Category: illness

80K in 30 days

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Suicide is a National tragedy. 80,000 suicides in 4 weeks. Why isn’t mental health a priority?

I’m very close to the subject of suicide. My Masonic Riding Association Chapter dedicates its charitable activities to Suicide prevention through fundraisers such as charity rides. The president of our Chapter lost his son to it.
I have lost many friends over the years to it. There have been so many funerals. More than I care to count. It’s always the same. Nearly all in attendance were thinking the same things. They asked, “How did we not see this coming?” and “What could have been done to prevent it?” You wish for that one last chance to remind someone that they matter, and what they are going through will pass. Instead, your only option is to stand over their mortal shell and say the things that you wished you had said when they were alive. Then the realization sets in, your words are unheard now, and mean nothing anymore. It’s just too late.

I have struggled with thoughts of suicide as well. Greatly. It started when I was on dialysis several years ago. I struggled through some very dark, sleepless nights in which my thoughts attacked me. Feelings of despair, worthlessness, frustration, and exhaustion washed over me, standing guard so as to not allow any conflicting voices of hopefulness intervene. I was convinced that life was not worth living. That I was of no use, in fact a burden to everyone. I didn’t feel needed, wanted, or useful. I was sick, broke, isolated from my support network, and generally feeling that there was no reason to keep fighting. It was such a confusing time for me. I managed to get through each day. But I always knew that I had another battle in store later that night. The one thing that kept me from actually doing it was knowing what it would do to the people who love me.
Eventually, those nightly battles ended. For a while, I believed that they were gone for good. I chalked them up to a phase. I was wrong. I have battled suicidal ideations many times since. Recently, I am sad to report.

Never again, after the events of last week.

A close family friend hung herself last week in a house full of people who loved her. 12 people to be exact. Not to mention the throngs of others who have just found out. She was a mother of 5, a Grandmother of 5, a devoted wife, and a friend to all. She listened with ease, cared without end, and loved everyone in her life. She was my ex-wife’s best friend in the entire world. Now my ex, as well as her enormous family and network of friends, are left holding a giant bag of unanswered questions.

My ex became friends with Lisa when our children were very young. That friendship evolved to include Lisa and her husband. It also included her sister and his husband, along with the third brother and his family. We would congregate as 8 adults and 14 children. Restaurants were fun. I say that sarcastically, but they actually were fun. The adults were as silly and fun-loving as the kids were. For years, we spent almost every occasion with them. Summer days were spent at the pool and lakes. Weekend nights were full of raucous laughter and the joyful sounds of children. I am hard-pressed to think of many nice family days that weren’t spent with their families. Until our divorce, when I wasn’t much a part of things. Unfortunately, the memory of Lisa is a bit tarnished for me. Her friendship with my ex became problematic for me late in our marriage. I felt that the friendship was too much, a bit excessive, and I pushed back some. But I need to be clear, I had no issue with Lisa, only with the situation itself. Even after stating that, I feel awful now. I don’t know if I ever told her that my problem wasn’t with her. I am only comforted by the fact that Lisa probably didn’t hold grudges against me. She just wasn’t like that. I could have learned a lot about forgiveness from her.

The funeral is Friday. It is going to be a very hard day for all involved. The family is one of the closest families I’ve ever known. They love hard and play hard, it logically follows that they grieve hard as well. I anticipate one touching, tearful eulogy after another, each more difficult to process than the last. I plan on providing a shoulder for my ex, if she’ll take it from me. I hope she will because it is the only thing that I have to offer. It won’t be enough, but it will at least be something that I can do for her. She is devastated; there is no other word. I feel just awful for her. She will carry this with her forever. Her mental health, while never great, will be forever affected. For that I am deeply sad.

Seeing the damage done to the living, I now believe that suicide is a terribly selfish act. No one should ever have to go through what Lisa’s family is going through right now. The good memories will prevail. However, the present moment is full of whys, what-ifs, if I had only knowns, and what are we going to do’s. For context, she became a grandmother again just last month. A child that will never know how awesome her Grammy really was.
I can never do that to my family. No amount of pain or despair is worth doing such a thing to them.

Mental health is a crisis of unchecked proportions. See, Lisa was unwell. Despite her ability to help others without limit, she was unable to help herself. Her family was unable to help. My ex, who loved Lisa as much as her family did, was unable to do anything to help.

How many families must endure this pain before we realize we have a problem? I am aware that I am doing a small something by engaging in charities dedicated to this. But the irony that I have thought about ending my life in the same family-crushing manner is not lost on me.

We need to have a national conversation. NOW. https://projectsemicolon.com/

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The Quiet Strength of Resilience in Tough Times

Resilience isn’t dramatic.
It’s choosing life repeatedly,
even when joy feels borrowed,
And tomorrow feels unsure.
Anonymous

I saw this the other day while doom scrolling FB reels. There are a lot of gems of wisdom, tailored to your particular crisis on social media. In my case, the FB algorithm stepped it up to Yoda mode. Who am I to fight it?
I watch those reels because no matter the topic at hand. I never fail to glean some wisdom or useful nuggets that inspire me. By inspire me, I mean it gives me some general validation. It affirms the troubled traits bothering me at that moment.
This week’s troubling trait is Resilience. I’ve been thinking about it constantly.

If you have been reading, you know that I have been faced with yet another health challenge. Upon initial diagnosis, I was very concerned. The surgery is extensive and is followed by a long recovery. I wasn’t sure that I was up for it. While it goes against every fiber of my being, I thought my good run may be over. Consistent with the theme of “going against every fiber of my being”, I also did something I rarely do. I shared my dilemma with my close friends. I rarely share my struggles. I grew up figuring out shit all on my own. Upon hearing the news of my upcoming surgery, my friends were amazing, as to be expected. They were supportive in offering help in any way, and many shoulders were offered to lean on. I appreciated such offers.
The true takeaway was how many people commented on my past resilience, encouraging me to take inspiration from that. Then it occurred to me that that is what I am known for. I’m the guy known for never giving up and rewriting the narrative. Where was that guy?

Why wasn’t my initial reaction what it was when I’ve faced a health challenge before? I had to meditate on that for a few days. I had more questions than answers. That is why the above quote grabbed me so.
Here’s what I came up with. The choice to fight isn’t always out of vim and vigor or enthusiastic tenacity. Sometimes it is merely a choice. Not dramatic but instead pragmatic. The choice is, of course, living or ending it. A choice I have contemplated so very often of late.

I am not suicidal. I am merely dancing with the notion of being done. “Done” is a common topic of thought for many people in my situation. What situation is that?
Older. Plagued by physical maladies. Not financially secure. Finding myself not needed as I once was, and unwilling to insert myself into situations in order to change it. Having maximized my usefulness and in need of a purpose. Life has become a chore, and hope for it changing fades with each passing year. The ensuing tragedy of feeling this way is that suicide becomes less about being incapable of dealing with life. And instead, it becomes more about how willing you are to continue dealing.

Resilience isn’t dramatic. No, it’s a character trait. One that fades over time.
It’s choosing life repeatedly. Yes, because the alternative is less desirable. Not to mention the damage it does to those you leave behind.
Even when joy feels borrowed. There are moments when the only happy moments in my life are vicarious.
And tomorrow feels unsure. What makes me choose life is the hope that my future will be brighter, despite all indications to the contrary.

So I will fight this in my usual manner. I will reclaim my tenacity and beat this latest challenge. Not because I have a particular desire to achieve another victory over a medical foe. I want to stick around for a while to see what happens. I’ve been to enough parties to know that if you leave too soon, you will miss the good stuff. That will have to be a good enough reason to fight this battle. Being an enthusiastic participant in my own life is something I need to get back to as it is. I miss that guy.
That guy has been conspicuously absent for too long.

How do I overcome this stretch of existing and get back to my love of living?

Facing Heart Surgery: another challenge of my resilience

Well, I shared my news with some close friends as well as on here. I don’t know what my expectations were regarding reactions, but it’s out of the bag nonetheless. As my goal is always selflessness, I’m glad nobody is making a fuss. My family and friends are there for me and that’s all that matters. They’re processing it just fine. They are all offering their help and I’m doing what I always do: downplaying it. It’s not that I’m outright refusing help. I just don’t know what to do or say because I haven’t processed it yet.

I have vowed to be brutally honest in this space. I have gained a readership because I do not hold back. I put my vulnerabilities out there for consumption. That won’t end or change today. Here it is, at first I was scared. That’s natural, I think. I don’t embrace it, but I can accept it. I worry more about people seeing me scared than anything. It’s the reputation that follows me; I’m known for resilience. For taking every punch life has thrown at me and getting up each time. It’s all I have going for me.
But when I was told that I needed open-heart surgery, I was enduring a Cancer Scare. It occurred to me that I have met an opponent that I couldn’t overcome. All I could think about was the same 2 words, Four years.

4 years of uninterrupted good health. 4 years of getting back to living my life. 4 years of not being the “sick guy”. That’s the one that gets me, the “sick guy”. I was hoping that guy was gone forever. You know the sick guy. He’s the one who, whenever someone sees him, automatically gets the obligatory, “how are you feeling?” Now, don’t get me wrong, there is nothing wrong with people inquiring about my health. It’s kindness, awareness, sometimes sympathy but more often empathetic, all rolled into one. It exemplifies the best in people and I’m a staunch believer that people are good. But after a while, it stops being warm and fuzzy and begins to overshadow recovery. Since I was 42 years old, I have been the sick guy. I had a brief respite in 2011. During this time, I had my first transplant. I bounced back most spectacularly. I was back at work in 33 days. I was exercising, socially active, excelling at work, and truly enjoying my new life of saying YES. I almost got to the point where the “how are you feeling’s” stopped. Then the kidney failed and I was that guy again. 5 years later I got another shot. It was a great kidney. My body adapted to it so well. It was clear to all that it was not necessary to ask me how I felt. Anyone could see that I was doing great.
When the prostate issue arose, I was nervous but kept going. The news of the heart surgery, not so much. It’s a big surgery and a long recovery. It shook me a bit. After all, I can hope for but cannot have guarantees that I will be 100% after the surgery. And I’m sorry, but I’m trying to make up for much lost time. And I don’t want to break the run that I am on.
Despite not giving myself permission, I felt bad for myself for a few days. I feel compelled to go into detail, to fully convey the extent of my angst. It lasted days as I battled an increasingly common enemy, the urge to give up. I am/was/will continue to be very troubled that this enemy has established a foothold in my psyche. I can only attribute his presence to one simple fact, part of me just doesn’t want to do it anymore.
I am asked at every Physician appointment if A)I feel safe, and B)If I have suicidal ideations. I have been answering “YES” to part B. It leads to a conversation, of course. I am forced to explain that I don’t want to actively end my life. I just don’t care if something else does. As I said, it stems from just plain being done. My mind was allowing me to entertain a notion I have fought with every fiber in my body, giving up. The news that I received last week could have easily given more weight to the notion. In fact, it almost did.
Then I remembered who I was.

I’m the guy who has always smiled and given a thumbs-up for the camera when things were grim. I have a collection of photos taken in hospitals after my many surgeries. In every one of them, I am clearly thumbing my nose at what could have been. I am openly defying it. I’m the guy who reacts to recovery times like I do to GPS arrival times. I scoff and say, “I can beat that.” I’m the guy that says, “I’m good”, even when it is very clear that I am not.

Well, one week later, that guy is back. That pussy worried about surviving? Fuck that guy. I spoke to my dear friend Pedro recently. I told him that I am no longer scared. I am going to fight this as I have been, stubborn and confident. He calls me C Brown, named lovingly after my hero Charlie Brown. He knows and remembers when I don’t, that I got this. And I do. There really is only one choice here, to get through it. I’ve survived 100% of my worst days, my money is on me.

Now, where the hell is that football?

the Prayer list comment

I stared numbly at the woman behind the plastic shield as she worked. She was older, late sixties at least. I sensed a quiet dignity and kindness about her. Realizing where I was and what I had just learned, it occurred to me that the kindness she possessed is a fine quality in her position. She handed me a stack of papers under the sneeze shield. As I reached for them, she touched my hand.
“You’re on my prayer list, William. I wish you the best.”
I had already suspected that I was on the cusp of another battle; her furrowed brow confirmed it. I looked at her name badge. As I stood up, I said, “Thank you, Theresa, you are very good at your job.”
She was indeed very good at her job. I’m unsure how I would present myself. I would struggle with dealing with a man who has just been informed that he is facing open-heart surgery.
I thought about the unusual, or usual, depending on your perspective, feeling I got from Theresa. Does she put all of her patients on her prayer list? Did she see something on that screen that inspired her gesture. After all, it’s her job to see patients with conditions such as mine. Is she empathetic to all of them equally? I would think that even the kindest of souls would become accustomed to the routine of sadness after a while. It should wear off. What inspired her to make an additional gesture of kindness towards me? Or is it just in my head? That certainly is a possibility. I pondered it as I walked in the cold wind to my car.

Severe Aortic Stenosis. Apparently, the quirky little heart murmur I’ve tolerated for many years has upgraded. I need surgery soon. There are 2 options, one very painful with a long recovery, and one less invasive with a shorter recovery period. I may not be eligible for the less invasive surgery. The kicker of it all…I have to wait until Tuesday to find out the next steps.

Actually, the real kicker is that this is only one of my worries. My Aortic Stenonis was diagnosed during a testing work-up for a Prostate biopsy. They discovered the heart issue on Monday. I met with the Cardiologist Wednesday. I had the biopsy on Thursday. Now I must wait at least a week to find if I have Prostate cancer. This has been a truly trying week.

I’m doing my homework. I’m trying to keep myself calm. I am versed on outcomes, recovery times, and everything I can think of. I know I can handle this.

But still, that comment…