Category: compassion

The Quiet Strength of Resilience in Tough Times

Resilience isn’t dramatic.
It’s choosing life repeatedly,
even when joy feels borrowed,
And tomorrow feels unsure.
Anonymous

I saw this the other day while doom scrolling FB reels. There are a lot of gems of wisdom, tailored to your particular crisis on social media. In my case, the FB algorithm stepped it up to Yoda mode. Who am I to fight it?
I watch those reels because no matter the topic at hand. I never fail to glean some wisdom or useful nuggets that inspire me. By inspire me, I mean it gives me some general validation. It affirms the troubled traits bothering me at that moment.
This week’s troubling trait is Resilience. I’ve been thinking about it constantly.

If you have been reading, you know that I have been faced with yet another health challenge. Upon initial diagnosis, I was very concerned. The surgery is extensive and is followed by a long recovery. I wasn’t sure that I was up for it. While it goes against every fiber of my being, I thought my good run may be over. Consistent with the theme of “going against every fiber of my being”, I also did something I rarely do. I shared my dilemma with my close friends. I rarely share my struggles. I grew up figuring out shit all on my own. Upon hearing the news of my upcoming surgery, my friends were amazing, as to be expected. They were supportive in offering help in any way, and many shoulders were offered to lean on. I appreciated such offers.
The true takeaway was how many people commented on my past resilience, encouraging me to take inspiration from that. Then it occurred to me that that is what I am known for. I’m the guy known for never giving up and rewriting the narrative. Where was that guy?

Why wasn’t my initial reaction what it was when I’ve faced a health challenge before? I had to meditate on that for a few days. I had more questions than answers. That is why the above quote grabbed me so.
Here’s what I came up with. The choice to fight isn’t always out of vim and vigor or enthusiastic tenacity. Sometimes it is merely a choice. Not dramatic but instead pragmatic. The choice is, of course, living or ending it. A choice I have contemplated so very often of late.

I am not suicidal. I am merely dancing with the notion of being done. “Done” is a common topic of thought for many people in my situation. What situation is that?
Older. Plagued by physical maladies. Not financially secure. Finding myself not needed as I once was, and unwilling to insert myself into situations in order to change it. Having maximized my usefulness and in need of a purpose. Life has become a chore, and hope for it changing fades with each passing year. The ensuing tragedy of feeling this way is that suicide becomes less about being incapable of dealing with life. And instead, it becomes more about how willing you are to continue dealing.

Resilience isn’t dramatic. No, it’s a character trait. One that fades over time.
It’s choosing life repeatedly. Yes, because the alternative is less desirable. Not to mention the damage it does to those you leave behind.
Even when joy feels borrowed. There are moments when the only happy moments in my life are vicarious.
And tomorrow feels unsure. What makes me choose life is the hope that my future will be brighter, despite all indications to the contrary.

So I will fight this in my usual manner. I will reclaim my tenacity and beat this latest challenge. Not because I have a particular desire to achieve another victory over a medical foe. I want to stick around for a while to see what happens. I’ve been to enough parties to know that if you leave too soon, you will miss the good stuff. That will have to be a good enough reason to fight this battle. Being an enthusiastic participant in my own life is something I need to get back to as it is. I miss that guy.
That guy has been conspicuously absent for too long.

How do I overcome this stretch of existing and get back to my love of living?

Facing Heart Surgery: another challenge of my resilience

Well, I shared my news with some close friends as well as on here. I don’t know what my expectations were regarding reactions, but it’s out of the bag nonetheless. As my goal is always selflessness, I’m glad nobody is making a fuss. My family and friends are there for me and that’s all that matters. They’re processing it just fine. They are all offering their help and I’m doing what I always do: downplaying it. It’s not that I’m outright refusing help. I just don’t know what to do or say because I haven’t processed it yet.

I have vowed to be brutally honest in this space. I have gained a readership because I do not hold back. I put my vulnerabilities out there for consumption. That won’t end or change today. Here it is, at first I was scared. That’s natural, I think. I don’t embrace it, but I can accept it. I worry more about people seeing me scared than anything. It’s the reputation that follows me; I’m known for resilience. For taking every punch life has thrown at me and getting up each time. It’s all I have going for me.
But when I was told that I needed open-heart surgery, I was enduring a Cancer Scare. It occurred to me that I have met an opponent that I couldn’t overcome. All I could think about was the same 2 words, Four years.

4 years of uninterrupted good health. 4 years of getting back to living my life. 4 years of not being the “sick guy”. That’s the one that gets me, the “sick guy”. I was hoping that guy was gone forever. You know the sick guy. He’s the one who, whenever someone sees him, automatically gets the obligatory, “how are you feeling?” Now, don’t get me wrong, there is nothing wrong with people inquiring about my health. It’s kindness, awareness, sometimes sympathy but more often empathetic, all rolled into one. It exemplifies the best in people and I’m a staunch believer that people are good. But after a while, it stops being warm and fuzzy and begins to overshadow recovery. Since I was 42 years old, I have been the sick guy. I had a brief respite in 2011. During this time, I had my first transplant. I bounced back most spectacularly. I was back at work in 33 days. I was exercising, socially active, excelling at work, and truly enjoying my new life of saying YES. I almost got to the point where the “how are you feeling’s” stopped. Then the kidney failed and I was that guy again. 5 years later I got another shot. It was a great kidney. My body adapted to it so well. It was clear to all that it was not necessary to ask me how I felt. Anyone could see that I was doing great.
When the prostate issue arose, I was nervous but kept going. The news of the heart surgery, not so much. It’s a big surgery and a long recovery. It shook me a bit. After all, I can hope for but cannot have guarantees that I will be 100% after the surgery. And I’m sorry, but I’m trying to make up for much lost time. And I don’t want to break the run that I am on.
Despite not giving myself permission, I felt bad for myself for a few days. I feel compelled to go into detail, to fully convey the extent of my angst. It lasted days as I battled an increasingly common enemy, the urge to give up. I am/was/will continue to be very troubled that this enemy has established a foothold in my psyche. I can only attribute his presence to one simple fact, part of me just doesn’t want to do it anymore.
I am asked at every Physician appointment if A)I feel safe, and B)If I have suicidal ideations. I have been answering “YES” to part B. It leads to a conversation, of course. I am forced to explain that I don’t want to actively end my life. I just don’t care if something else does. As I said, it stems from just plain being done. My mind was allowing me to entertain a notion I have fought with every fiber in my body, giving up. The news that I received last week could have easily given more weight to the notion. In fact, it almost did.
Then I remembered who I was.

I’m the guy who has always smiled and given a thumbs-up for the camera when things were grim. I have a collection of photos taken in hospitals after my many surgeries. In every one of them, I am clearly thumbing my nose at what could have been. I am openly defying it. I’m the guy who reacts to recovery times like I do to GPS arrival times. I scoff and say, “I can beat that.” I’m the guy that says, “I’m good”, even when it is very clear that I am not.

Well, one week later, that guy is back. That pussy worried about surviving? Fuck that guy. I spoke to my dear friend Pedro recently. I told him that I am no longer scared. I am going to fight this as I have been, stubborn and confident. He calls me C Brown, named lovingly after my hero Charlie Brown. He knows and remembers when I don’t, that I got this. And I do. There really is only one choice here, to get through it. I’ve survived 100% of my worst days, my money is on me.

Now, where the hell is that football?

the Prayer list comment

I stared numbly at the woman behind the plastic shield as she worked. She was older, late sixties at least. I sensed a quiet dignity and kindness about her. Realizing where I was and what I had just learned, it occurred to me that the kindness she possessed is a fine quality in her position. She handed me a stack of papers under the sneeze shield. As I reached for them, she touched my hand.
“You’re on my prayer list, William. I wish you the best.”
I had already suspected that I was on the cusp of another battle; her furrowed brow confirmed it. I looked at her name badge. As I stood up, I said, “Thank you, Theresa, you are very good at your job.”
She was indeed very good at her job. I’m unsure how I would present myself. I would struggle with dealing with a man who has just been informed that he is facing open-heart surgery.
I thought about the unusual, or usual, depending on your perspective, feeling I got from Theresa. Does she put all of her patients on her prayer list? Did she see something on that screen that inspired her gesture. After all, it’s her job to see patients with conditions such as mine. Is she empathetic to all of them equally? I would think that even the kindest of souls would become accustomed to the routine of sadness after a while. It should wear off. What inspired her to make an additional gesture of kindness towards me? Or is it just in my head? That certainly is a possibility. I pondered it as I walked in the cold wind to my car.

Severe Aortic Stenosis. Apparently, the quirky little heart murmur I’ve tolerated for many years has upgraded. I need surgery soon. There are 2 options, one very painful with a long recovery, and one less invasive with a shorter recovery period. I may not be eligible for the less invasive surgery. The kicker of it all…I have to wait until Tuesday to find out the next steps.

Actually, the real kicker is that this is only one of my worries. My Aortic Stenonis was diagnosed during a testing work-up for a Prostate biopsy. They discovered the heart issue on Monday. I met with the Cardiologist Wednesday. I had the biopsy on Thursday. Now I must wait at least a week to find if I have Prostate cancer. This has been a truly trying week.

I’m doing my homework. I’m trying to keep myself calm. I am versed on outcomes, recovery times, and everything I can think of. I know I can handle this.

But still, that comment…

Dinner with My Dad: A Reflection on Life Lessons

I recently came across a writing prompt that interested me.
“If you could have dinner with anyone past or present, who would you choose?”

To pick just one person that I would want to have dinner with, alive or dead, is a challenge. Most people might choose a celebrity, a poet, a musician, or a politician. I can surmise that this is the point of the exercise for them. How would I begin to pick the one person whose contribution, ideas, heroic deed, etc. inspired me to select them over any other? Another question, would it be considered trite or a wasted opportunity to choose a family member, such as my Dad?

Well, I am picking my Dad.

Dinner with my Dad would be a very particular scenario. It would be a recreation of a lunch I once had with him when I was 23 years old. I can remember only one time as a young man when he and I ever went out as just guys. We had a beer. It was special in many ways. Obviously, spending time with my dad was special in its own right. But it was also one of the first times he stopped being in “dad mode.” He was just a regular guy. As an aside, I call this the dad hat. It’s my nickname for Dad’s tendency to act based on his perception of ‘Dad’ as a role. This happens rather than him acting as a person. I admired his dedication to it. Often, though, I wished he could have just been a friend when I needed it. That day, he was just that.

I remember that I was really struggling with some heavy shit that day. He was very helpful in listening intently. He only offered advice when asked. Of all of the conversations that day, I fondly remember him saying his famous line to me. He truly believed in that line. One that I never came around to until after he died. He said, “ Bill, believe it or not, everything will work out.”

Today, if I were to sit across from him at the same restaurant, I would struggle. I wouldn’t know what to tell him first. I mean, where do I even begin? He has been gone 12 years now, and I have spent so much time talking to his headstone. I would tell him that I miss him more than words can describe. I would tell him that the world makes less sense without him around. That men like him are a dying breed. I would apologize for so many things. I would save the best for last. I survived some mind-blowing shit. I would tell him that sitting across from him is a miracle in itself. I have come around to his trademark saying. Everything, in fact, will, does, and did work out. That in no way means that my life is what I wanted it to be. It means that I understand, and that it worked out a helluva lot better than it could have.

I realize that I have described a very one-sided conversation. It’s because I have so much to tell him. I want to honor him. I will tell him how much he was right about. I have come to value his simple yet poignant take on the complexities of life. I remember the quiet disappointment in his eyes as he dispensed valuable wisdom to deaf ears. It would mean everything to me to set the record straight. I want to see the satisfied, redeemed, look on his face. A humble man, who, like his dedicated son, only wants to know that he made a difference by sharing the wisdom accrued over a too-short, hard-scrabble life.

Finally, the check would come. He would try to pay, as expected. But I would insist. It would be one more payment towards the inequity of all that he gave me, which would be frittered away. He would insist on paying the tip. At that moment, I would remind him that he has also given enough tips in his time on earth. All of this is a feeble effort. I want to show him that his generosity of spirit and wisdom are not lost on me after all. He never knew just how much his sage advice has guided me through life. It has helped me face the most difficult challenges posthumously.

Finally, we will walk out to the parking lot and walk towards the setting sun. I extend my right arm and place it on his shoulder as we walk. I say, tears welling up despite my strict no-cry policy, “I love you Dad. Thank you for everything you didn’t know you gave me.”

Suddenly, my arm was resting in the air. The persistent force of gravity pulled my arm to my side again. It is a calm evening, still and warm. I realize that he is gone, back to where he came. Disappointed at the sudden conclusion of our visit, I walk to my car. A brisk breeze breaks the stillness, blowing my trademark scally cap off my head. I laugh, pick it up and smile broadly. He never liked scally caps. He was a ball cap guy.

The Fall of Rome

“Hell is empty, and all the Devils are here“.
William Shakespeare

I’ll say this, Ole Billy Shakespeare had no idea how prescient a statement it was. We don’t need to do a deep dive into religion or philosophy to understand evil. It is everywhere we look and walks among us. Our very civilization is collapsing around us.

I don’t know if I’m more angry or sad at the state of the world, especially in our country.
We used to be a nation of laws and ideas. We established this country on Western Christian-Judaeo values. Those values permeated the ideas behind the vision the founding fathers had for the United States. The founders envisioned a Utopian society; one free from religious persecution, outdated monarchies, stifled thought, and oppression. To support this, they created the fairest legal system in the world.
Yet we are bordering on being a lawless nation. Violent crime is more prevalent, as well as increasingly savage, every day. Theft, from looting and shoplifting to embezzling and large-scale financial scams are constant. I can safely say that when we think we have seen the most shocking acts ever, it can be topped. And it will be.

If we studied history, we would understand that mankind has always been savage. Humans have consistently engaged in slaughter. We need look no further than the Middle Ages. The torture methods from the period show that man has always had the capacity to inflict unimaginable pain on others. Seemingly with pleasure.
But we are supposed to have evolved since then. Particularly in the Western World, where we profess to have decency, morality, and compassion. We even tried to engineer such values through our Declaration of Independence. The Constitution also acknowledges inalienable human rights granted by God. To enforce these ideas, we created the best legal system in the world.
But a declining value system makes such laws merely academic.

I am not the biggest fan of religion in its broadest sense. However, I believe strict adherence to morality is crucial. It needs to be supported by those who keep it at the forefront of their actions and behaviors. This is the glue that keeps society together. People largely played by those rules, and we policed ourselves. Is it a coincidence? As the number of people who claim to be of faith declines, the crime rate goes up.
I don’t believe so.

The world I grew up in had a clear definition of right and wrong. The rules by which today’s society functions are Grey at best. I was also raised to be tolerant and accepting of others, particularly regarding their beliefs. In matters of Politics and Religion, it was to each his own. Today, we vilify, mock, taunt, seek to destroy, and even kill those with whom we disagree. It is a sad state of affairs.

There is a term that I picked up on not long ago that, once I heard it, I never forgot. The veneer of civilization. The term “veneer of civilization” refers to a thin layer of societal norms. These norms and moral codes protect and maintain order in society. It suggests that while civilization provides a framework for behavior, it is fragile. The veneer theory was coined by Frans de Waal. It critiques the idea that human morality is merely a cultural overlay. That morality is not ingrained directly in human nature.

If we are to understand Frans de Waal, adherence to a moral code is a learned behavior. It is not a dominant or durable trait. So, for the sake of conversation, despite humankind’s predilection for savage and inhumane behavior, let’s say that we have been able to maintain that veneer to date. I would offer that it’s thin and stretched to its limit. We are at a period in time in which every great mind throughout history had postulated that society would be advanced in both technology, thinking, and behavior.
Yet here we are.
Killings as a political tool (not a new concept).
Shouting and berating vs. respectful dialogue.
Violence as a means to an end and not as a last resort.
Disinformation, including outright lies, is blindly accepted as truth.
Soundbites accepted as reality vs. research and education.
Selfish, self-absorbed behavior vs. a community mindset.
Overly sexualized, offensive behavior with no regard for children or decency in general.

I could go on, but I won’t. I am getting a headache just thinking about all of it. I’m not angry about what I see all around me. I’m disgusted and sad. Can we come back from the precipice, or will we fall off the edge? At what point will we recognize that civilized behavior is essential to maintain a society that is comfortable going out in public, without fear of meaningless, random violence?

Or is it the Grand Plan that all of this break down? Without being political, we know that there is an element of society, traditionally known as leftists. Leftists have always had an agenda of anarchy. Of a New World Order in which the system as we know it collapses. By this mindset, a centralized government is targeted for destruction. As is a strong moral system driven by religious and philosophical doctrine. Additionally, a robust and fair legal system and a strong economy are under threat. We have fended these forces off to date, through institutions of education and religious belief. We emphasized education as an alternative to “lower” behavior, and we taught religion as a system of values to govern our thoughts and actions.
Is it really a surprise that education is now indoctrination and religion is declining in popularity and influence? I think not.

Behavior is all that separates us from the lower animals. As humans, we are blessed with the abilities of reason, rationality, and empathy. We also profess to have humanity, a most unique aspect of Homo Sapiens. So are we losing our ability to apply and utilize these gifts, or are we choosing to ignore them?

We had better figure out the answer to this soon. Or we as a society will follow the example of Rome. It was a society that achieved greatness in every way. However, they lost the interest and motivation to maintain their achievements. Consequently, they watched as it slowly burned to the ash heap of history.

A Dog’s purpose

The other night, while strolling through 179 channels of nothing I came across the movie A Dog’s Purpose. I’d heard of it, in particular, that it was sad. I’ve wanted to watch it but I learned my lesson with Marley and Me after I barely recovered from the ending of Old Yeller some 45 years ago.

An aside, I can watch the worst horror movie jam packed with gratuitous sex, entrails hanging from the rafters and enough blood to fill a swimming pool and I will sit, unflinching as I munch popcorn. There is no limit to the depravity I can view and call it entertainment. But I lose my mind if an animal is harmed, especially a dog.

Curiosity prevailed and I selected it and sat back in my recliner. An hour and a half later I sat transfixed as the credits rolled. It was worth the watch, in fact it was wonderful. There were a few scenes that made me tear up, including the ending but it was a joyful brand of tear-jerker.

If you’ve seen it please indulge me, this is not a movie review but instead a homage to the lead character, the beloved dog.

In short, the movie is about a dog who experiences reincarnation. It is narrated from the dog’s POV and the story takes us through about 30 years, starting with a young Golden Retriever that belongs to a young boy in the 70’s. Most of the movie occurs with this character as he loyally stays by the side of the boy as he grows into a young man. It is an extraordinary relationship and the scene when the Dog (Bailey) gets put down is indeed a tear-jerker. It didn’t help that I stood in such a Dr.’s office less than a year ago as we watched our beloved Brandon draw his last breath. The movie unfortunately nailed the pain and grief of the moment and I was impressed but sad. By sad I mean bawling like an idiot. But the movie brings the viewer back to smiling as we see Bailey emerge as a new puppy, one possessed by the knowledge that he was “back” and had the presence of ,mind to remember his past life. We are walked through several incarnations of Bailey; a German Shepherd Police dog that gets killed in the line of duty, a Corgi that dies of old age under the love of a married woman that he had been with since she was in college, and finally a Mutt that has a miserable life at the hand of an abusive owner. But the owner sets him free (cruelly, by just pulling the truck over and kicking the dog out) but our hero turns it into a blessing when he reconnects with (by the power of the wet nose) a woman from his first life. This woman was the girlfriend of his first owner and they had broken up as teenagers. Amazingly, he reunites the two, who fall in love again and get married thanks to their 4 legged matchmaker. The movie ends as Bailey miraculously manages to convince his former owner that he is indeed his old dog in a new body. It is a beautiful, tender moment and a wonderful ending to a movie.

Thus confirming what I have known since I buried my first dog as a young teenager.

A Dog’s Purpose is to form a completely unique and unbreakable bond with us, make life unimaginable without them and then leave us too soon with a enormous, smoking hole in our very souls. If we value friendship, and most people do, we are left feeling as if we have lost our best friend.

I don’t know how the chain was determined, how it was decided which animals are chosen to be beasts of burden, which are food and which become domesticated companions. The line is further blurred as we see species never before regarded as a pet; reptiles, goats, pigs, miniature horses, cows and even “wild” animals such as big cats and bears showing up on cute FB videos as “pets”. As refreshing as these friendships are none are as special and, let’s face it, as natural as the relationship between the dog and man.

I’ve experienced a lot of loss in my life. In fact, I have often felt that I have experienced more than my share. I’ve been to a staggering number of funerals. Dear friends in HS at the hands of tragic accidents. Family members. The loss of my father to name a few. Sadly, I think I am more “over” all of them than I am my first dog. Am I saying that a mere dog meant more to me than my father, family and friends?

Of course not.
It’s just not the same. The hole left to fill is as big as a Black Hole. Friskie, my first dog, was my earliest memory. He was a pure-bred Brittany Springer Spaniel, gun-shy at a young age and rendered useless as a hunting dog. We found him at a shelter when I was about 5. He became my constant companion, my shadow, my best friend. As a child with few friends, we were especially close. He even saved my life. Twice.

We lived on the bottom of a hill that was the main route to get to the Middle school. One day, I was playing by the street and my football got away from me. I followed it into the street and suddenly found myself being tackled. It was Friskie, who ran across the street from the other side. A school bus nearly missed him as he knocked me to the ground. We were both nearly killed. As he sat on my chest, he looked into my eyes and I swear at that moment that I was staring into the eyes of a kindly, wise old man. He was never “just a dog” to me.

I was a teenager when he died. Despite him being an older dog that lived a full, wonderful life, I was crushed.

For years I missed him. We got another dog, which I loved. Mom and Dad had a few after I went out on my own, and I loved to visit them. Their household always had a dog, my parents were in agreement with me that despite how crushed you are, no matter how big the hole they leave, another dog is the key to recovery. Not that you ever get over that particular dog, you simply need to fill the hole in your life.

When I moved in with my mother her dog, which she shared with my father before he passed, was healthy and thriving despite his advanced age. A year later, that changed. I hated to go through it again; I wasn’t ready. But I put on a good face, and I tried to love him through the concerned looks and worry. I believe that it is imperative to love a senior dog as much as you did the puppy and be there when they are in pain and to always be there when it is their time to shut their eyes forever. We owe it to them, and that is just what we did. It was terribly painful, but I have no regrets. Other than our four-legged friends not living forever, that is.

My Mom got another dog. She had to. Hers was a dog home, and we are dog people. Her new dog, a beautiful Cocker Spaniel pup named Sammy (Samuel L. Spaniel, his favorite human word is Motherf@#ker lol) is a pure destructive delight that brightens her house in ways that I can’t even count. He checks all of the boxes when it comes to loyalty and unconditional love. Although I don’t live there anymore, I visit as often as I can. I will deny this to my Mother, but sometimes I need to hug Sammy more than I need to visit her.

Sometimes, when I look into his eyes, I have to wonder. Beyond what is he thinking and what his particular need is at the time, and wonder if it is possible that we have met before. That behind his young eyes is the wisdom of an old dog. One that has met me before and is as glad to be reunited with him as I. Then I remind myself that reincarnation is not real, that it is impossible. That what I am feeling is just unconditional, pure and unfiltered love.

For to love me more than it loves itself; to only think of and need me alone when I sit preoccupied with the events of my day; to devote its entire life to being there for me…THAT is a Dogs Purpose.

Moving forward

I’ve been in a good place recently. I feel well, my upcoming biopsy is on my mind, but not consuming me. I’ve maintained the weight loss and am getting frequent comments of support. Also, I am rapidly approaching the 12-month milestone of sobriety. It pleases me that I’m not tempted to imbibe despite the high prevalence of alcohol everywhere during the Holiday Season. Additionally, my mental health has been better. In particular, I am struggling less with the self-worth issues that have plagued me.

I really don’t understand why I struggle so with self-worth. Particularly at this stage in my life. I am definitely on the back nine of life. I have nothing to prove to anyone. My children are grown, and by all measures, successful. The worrying never ceases as a parent. However, now that they are grown, my children are a source of comfort, not worry.
My career is over. Any work I undertake going forward will be done at my discretion and on my own terms. The days of worrying about my job are over. Gone with it are the endless attempts at pleasing thankless employers through giving entirely too much of myself. Now, money is about survival.
I have a thriving social life. I actually have more events to attend than time to do them. While most men my age, according to studies, have few friends, I have an abundance.
Things are good because I’m trying to look at things through a different lense.

I have been feeling overwhelmed of late. I continue to ignore my limitations and carry a full calendar. I do too much and then lament how tired I am. It’s because I can’t say no.
As an active Mason, I have the ability to be out as much as I want. There is always something going on. Being known as an active Mason, I get invited to a lot of events. Masonic events are a true joy for me. I truly enjoy the company of my Brothers, some of the best men I have ever met. And Masonry itself, what can I say, I love everything about it. The civility, historical significance, the fraternal atmosphere appeal to my very being. It is hard saying no because everything is a “can’t miss.”
But it takes a toll on me. I get so tired that I need time to recover.

Since my recovery I have been Jim Carrey in Yes Man. I hit the ground running and started to live my life as if living itself were dependent upon saying YES! After spending so much time dealing with being sick and potentially without a future, I began to spend my time enjoying being healthy with the prospect of living a full life. I love saying Yes.
But then I got tired. I began to have difficulty bouncing back from too many nights out and required more rest. Every instinct told me to take a break, that not everything requires me to be there. So I took a small break. That wasn’t the answer. Slowing down is the exact opposite of what I need. If I have to pick one, because I am totally incapable of walking a line down the middle, I have to pick being busy.
I can rest when I’m dead.

What I have come to realize is that being active has been very good for my mental health.

Facing Health Fears: From Transplants to Cancer Risks

I discovered an interesting trend this morning. Whenever I see a “click-bait” post about dangerous health conditions, I always click on it. “These 3 symptoms indicate heart failure. “Do you have these symptoms that indicate lung cancer?” “These factors could indicate Colon Cancer”. I can’t resist it.

It could mean that I’m a hypochondriac, but that’s not it. There’s a darker motive; I am convinced that I am going to contract a non-renal related disease and die. I could sugar-coat it, but why bother?

I should be concerned about my Kidney transplant failing. It’s logical after all, it’s happened before. But that won’t kill me. The worst-case scenario would be dialysis. Dialysis is a less-than-ideal option. I absolutely hated dialysis. I was sick. My blood work was always askew. I had terrible reactions that led to agonizing treatments. I felt terrible towards the end. When I got the call for a new Kidney, it could not have come soon enough. I absolutely dread the notion of doing it again, but as the expression goes, “But did you die?”. It wouldn’t kill me, but I can say goodbye to any quality of life.

No, I am afraid of cancer. Post-transplant (both times), I was given lengthy lectures on the do’s and don’ts of living with a new organ. Risks of rejection, hazards to avoid, the importance of faithfully taking medications, etc. I listened and understood, but it didn’t faze me. Very little did, I just wanted to go out and live again. But there was another conversation that occurred that replays in my head on a loop because it rocked me hard.
“Because you are on immunosuppressant medications, you will be very susceptible to certain types of cancer. Of which you may not be able to fight with a compromised immune system.” That statement terrified me.

It would prove to be true, the part about being susceptible to certain cancers. I have had bouts with skin cancer 7 times and counting. But I’m not afraid of skin cancer. I worry about Lung Cancer, Colon Cancer, and Prostate. All of them are diseases that I may not be able to fight while taking my current regimen of medications. It logically follows that I may one day face a decision. It could turn out to be a Pyrrhic choice in which I lose my kidney to save my life.

I’m facing such a choice now. I am currently undergoing a scare of sorts. My prostate has been problematic for a few years. I have had 2 MRIs. I have a growth that has been biopsied. My PSA is climbing, and the mass is growing. My second Biopsy is scheduled for next month. It may be terrible, it may only be something to watch. It still scares the bejeesus out of me. As does the idea of dying of cancer itself.

In the spirit of maintaining complete and raw honesty in my writing, I confess that I am not always afraid of death. There is a often discussed state of being in which people say that living has become a chore. That they are not living, but merely existing. I have those moments where I don’t want to die, but I don’t want to be here either. I have even grappled with the most difficult of decisions. Should I stay around? I don’t want to hurt the ones I would leave behind. They would have nothing to ask but why. How could I ever explain to them that I was alive enough to show up? Yet, I was also dead enough not to care if I did. That conversation is had in the darkest hour of your worst sleepless night. Of which I’ve had plenty.
Of course, I was very sick then.

Now, I go down the rabbit hole of continued existence less often. Overall, I enjoy my life. I am active both physically and socially. I have many friends that I rely on for support. I am able to live independently and care for myself, once that was only a dream. Yet, I am consumed with worry about so many things about my future. So much that the notion of just leaving it all does still occur to me.

But, this is a very big consideration. If faced with another life-threatening illness, I wonder if I would have the motivation to fight. Would I have my trademark grit and determination? Or would I say “Thank God” and just let it take me. Would I rage against that good night? Or would I fade away into it?

I hate that I think about these things. But the fact remains that I do. Frequently. It truly depends on my mood. I’m not sad or depressed. On good days I want to live forever; Head up, chest out, larger than life, ready to take on all comers. On the bad days, I would welcome an opportunity to put down my shield, stop fighting everyone and everything, and just let death take me.

It’s exhausting being me.

Explain yourself

I realized something recently. I don’t have to explain myself to anyone.

This is quite a departure for me. I feel quite liberated.

It was Thursday night. I had plans to attend a Masonic function, my third one in a week. December is a busy month in MA Freemasonry, I won’t bore you with specifics. Let’s just say that active guys like me are invited to, and expected to show up at, many events. Thursday’s event was one that I wanted to go to, but I wasn’t expected to be.
I worked on Thursday during the day. I allowed myself time to get home and change and relax for a few before heading out again. I made the mistake of sitting in my recliner. I always do that, it never fails to make it hard to get up and get in the shower. My apartment is cold, I was under a blanket, and the weather was picking up outside. 40 MPH winds and snow squalls. I made a “game day decision”. I was staying home. I texted a friend that I had discussed going with to the event. I explained my decision to stay home. I then ruminated for hours over not going.
Why? Do I really owe anyone an explanation why I didn’t go?

While I am at it, do I owe my Shriners Motorcycle unit an explanation for not making any parades lately? Do I owe my friends an explanation for why I didn’t go out for drinks last week? I regretted it, do I tell them that also? Hell, why did I feel obligated to explain to my family why I missed Christmas Eve last year? I think COVID explains itself. Yet I explained myself over and over and then quietly beat the shit out of myself.
At some point, I need to stop doing that. I think now is a good time.

I don’t know for sure if it is a trauma response. As I wrote recently, I’m the only Trauma survivor who can’t specify the exact trauma. If it’s not that, it’s my anxiety. If it’s not that, then I have no explanation for why I have so many of the traits. Explaining oneself can stem from a fear of judgment. Also, a need for validation and a lack of self-confidence. There is also a need for understanding and a pressure to perform or conform. It’s all part of being a People-Pleaser. If I don’t please people around me by conforming to the current dynamic, it reveals my insecurity. It shows that I feel I am not good enough.

Pardon the dated reference, but this ^^^ is quite appropriate. If I complete just one item on my bucket list, it must be the “Know your worth” item.

Many of us were taught—explicitly or implicitly—that being understood equals being safe. We think that if we can just express ourselves clearly enough, others will finally understand us. They might then treat us better. So we explain. We clarify. We soften. We give far more context than anyone asked for. I am so guilty of that.
Understood doesn’t equal safe. Understood equals peace. To me, peace is the state of being comfortable with today, reconciled with yesterday and not worried about tomorrow. I can achieve that by simply not lowering myself to explain every decision I make or word I say.

There are days when it is all I can do is put on my mask and go out into the world. I dutifully complete tasks that, inside, send me into a spiral of anxiety. I venture out when I don’t feel well. I work when my body is screaming at me to stay in. I take on responsibilities and new projects, knowing full well that I barely have the time to fulfill them. Yet I always do. I deliberately make my life challenging. Because I am trying to lead a fulfilling life. People might have their own opinions about my station in life. However, maintaining it is more difficult than they will ever understand. What may come easy to some is a real challenge to me.
It takes everything I have to get through my day. If I overschedule myself and fail to see it through, I need to start giving myself a break. I think I’ve earned it. If I make a social faux pas, then I need to move past it. If I make a total fool of myself…Well, I don’t need to explain myself to anyone. For any of it.

Nobody owes anyone anything, and I don’t owe anyone an explanation.

My weird glory

The origin of Your Weird Glory can be found here for context: https://goodtobealivetoday.com/2019/01/14/just-jot-it-january-14-reflection/

It came up today.

Next up in the “things I wish I learned earlier in life” category is embracing your uniqueness.
This arose in the most flattering of ways today.
At our 2nd Coffee/Therapy session today with the boys, we were joined by Pedro’s lovely wife, Wendy. Wendy has been reading my blog of late, and she’s really enjoying it. She finds my diatribes useful, so much so that she wants to share it with some friends. This made me happy, after all, that’s why I bothered to start logging my life story in 2017.
We discussed the origins, the trajectory of it, and the different styles I have incorporated over the years. I talked about a Poem I had written years ago. In it, I described my life as “In my own weird glory”. We all got a laugh out of it. Weird Glory is actually a wonderful way to describe me at times. I have an irreverent, goofy, inquisitive, and thoughtful side to me. You can describe it as weird, but it’s really what makes me unique. As the day went on, I began to ponder what I now realize is the “takeaway of the day.” Why do only close friends and my readers know what a vulnerable, emotionally turbulent, weirdly glorious mess I am?

I can answer that for you. I care too much about what people think of me. I always have. I dislike it, but I’ve been unable to change it. Pedro himself, when he first met me, thought that I was a Stoic “dick” with Resting Bitch Face. Now, we’re wonderful friends. That makes sense, because when he met me, I was around a lot of strangers. I didn’t know which Mask to wear.

“All the world’s a stage, and all the men and women merely players”, Shakespeare famously said. The whole speech within As You Like It refers to the life cycle of one man. However, it has been widely adopted to advance the “Mask” theory. The theory? That we all wear masks to show the world the face we want them to see. It is common to believe this. We are all acting to some degree as we navigate life. That goes for me as well. I have been acting my entire life. The problem is that I don’t know the script.

I hate that at 60 years old, I still struggle being myself. I have always tried to be what I thought others wanted me to be. Often, and sadly, I was many things to many people. Not fake, just pleasing people. One of the most toxic of my toxic traits. Now, I am able to act more consistently with my character. But I always hold back something. It’s not for fear of rejection. Instead, it’s out of reticence to reveal my true self.
Yes, my dear friends know most of my sides. As does my family of course. The rest of the world has seen only pieces. Those carefully selected pieces that I am comfortable showing. Which saddens me. There are aspects of me that I would love to share with others.
I look stiff and off-putting to some. In actuality, I am a welcoming person and I love to engage in deep conversations with strangers and friends alike.
I appear confident, but well, if you’ve been reading, I’m really not. About some things, yes. But I am deeply insecure. Interestingly, if I shared this with others, I would probably be less insecure.
I appear quiet. In actuality, once I go off, I never shut the f*ck up. Today, among friends that I am comfortable with, I completely dominated the conversation. I was self-conscious about it. They didn’t care. That just proves my point.

I could seriously go on with the list but there’s no need. The point is that there is a whole side to me that I rarely show. And that is a shame. There are likely some people who would enjoy that side of me. Yet, I suppress it. When I should have let it out 40 plus years ago. I cared too much about what people I didn’t even care about thought of me. Instead, I could have developed a group of friends who would accept me for who I really was.

In all of my weird glory.