inspiration – Page 6 – The Tao of Bill

A familiar view

It’s 3 AM and I’m wide awake. I’d been admitted at midnight.

The clatter in the halls and the soft, incessant beeping of machines, as familiar as they are to me, could not be ignored. Television wasn’t an option, I had turned it off at 2. Canned laugh tracks weren’t masking the all-too-familiar sounds and sensations of the hospital room. I’d never been in this particular room before, but if hospital rooms were hotels, I’d qualify as a certified TripAdvisor reviewer. Trust me, they’re all the same.

I was preparing myself for a sleepless night. Once a huge deal to me, now it was no big deal. In a former life, being awake at 3 AM was panic time. I would be so worried about being able to carry out the responsibilities of my work day on no sleep that I would obsess about it and be up all night. Alas, that was when my life was structured and meaningful. Now, being up all night barely affected me or my meager itinerary. As I sat up in the uncomfortable, narrow bed I looked forward to the one thing I could always count in during a hospital stay, some good thinking time.

The last 3 days had been a blur. After a 3rd day of failing to get out of bed for more than an hour at a time, shivering under blankets, a non-existent appetite, and experiencing complete exhaustion at completing even the most mundane physical tasks I had forced myself to take a shower at 8 PM. The thought of removing the 3 layers of clothes in order to even get in the shower filled me with dread. I ran the water until the bathroom steamed up a bit and I forced myself to get in. As I did that I was already dreading stepping out of the shower to get dressed. I have never felt so vulnerable to cold as I have lately. I ran the water hot, hotter than usual and hoped that it would wash away whatever toxins were stealing my life force from me. The effort that it took to wash my tired body sent me into a coughing fit. I nearly passed out I was so short of breath. I stayed in the shower longer than usual, enjoying the heat and steam, and still dreading the brief but brutal moments of drying off and getting dressed. After mustering the courage to do so, I found myself so winded by the mere act of getting dressed that I had to take a break. That told me all I needed to know, I was going to the ER. I was finally convinced that this wasn’t just another “episode” that CKD patients go through. I was more than run down, I was sick.

The 30-minute drive to the hospital was easy. Sitting was no problem. Walking the long corridor from the main entrance to the ER proved to be more of a challenge. By the time I got to the registration desk, they were already scribbling “shortness of breath” as the cause of my visit. Never having been to this hospital, I had to go through the entire registration process. By offering up “transplant patient” at the beginning of the visit, I certainly sped things along. I was immediately seen by the best doctor they could offer that graduated from the bottom 3rd of his graduating class. I’m not being cruel, it’s a small NH hospital that is only equipped for so much.

I explained my history, as I had done so many other times. They took vitals and made pages of notes. When they didn’t recognize half of the meds on my carefully crafted list I immediately knew I was in Mayberry R.F.D. They got the chest X-Ray done and, as I suspected, it was pneumonia. They immediately, and by that, I mean in 2 hours, admitted me. Which brings me to where I am now, wide awake, without comfort, body worn down and my mind searching for clarity.

Despite my serene surroundings, I am bombarded by my thoughts. The last month has been a blur of illness and disappointments. Flare-ups of symptoms once under control had dominated my time and energy. Medicinal changes and side effects have sidelined me from almost everything I enjoyed doing. I am annoyed that the pneumonia is back. This is the second time I’ve had it and the last time was the final blow that forced me out of employment. I’m annoyed at the perceived quality of care I am going to receive. The staff is nice, but they clearly have very little experience with a patient with a history such as mine. I have enough free time to embrace some bitterness also. I have been so disappointed by the events of the Friday before. I had gone to meet some friends at a long-anticipated event and despite the excitement and the planning, I had felt so miserable that I had to leave early. I had so many questions and things to learn from these people. But my expectations of tales and laughter and stimulating conversation over a bountiful meal turned out to be sipping ice water and picking away unenthusiastically at a meal that barely interested me at all, trying not to show my guests how nauseous, exhausted, cold and dying to get out of there and into my warm bed at all costs I was. It further annoyed me that I was already “writing off” the events of the past week as “just another setback” and a part of the new reality.

Is this my new reality? The silent room gives me no answers, and I haven’t the strength in my lungs to hold my breath for one. I am at the point where I know that I am losing the person I was just a month ago. It’s not the illness talking, I know myself well enough to look past how I’m feeling now but to the future. I have been able to pull myself up from so many of life’s beatdowns, dusted off and told it to Fuck off. But at that time, the good days greatly outnumbered the bad. Am I prepared for the days when my “episodes” outnumber my good days?

I have to do something. I thought I have been eating healthy. I can do better. I thought I have been making good choices. I have to make better. I thought I was feeling pretty good. I must do something better.

When I get out of here, I think to myself, I need to make some changes.

As expected, I was released with an antibiotic after only one day. Left to fend for myself again. Left with time to think, to assess and re-evaluate. Where is my source of power? How do I tap into it again? What needs to happen to make me again crave the challenges outside of my doors more than the comfort of my own bed?

I need to be a conduit of inspiration, not an object of pity. I don’t think I’m overstating this. This morning, when I looked in the mirror…I looked sick. That I cannot accept.

One liner Wednesday

With nods to the Iditarod…

Life is like a dog-sled train. If you ain’t the lead dog the view never changes

Kayaking

Yesterday was quite a day. I got out of bed at the crack of 7:30 and went downstairs for the morning caffeine infusion. My mother, on cue, was making a pot. Something was missing. “Where’s your boytoy?” I asked her. The boyfriend stays with us almost every weekend and he was there when I went to sleep the night before.

“Gone,” she said. “He got a little too handsy this morning and when I told him to knock it off. He got pissed, packed his bag and left. Want to go to Church with me?”

What I wanted to say was Gee Mom I am actually headed down this morning to see a couple of friends before I stop by wifey’s and have cake with the 2 oldest kids for a belated birthday party so I can’t. But what came out was “I’d love to.” There was no way that she was as ok as she acted and I knew I needed to be there to support her today. I would go down after church. Besides, I needed to know what happened.

As we prepared for church I got the story. Being the Trump supporter that he is he tried to grab her by the…well you know where I’m going with this. Apparently, he woke up a little “Randy”, popped a Viagra, rose to the occasion and attempted to park it somewhere…at 6 AM.

Mom was just a little busy sleeping when the countdown ended and it was a failed launch attempt. He and Mr. Johnson were rebuffed with extreme prejudice. Knowing that he’s a golfer, I’m just a bit surprised at his lack of etiquette. You always give a heads up before you try to play through.

The church was delightful as always. As I am still in my Undefined-Spiritual-Transition-Mode I sit there and I people watch. I know the people now, The congregation consists of some wonderful, giving people. And then there are those few that have that ethereal my shit don’t stink because I love God so much that I’m going to heaven and you’re not face and I know that they’re completely full of shit. Fine by me, it’s their journey, not mine. I then caught the eye of Linda, my new buddy from the food pantry. She mouthed “hey you” to me and I smiled for the first time that day.

Linda is an attractive, happily married older woman who I am very drawn to. In the classic sense of the word, I want to be around her. It’s not sexual but exciting nonetheless. She’s educated, smart, extremely charitable with her time and in her actions and I love talking to her. Linda was present the day I told my food pantry volunteer pals my theory on religion. I was asked in front of a room full of people why I don’t attend church often. I told them:

“Religion is sitting in church thinking about Kayaking. Spirituality is sitting in a kayak thinking about God“.

It’s not original but it sums me up so well.

The service closed with a prayer. Not participating in the ritual, rebel that I am, I said my own prayer of the agnostic.

Dear whoever you are. Without putting too fine a point on things please make this earth a better place. If you can’t then please show us how. Take care of the poor, don’t let babies die of cancer and punish the dicks. I don’t care how you do it just put it higher on your list than who wins the next major sporting event. Your humble servant, Amen or bye for now or whatever. Forgive me for I know not what the fuck I am talking about.

We then adjourned for the St. Patty’s luncheon out back. Mom was serving so I grabbed a plate of food. Seeing a bunch of set tables and a row of chairs I chose to sit on a straw chair. That would allow groups to have the tables. I had picked a perfect spot to people watch and that is just what I did. A few people approached me, some who I haven’t yet met introduced themselves and some that I knew, asking me why I was sitting there lonely. I assured them that I was where I wanted to be. After all, I was. I was writing my next blog in my head after all!

Linda approached and sat down next to me, smiled and said “Kayaking?”

“What do you mean?” I asked her. She couldn’t possibly be referring to the conversation we had weeks ago.

“You know what I mean. It looks like you’re Kayaking right now.”

“I can’t believe you remember that. Nice catch. Yes, I am. Always. You know that’s not original right?”

“I know”, she said. “But I liked it and you own it.” We talked for a few, I met her lucky husband and she went off to socialize with someone else.”

Who knew that my own words would come back to me someday?

The rest of the day panned out as planned. I made it down to MA to see my friends and family and made it home by 10 and made sure Mom was ok.

As of today we haven’t heard from Trump Jr. I guess we’ll see if the voters choose to let that “locker room behavior” slide.

it’s not politics, it’s people

Politics is the study of how governments and countries interact and function. But the word itself, perhaps lazily, has evolved into the study and discussion of current events as they pertain to society in general. I pride myself on my knowledge of Politics. I enjoy being a news junkie and a history buff. I like being up on current events, ready to whip out of my holster some nugget at a cocktail party. Given the choice between being informed or not, I like to know what’s going on despite the terrible toll it sometimes takes. But at the end of the day, I don’t know shit.

As an American, I enjoy a sense of security that a citizen of only a few countries ever have. We have never had our shores breached by an enemy, we have a strong military and a representative government in place to see that we (hopefully) never fall victim to civil war again. With the exception of the Great Depression, we have never known widespread hunger and poverty. Our standard of living, even at “poverty” levels consists of not just food, shelter and clothing but multiple televisions, a car, a cellphone, and internet connectivity. While we could do better, we could be worse off. Even in our darkest days, we seem to look to the future with optimism. The American Dream. And when we look at other countries, it is my opinion that we see things the same way.

Yet, there are people who have seen real civil war, experienced abject poverty, experienced true desperation and watched their once beloved country crumble before them. Only our immigrants from war-torn countries could relate to such an experience, I certainly can’t. Yet today I read a post by one of my favorite bloggers, Bojana of Bojana’s Coffee and Confessions to go that details the day to day struggles of the Bosnian Conflict. It is the third installment of a series and I have been anxiously awaiting its posting. https://wordpress.com/read/blogs/133032654/posts/506 It is a must read for all.

In 1984, I was a year out of High School. I was pretty big into politics even then and I was intrigued by the Winter Olympic games being held in Sarajevo. A communist European country with a pro-western leader, tarnished by the persistent memory of an assassination that led to a world war had earned the opportunity to put on a great show for the world.

Less than 10 years later that beautiful country was ravaged by a civil war. The sight of the games now looks like this:

The world, for the most part, sat and watched it happen.

I remember sitting in my living room, like many, thinking to myself “ugh…ethnic cleansing, mass graves, concentration camps, old hatreds…it’s a civil war let them work it out”. And that’s just what most of the world did. The US, in particular, was still licking its wounds over the last civil conflict that we had no “National Interest” in but, in the name of humanity, got involved in. Americans still had this image from Mogadishu etched in our brains.

We stayed out of it. But people were suffering. We did get involved eventually as a UN mission. We ineffectively bombed where we could. It was a band-aid at best and we acted like we helped. But millions were robbed of their lives, many of them young people who lost their youth and possibly their belief in a just world. Besides mountains of bodies, lost youth is the second biggest casualty of war.

In America, we loosely throw names at our leaders such as Nazi, or Fascist, or Dictator but we have never experienced such a thing. We have never had in power a despot, a dictator, a Shah or Cleric, a General or Generalissimo, or a Fascist.

We had a King once and kicked his ass to the curb. We cannot pretend to know what it is like to be killed or imprisoned for our beliefs, religion or ethnicity. We have never walked down streets with bullets ringing by as we step over bodies. And we have never been without the support of one, centralized government that is always supporting us.

Yet with foreign policy, we act out against leaders at the expense of the people. Extreme sanctions, bombing campaigns and other harsh means of punishing the bad leaders of bad countries don’t hurt the leaders, only the people they lead. In many of those cases, the people don’t even support the beliefs of their leaders. They just want what we want. To eat a warm meal, sleep in a warm bed, to walk the streets without fear, and a future for their children.

Behind the great big wall that we call politics, there are just people. Strong, brave, resilient people who refuse to give up their lives despite what is going on around them. As evidenced by this iconic photograph of a Bosnian woman walking down the street. According to the photographer, bullets were flying close nearby, yet she walked upright and proud. Going about her day.

A scene from the Antique store

my first piece of fiction…I hope you enjoy

It was a beautiful fall day, a light breeze playfully toyed with the colorful leaves littering the small but bustling street. The street, much like the town, was old but well kept. The town, like so many small Anytown USA’s,was what was left after it had lost its “Big Company”, in this case a Textile Mill, and the jobs that it provided. Most of the younger families had long moved away but its loyal, remaining citizens insisted on preserving their little town. A particular source of pride was the row of shops on Main St, where a mother and her young daughter were walking hand and hand along the cobblestone sidewalk. They were clearly not local, their pace lacked deliberation as they alternated between staring in the storefront windows and glancing around in all directions. Their clasped hands suggested fear of separation more than that of a maternal bond. Mom looked nervous, out of her element, and intent on holding her little girl, no more than 8, as close to her as possible.

They continued down the sidewalk, almost going into several stores, only to turn and continue walking. It was not until they came upon one shop, more inviting than the others, that caused them to stop and stare. The name Yesteryear Today was displayed in golden letters on the thick glass window. The mother, clearly a lover of antiques, gently tugged her daughter through the massive mahogany door. A bell announced their arrival.

As they shook off the chill of the fall air, they were immediately greeted by the smell of cinnamon. Apparently no stranger to antique stores, the woman stood in the doorway, her daughter obediently clutching her hand, and surveyed the enormous room. She took in the afternoon sunlight streaming through skylights and illuminating 3 walls of shelves overflowing with pictures, dolls, books and knick-knacks (as her mother had called them God rest her soul) and a crowded floor littered with tables, chairs, desks, cabinets and sofas that she knew (from her mother again, God rest her soul) had names like Edwardian, Davenport, Divan, Fauteuil, so many others. She noticed the conspicuous absence of the pungent, mildewy odor of old books and discarded memories common in most antique stores. Perhaps it was the cinnamon.

“Cider?” a voice called out to her, surprising her. She had been so fixated on a rolltop desk to her left that she had not noticed the elderly man approach her. He appeared to be about 75, dressed in crisp khakis, a white shirt, a grey sweater and a bow tie. His appearance immediately struck her as meticulous, right down to the knot in his tie.

“Beg your pardon?” she asked.

“Sorry to have startled you, Ma’am. I was offering you and your lovely little girl a hot cider. Fall is in the air you know. I may be a bit early but I admit it, I’m a sucker for the season, hot cider and all.” He turned his attention to the little girl, stooping down he said, “Do you smell the cinnamon, young lady?” I add real sticks to the cider.” The little girl hugged her mother’s leg and looked at the floor.

“You’ll have to forgive my daughter’s shyness, please don’t take it personally”.

“Don’t be silly, young lady, no offense taken. What is her name?”

“This is Lily”. She looked down at her daughter and smiled. “And I’m Kelly. Kelly Swanson”.

The old man’s brow furrowed and a concerned look crossed his face, “Any relation to the Hemlock Lane Swanson’s?”

“That’s the one”. He knows my family. “It’s been in probate for a year but since I just lost my apartment this seems to be my best, most logical move. We dropped off our bags this morning and decided to check out the town before we unpack. I hate moving.” Stop prattling on! she scolded herself. He doesn’t need to know your life’s story. He’s going to think you’re nuts and you just met him. She noted to herself that he was almost unsettlingly easy to talk to.

“Well, Miss Swanson, welcome to our town, circumstances as they are. I must say, that accident took a little of all of us. We haven’t had a crash like that in decades. Just awful. I’m so sorry for your loss. Again, may I please offer you a cider?” He gently steered Kelly and her daughter to the small table with the old-fashioned hotplate, on which was a small steel pot of cider. He ladled some into a cup for Kelly, then excused himself for the stated purpose of getting some ice cubes for the cup he was preparing for Lilly.

After he returned and had stooped to convince the very shy Lily to try his cider, he again turned to Kelly. “My name is Bernard Steele, proprietor of this fine establishment” and he bowed to her slightly. She was visibly taken back by his old-fashioned mannerisms as she was his pristine appearance. “Please look around the store, I take great pride in my collection of memories”.

“I will Mr. Steele, thank you so much.” She reached down for Lily’s hand and was surprised to not find it. Apparently, her shyness had worn off a bit. Kelly scanned the room anxiously and was relieved to find Lily intently staring at a old bicycle. Relax, she told herself, we’re not in the city anymore. She can be five feet away without calling in an Amber Alert. She fervidly wished to herself for the ability to lighten up and not worry so much. My mother smothered me, I’m not doing it to her dammit! She took a deep breath and exhaled, staring bemusedly at her daughter. She certainly looked like she was happy all the way over there. She again caught herself and looked away. Her gaze was immediately met by an old roll-top desk. If she didn’t know better it could be the one her Grandmother had had in her basement. She slowly walked over and studied the antique desk, running her hands over the aged Mahogany, marveling at the craftsmanship.

She was powerfully drawn to it, as if the desk was beckoning her to sit at it. Pensively, she pulled the wooden bench out under the rolltop and sat. What happened next she would have difficulty explaining to anyone. It had to have been a vision, a hallucination even, whatever label applied, she found herself holding a fountain pen in her right hand. Beside her on the desk was a jar of black ink. A partially finished letter lay under the thumb and forefinger of her left hand, barely visible below the fluttery sleeves of her blouse. I don’t own such a blouse! she realized in shock. Tucked into the corner of the leather blotter was a letter. Confused, her eyes furtively darted around the room, at which time she realized she wasn’t in the antique store anymore, but instead a room she had never been before. Puzzled yet intrigued she took the letter from the blotter, opened it, and began to read.

Dear Marion:

I’m so sorry I didn’t write you yesterday. We had a surprise inspection below deck that took all day. Then we spotted a Kraut Sub that we chased all damn day. I had KP at night so no letter time.
I hope you are doing ok with the little one, I’m sure she’s a handful. I saw the pics, she looks like the Milkman!. I kid of course, I know you wouldn’t do that to me. It’s a damn shame what’s happening to some guys though. Wives running off with Gardeners and handymen, war-dodging bastards, while their husbands are at sea. Not you. You wouldn’t do that to me would you, kid?
We have something big coming up. I can’t tell you much more but you may not hear from me for a few days. Letters home are being shut down. Please know that I love you and as soon as we win this damn war we’ll pick up where we left off.
Love you always,
Mel.

She then removed the letter from under the sleeve of her blouse and began to read.

My dearest Mel,

I have been getting your letters. I wait for the mailman every day, but not like you joked about you silly man. I will never do that to you. Your daughter is growing fast and she wants to see her Daddy so do what you have to do and please come home so that we can

That was all she had written. The She pushed away from the desk with an audible gasp.

“Miss Swanson, are you ok?” Mr. Steele was standing over her, a look of consternation on his face. She was back in the store!? What the hell is going on here! She then remembered the letter.

“June , 1944!” she exclaimed. “That date! That’s just before D-Day!”

“I’m sorry Miss Swanson, but it’s clearly October and we are considerably past the year 1944. Are you sure you’re ok”?

“It was June, I mean it could’ve been. I…I don’t know. Something very strange just happened to me and I’m a little rattled”. She noticed the cup of spilled cider on the floor next to her and sheepishly apologized to Mr. Steele. He scurried off to find some paper towels. Kelly immediately turned her head and scanned the room for Lily.

She watched Lily as she admired an old bicycle. It was one similar to the one she had ridden as a little girl, complete with the rainbow-colored tassles on the handlebars and a “banana seat”. She had loved that bike. Lily’s concentration was intense, bordering on a trance.

Lily was indeed in a trance. In her head, she was riding the bike. The fact that she didn’t know how to ride a bike had no bearing on the experience for her. She was not only riding, she was cruising, and having a fine time for herself as she did. She was riding with friends down Main St, Lily was unsure what to make of the experience but she didn’t want it to end. She felt wild and carefree, as immersed as she was in the experience she had the awareness to know that in her real life she was anything but. She pushed that revelation aside and enjoyed the moment, a huge smile lit up her face. She felt like nothing could ruin this moment. Until she heard her mother’s voice calling out to her.
“Lily!”
Ignoring it, she thought to herself, No, this moment can’t end. Again, her mother’s called “Lily!” and again she ignored it. Suddenly she felt a hand grab her shoulder and she pulled away quickly. The loud crashing sound of the bike hitting the wooden floor startled her. Almost as much as the look on her mother’s face as she stared at her.

“Lily, are you alright? I called you twice and you were just looking off into space like you were in a trance. Here, let me hold you…” and extended her arms for a hug.

“No” Lily said and pushed the outstretched hands away. “I’m ok, I don’t need a hug. You hug me too much. I want to ride my bike now”.

Her mother kneeled down and said. “Ok, no hug. But honey, you don’t know how to ride a bike”.

“Yes, I do. I can do it all afternoon and ride all over town with no adults watching me or my friends.” She crossed her arms indignantly.

Kelly leaned in, “Sweetie did you see something special when you touched that bicycle? Because something happened to me. You can tell me. I promise it won’t sound crazy. In fact, I hope it is.” Crazy is the only explanation she remarked to herself. I was just in 1944 and now she knows how to ride a bike! At that moment, a sad realization occurred to her that the reason Lily had never learned to ride a bike was because she never let the girl out of her sight. She had reasoned it away by memorizing crime statistics and watching the news, but the fact was she had sheltered the girl. How many times did she take your hand before you took hers she asked herself. She knew the answer, and she wasn’t pleased with herself. But, she rationalized, her father left us when she was 3 in a shithole neighborhood and I did the best that I could. She shook her head, refocusing herself. She needed to stay focused on her daughter.

“May I interject?” asked Mr. Steele.
“Yes, of course Mr. Steele.
“Never underestimate the power of old things. I believe they have a memory of their own. It’s a powerful thing when you think about it. To think that objects may capture and retain moments. I find it fascinating! I like to think of my little store as a magical little museum of memories” he offered as he flamboyantly gestured around the room. “May I suggest, young lady, that you just experienced a bit of magic?” He leaned into Kelly and whispered, “perhaps you did too, my dear?”

“See Mommy, it’s Magic. That’s why I can ride a bike. Well, I could. I mean I just did. Awwww you know what I mean”. She was clearly coming back to reality.

“Sweetie, I think we need to leave now. It is getting late and I don’t want to unpack too late tonight.” She gently but persistently nudged Lily towards the door. “Say Thank you and goodbye to Mr. Steele”.

“Goodbye, Mr. Steele, Thank you”, Lily said. They then started for the door. As they stepped outside and closed the door behind them, the loud bell accentuated their departure. Lily said to her mother “Is it alright if I just walk beside you, you know, without holding hands? I’ll be ok, I feel safe here.”

“I’m sorry I’m so protective honey, I just worry about you. I can’t help it.” She was still instinctively thinking about reaching out for her hand. She fought the urge and instead put her hands in her pockets, it was getting chilly anyway.

“I saw and felt something in there, Mommy. I felt warm. I felt safe. And I didn’t feel like you were worrying about me. I was just doing stuff and having fun without getting hurt or chased by bad guys.” She was acting so grown up, so independent. Maybe I have to let her go if she wants to grow. She smiled and said “Something happened to me in there also. I’ll tell you all about it when we get home. Just hold one second.

She turned to the Antique store and opened the door. She looked to make sure Lily was still there (habit) and stepped inside. “Mr. Steele?” she called out.

Bernard Steele emerged from the back room. “Yes, Miss Swanson. I trust all is well with you and the young lass?”

“Of course, Mr. Steele. I just want to say that while I’m unsure what happened here today, you do indeed run a magical place. I may be back later in the week to talk about that desk. I believe my new cellar has a perfect corner for it.”

“Indeed, Miss Swanson. I look forward to your return. And again, welcome to our little town.”

“I want to buy that bike” Lily called from the doorway.

Bernard Steele laughed heartily. “Absolutely, my dear child. I look forward to it. But you must ask your mother, not me. Your mother may become angry with me”.

“Thank you, Mr. Steele. You’re my first new friend here.” Kelly said. She waved to him. As he waved back he winked at young Lily, who would later swear that she saw a twinkle of light, like a star streaking across the Autumn sky.

They stepped outside, the heavy door closing behind them with the ringing of a bell. Together, but unjoined at the hands, mother and daughter walked towards the edge of the square to Hemlock, their steps deliberate and with purpose.

A life of virtue

I almost had to peel myself out of bed this morning, reeling from fatigue and another inconvenient gout flare-up. This time it’s in my ankle and my right elbow. It’s excruciating. Apparently, the 1000.00 per month medication prescribed to prevent gout is a real winner. I choked down 25mg of Prednisone in hopes that I would be able to support weight on my left foot by noon. I headed out at 9:15 to the local food pantry at the local church, where I volunteer almost every Saturday.

I really enjoy volunteering. There is a real need in my community, there is a large segment of poverty on the fringe of all of the “old money” in town. This need requires volunteers, which are few. In the winter the population is 25% of what it is when the sun is out. Of the remaining 25%, many go to Florida. By being there every week in the winter I help make sure that they have enough coverage.

A morning at the food pantry consists of a rotating cast and crew of really nice people. Most of them know my family so it wasn’t hard to blend in. Each week, anywhere between 10-15 families come in and we set them up with a lot of healthy goodies. It’s about 3 hours of steady moving, packing and small talk. Today, as I was checking my email during a break. dear sweet Bonnie said to me, “Bill, how come we never see you at church on Sunday?” Oh boy, here we go. As I began to formulate my answer I realized that all eyes were on me, as if to all say “yea, how come?” Not wanting to get into it, I explained to them that I’m just not a “church guy”. The hymns, responsive readings, symbolism, and idolatry don’t do it for me. I explained that I have a complex relationship with Spirituality that is still in progress. I left them with the Kayak quote:

“Religion is sitting in church thinking about Kayaking. Spirituality is sitting in a kayak thinking about God”

That seemed to satisfy them. We moved on. I limped out of there on time and went home, hoping the prednisone would kick in enough to force a quick 1/2 hour on the hamster wheel before I run out of spoons for the day.

As I was making a quick sandwich, Mom said “Going to Church tomorrow?” I facepalmed dramatically. “What?” she said. I explained to her that I just went through this. Mom has always thought that I don’t like church because of an incident I had in high school with a sanctimonious son-of-a-bitch minister who slapped my cousin. I have spent the last 30 plus years trying to convince her otherwise. In the moment, I decided to have this conversation for hopefully the last time. I looked at her and said,

“Church or no Church, aren’t I living a life of virtue”? I went on to explain that I try always to be nice, courteous, respectful, charitable, etc, isn’t that as good as going to Church for an hour a week and stare at the plaster ceilings, waiting for the cracks to appear? She doesn’t get it, she never will. Even the Kayak quote wasn’t pushing this one over the curb.

When I used the word virtue, it just kinda popped out. It is a lofty word with multiple synonyms that range from purity to righteousness, to morality. I will only go so far as to say that I try to live my life with integrity. I grappled for years with virtue, wondering how I could lead a good life without religion. It wasn’t until I reconciled that good vs evil is the same thing as good vs bad that I made any significant strides. I asked myself, do I need 10 commandments to know not to steal, kill or shag my neighbor’s wife? Any decent person knows this. I always try to do the right thing, that’s all.

I always tried to pay attention to little things like pausing in supermarket aisles to offer to reach items on the top shelf for little old ladies, carrying heavy items for people, opening doors, buying a coffee for the guy ringing the bell outside the WalMart at Christmas. Small, human gestures.

Post-transplant, full of “pay it forward“, I stepped it up and joined a fraternal organization dedicated to self-improvement and community. Blood drives, community breakfasts, an anonymous foundation for charitable giving to school kids with needs that don’t fit traditional programs, working the registration tent at a Down’s Syndrome “Buddy Walk” became my Saturday mornings. They were all small gestures that helped people and gave me a real sense of purpose in life.

Unfortunately, I got sick again just as I was really starting to get going. It wasn’t long before I found myself as I am now. Weak in body, Spiritually available to what the Universe has in store for me. With this spirit in mind, I have scaled back my goals to just trying to be a good person. It’s all I have. Energy availability aside, I know that I have enough in me to be kind to strangers. I can certainly say please and thank you. I will continue to treat those that serve me with kindness and dignity. I am able to hold a door and grab something off of the top shelf for someone. I can muster the strength to listen to a friend who needs someone to talk to. I can find the energy to not lie, cheat or steal and to be good to my word, shake a man’s hand and look him in the eye.

I found my purpose. Not to be a good Christian or a benevolent Pagan. My purpose is to be nice. It takes almost zero energy to just be nice. So few are willing to take the job and my resume is a mess anyway, so I’ll take the job. If Jesus is real, I’ll let him decide my worth. I don’t know if that is what a “religious” person considers to be a life of Virtue but I would certainly think it will get me a pass to sleep in on Sunday morning. At least until Kayak season.

Perhaps I will show my mother this post, and put this to bed forever.

Acceptance

I want to thank those of you that read and interacted with me on my recent “you don’t look sick” series. The series started out as my take on having a condition but not allowing it to define me. I allowed it to morph into my telling that basic story that has pervaded my entire blog but in greater detail. In a sense, I told my whole story.

I reviewed the series this morning, fearful that I had painted too vague a picture and not stayed on point. All in all, I think I said what I wanted to say and stayed on point. I also read the comments and it was then that I realized that I had left something out. Considering that I read Elizabeth Kubler-Ross in High School when two of my best friends died in a fiery car crash I should have recognized that I left out Acceptance.

When I began this blog I was at a low point. The title itself, Superman can’t find a phone booth, was conceived in a hospital bed and suggests the futility of being once-powerful and now without an outlet. As my blogging journey progressed I began to come to grips with my homelessness, financial situation, relationship with my children, deteriorating marriage and place in the world. The one thing I did not embrace was the obvious-to-everyone-but-me fact that my illness was not to be ignored anymore. No amount of positive thinking, Tony Robbins podcasts or denial was going to make me better.

I speak often of the fearless, forge-ahead at all costs attitude that I was able to maintain for so many years. I still maintain that it was the right thing to do. I managed to keep my family worrying about me to a minimum and it allowed me to work for as long as I could. But, I always rejected the notion that it was denial. I joked about it when confronted with it, spinning it back on my detractors with its success rate. Hell, even my doctors begrudgingly admitted that it worked for me. But only recently, perhaps it was today when reading the comments of some bloggers who are “in the know”, it occurred to me that I have moved past the denial phase and have achieved Acceptance. This is a bittersweet step for me.

I can accept that my condition will not go away if I ignore it. But I’ve never really allowed myself to think openly and honestly at what the future holds, even though I know. Years of Dialysis, a possibility of another transplant and a hope for a cure. Without my denial, will I resign myself to this path or fight it?

I can accept that I may never work full-time again. This kills me. But my recent dabble in part-time work, albeit fun, has taken a physical toll. I don’t think it’s a matter of conditioning, my body really can’t take it. Consequently, I have to accept that 2 days of work requires two days of recovery.

I can even accept that I will likely live in my mother’s house until the day I die. It’s technically mine, she is leaving it to me, and she will outlive me anyway so I’m getting my inheritance now.

What I am having difficulty accepting is how lousy I have felt and the lack of breaks between symptomatic episodes. I have always had “flare-ups” of gout, edema, cramping and other fun little side effects of kidney disease. But they passed and I would experience a period of relatively good health. Since this past summer, it has been something almost every day. For a while, I was hopeful that I would improve, be relatively symptom-free and look to the day when I can resume some of my favorite activities; biking, hiking, weight lifting, basketball. Today, as I have spent most of the day on the sofa because my blood pressure is dangerously high, I am lightheaded and dizzy when I stand up and extremely listless and unambitious after a busy, but not that busy day yesterday. I am down, and I never, ever get down.

I don’t know if I can accept that a mere 3 years ago I was playing basketball with teenagers, yet my shoes are now collecting dust.
That I was a part of a mountain bikers group that became great friends but now my bike is sitting sadly in the corner of my garage.
That I was at the gym 4 days a week, moving weight and feeling strong. Lately dragging my ass out of bed counts as Cardio.

Fortunately, I do accept that I will never completely give up. I keep the bike and the shoes not to torture myself but as a reminder of what feeling good feels like. In the event that things turn around, or dare I hope for a medical advance of some kind(?) that these things will be at my disposal again.

I’ve never mixed hope and realism before. So far I can tolerate the taste. It’s not the same type of relationship as giving up and accepting.

“you don’t look sick”…part 1

I went to my local hospital yesterday morning for some bloodwork. I have a “standing order” for the same tests monthly to monitor my kidney function, or as I call it the “how much have I lost this month” tests. The laboratory waiting room was small and crowded, I swear the room was built as an afterthought. I checked in, surveyed the room, saw a lot of sniffling people and the germaphobe in me chose to stand in the doorway until called.

When called, I trudged through the sea of inconsiderately outstretched legs, carefully dodging the onslaught of germs that I sensed were targeting me as if I had disrupted a wasp’s nest. After my blood was drawn I was led to the door and the Nurse said, for all the waiting room to hear, “ok now head over to Oncology they’re expecting you”. All eyes were on me. As I again navigated the sea of people standing between the door and my exodus an elderly gentleman softly said to his wife,

“he doesn’t look sick”.

I thought about responding but decided against it. Maybe it was the word “Oncology” that threw him, he didn’t know that my iron infusion was administered in the Oncology lab. After I checked in to the Oncology clinic, I sat down and reflected on a similar incident many years ago.

I was treated for Cancer in 1998 at age 31. At that time, I was the proud, doting father of an 18-month-old little girl and my wife was pregnant with my son. I was working full time at the restaurant at night, my days consisted of playing with my daughter and hitting the gym during her morning nap. I was in great shape, the best of my life. I was training for power at the gym, moving a lot of weight for at least 90 minutes a day. One day I was training legs and I attempted a press of 1300 pounds. It was a lot of weight, the kind that requires a guy on each side of the machine to bail you out if your knees pop off and stick to the ceiling. I completed 3 reps, rolled off of the machine and immediately threw up all over the floor. The pain in my core was excruciating. I called my doctor immediately. After I was examined, my doctor asked what my plans for the afternoon were. I told him I was going to work. “Call in sick,” he said and suggested that I call my wife next. I knew it, Cancer.

That nagging pain in my groin was actually a golf-ball sized tumor. It was my favorite, “Lefty”. “Lefty” had to go, regardless of whether it was benign or malignant. My blood work had already indicated that it was malignant. I was asked if I wanted a prosthetic Lefty, I declined. I was married after all, who is going to see? As an aside, I would like to borrow Mr. Peabody’s time machine right about now.

The surgery was scheduled for 10 agonizing days later. To know that you have something inside that is silently trying to kill you and having to wait 10 days to have it removed is torture. I was incredibly aware of it, as if the creature in Alien was planning its moment to pop out of me and wreak havoc. In the meantime, I went to work and acted like everything was just fine. I told one person what was going on, my boss, because I needed to schedule the time off for surgery. He told some people and sure enough, it got out. People started treating me differently. As the kitchen clown, I was a lightning rod for jokes and abuse. My days were always full of banter, it made the day pass. We were all like that. Now, everyone was being so fucking NICE to me I couldn’t take it. I was now the sick guy. People get like that when they hear the “Big C”. There’s nothing they can do and they don’t know what to say. I let them do their thing and I did mine, I deflected it and moved on.

The surgery was successful. And timely. The words “Just in time” were used in conversation. Now in a specimen jar, Lefty was indeed malignant. I would not need chemo, only a long steady regimen of Radiation therapy to my abdominal region.

The Radiation therapy would prove to be a breeze for me. My Oncologist was noticeably shocked at how well I handled it. He would tell me of how patients had to stop treatment due to fatigue and nausea. I was going to the gym and then work after a mere week after my surgery.

Work would prove to be difficult, but not for the reasons you would expect. My strength wasn’t there but I was able to do my job. If they let me. My co-workers, who normally abused me were offering to help me lift things, giving me easier assignments, asking me if I wanted to leave earlier. The worst thing of all is they were being so nice still. No abuse of any kind. I couldn’t take it so one very hot August night I decided to put end this nice stuff.

We were all sweating, it was 95 outside and we were inside a kitchen with 8 ovens, 4 fryolators and 12 saute stations going full tilt. I was sweaty and miserable and I knew I had to pick my moment. I walked into the back kitchen area during a lull and they were all there. I dropped my apron to the floor dramatically and said, “Jesus, I’m sweating my BALL off here!” They erupted in laughter, the tension instantly disappeared. My buddy Joe looks at me and says “so it’s on?”

“Yes, it’s on. Stop tip toeing around me I hate it!”

The abuse was rampant and apparently retroactive. “Billy one-nut” was born. And I loved it, things were back to normal, finally.

One day soon after, as I was leaving the radiation center, I hugged my dear nurses’ goodbye and walked through the waiting room. As I passed an elderly couple, the husband leaned in to the wife and said: “he doesn’t look sick.” I stopped, turned to him and said’ “that’s the idea”.

To be continued…

Friday Knight at Grandpa’s

“Oh my God, it’s like my father is here in this kitchen!” my mother half-laughed and half-yelled as she searched around to see what other mischiefs I had caused while she was out.

I’m a big kid, I love to mess with her OCD. When she goes out I move things around in her kitchen. Sometimes it’s subtle, like moving her snowman candles an inch or so. She notices it. Other times I will switch her containers around. If they were in ascending order shortest to tallest, left to right, I would reverse it. I do a little every day just to keep things interesting. Mom has come to expect something when she walks in. I outdid myself today, I messed with everything. Cookie jar turned around to face the wall. K cups, once color-coded by row on a rack with no empty spaces now rearranged hodge-podge with a pyramid of them on top and many empty slots. The Coffee-maker swapped with the food processor. My best work to date. And the reference to her father was not lost on me, it’s not the first time she’s said it. I act like him, I quote him frequently. I talk about him all the time. I am my Grandfather in so many ways.

My father and grandfather were dual role models in my life. I was very fortunate to have two honest, hard-working family-oriented men in my life. I idolized them both. But I had very different relationships with them. As could be expected, my father had to be the teacher, the establisher of rules and disciplinarian when required. My grandfather got to be the good guy. He always supported what my father told me and never went against him, but he put his own folksy and humorous spin on it. He made everything better. And funny.

I had a tough childhood in many ways. I was a bit mixed up, I lived too much in my own head. But one wonderful childhood memory is the Friday night sleepover at the Grandparents. My mom and dad had a nice social life and it was common to drop me off at the Grandparents house in lieu of a babysitter. I loved it. From as early as I can remember I would walk up the old brick steps. shopping bag of clothes and blanket in tow, where I would be greeted by my doting grandmother at the door. Behind her would be my grandfather smiling wickedly. His eyes, barely noticeable beneath his trademark bushy eyebrows suggesting we were in for some fun. The night would consist of TV and popcorn, playing with their little rat poodle, watching them playfully bicker, root beer floats in the summer and hot chocolate in the winter and going to bed just a little later than I did at home. The fun that my grandfather had in store would come the next morning at breakfast. He would put on a show, and he never disappointed.

Fun, as defined by my grandfather, was causing trouble. My mother had told me stories of the breakfast table when she was growing up. When I was there, my grandmother was the target and I was the eager audience. The game was to drive her crazy, the winning moment was when she yelled at him. It would start as soon as we got up. I woke up early for the show. Grandma would be making breakfast and grandpa and I would be in the small living room, a mere 2 rooms away. She would call him to breakfast and he would ignore her. He would make eye contact with me as if to say “be quiet and watch this.” Grandma would call again and he would yell “Whaaaaat?” Exasperated, my poor grandmother would come down the hall and literally yell “breakfast is ready!” He would calmly say something like “oh, why didn’t you say so.” That was only the beginning. Once seated, the real fun began. She would put eggs in front of him and if they were scrambled he would complain that he wanted over easy. If there was cream on the table he would reach to the refrigerator, sneakily put it away and then ask her where the cream was. He would stack cups on the table to see how high they would go, occasionally knocking something over. All the while he was doing this, smiling wickedly at me, he was watching her carefully to see just how far he could push her. Eventually, she would yell at him to “knock the crap off” and he would be so visibly proud of himself. Amazingly, antics like that happened for years and she never figured out that he was doing it on purpose.

After the shenanigans of breakfast, I would dutifully follow him downstairs. He had a big sink with a mirror and he would shave with a straight razor. After he brushed his face with shaving cream he would catch me admiring him in the mirror and he would wink at me, make a crazy face and pretend he was about to slash his throat with the razor. It didn’t traumatize me, I loved it. I would recap all of his antics, and my poor grandmother’s suffering, to my mother when she picked me up Saturday afternoon. We would compare notes, she would tell me of similar breakfasts, lunches and dinners just like them.

My love for my grandparents would always be strong. They were supportive of me and I made as much time as I could to see them. My grandmother was a strong, willful and sweet woman but she was a tough, off the Mayflower Yankee and was often humorless. She would die at 104 of old age. Her only medical condition was Scottish Alzheimer’s. A condition where you forget everything except who you don’t like. My Grandfather would only see 92. Pneumonia would release some long dormant asbestos he inhaled in the Navy in WWII and take him from us.

He lived a good life. He was a hard-working kid who married his high school sweetheart. Enlisted in the Navy Seabees and fought in the Pacific. He returned home to build a house and start a family with the bride that waited for his return. He would help his wife through 2 miscarriages, the untimely death of his 4-year-old son Charles in the very kitchen that so many happy memories occurred. He carried his family through my mother being in a coma and nearly dying of spinal meningitis when she was 9. Through all of this he smiled, deflected life’s bullets, cracked wise with lines such as “don’t take any wooden nickels”, “see you in the funny papers”, and the classic “I see the light at the end of the tunnel, it’s a goddamn train.”

He’s always with me. My bed is a family heirloom, he was born in it. I carry his pocket watch. I have all of his watches on my nightstand, I also have all of the letters that he sent to my grandmother during WWII. Letters describing his daily life as a sailor, written nearly every day. If not, there was an apology and an explanation. In these letters he tells my grandmother what kind of life he wants to lead with her when, not if, he made it home. He affectionately called her “kid” and he would do so until his final goodbye. They were married 65 years. He was her Knight. http://lindaghill.com/2018/01/28/jusjojan-daily-prompt-january-28th-2018/ Honest, strong, committed to keeping her safe. He would cross the world and slay dragons for her

His humor, his loyalty, his simple approach to life are things that I aspire to have always. I am happy that I still quote him, pull pranks, push people to the edge and do things like openly complain that the brownie pan is defective because it only generated 4 corner pieces. I made that joke last night as I stole the last corner, my mother slapped my wrist and said, “you’re just like your grandfather.” Yup, I’ll take it.

#what if…we turned our thoughts upside down?

I sold cars for a long time. I was very successful, a top performer every month. My customers appreciated my honest, straightforward and knowledgeable approach. I actually had a customer tell me that I changed the car-buying experience for them, that I was the “anti-salesman.” I have never done a job that came more naturally to me than selling cars. It was almost gratifying. Some people treated me like a schmuck, which is tough for the alpha male that I am, but I’m not a schmuck and I handled them like I did everyone else. With courtesy and professionalism. One of my fellow salesmen nicknamed me “the magic man” because I kept turning the impossible customers into the possible. It’s not a Vulcan mind trick, it’s a matter of reading people and controlling your body language.

Unfortunately, the negatives outweighed the positives. The income was very up and down, paying monthly bills could be challenging if you were living check to check. You have to be a strong saver. My wife hated the ups and downs, which eventually drove me to seek more “stable” employment. Loosely translated, she would rather have me make less money but know what the envelope contained as opposed to letting me earn more, which I was certainly capable of. I’ll never understand that mentality.

Another negative to car sales, and I won’t list them all, is controlling the green monster we all know as envy. Much of car sales is luck, sometimes you meet a guaranteed sale, sometimes you meet one that if you work hard enough it may happen, and sometimes you get a giant waste of your time. Having been one of the top dogs in the dealership I rarely had a bad month. I had the occasional dry spell and I would like to tell you that I weathered it well and remained positive. But I would be lying. There were times when I couldn’t catch a break. It almost always worked itself out but it feels like an eternity until it does.

I genuinely want people around me to succeed. I also feel bad for people, at least those that try but need help. I was always willing to share a sale or hand one off to someone who needed it more than I did. I was never greedy. I offered to help new or struggling employees to make them better. I genuinely was in tune with those around me. And some of them absolutely hated me, for no other reason than that I was good at what I did. To those that aren’t successful, a slump is frustrating and when someone around you is killing it, it’s easy to be jealous. Even wish for them to fail.

At my last job, before I became really ill, I took another position selling cars. I was not successful. The reasons aren’t important, there were people and forces that would make it impossible for me to succeed, but it had nothing to do with my personality or technique. I struggled badly, began to doubt myself and began to feel hostility towards those who were doing well. I didn’t want those around me to fail, but their success angered me. I was facing a side of me I didn’t want to and had to ask myself Am I a hypocrite? As the saying goes, I needed to “check myself before I wrecked myself” and change my mindset. But I was alarmed.

Hence today’s “what if?”. What if we turned our thoughts around.?

If I had to decipher the energy I feel around me I would say it is overwhelmingly negative. Social media, the news, late-night talk shows, talk radio and Network news are flooded with hate, bias, and vitriol. We are hopelessly divided, all sides wishing for the others to fail. Each telling the other how wrong they are.

We wish failure on those who disagree with us. We treat them as enemies and engage them in a war. We are so very well versed in what we differ on. Yet we know little of what we share in common. Wouldn’t it be better to focus on what we agree on or have in common? Isn’t it better to stand in unity than to sit in protest? Isn’t the sharing of ideas the basis of growth, or has remaining silent and holding back because it is not “along party lines” the new protest?

We can want what we want without wishing bad things on others. Our success lies in the number of people we can unite, not alienate. Promotions should be awarded to the most qualified, games should be won by the team with the most heart, respect should be given to those worthy of it, and we should wish the best for each other. Things will inevitably go the way it should. If you can’t wish someone a nice day then wish them the day they deserve. And let Karma sort that shit out.

“Be kind to those that you meet, for each is fighting a hard battle.” I live by these words, I regret the times that I have waded into that pool of negativity. I will never again. I wish everyone well and I want everyone to succeed. The road to happiness is not paved with the broken dreams of my fellow man. As I try to live this way, I have an inner peace that is practically struggling to burst from my chest.

I wish you well, because you deserve it. This is who I am now, and this is what I do.