrounding me in good times and bad. Enough physical and mental ability to enjoy the activities that I love. I’m not extravagant at all, nor do I envy those who have the means to do so. I have learned to appreciate the simplicity of life, and I think my “enough” approach fits well within it.

Sure, the “somedays” still beckon me. There are still things that I want to do, only they have shifted in focus. I no longer hope for travel, adventure, and excitement. Now, I wish for peace of mind. I also hope for an extended period of good health and to be free of worry. I know that it is unreasonable to expect out of life an easy existence. That’s not what I want. I want manageable. There is a saying, “God doesn’t give us more than we can handle.” Well, the big guy must think I’m a real badass. Sorry, God, surely I have proven to you that I can handle it by now. I want to dial it down a bit. I don’t know what else to tell you.

There was a time when I would say that life had beaten me down. The “enough” mindset comes from a new realization. It is an understanding that my focus has shifted to what constitutes luxury and happiness. Sorry to be cliche’. I learned the hard way the old adage. “It’s not about having what you want. It’s wanting what you have.” I have a great life now. It is full of amazing people and meaningful activities. I have chosen to be with the people I want. I have crafted my life around the activities I enjoy. I have come to peace with my past. I am ready to face my future with the tools I have gained through the adversity of my life. I am prepared, however long I have.
I have enough of everything I need and no tears over what I don’t have. Oh yes, I also have a Motorcycle. That sure helps! I just need enough GAS MONEY.

A sobering reminder

I wrote this 6 years ago. I scan my previous writings for perspective on what my life is now compared to before. This was written in a very dark time in my life. At the height of my illness, I was lacking purpose. I truly struggled with the return on investment of continuing on. Everything felt hopeless. I remembered a conversation with my youngest. She told me that I was her favorite person in the world. That memory got me through it.
It really is amazing how much things can change. And how things can get better when you feel that all hope is lost.

I’m currently dealing with a tragic suicide within my circle. So many have been devastated by it. An entire extended family, as well as an enormous circle of friends, have had their lives forever altered. Instead of love and companionship, they now crave answers and understanding.
Talk to someone, folks. The poem below is real. That is how close I came. And why I didn’t do it.


When you were young

your favorite line

was “Dad, you don’t know”

well did you know?

there was a night

not long ago

I sat on the edge of my bed

or was it the universe?

one in the chamber

cursed glass of whiskey

liquid false courage

in the other hand

disgusted with yesterday

bored with today

uninterested in tomorrow

desperately seeking a reason

to carry on

I’d lost my joy

and the will to seek it

where once was strength

a cavernous

anguished

aching gash

Where was the zeal?

I’m missing the real

existing but not living

tears of pain roll

down my unshaven cheek

one, just one

fucking reason I seek

to not end it all

the safety off

just drunk enough

sick enough

to call Bullshit

on this timed-out
worn-out
overplayed phase
I call my life

then I think of you

my precious child

your first steps

the sun in your hair

your infinite

infectious smile

golden and pure soul

my heart yearns

stomach turns

my mind scolds me

at the thought of hurting you

if I was to shed

this mortal shell

in the throes of my selfish pain

I would crush you

my dear child

I had forgotten 

in a selfless moment

your love

ceaseless adoration

and your words

that I am

your favorite

person in the world

I couldn’t pull it

the beckoning trigger

for I had vowed to myself 

in a lighter hour

I would never

cause you

a life of pain

in the name

of ending mine

The stranger isn’t always danger

While walking by, I say, “How are you?”

Your look tells me you don’t know what to do

I don’t blame you, I’m scared too

I’m on the lookout for the drop of the next shoe

But consider this, my skeptical stranger

I might be the good guy who poses no danger

I wish I had a badge, some kind of a label

That says “I wouldn’t hurt you, I’m simply not able.”

But a simple greeting knocks you way off track

Once I’m past you there’s no getting it back

“Your loss”, I will say, under my breath

I will continue to do this until the day of my death

Someone has to start a chain of good will

It takes little effort and no special skill

Let’s offset the anger, the hatred and division

With kindness and empathy embark on a mission

Effective immediately, as early as today

Let’s change our thinking and find a new way

To talk and discuss, with respect to each other

Not yell, argue and fight with our brother

This challenge is doable, but not for the weak

Can you halt and taste your words before you speak?

We need to do something, the situation is dire

If cooler heads don’t prevail…well here comes the fire

It’s really quite simple, the words easy to say

Ready, here we go…” Have a nice day!”

The Quiet Strength of Resilience in Tough Times

Resilience isn’t dramatic.
It’s choosing life repeatedly,
even when joy feels borrowed,
And tomorrow feels unsure.
Anonymous

I saw this the other day while doom scrolling FB reels. There are a lot of gems of wisdom, tailored to your particular crisis on social media. In my case, the FB algorithm stepped it up to Yoda mode. Who am I to fight it?
I watch those reels because no matter the topic at hand. I never fail to glean some wisdom or useful nuggets that inspire me. By inspire me, I mean it gives me some general validation. It affirms the troubled traits bothering me at that moment.
This week’s troubling trait is Resilience. I’ve been thinking about it constantly.

If you have been reading, you know that I have been faced with yet another health challenge. Upon initial diagnosis, I was very concerned. The surgery is extensive and is followed by a long recovery. I wasn’t sure that I was up for it. While it goes against every fiber of my being, I thought my good run may be over. Consistent with the theme of “going against every fiber of my being”, I also did something I rarely do. I shared my dilemma with my close friends. I rarely share my struggles. I grew up figuring out shit all on my own. Upon hearing the news of my upcoming surgery, my friends were amazing, as to be expected. They were supportive in offering help in any way, and many shoulders were offered to lean on. I appreciated such offers.
The true takeaway was how many people commented on my past resilience, encouraging me to take inspiration from that. Then it occurred to me that that is what I am known for. I’m the guy known for never giving up and rewriting the narrative. Where was that guy?

Why wasn’t my initial reaction what it was when I’ve faced a health challenge before? I had to meditate on that for a few days. I had more questions than answers. That is why the above quote grabbed me so.
Here’s what I came up with. The choice to fight isn’t always out of vim and vigor or enthusiastic tenacity. Sometimes it is merely a choice. Not dramatic but instead pragmatic. The choice is, of course, living or ending it. A choice I have contemplated so very often of late.

I am not suicidal. I am merely dancing with the notion of being done. “Done” is a common topic of thought for many people in my situation. What situation is that?
Older. Plagued by physical maladies. Not financially secure. Finding myself not needed as I once was, and unwilling to insert myself into situations in order to change it. Having maximized my usefulness and in need of a purpose. Life has become a chore, and hope for it changing fades with each passing year. The ensuing tragedy of feeling this way is that suicide becomes less about being incapable of dealing with life. And instead, it becomes more about how willing you are to continue dealing.

Resilience isn’t dramatic. No, it’s a character trait. One that fades over time.
It’s choosing life repeatedly. Yes, because the alternative is less desirable. Not to mention the damage it does to those you leave behind.
Even when joy feels borrowed. There are moments when the only happy moments in my life are vicarious.
And tomorrow feels unsure. What makes me choose life is the hope that my future will be brighter, despite all indications to the contrary.

So I will fight this in my usual manner. I will reclaim my tenacity and beat this latest challenge. Not because I have a particular desire to achieve another victory over a medical foe. I want to stick around for a while to see what happens. I’ve been to enough parties to know that if you leave too soon, you will miss the good stuff. That will have to be a good enough reason to fight this battle. Being an enthusiastic participant in my own life is something I need to get back to as it is. I miss that guy.
That guy has been conspicuously absent for too long.

How do I overcome this stretch of existing and get back to my love of living?

the Prayer list comment

I stared numbly at the woman behind the plastic shield as she worked. She was older, late sixties at least. I sensed a quiet dignity and kindness about her. Realizing where I was and what I had just learned, it occurred to me that the kindness she possessed is a fine quality in her position. She handed me a stack of papers under the sneeze shield. As I reached for them, she touched my hand.
“You’re on my prayer list, William. I wish you the best.”
I had already suspected that I was on the cusp of another battle; her furrowed brow confirmed it. I looked at her name badge. As I stood up, I said, “Thank you, Theresa, you are very good at your job.”
She was indeed very good at her job. I’m unsure how I would present myself. I would struggle with dealing with a man who has just been informed that he is facing open-heart surgery.
I thought about the unusual, or usual, depending on your perspective, feeling I got from Theresa. Does she put all of her patients on her prayer list? Did she see something on that screen that inspired her gesture. After all, it’s her job to see patients with conditions such as mine. Is she empathetic to all of them equally? I would think that even the kindest of souls would become accustomed to the routine of sadness after a while. It should wear off. What inspired her to make an additional gesture of kindness towards me? Or is it just in my head? That certainly is a possibility. I pondered it as I walked in the cold wind to my car.

Severe Aortic Stenosis. Apparently, the quirky little heart murmur I’ve tolerated for many years has upgraded. I need surgery soon. There are 2 options, one very painful with a long recovery, and one less invasive with a shorter recovery period. I may not be eligible for the less invasive surgery. The kicker of it all…I have to wait until Tuesday to find out the next steps.

Actually, the real kicker is that this is only one of my worries. My Aortic Stenonis was diagnosed during a testing work-up for a Prostate biopsy. They discovered the heart issue on Monday. I met with the Cardiologist Wednesday. I had the biopsy on Thursday. Now I must wait at least a week to find if I have Prostate cancer. This has been a truly trying week.

I’m doing my homework. I’m trying to keep myself calm. I am versed on outcomes, recovery times, and everything I can think of. I know I can handle this.

But still, that comment…

200 miles

To survive is to be alive, long after the reason to live has died.
Author unknown

I was thinking recently about Hugh Glass. In 1823, Hugh Glass survived a Grizzly Bear attack. Then he crawled over 200 miles before he finally reached help in South Dakota. It took him weeks. He was the inspiration for the movie The Revenant. Upon reading it, I asked myself if I was capable of such a feat. The answer required little contemplation. No.
I was troubled by what I came up with.

The story of Hugh Glass caused me to explore something I think about frequently, the Will to Live. Late at night, when the demons come, my thoughts turn dark. I debate some horrible shit when I go down the Rabbit hole. When I was sick and on Dialysis, I did my best work. I thought about suicide most seriously. While in this state, I had no regard for anything at all. My life, except for the support of my family and friends, had little to no meaning. The only thing that kept me from doing it was the thought of what it would do to my family. I had ceased to live a purposeful life. I was merely existing. Surviving through my greatest trait. Stubbornness.
I was “surviving to be alive, long after the reason to live had died.”

The above phrase is attributed to the concept developed by German philosopher Arthur Schoppenhaur, supported and furthered by Viktor Frankl. It reflects the concept of an irrational, blind, incessant impulse without knowledge that drives instinctive behaviors. It further suggests that even when life feels meaningless, the act of surviving itself is a form of survival.
Viktor Frankl brilliantly explored this concept through the context of Holocaust survivors in Nazi Germany in Man’s search for Meaning. He observed that survivors often find hope and purpose in their experiences, which can lead to personal growth and resilience.

It’s a powerful thing to ponder. Sadly, I know many people who ponder it as well. I hear them say such things as, “I have no future”, or
“What’s the point?”
“There’s nothing left for me here”,
“I just don’t want to do it anymore.”
Wait, that last one was mine.
It pains me to remember. At the height of my illness, in the darkest of the dark nights, my mind journeyed to hidden places. I can still recall the state I was in. Awash in despair, devoid of interest in the future, desperate for sleep. In those moments, relief was all I could think about. Curled in the fetal position, cocooned in a blanket, I often found myself muttering to noone in particular, “I just don’t want to do it anymore.”
More than once, I said it while sitting on the edge of my bed, .38 Special balanced on my right thigh.
Those were dark days indeed.

My situation has improved since then. I received the gift of an organ transplant 4 years ago. I have made great strides in reclaiming my health, recovering my finances, and rebuilding my life. I have wonderful relationships with family and friends. I am an active Mason, and it is hugely important to me and an integral part of my life. I have a fulfilling social life. I say YES to almost every opportunity now. Having stared down my own mortality, I live like there is no tomorrow. I have a great life.
Still, incredulously, I sometimes go down the Rabbit Hole. I have learned a lot about myself recently, and I am aware that I suffer from depression. It’s not constant or consistent. I just have my moments.
Despite all of the good in my life, my dark half renders me helpless when the darkness comes. I take the negatives in my life and give them more status than they deserve. I find myself emphasizing the significant but manageable negatives in my life to the point of crisis. I then find myself overwhelmed, distraught, and looking for a way out. Which is, of course, just ending it already.
The terror is palpable. As is the frustration when I come out of it. Fortunately.

Here it is. I don’t want to die. I like my life. I may even love it; it depends largely on the day. I am living a purposeful life. The negatives of my life are manageable. Sure, I wish I were better off financially. But good things always happen to me, so why worry about it? I really do desire to have a female companion on this journey. But who knows if I’ll meet her tomorrow? And amazingly, I am doing fine without one. I have a lot to be grateful for, and I am living a blessed life.

So, back to the above quote, and the man who crawled 200 miles to survive, and the question of whether I was capable of such a feat.
I have changed my answer to a firm, resolute MAYBE. What I do know with certainty is that I would never just lie down and die. I would try. My mental health would determine how hard I tried. It would, consequently, decide how many miles I would be able to crawl. If it happens to me on a day when I feel good about myself. A day when I am at peace with who I am. Or a day that I am not consumed by self-deprecating and self-sabotaging behaviors. A day in which I feel in harmony with my resilience. A day when I knowingly wield the sword of inner strength that allowed me overcome two life-threatening diseases. This strength has also helped me face many transformational obstacles.
On those days, 201.
When the darkness comes? I would have leaned against the nearest tree. I would have sighed with relief. I welcomed the inevitable with one last “I can’t do it anymore.”

My mission in life going ahead must be to vanquish the “me” that would give up that easily. But that’s the thing about the darkness. It comes whether I want it to or not. The key for me is to always focus on the purposeful aspects of my life. I want to stay on track with my hope to die a good man. I aim to be a man who left the world a little better than he found it. At the very least, I hope not to make it worse off. I have to learn to consistently look at the good in my life.

Then, and only then, will I end the dichotomy of Living with Meaning vs. merely existing.