Tag: life

The Fortress of Solitude

Many years ago my Manager, in what may have been the most unprofessional incident by a manager towards me in my career, attacked me about my Facebook content. Our company did not use FB, he himself did not have it but his son was on it one day and my boss asked him to pull up mine. The following Monday he went up one side of me and down the other because I belonged to some Conservative (no I am not a Nazi) sites and I posted some political stuff. He thought that it was inappropriate and tried to link it to my professional life, which was an unfair and inaccurate assessment. We argued heavily, he was way out of line. When I got home that night, I took a moment to peruse some of my FB activity. While I still didn’t agree that I had a toxic presence online, I realized that it certainly wasn’t a positive one. I chimed in on questionable posts, I made a lot of bad jokes, I argued with a few hard-headed idiots that were better left non-engaged. I could do better. I decided at that moment that my online presence from that point on would be positive or nonexistent. No more negativity.

This principle applies to my blog as well. From the beginning, I have posted some very personal and graphic details about my life but I never did it in a negative, whiny, or complaining manner. I will tell anyone anything about me but the LAST thing I want is for someone to feel bad for me. Therefore, my posts are never done to elicit sympathy and when they read like a Sylvia Plath poem then it is time to re-evaluate my mindset.

That’s why I have been away for over 2 weeks. I have been way South of a positive place.

Here is a matter-of-fact breakdown of what has been going on.

Superman has been hiding out in his fortress of solitude. It is an unfortunate pattern I follows when life gets too much. I close myself off from the world. It’s not hiding, it’s preparing for the next step.

I have been sick for the better part of July. Not necessarily “praying to the Porcelain Goddess” sick but as far as Renal disease symptoms are concerned I hit the fucking jackpot. Massive muscle cramping, nausea, fatigue and brain fog. I spent the better part of 2 weeks on the sofa, napping intermittently during the day, restless and sleepless at night. I lacked the energy to set even one meaningful goal per day. To make matters worse, I had scheduled surgery on the 17th to install a new fistula (a vascular port on my arm) in preparation for my upcoming dialysis. They also surgically closed off my old, failed fistula. It was day surgery but very painful. So painful that I couldn’t type for about ten days.

I had the house to myself for the week immediately following my surgery and I can only describe it as a sofa-bound blur. I had visits from my oldest son and his best friend and my oldest daughter over the course of the week and I was so happy to see them but too sick to show it. I could barely get off the sofa to say goodbye when they left. It saddened me that I was unable to maintain my usual cheerful. albeit false demeanor. Of course nothing saddened me more than the scared look my kids had on their faces. They tried to conceal it, but they were shocked at my sudden deterioration. I had now had enough, I was sick and tired of being sick and tired. I called my Nephrologist and asked to be evaluated.

Friday I got the call. I am in need of dialysis. Immediately. This week will be a week of information gathering and planning. I am not looking forward to it. I’m anxious and a bit nervous. But it is my future and it is time that I face it.

On the positive side, maybe I’ll feel better.

See, I ended on a positive. I don’t even know how I did that.

 

My favorite place

FB memories, the well-intentioned feature that shows you posts from years ago “on this day”, has been my Lex Luthor of late. They have been a source of great anxiety and annoyance as they remind me of the dreaded “used-to’s“. All of the memories that pop up are of better, healthier days. Days that I miss so badly.  Today, one popped up that I wrote in 2015 about my beloved hobby of Mountain Biking.

Post-Transplant in 2011, I needed a means to get my body healthy and I chose biking. Initially, I bought a street bike. I was a newbie so I rode mostly alone. Once I was able to ride 20 miles or more I began to ride with organized groups. I became strong enough to ride 55 miles in one day, while never the fastest, I took great pride in just being part of it. It was my recovery. But it created a new problem, immunosuppressant medications increase your odds of skin cancer and after 2 years of riding, I had 3 Squamous Cell Carcinoma’s removed from my face. I was told to stay out of the sun.

So I explored Mountain Biking. I bought a bike, researched trails and hit the woods. I was immediately hooked. It was challenging, the rough terrain and obstacles required skill and technique, yet I was compelled to rise to the challenge. The atmosphere was amazing, miles into the woods you weren’t observing nature, you were immersed in it. I began to take my camera to photograph the Deer, Bears and even Fisher Cats that I would encounter (from a safe distance of course). I would head out early in the AM in the hopes of seeing my favorite sights, crashing through a clearing to see a pond, the mist coming off it in the early morning heat; the owls that would buzz me as it headed to its tree to sleep the day off after a busy night of hunting; and of course the wonderful sight of nothing but me and trees. It was my Nirvana. And I was out of direct sunlight so no skin cancer.

Through FB I found a group to ride with and I made an instant group of wonderful friends. Riding with them made me happier than I had been in years. They weren’t just riding buddies, they were real friends. By 2015, I was a regular part of the group. Crazy Bill they called me. I took risks, I fell a lot, but I gave it hell and went home every day feeling accomplished and euphoric. Then I got sick in the spring of 2016 and I suppose you know the rest.

Why am I telling you this? Because despite how much today’s FB “Reminder” saddened me, I was reminded of my Buddy Tom of Tom Being Tom Fame had written a post about his favorite place and challenged his readers to write of theirs. So I turned a negative into a positive because I’m sick of being down.

Here is the FB post from 2015 that started all of this if you would care to read it:
This past fall I made a decision that I was only about 80% sure of. My new activity for the last few years is biking. It was my chosen rehab tool after my surgery to get into some semblance of shape. I got 2 bikes, a street, and a mountain bike. I upgraded once on both but I couldn’t decide which one I liked better. But last fall I traded in both bikes on a new, nicer full suspension Mtn bike. I picked one and went with it. Well, I am now 100% sure that I made the right decision. Many of my family and friends have questioned both the commitment and the hazards I have put upon myself and to be fair I have hurt myself badly a couple of times. People have questioned the wisdom of a person my age with my medical history taking such risks. They don’t understand it, and a lot of the risks I can avoid but I want to push myself, to experience adrenaline and accomplishment and I don’t give a shit about pain..it goes away a lot faster than regret over doing nothing. I love the trails, the woods, mother nature and the comradery of the new friends I have made. But it is even more than that now. Mtn biking has become a metaphor for my life. Let me explain.
When we first start the ride it is easy, you are fresh like when you wake in the morning. But you know the hills and the obstacles are coming, you either prepare for them or let them blindside you. 
When the trails are smooth and flowing it is the equivalent of your life going smoothly. Enjoy it but be in the right gear when you round that corner and see the hill.
The hill is adversity and the obstacles; exposed roots, jagged rocks, and logs are the people telling you that you can’t do it. 
When you make the decision to try that hill, to power over that rock, to push yourself you have made the decision to at least try to prove them wrong. And make it or not, at least you tried. 
Then you come to a downhill. But it’s not a smooth path it’s a steep, rocky and rooty obstacle that can send you over the handlebars if you are not careful. This is the downward spiral that we can fall into. We can plummet and crash, we can stand there and look at it, or you can carefully navigate it to safely reach the bottom with as little damage as possible. 
And if you are able to climb the next hill, stand upon it and look down at all of the obstacles that didn’t stop you. And if you do it once, you can do it again. And sometimes it is the climb that you never made, until today.
Nothing pleases me more than getting up a hill that I never thought I could; to make it through a rock garden that sent me flying a week before; to race through an opening to find the parking lot waiting for you. Knowing that the end of the ride is like the end of the day. I got through this one and I am not afraid of the next one.

I wish I still had that attitude…but at least I took a shot at retrieving it today.

 

long days, longer days

Yesterday didn’t start well. As soon as I put one foot on the floor I knew that it was going to be a feel-like -shit day. I call it such because there is no name or medical explanation for it. It’s a wonderful feeling that I can only describe as I slept but I’m more tired than when I went to bed; I feel like I’m coming down with the flu but I’m not; my legs feel like they have sandbags tied to them and I walk like I’m 80 years old; I can’t wait for my first nap today. Feel-like-shit is much shorter and still covers it nicely.

Regardless, I had to get out of bed. I had somewhere to go.

On Sunday, when I made my rare church appearance to see if the plaster ceiling would crack when I walked in, I was greeted by Dean. Dean is a townie, like most, that retired up here and now lives here full time. He was a good friend of my father’s and has been a good friend to me since the day I moved up here. He has helped me find odd jobs to make a few bucks and on this day he had a job for me. He needed a coat of wax put on his 5th wheel trailer. Not one to turn down a buck, I told him I would do it Wednesday.

Wednesday was here, and as I hung my head, fighting my morning nausea I could think of 276,000 things I would rather do than wax a trailer. But I promised. I was out of the house by 9:30.

I pulled into Dean’s driveway and surveyed the day’s work. He wasn’t there, he was already out volunteering at the community center. There was a ladder on the ground and I could see that the trailer was freshly washed. I knew what I had to do and got right to it.

A 5th wheel trailer is a camper that is designed to be towed from the actual bed of a pickup truck. The nose of the trailer essentially takes over the entire bed. They are very long and can be as tall as 13 feet 6 inches, which is close to the bridge clearance of a tractor-trailer. This one was maximum height and 35 feet long.  I had my work cut out for me.

Did I mention that I hate ladders? Well, to be clear I really hate falling. This job required me to climb a ladder, on soft unstable soil, and to reach the very top of the trailer with a small applicator pad in my right hand, an open can of TurtleWax balancing precariously on the top step of the ladder and a rag in the left. To ease my fear of falling I repeated “wax on, wax off” as I reached high, left and right applying and buffing. It was mindless but difficult work.

The nose of the trailer was the most difficult to reach but it came out awesome. It took quite a while because it was covered in dead, dried bugs. Between buffing and my fingernails I got it spotless. The left side also took a while because the ground was so unstable the ladder proved to be a real challenge. The rear and other side proved to be easier. All in all, I spent 3 1/2 hours with no breaks doing an old school wax job. No gimmicks, no power tools, no shortcuts. It looked amazing but I was done, with the job and physically.

Dean still hadn’t returned but I wasn’t worried about payment, I knew we could connect at some point so I packed up my stuff and got in my truck. As I was driving through the center of town we crossed paths and he asked me to come back to the house so that he could pay me. I really wanted to go home but money is money. I followed him back to his house.

He was very pleased with the work. He couldn’t believe my attention to detail. No surprises there, I am a stickler for detail and I do good work. He asked how much I wanted. I really didn’t know, I told him whatever he thought was fair. He offered me $150.00.
I said No.
Too much.
Amazed, he asked if $100.00 would work. I gladly accepted. (who does that?)
He told me he had never seen anyone counter lower before. What he didn’t understand is that I was grateful for the opportunity for something to do that pays. And I will never take advantage of the good nature of the elderly in town. Besides, if I was reasonable, it increased my chances of being referred for more work. As it would turn out, I left with offers to paint his porch and detail both of his cars. I took his check and went home.

As I pulled into my driveway I realized that I was tired beyond the usual levels. My blood pressure was pounding in my ears, I had a headache and I could have napped standing up. I went inside and sat down. An hour later, I was still in that chair. I would spend the day so tired that I could barely walk. If that wasn’t enough, the cramps set in. My hands formed painful, locked claws that were so painful I was nearly in tears. I would feel like that until I went to bed at 9:30. I had finished the trailer at 1:30.

Something has got to give here. I am having fewer and fewer good days in which I can be productive. On the days that I am able to be productive, I need 2 days to recover from it. Today, I am so tired I can barely do anything and typing this blog is killing me because my hands are still crippled claws.

I sure hope this is a phase. Because it’s no way to live.

The Garden Party…cont’d

If you would like to catch up you can find the first installment here.

When I sat down in the makeshift circle of lawn chairs at the BBQ the first person I recognized was Mark’s sister Susan. I saw her with her dog Brady (who I knew from FB) and we exchanged pleasantries. I haven’t seen her in over 30 years. I used to have the hot patooties for her. She looked great. Next, I saw Mark’s mother and father. They are really nice people. They needed a refresher on who I was, I haven’t seen them in forever. I watched a million football games at their house but I’m not sure they knew about it. After some small talk, Scott and I settled in to catch up over a cold beer.

We talked about the kids for a while. He knows about the divorce and the rest of my “situation” but wanted to know what they were up to. I was proud to tell him how great they are. His kids are college-age and doing great. Knowing he and Dana I wasn’t surprised. Then the conversation turned to my health. Scott is like me in one respect, he would rather ask than not and come across as not caring. I told him the truth, that there is very little good news. He absorbed it and we left it at that. He knows I would rather give him better news if I could.

At one point, Susan leaned in and asked what was up with my kidneys, she said she saw something on FB. I gave her the lowdown, carefully phrasing my words to not elicit a sympathetic response. This was the part I was dreading, although I did appreciate her asking.

At one point, Mark’s father, who is a little hard of hearing, started down the line asking all of us what we’ve been up to. I was 6th in line so I agonizingly waited for my turn. Sure enough, my turn came and I decided to be funny. He asked “What have you been up to Bill?”
“Well, Mr. Riley, I’m officially a burden to society.” Everyone laughed, he asked me to elaborate. Before I could Mark saved the day and said “Bill has been fighting some health issues, Dad. He lives up here now.” I sighed with relief, it sounded so much better than, Well, I’m on the verge of Dialysis, I’m out of work and broke, I live with my mother and I’m not supporting my family. Did I mention that I have one nut and haven’t been laid in about 8 years? Either way, it was over with. The conversation shifted away and I shrunk back into relative obscurity.

Scott, Mark and I talked for a while. I was starting to relax a bit. We talked politics, current events, rehashed some fun times at the market, talked about cars and of course our families. I made a few off-color but witty (not my words) cracks that gave them a good laugh. At one point, Scott remarked that it was refreshing that some things don’t change. He meant me of course, I was well-known in the day to do anything for a laugh. I appreciated the comment despite the feeling that nothing about me, with the exception of my warped humor, was the same.

At 7:30, I decided that it was time to leave. I was starting to get tired and my mind was racing. I was getting into one of those thinking zones that never ends well. I get quiet, morose and I am generally not good company. I made it a point to give Scott and Dana a proper goodbye, sought out the people that I knew and made sure I said goodbye to them as well. I ended by finding Mark and his wife to thank them. By the time I got to my truck my mind was in full-blown thinking mode and it wasn’t happy thoughts. I was bombarded by some harsh realizations that I came to that day and they needed to be processed. I  was about to, in the words of Jim Carrey in Liar Liar “kick my own ass.”

I drove home without the radio on, all I had was the hum of my tires on the winding back roads to keep me company. I was in a mood. I tried to summarize what I was feeling, to break it down into manageable parts. In short, what’s my fucking problem?
That would prove to be a question not easily answered. I had a lot of problems.

My first problem was that I was overwhelmed by the stark contrast in situations between Mark, Scott and myself. Disclaimer…I am NOT speaking out of jealousy. I am VERY happy for them. They made good choices and decisions and worked hard and they deserve everything they have. Mark is a brilliant mechanic and owns his own business. He works 6 sometimes 7 days a week. His amazing house is a monument to his work ethic. Scott works for a major investment company and has for 22 years. His wife has a great job as well and he is at a place now where he can pay for his kids college without loans, have a real nice car and look for a summer home. Not that is was ever equal when we were younger, they were doing well then also, but the disparity now in our places in life is staggering.

It would be easy to blame it on illness; my disease did take me out of the working world. But it’s so much more than that. Even when I was working, despite the size of the checks I was pulling in I never managed to save anything. I often joked that my wife could spend money like a drunk sailor with a fist full of Viagra, and in reality I can point to several financial decisions that she took the lead on that felt wrong to me but I kept quiet in the interest of “happy wife, happy life” but it’s not all on her. We simply didn’t plan for the future and we made some poor decisions. To put a Seinfeldian spin on it, yadda yadda yadda we were foreclosed upon and were forced to declare bankruptcy. I never bounced back from that. A proud moment indeed.

OK, so they’re doing great and I have approximately enough money in my checking account to drive to the end of my driveway. Yes, that’s a problem. But as I continued to navigate the back roads of Maine, radio off and mind working overtime I realized that my checkered financial history was the least of what was bothering me.

The real problem was clear, I was disgusted that I had become such a stranger to a group of people that were once my world. Where did the time go?

To be continued…

Song lyric Sunday

Religious or not, we all sometimes want to just put something out to the universe in the way of a prayer, a cry for help or just relief.

If you ever feel that way, just play this song on high and sing along. When I first heard it I can honestly say it changed my life.

Half Dylan, half Hillsong, Christian-Stoner group Mondo Cozmo moved me to tears the first time I heard Shine. The vocals, the haunting background vocals and the lyrics are so incredibly powerful and unique. Maybe it’s because I received an organ transplant from a woman, but I get emotional when I hear it. It makes me think of a crowd of anxious, stressed out, and spiritually lost people standing in a field singing a non-denominational plea to the heavens for permission to just live, to love and to exist. Knowing that at the end of the day…

it will be alright.

I love this group, and I hope you do as well. You’re welcome.

Stick with me Jesus through the comin’ storm
I’ve come to you in search of something I have lost
Shine down a light on me and show a path
I promise you I will return if you take me back
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
My friends are so alone and it breaks my heart
My friends don’t understand we all are lost
Shine down a light on them and show a path
I promise you they will return if you take ’em back
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let it go
Oh, yeah
Come with me Mary through these modern lines
Stick with me Jesus til’ the end of time
Shine down a light on me and let me know
And take me in your arms and never let me go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high (get high)
Let ’em get stoned (let ’em get stoned)
Everything will be alright if you let it go
Let ’em get high (let ’em get high)
Let ’em get stoned (let ’em get stoned)
Everything will be alright if you let it go
thanks to all about life for the inspiration.

Let’s talk about mortality

I woke this morning in the mood for a bit of spiritual refreshment. Yesterday, I spent most of the drive back from MA listening to Christian-Stoner music, an interesting genre, and I went to bed a little emotional. I decided to go to Church.

The day started off with Mom telling me in the car that I need to sing along with the hymns and read along with the “Responsive Readings.” Oy, I thought to myself, If she only knew how many times I had gone to church just to make her happy and she won’t stop pushing me. This is why I don’t often go. I had to remind her of my stance on the church. I hate the songs and I hate the responsive readings but I enjoy the sermon and the calming presence of many people in one room exhaling pure positivity into the otherwise tainted air. I stand but don’t sing or recite, and during prayers, I choose to have a moment of silence and contemplate an issue that is plaguing my heart. It’s still a positive experience. I’m just not into traditional religion. I call it the Kayak theory.  It goes as follows: Religion is sitting in church thinking about Kayaking, Spirituality is sitting in a Kayak thinking about God. She doesn’t get it.

The Unitarian Church in town in a nice place to be, for 186 years it has accommodated many faiths and served as a wonderful nucleus of the community. As can be expected, everyone knows everyone. What is not expected is the extraordinary generosity of spirit and resources for such a poor NH town. So even though I don’t necessarily enjoy church, I get to see the people in town that I have grown fond of. They pray for me, are always asking about me so I show up once in a while.

We were early. While the early arrivers mingled I picked out a nice inconspicuous place to sit. I often get judgmental looks when I don’t sing or read along so I choose my seat carefully. Mom and Dave can sit together as a couple, I’ll just hide over here. As I waited for things to start I scanned the room for my buddy John. He was a regular and I fully expected and hoped to see him. He is one of my few friends up here. Despite the fact that he is 86 years old.

I felt a surprise tap on my shoulder, I turned and it was John. He had sat down behind me. He looked terrible. Gaunt was the first word that came to mind. Worse than the last time I saw him. We made small talk, I asked him rhetorically how he was feeling and before we knew it the service was starting. He leaned in and said, “I have to talk to you after.” I nodded him an assurance and we settled in. I had a bad feeling.

The service began with a prayer. I said one of my trademark Billy Mac prayers. Something along the lines of:

Dear higher power, whatever or whoever you are. Give me the strength to deal with ignorance and the patience to not strangle the idiots in my life. While you’re at it, let me know why I’m here and what you want from me. Please take care of the good people and back the Karma bus over the jagoffs. And if it’s not too much would you mind getting that little cutie in the next row to notice me, yeah the one wearing what appears to be a very poor choice of undergarment to church (thank you for that btw). Oh yeah, no one ever asks you how you are…hope you’re doing great. Peace brother…

After several agonizing hymns and a lot of sitting and standing, I sat through a very enjoyable sermon. It put me into the state of mind that I came in hoping to achieve. Before I knew it we were heading to the back room for some badly needed coffee. I found John sitting in a chair near the door, I marveled at how fast he got there. I grabbed a hot cup and sat down next to him. I asked him what he wanted to talk about.

“My funeral”, he said matter-of-factly. I was taken back a bit and it probably showed on my face.

“You mean the one that’s hopefully many years from now?” I inquired despite knowing that it wasn’t the case.

“Billy, I’m on the way out. I know it. I’m not wasting valuable time. I’m planning my funeral and I want you to promise that you’ll be there as a brother.” You see, John and I are fellow Freemasons, we refer to each other in our fraternity as “Brothers”. It is a bond that runs strong and deep.

He then began to list the other arrangements he was working on. He calmly recited the list, as one would a list of what was needed at the market. A full Military funeral was in the works. There would be a Navy contingency and a Marine contingency because he served in both. As he continued to list the details it became achingly apparent to me the life this man has lived. He knows what he has done in his life, and despite his humble nature, he wants it to be recognized. He has been guaranteed participation by all involved except by the Masons. And that’s where I come in. To relieve his anxiety over not receiving the service most valuable to him, the Masonic Funeral.

I assured him that I would make it happen. He patted me on the leg and said “I’ve known you for a year and from day one I knew you were a man of integrity. I know you won’t let me down.”

I was at a loss for words but I managed to say,“no more Billy Nason’s.”

He nodded in agreement, I had hit the nail on the head. Billy Nason was a police officer from my hometown that moved up here to retire. He was a good friend of my Father’s. He was a Mason for 62 years. Despite the fact that he was ill for a long time and his death was expected, the local chapter of Masons failed to galvanize enough support to give him a proper Masonic sendoff. I, and a few local brothers were seriously pissed off. A true Mason knows that there is nothing more important to a Mason than our ancient ceremony to send a brother to the Celestial Lodge above. I’m not sure anyone feels stronger than I about it and John knows it.

Freemasonry operates in obscurity. For hundreds of years, men of good character have gathered in privacy and operated with anonymity. It is the most charitable organization in the world. We don’t talk about it or advertise it, we just do it. For the wives and families of a Mason, it is not uncommon for them to not know what it is that the Mason in their home actually does when he is away from home. Yet they faithfully supported the brother in his endeavors. The Masonic funeral is the one service performed publicly, for the benefit of the family, to show them a bit of what he was involved in and how much his labors were valued. I have participated in at least a dozen, many times for a brother that I never met. I didn’t have to know him, I knew what type of man he was. Every time, the family was absolutely grateful for us doing it. It’s an enormous show of respect for a good man. Yet, some Masons fail to see the importance and the turnout can be small. It’s a sad display when a fraternity of millions worldwide draws 3 or 4 guys because they simply don’t get it.
Pike

Not me, I get it. My new but dear friend has entrusted me with ensuring a very important part in the send-off of a wonderful man. I won’t let him down.

It was a morbid yet transcendent moment. It was disconcerting to have a dying man, one that you respect deeply, talk about his own mortality but I was deeply honored that he tasked me with such an important role.

It was an eye-opener for sure. I went to church on a whim, feeling somewhat aimless. I left with a direction and a purpose. That’s what I went in for. Mission accomplished I suppose.

I went to a Garden Party

Have you ever heard this song? Because I can’t get it out of my head.

Went to a garden party to reminisce with my old friends
A chance to share old memories and play our songs again
When I got to the garden party, they all knew my name
No one recognized me, I didn’t look the same

But it’s all right now, I learned my lesson well.
You see, ya can’t please everyone, so ya got to please yourself
Ricky Nelson
Garden Party

On Sunday I went to a 4th of July party at my old friend Mark’s house. I’ve been in a weird place ever since.

I was so excited when the FB invitation hit my newsfeed 2 weeks ago. Mark is part of my old crew, a group of guys that I spent almost every social minute with. Mark, Scott, Paul, Ernie (real name Paul) and Johnny D (real name John) and I were inseparable from our supermarket days. My immediate reaction to the invitation was of a reunion with the boys, to laugh and drink beers and reminisce about the fun days we had. Those were the only days of my life that I can honestly call the “good old days.” Seeing these guys meant a lot to me because I have almost completely lost touch with all of them with the exception of Scott. I went to the page and clicked “going”.

Mark owns a beautiful 2nd home on a private lake in ME, not too far from me. If the party was being held in MA, where we all hail from, I may not have gone due to the distance. Who am I kidding, I know that I would have tried to talk myself out of going anyway. While initially excited about seeing the guys, when I started thinking about my situation I began to have second thoughts.
What if I don’t feel well that day?
I have been day to day lately, the fatigue has been unpredictable and brutal.
Will there be swimming?
I’m not wearing shorts, my legs are swollen and embarrassing.
It’s supposed to be hot.
Again, the legs.
What if I don’t know anyone?
Scott and Mark will be there.
What if someone asks me what I’ve been up to?
Deal with it when it happens.

I decided that it would depend on who was going. I checked the page for responses and a couple of the guys had already declined. I texted Scott, if he was going I would make the trip. As it turns out, he was thinking the same way, he was going if I was. It was a date.

The party started at 2, I decided to arrive by 3. Arriving late is great when you want to make an inconspicuous entrance. Scott also had set his sights on 3 so I was hoping he would be on schedule.

I have been to Mark’s house once before but I wasn’t comfortable with doing it by memory so I turned on the iphone NAV. No signal. I decided to head in the general direction and hope for a signal. I missed a couple of turns and was about 5 miles away when my phone suddenly caught a signal. After all of the backtracking I arrived exactly at 3. When I got out of my truck I saw Scott and his wife Dana pulling in, Perfect.

Scott is the one guy in the group that I have maintained steady contact with. He is a good friend. Even when I was negligent with the communication, I would periodically get a text from him checking in. He has been diligent in asking how I am doing in life while most aren’t because they are afraid that if they ask me how I am…I might actually tell them. Since our mutual friend Paul passed away from Liver Cancer, we have been closer. Scott was very close to Paul, aware that he was sick and he took it hard. Understandably, because Paul was a saint among mere mortal men. I, being the guy that basically dropped out of sight didn’t know anything until Paul had passed. I was a combination of crushed and guilt-ridden. It really drove home the cost of losing touch. When he got out of the car I gave him a bro-hug. He looked great. He’s lost at least 60 pounds since the last time I saw him. I congratulated him.

I gave Dana a hug, I haven’t seen her in forever. She and Scott have been together for a long time and they have 2 great kids. I haven’t seen her in person in years but Facebook keeps us in touch. She used to always try to get us together as couples but it never happened.

We walked down the hill together, I was glad not to walk down alone. The view that awaited us was amazing. The house was enormous, facing the lake. Lots of windows and decks. The lawn was huge, leading to a private swimming area and boat dock. Games like Cornhole and Volleyball were set up for later and there were about 25 people in lawn chairs enjoying the breezy summer day. Mark immediately greeted us and proceeded to invite us in and give the tour. The house was perfect, well decorated with plenty of rooms but livable, not glamorous. We then went to mingle with the guests, a combination of his family, co-workers, neighbors and business associates. We were introduced to a few and I shrunk into a lawn chair next to Scott and Dana and tried to blend in.

to be continued…

the Hotel pool

I recently had the opportunity to stay at a very nice hotel. Room service, sheets with a high thread count, indoor and outdoor pool. The works.

After a few cocktails at the hotel bar, I stopped by the indoor pool. It was late and the water was inviting,

Then the unthinkable happened, I got busted by Hotel security peeing in the pool. Embarrassing,

The guy yelled at me so loud I almost fell in…

38,325 days…the later years

This is the 7th and final installment of my series on the remarkable life of my late Grandmother Marion. You can check the archives for the previous installments. I hope you enjoy.

When I left off my Grandfather had passed away at the age of 92. At the time, they were living in a really nice Assisted Living community. I feel the need to mention this because Marion was one of the only residents who didn’t need assistance.

They moved out of their tiny, quaint home into this facility on the condition that their house would not be sold while they were alive. With that detail secured, they made the move to a very small apartment in a building that could always be identified by the Ambulance parked out front with the engine running. The transition was difficult for Marion, there was only room for a small amount of her furniture in the apartment but she managed to take the pieces that made her the happiest and the rest went into storage. The place did have its advantages, there were other residents to make friends with, they didn’t have to worry about treacherous stairs and shoveling driveways anymore, and transportation was provided by the town. They were also offered extensive Visiting nursing care…Marion would have none of it. It wasn’t until my Grandfather started to really fail that she accepted the medical assistance. After he passed away, she had little difficulty caring for her apartment and for herself. She did accept the services of the volunteer “companions.” Some she became quite close with, others were unceremoniously shown the door. She wasn’t lonely. She disliked 80% of her neighbors for some reason or other (we never knew and stopped asking) but made a small circle of friends that kept her busy. She lived like this for years with little or no medical care. She watched her soap operas, went to the Senior center and lived for company, especially from my 4 kids, her great-grandchildren, who she absolutely adored.

 

My parents had retired to NH and only came down to visit Marion and maintain her house in order to resell it someday. I had a large house at the time so it made sense to have holidays at my house. I loved hosting the holidays. I had a big table to seat large groups, many chairs, and sofas to sleep off the inevitable food coma and several rooms so that we could all spread out. One of the big upsides of hosting was not having to take my kids out. They were free to be at home and be as wild or as mellow as they wanted. And they had a great room to get away from the adults. The previous owners had converted the garage into a giant “playroom” and after dinner that’s where you would find them.

One Thanksgiving, when Marion was 97 years old, she got off of the sofa after a brief siesta and went to the playroom to see what her beloved Great-Grandchildren were doing. The room entrance had a 1-inch drop that we were careful to tell people about. She did fine as she crossed over and checked on the kids. After she had watched them be wild and crazy for awhile she turned to exit the room. She failed to remember the step up and she went down. Hard. On her face. She didn’t even get her arms out. I was across the room, I didn’t have time to catch her, I could only watch in slo-mo as she went down. I will never forget the sickening sound as she hit the floor. She was in great pain. We called 911 and kept her still. The paramedics arrived and we all went outside to give them room. As they wheeled her out, her face bloodied, the paramedic leans into me and says, “Sir, your grandmother is 97 and claims that she’s not on any medications? Is that correct?”

“Yes, it is,” I replied. “Unless you count a daily aspirin.”

He continued on in amazement. An hour later she was released, the only injury she sustained was a broken tooth.

Later that year she was moved to a Nursing home after she developed some Gastrointestinal issues and was being hospitalized frequently. She wouldn’t be leaving anytime soon, she had just had surgery and had a Colostomy bag installed. She hated the bag and refused to learn how to care for herself with it. They wouldn’t let her leave until she mastered it but she was too stubborn. So stubborn that she asked to have the surgery reversed so that she could “use the crapper like everyone else”. At age 98 she was deemed healthy enough to do the surgery. She breezed through the surgery, amazed the doctors and moved to another assisted living facility. Incredible.

Previous to her 100th birthday, we called Good Morning America and requested that Al Roker feature her on the show. He did such stories all of the time and we hoped she would get a mention. He never responded. Marion shrugged her shoulders, said “the hell with him, dismissed it and moved on. Unfazed, we still gave her a hell of a party at the home. She shared her “Flag Cake” with everyone as she cheerfully, and without assistance, devoured her slice.

Her 101st, 102nd and 103rd birthdays would find her still alert, pushing her wheelchair with her feet around the entire facility, accusing people of stealing from her. When we visited her, they had to find her for us because she was never in her room.

Her 103rd birthday party was the last birthday my father, who was very ill with Parkinson’s disease, would spend with her. One very profound memory of that day, other than her recalling the name of her class President from her HS class of 1929, was her eating her favorite “Flag” cake without assistance…as we fed my father his because he was unable.

7 months after her 104th birthday, Marion started losing strength and would become bedridden. She was finally slipping mentally as well. To this point, with brief moments of not knowing what decade she was in, she was sharp as could be. Those “lapses” now became the norm. She was still alert, and when we visited her she had moments of clarity. But she was depressed and kept asking for Mel, her late husband. We increased our visitations, knowing the end was near.

5 weeks before her 105th birthday, she stopped taking nutrition. She had shriveled to a mere shadow of her former self and barely spoke. She did little more than writhe around in her bed, moaning. It seemed like she was attempting to communicate but we didn’t know if it was us or if she was dreaming. On April 28th, we were summoned by the nursing staff, they felt Marion would pass that day. My mother and I arrived and we were asked if there was any other family coming. My mother explained that the calls had been made but it would be a couple of days before some of them could make it. “But that’s too late” the nurse stated, “she won’t make it that long.”

My mother, as if in a trance and someone was speaking through her, said “No, she won’t die until May 2nd. The day her husband passed away.” The nurse was in disbelief. “Trust me,” Mom said. “I’m right about this.”

Marion, as predicted, passed away on May 2nd of 2015 just weeks shy of her 105th birthday. Her only medical condition was Scottish Alzheimer’s, a condition in which you forget everything except who you don’t like. I used that joke when I delivered her eulogy. I got a few laughs. I know she would have liked it.

Her funeral was sparsely attended, she outlived all of her friends and most of her family. It was hard to be sad, we instead celebrated her incredible life. If we mourned we only mourned the loss of the values, strength, and integrity that we will never find in any other generation than hers.

God bless, Marion. And Godspeed to you. We’re all better for knowing you.

38,325 days…a life truly lived part 6

If you have been following this series you will know that it is a dive into my family history, concentrating on the role of my deceased Grandmother who lived to almost 105 years old. If you would like to catch up you can here, here, here, here, and here.

Through my early teens, I didn’t have 2 things. Friends, and the trust of my parents. So, without a friend’s house to go to, and to spare me the indignity of a babysitter at 13, I continued to hang out at my Grandmother’s house on Friday night and Saturday morning. Come to think of it, my dignity still being a small factor, I really didn’t have a sitter because I tossed a rubber snake onto the lap of a sitter at age 12, effectively scaring the shit out of her, so sitters were no longer an option.

Grandma was glad to have me. The breakfast would continue to be the main event, but the rest of our ritual changed a bit, I would help her around the house, do housework or painting with Grandpa or just hang out and read a book. I enjoyed it. At age 13 Grandpa taught me how to use a lawnmower and I would cut his grass. At his suggestion, I began to solicit neighbors to do theirs as well, my neighborhood as well as theirs. As these things happen, I started to get busy cutting lawns and spent less time with Grandma.

At 15 I got a job at a local supermarket. Deciding that if I don’t come to her, my Grandmother would come to me. She did all of her food shopping on Saturday morning and I made sure that I made time to talk to her. She would stroll in, very upright and proper, dressed as well as she would for church. My friends and co-workers thought she was wonderful, and she soon became royalty. My co-workers bent over backward to see that Marion got whatever she needed. One of them once asked of her, “Marion, you’re retired. You could shop any day of the week why do you put up with the crowds on Saturday.”

“Because,” she said, “Billy isn’t here on a Tuesday morning now is he?”

‘Nuff said. I hadn’t actually realized that was why until she said it. But that’s Marion. A creature of habit and everything is done for a reason.

In 1983 my Grandparents celebrated their 50th Wedding anniversary at a Country Club in town. We managed to surprise them. Over 200 guests came to see Marion gracefully drag her clumsy but smiling husband across the dance floor. She was majestic, proud and as it occurred to me then, virtually ageless. When my turn came, it was my honor to dance with her. And I don’t dance with anyone.

Sadly, as life got busier for me I saw my Grandparents less and less. It wasn’t just on Holidays, but it was nothing like before. Life happens. But I always made it a point to call them and make sure they were ok. They always were.

In 2002, my beloved Grandfather passed away. He contracted pneumonia, which in turn “activated” dormant pockets of Asbestos in his lungs that he contracted while working on warships in the Navy. He was 92. He died, in their marital bed, holding my Grandmother’s hand. She was rightfully devastated. But not defeated. Many speculated that she, like many spouses of elderly, would go soon after. My mother, father and I all said No Way to that, she’s got a lot of years left in her.

We had no idea how right we would prove to be.

To be continued…