Blogoversary

1 year ago I started my blog. I was at an incredibly low point in my life and I believed that putting it to paper, putting it out to random strangers would assist me in exorcising my demons. It did so much more than that.

230 posts, not including many discarded, later I find myself in a caring, supportive community that has embraced me at best and at the very least allowed me to share my unusual, unique and perhaps inappropriate take on life, love, family, work, relationships and chronic illness.

My blog, and consequently you, have become part of me.

Thank you from the bottom of my heart for your encouragement, support, friendship and feedback. And of course, thank you for reading…

Song lyric Sunday

I have chosen to share with you this Sunday a song, a well-known song that you may have heard a thousand times. Pearl Jam’s Black.I share it as an homage to a love that I never had. One that I desperately crave.  One in which I am so happy, so awe-struck, enamored and smitten that in the throes of loss, I could write a song as powerful as this.
I dedicate the last paragraph, the one that disembowels me emotionally every time I hear it to my ex-wife. Some of my anger has subsided. I have knelt at the altar of painful accountability and have found myself looking at my marriage in a different light.
I don’t like failure. My divorce is just that. I committed to put in the work, to love for better or for worse. While I can point to several formidable moments that caused me to have contempt for her, I failed to recognize that I had a few myself. I wasn’t always a saint. I made several risky career choices with good intentions and poor outcomes. There were times I could have been kinder, more nurturing. A little more present. When we began to really fight I began to come home later, often a little drunk to offset the contempt and animosity in my own home.
It’s not all her fault and while I most certainly do not want her back, too much has happened and she doesn’t love me anymore, I wish more than anything that she will someday have the life she dreamed of as a wide-eyed young woman, yet to be spoiled by the realities of wasted potential and poor decisions.
I don’t know if I failed her, if she lost faith in me, if I failed to provide her the life she deserved or if it was meant to be that we would part ways after so many years together. After seeing the 100 or so pictures she posted online the other day of the old days with our friends and family I saw an awful lot of pictures of she and I looking happy. Real happy. If I didn’t know better I would call it love. But in the wake of our tumultuous demise I had forgotten those times, when the world was bright and our futures held hope and promise.
I dedicate this to her because, despite our ruined state I still wish the best for her. I wish that things had turned out different for us. May she find balance in her life, may she overcome her demons and ultimately meet someone who makes her happy. To find the type of love that inspires a song like this. In particular I dedicate the last stanza, which I have highlighted below.
Hey, oh
Sheets of empty canvas
Untouched sheets of clay
Were laid spread out before me
As her body once did
All five horizons
Revolved around her soul
As the earth to the sun
Now the air I tasted and breathed
Has taken a turn
Oh and all I taught her was everything
Oh I know she gave me all that she wore
And now my bitter hands
Chafe beneath the clouds
Of what was everything
Oh the pictures have
All been washed in black
Tattooed everything
I take a walk outside
I’m surrounded by
Some kids at play
I can feel their laughter
So why do I sear
Oh, and twisted thoughts that spin
Round my head
I’m spinning
Oh, I’m spinning
How quick the sun can, drop away
And now my bitter hands
Cradle broken glass
Of what was everything
All the pictures had
All been washed in black
Tattooed everything
All the love gone bad
Turned my world to black
Tattooed all I see
All that I am
All I’ll be
Yeah
I know someday you’ll have a beautiful life
I know you’ll be a star
In somebody else’s sky
But why
Why
Why can’t it be
Why can’t it be mine

Sunshine Blogger award

I was nominated by All about life for the Sunshine blogger award.

And the award goes to…….those who are creative, positive, and inspiring, while spreading sunshine to the blogging community and, apparently, that includes me! While not much for awards (I really don’t feel worthy), out of respect for her nominating me and with a desire to draw attention to her blog I want to answer the questions posed in the nomination. Lisa pens a really wonderful blog, written in a very down-to-earth manner and it just reeks of positivity.  She engages her readers and offers sincere, useful feedback. Oh yeah, she’s funny. Check that out here. I personally am thrilled to have found her blog.

  1. What’s the thing that you like most about yourself?
    I would like to think that if nothing else, I am genuine. I can’t and won’t pretend I’m something I’m not. Some people are like playing cards. From the front they look solid, turn them to the side and there’s just nothing there.
  2. Do you have any little oddities?
    I have a lot of little oddities. Let’s see if I can come up with a non-embarrassing one. I have a nervous tick, when I tell a joke that I am uncertain about (due to appropriateness or for fear of offending a snowflake) I slap my leg at the punchline. My son makes fun of me all of the time for it.
  3. A million dollars or a 1000 hours of bliss? Which would you prefer?
    I would take the million dollars and then create some bliss. I would do as many meaningful gestures as possible with the money. Anything from buying new cars for my kids to helping a military family or a family with a terminally ill child. Something that would better someone’s life.
  4. Which animal do you most identify with?
    The dog. I have the potential to love unconditionally. I am loyal. I may have teeth and am capable of doing harm but at the end of the day if you rub my head just right I will be truly happy. 
  5. Do you believe in fate or think we create our own destinies?
    I’ve always struggled with the notion that our destinies are pre-determined. That it’s all a master plan that we have to wait and see how it plays out. So I guess I believe that we, to the best of our abilities create our own destinies. In the end it is a combination of our willingness to take risks, our drive to succeed, the ability to make good decisions and our ability to get up after we get our asses kicked.
  6. Which of your blog posts are you most proud of (feel free to add link)
    I tend to avoid the word “proud”. But I would have to say that I am happy with my few attempts at fiction and poetry but I am most rewarded by the response I have gotten from those posts that I really put my bare ass out there and shared my life. Many who read me find my “brutal honesty” (not my words but a reader’s) refreshing. It helped me also by putting it out there, it is liberating.
  7. It’s your last day on Earth – what will you do?
    I’ve been chronically ill for a long time. I am probably the worst I have ever been as I type this. I tend to treat each day as if it is my last in that I make sure that all of the people in my life know how I feel about them; that I free myself from anger and bitterness; not waste my time with negative people and thoughts; and I make it a point to enjoy every sunset, gust of breeze, conversation, and opportunity to laugh knowing that if I were not to wake tomorrow I left nothing on the table.
  8. What’s your favorite quote and why?
    Pine
    I don’t care how much shit you have, how many instagram followers you have, how much you make or how big your house is. Do you have character? That is how you will be remembered.
  9. If you had to give up one forever would it be reading or writing?
    I’d eat a bullet before I would give up either. Books are an eternal wellspring of knowledge, fantasy and learning. A life without these is no life. Writing is my only therapy, I like to think I do it well and I would also like to think that I have helped or inspired someone by my writing.
  10. What’s your happiest memory?
    I have so many. All of them involved when my kids were young. Footie pajamas, silly movies, shoulder rides, bedtime stories and belly laughs. Wishing they would never grow up. 
  11. Who are you?
    I am Bill. I will never put fruit in my beer. I like what I like and I don’t ask you to change for me, just accept me for what I am. Opinionated as hell but accepting to a fault.  I am a philanthropist with no money, I still want to save the world. I am a guy with no job, no money living with his mother that still believes that life is good and will only get better.

I am not going to nominate anyone. If you feel encouraged to play along, I would love to hear your answers to the same (great) questions.

Hot summer days

Those hot summer days
Basking in the sun’s rays
Outside, even when skies were grey
The knock on the door
Can Billy come out to play?
Cops and robbers in the yard
Shins and elbows always scarred
Streetlamp curfews
Wasted days were few
Wax bottles and candy cigarettes
Eight-track tapes and cassettes
Hot afternoons in the pool
Mirror shades, try to look cool
Leaf piles to dive in
Saturday night drive in
Sleepovers at camp
Motocross bikes, jumping that ramp
Swimming and fishing
shooting stars and wishing
Talking to my first cutie
Worried about cooties
Bad music and One hit wonders
School dances and social blunders
First day of school sneakers
Hi-Fi and Big speakers
The crack of the bat
My first baseball hat
First day of tryouts
Don’t make a flyout
Ground ball heading to first
Damn, I missed it. I’m the worst

Those days were the best
I just didn’t know it
Let me go back
This time I won’t blow it
I don’t want to play adult
Tell Zoltar to stop winking
I wanted to be Big
What was I thinking?
I miss my old house
I miss my first dog
I miss not worrying
About every damn thing
I miss feeling good
rugged and strong
I’ve lost my joy
My days seem so long
My longevity is fleeting
I’ve taken a beating
I’m tired of this, my downward phase
I want to go back to those hot summer days

The kindness of strangers

I wrote a post many, many months ago challenging those who say the lovely, always productive phrase “people suck.” You can find it Here.

I’ve always hated that expression. I believe, I want to and have to, that most people strive to be the best person they can be. I also believe that the best way to reveal character is not in the year of your car, the size of your watch, how much you have in the bank or how many Instagram followers you have but instead by your deeds towards others.

I’m less interested in whether you have stood with the great. I want to know if you’ve sat with the broken.

I received a call from a Masonic Brother last week. He was checking in to see how I was feeling. I told him the truth. Virtually sofa-ridden, fatigued and in need of dialysis. He appreciated the update. We talked for a while and he then excused himself because he had something to do. I put down the phone, put my head back and settled in for the ninth nap of the day (I may be exaggerating a bit). Several minutes later my phone starting blowing up with FB notifications. I took a look.

He had excused himself to compose FB posts on every MA FB page related to Masonry regarding my condition and my need for another donor. It was overwhelming.

The messages began to pour in. Due to my brother’s gesture I have six, yes six people who have asked to be tested in order to donate a kidney to me. 4 of them I have never met or even heard their name before.
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I am humbled, excited, honored and blessed by this outpouring of support. It has given me something that I have not experienced, nor expected to, for over a year. What is that you ask?

Hope, I now have hope.

If I ever have the privilege of speaking to any of you, please don’t ever tell me that people suck. I’m not the guy who will buy into that mentality. The good ones are out there, maybe you have to look a little harder. Just remember…

If you can’t find one, become one.

Trust

I trust that each day the sun will rise
that the sparkle will always be in the child’s eyes
I trust that the Spring will bring the rain
that my daily meds will ease my pain

I trust that the people in my life are good
that my intentions are always understood
I trust in my instincts, no matter what
in the unconditional love of a mutt

I trust in the tides
and their consistent ebb and flow
I trust in the beauty of flowers
in Mother Nature and her infinite powers

I trust in so many things
enormous and small
That Hummingbirds be tiny
That the Oak tree be tall

Trust is not given, it must be earned
when violated one always feel burned
My loyalty to you was the best I could do
So why, after all these years…

can I not trust you?

 

 

 

My favorite place

FB memories, the well-intentioned feature that shows you posts from years ago “on this day”, has been my Lex Luthor of late. They have been a source of great anxiety and annoyance as they remind me of the dreaded “used-to’s“. All of the memories that pop up are of better, healthier days. Days that I miss so badly.  Today, one popped up that I wrote in 2015 about my beloved hobby of Mountain Biking.

Post-Transplant in 2011, I needed a means to get my body healthy and I chose biking. Initially, I bought a street bike. I was a newbie so I rode mostly alone. Once I was able to ride 20 miles or more I began to ride with organized groups. I became strong enough to ride 55 miles in one day, while never the fastest, I took great pride in just being part of it. It was my recovery. But it created a new problem, immunosuppressant medications increase your odds of skin cancer and after 2 years of riding, I had 3 Squamous Cell Carcinoma’s removed from my face. I was told to stay out of the sun.

So I explored Mountain Biking. I bought a bike, researched trails and hit the woods. I was immediately hooked. It was challenging, the rough terrain and obstacles required skill and technique, yet I was compelled to rise to the challenge. The atmosphere was amazing, miles into the woods you weren’t observing nature, you were immersed in it. I began to take my camera to photograph the Deer, Bears and even Fisher Cats that I would encounter (from a safe distance of course). I would head out early in the AM in the hopes of seeing my favorite sights, crashing through a clearing to see a pond, the mist coming off it in the early morning heat; the owls that would buzz me as it headed to its tree to sleep the day off after a busy night of hunting; and of course the wonderful sight of nothing but me and trees. It was my Nirvana. And I was out of direct sunlight so no skin cancer.

Through FB I found a group to ride with and I made an instant group of wonderful friends. Riding with them made me happier than I had been in years. They weren’t just riding buddies, they were real friends. By 2015, I was a regular part of the group. Crazy Bill they called me. I took risks, I fell a lot, but I gave it hell and went home every day feeling accomplished and euphoric. Then I got sick in the spring of 2016 and I suppose you know the rest.

Why am I telling you this? Because despite how much today’s FB “Reminder” saddened me, I was reminded of my Buddy Tom of Tom Being Tom Fame had written a post about his favorite place and challenged his readers to write of theirs. So I turned a negative into a positive because I’m sick of being down.

Here is the FB post from 2015 that started all of this if you would care to read it:
This past fall I made a decision that I was only about 80% sure of. My new activity for the last few years is biking. It was my chosen rehab tool after my surgery to get into some semblance of shape. I got 2 bikes, a street, and a mountain bike. I upgraded once on both but I couldn’t decide which one I liked better. But last fall I traded in both bikes on a new, nicer full suspension Mtn bike. I picked one and went with it. Well, I am now 100% sure that I made the right decision. Many of my family and friends have questioned both the commitment and the hazards I have put upon myself and to be fair I have hurt myself badly a couple of times. People have questioned the wisdom of a person my age with my medical history taking such risks. They don’t understand it, and a lot of the risks I can avoid but I want to push myself, to experience adrenaline and accomplishment and I don’t give a shit about pain..it goes away a lot faster than regret over doing nothing. I love the trails, the woods, mother nature and the comradery of the new friends I have made. But it is even more than that now. Mtn biking has become a metaphor for my life. Let me explain.
When we first start the ride it is easy, you are fresh like when you wake in the morning. But you know the hills and the obstacles are coming, you either prepare for them or let them blindside you. 
When the trails are smooth and flowing it is the equivalent of your life going smoothly. Enjoy it but be in the right gear when you round that corner and see the hill.
The hill is adversity and the obstacles; exposed roots, jagged rocks, and logs are the people telling you that you can’t do it. 
When you make the decision to try that hill, to power over that rock, to push yourself you have made the decision to at least try to prove them wrong. And make it or not, at least you tried. 
Then you come to a downhill. But it’s not a smooth path it’s a steep, rocky and rooty obstacle that can send you over the handlebars if you are not careful. This is the downward spiral that we can fall into. We can plummet and crash, we can stand there and look at it, or you can carefully navigate it to safely reach the bottom with as little damage as possible. 
And if you are able to climb the next hill, stand upon it and look down at all of the obstacles that didn’t stop you. And if you do it once, you can do it again. And sometimes it is the climb that you never made, until today.
Nothing pleases me more than getting up a hill that I never thought I could; to make it through a rock garden that sent me flying a week before; to race through an opening to find the parking lot waiting for you. Knowing that the end of the ride is like the end of the day. I got through this one and I am not afraid of the next one.

I wish I still had that attitude…but at least I took a shot at retrieving it today.

 

Song Lyric Sunday

Today, on a day when I crave positivity as a flower does water, I give you Michael Franti and Spearhead, whose music absolutely oozes positivity, empathy, acceptance and understanding.

This song in particular is named Good to be alive today, which I have adopted as my blog URL…that’s how much this song means to me.

Franti can be seen traveling the world, dancing with children, coaxing shy people out of their corners to dance, spreading hope and optimism like a bee does pollen in the spring. His love for life is nothing short of inspi-fucking-rational.

I hope you get something out of this song…

It’s a long road, oh
Everyday I wake up and turn my phone on
I read the news of the day, just as it’s coming down
I do my best not to let it get me down
I try to keep my head up, but is Babylon
This world’s in crisis, we try to fight it, this changing climate
With scientists and politicians divided by it
So many ways we could solve it but they would never sign it
This mountains tumbling down, but still we try to climb it
It’s in the Torah, Quran and in the Bible
Love is the message for some how we turn to rivals
It’s come to people always picking up their rifles
Another school getting shot up homicidal
Some people tryna look fly, some people tryna get high
Some people losing their mind, some people tryna get by
And when you look in my eyes, you see the sign of the times
We all looking for the same thing
But what if this song’s number one
Would it mean that love had won?
Would it mean that the world was saved?
And no guns are being drawn today?
What if everybody had a job?
And nobody had to break a law?
What if everyone could say
That it’s good to be alive today (oh, oh, oh, oh)
Is it good to be alive today (oh, oh, oh, oh)
Is it good to be alive today (oh, oh, oh, oh)
Is it good to be alive today (oh, oh, oh, oh)
No matter what nobody say
People used to feel safer when they would hear a siren
Like help is on its way but now they only think of violence
Another youth in the streets and police is in a conflict
And now they hear the guns click, yo
Ebola crisis and ISIS is taking heads off
A drone is bombing a village and now the kids all
Signing up to be soldiers, but they all willing now
To do the killing now, now are you willing now?
Some politicians out there making up some problems
And tryna tell the people that they can solve them
With TV shows and soundbites and quotes
But everybody knows that it’s all about the cash flow
They telling you and me, they’re making progress
But tell it to the millions of jobless
It’s like a players club with billions of dollars
To get the votes you got to make it rain in congress
Some people tryna look fly, some people tryna get high
Some people losing their mind, some people tryna get by
And when you look in my eyes, you see the sign of the times
We all looking for the same thing
But what if this song’s number one
Would it mean that love had won?
Would it mean that the world was saved?
And no guns are being drawn today?
What if everybody had a job?
And nobody had to break a law?
What if everyone could say
That it’s good to be alive today (oh, oh, oh, oh)
Is it good to be alive today (oh, oh, oh, oh)
Is it good to be alive today (oh, oh, oh, oh)
Is it good to be alive today (oh, oh, oh, oh)
And we all say
One day, one day
One day, one day
One day, we all will say
That it’s good to be alive today
One day, one day
One day, one day
One day, we all will say
That it’s good to be alive today

Civilization and Its Ironies — A Light Circle

I wrote a piece recently on prejudice, bias, racism and acceptance recently. I did my best to cover a lot of material in a medium that rewards short and concise. It came out ok. When I read this piece, I was floored. M.P. Baecker, with the usual inimitable writing style, completely and totally nails the issue. 

I feel compelled to share. If you are not following this blog, I recommend you start.

Racism. Xenophobia. Prejudice. Discrimination. It seems every word written against these forms of hatred will be ignored nonetheless. People feel targeted, shamed, belittled when hate is addressed. After all, hate is an emotion we all feel. Whenever these topics are brought up, whether privately or publicly, reality tends to shift a bit towards the severe, […]

via Civilization and Its Ironies — A Light Circle

Song lyric Sunday

Religious or not, we all sometimes want to just put something out to the universe in the way of a prayer, a cry for help or just relief.

If you ever feel that way, just play this song on high and sing along. When I first heard it I can honestly say it changed my life.

Half Dylan, half Hillsong, Christian-Stoner group Mondo Cozmo moved me to tears the first time I heard Shine. The vocals, the haunting background vocals and the lyrics are so incredibly powerful and unique. Maybe it’s because I received an organ transplant from a woman, but I get emotional when I hear it. It makes me think of a crowd of anxious, stressed out, and spiritually lost people standing in a field singing a non-denominational plea to the heavens for permission to just live, to love and to exist. Knowing that at the end of the day…

it will be alright.

I love this group, and I hope you do as well. You’re welcome.

Stick with me Jesus through the comin’ storm
I’ve come to you in search of something I have lost
Shine down a light on me and show a path
I promise you I will return if you take me back
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
My friends are so alone and it breaks my heart
My friends don’t understand we all are lost
Shine down a light on them and show a path
I promise you they will return if you take ’em back
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let it go
Oh, yeah
Come with me Mary through these modern lines
Stick with me Jesus til’ the end of time
Shine down a light on me and let me know
And take me in your arms and never let me go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high
Let ’em get stoned
Everything will be alright if you let it go
Let ’em get high (get high)
Let ’em get stoned (let ’em get stoned)
Everything will be alright if you let it go
Let ’em get high (let ’em get high)
Let ’em get stoned (let ’em get stoned)
Everything will be alright if you let it go
thanks to all about life for the inspiration.